2026-03-14T14:57:31-07:00 2025-12-31 990EZ 2025-01-01 870954362 SMA-PME RESEARCH SMA- 8439027411 903 Waterbridge Blvd Myrtle Beach SC 29579 Charles Irwin Treasurer 5712744859 2026-03-14 2025 2025-03-06 01:10:19Z X SMA-PME.ORG X X 70455 X 68600 0 0 1855 0 0 0 0 0 0 0 0 0 0 0 70455 73001 0 0 350 0 1202 1462 76015 -5560 58785 -12509 40716 X 58785 53225 0 0 0 0 58785 53225 0 12509 58785 40716 Medical Research to find cure for SMA-PME Part III, Line 28: Cedars Sinai Biomanufacturing Center was funded $60,492.00 to conduct a process demo run for ASAH1 gene related SMA-PME treatment. SMA-PME stands for Spinal Muscular Atrophy with Progressive Myoclonic Epilepsy. 0 60492 Part III, Line 29: Expression Manufacturing LLC was funded $12,509.00, which represented half of their cost to manufacture pre-clinical near Good Manufacturing Practice (GMP) lots of lentivirus for SMA-PME process demo runs. 0 12509 73001 Mary S Irwin President 10 0 0 0 Danny R Redmon Vice President 2 0 0 0 William P Stack Board Member 1 0 0 0 Dennis P Lienard Board Member 2 0 0 0 Jon J Furuno Board Member 1 0 0 0 Charles P Irwin Treasurer 2 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 SC Charles P Irwin 903 Waterbridge Blvd Myrtle Beach SC 29579 5712744859 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 24203 26957 12393 6109 68600 138262 24203 26957 12393 6109 68600 138262 59902 78360 138262 0 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 10 Line 10: Cedars-Sinai Biomanufacturing Center Class of Activity: Research 8687 Melrose Avenue, Suite B227 West Hollywood, CA 90059 USA Amount Given: $60,492.000 Expression Manufacturing, LLC Class of Activity: Research 4692 Brate Drive, Bldg 5, Suite 1 West Chester, OH 45011 USA Amount Given: $12,509.00 Total Amount Given: $73,001.00 Form 990-EZ, Part I, Line 16 Description;Amount^Directors and Officers Insurance Renewal;1462^Total;1462^ Form 990-EZ, Part I, Line 20 Outstanding Account Payable to Expression Manufacturing LLC of $12,509.00, which represent remaining half of their cost to complete manufacture pre-clinical near Good Manufacturing Practice (GMP) lots of lentivirus for SMA-PME process demo runs. Form 990-EZ, Part II, Line 26 Outstanding Account Payable to Expression Manufacturing LLC of $12,509.00, which represent remaining half of their cost to complete manufacture pre-clinical near Good Manufacturing Practice (GMP) lots of lentivirus for SMA-PME process demo runs.