2026-09-08T07:18:31-05:00 2025-12-31 341897225 HILL BARTH & KING LLC 101 CRAWFORDS CORNER ROAD SUITE 2216 HOLMDEL NJ 07733 990 2025-01-01 201155709 THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC IGAN 7327707377 PO BOX 1322 WALL NJ 07719 LEONARD ERLANGER PRESIDENT 7327707377 2026-09-03 1 KATHLEEN M CLAYTON CPA P01448135 7323818887 2026-09-03 2025 LEONARD ERLANGER PO BOX 1322 WALL NJ 07719 3995717 0 X WWW.IGANEPHROPATHY.ORG X 2004 NJ THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY, WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT. 9 9 9 100 0 0 2516994 3826607 1852 77164 69825 91946 0 0 2588671 3995717 108000 294578 0 0 482088 646021 0 0 34586 1648612 2030493 2238700 2971092 349971 1024625 2684687 3667992 532056 490736 2152631 3177256 X THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY, WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT. 0 0 685907 60278 CONFERENCES AND MEETINGSSPARK IS A TWO-DAY IN-PERSON ANNUAL PATIENT CONFERENCE ATTENDED BY PATIENTS AND THEIR FAMILY MEMBERS. THE EVENT EDUCATES PATIENTS AND CREATES A NETWORK.IGAN INNOVATIONASN KIDNEY WEEK NKF SPRING CLINICAL MEETINGGLOMCON 1736075 31578 16886 EDUCATION AND ADVOCACYTHE FOUNDATION PROVIDES SUPPORT AND EDUCATIONAL RESOURCES TO PATIENTS AND THEIR FAMILIES WHO ARE HANDLING IGA NEPHROPATHY, INCLUDING PATIENT AID.PROGRAMS INCLUDE : STIKE OUT IGAN, IGAN AWARENESS DAY, PATIENT ENGAGEMENT PROGRAMS, MONTHLY SUPPORT PROGRAMS, PODCASTS AND WEBINARS, IGAN PLUS MOBILE APPLICATION, GO GLOBAL, AND DIPSTICK URINALYSIS SCREENING INITIATIVE ( DUSI) 263000 263000 RESEARCH GRANTS.COLUMBIA UNIVERSITYUNIVERSITY OF ALABAMA AT BIRMINGHAMLOMA LINDA UNIVERSITY 2684982 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 33 0 9 1 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 1 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 AL AR CA FL GA HI IL KS KY MA MD MI MN MS NC ND NH NJ NM NY OR PA RI SC TN UT VA WI WV X EXECUTIVE DIRECTOR 7327707377 1608 MAXWELL DRIVE WALL NJ 07719 LEONARD ERLANGER PRESIDENT 5.00 X X 0 0 0 BRIAN PARLATO VICE PRESIDENT 5.00 X X 0 0 0 JULIE SCROGGINS TREASURER 5.00 X X 0 0 0 MICHAEL WARNER DIRECTOR 2.00 X 0 0 0 EDWARD SCHNEIDER DIRECTOR 2.00 X 0 0 0 HAROLD COTLER DIRECTOR 2.00 X 0 0 0 AMI GOPALAN DIRECTOR 2.00 X 0 0 0 JOHN WOJTAL ESQ DIRECTOR 2.00 X 0 0 0 MARGARET WARNER DIRECTOR 2.00 X 0 0 0 BONNIE SCHNEIDER EXECUTIVE DIRECTOR 35.00 X 180000 0 7200 180000 0 7200 1 0 1 0 IMPACT HEALTH COMMUNICATIONS LLC 15 ABBEY RD DARIEN CT 06820 MEDICAL WRITING, MARKETING, PLANNING 171100 1 3826607 3826607 PROGRAM REVENUE 900099 77164 77164 77164 91946 91946 3995717 77164 0 91946 X 279900 279900 14678 14678 180000 144000 27000 9000 397156 352354 42259 2543 21281 17003 3493 785 47584 40446 6186 952 4333 4333 73342 73342 440163 421860 18303 234 234 23677 8053 14972 652 264503 259213 5290 8827 8827 PROGRAMS AND MEETINGS-D 1119894 1085895 22666 11333 TRAINING COSTS 59930 57533 2397 MISCELLANEOUS 16272 16272 DUES & SUBSCRIPTIONS 9196 3494 5702 10122 4047 2456 3619 2971092 2684982 251524 34586 432575 677048 2041219 2708165 88000 21026 210893 173753 2684687 3667992 67056 170736 465000 320000 532056 490736 X 2102631 3177256 50000 0 2152631 3177256 2684687 3667992 1024625 0 X 0 1 X 1 0 X 631853 1483121 3012372 2516994 3826607 11470947 631853 1483121 3012372 2516994 3826607 11470947 6786093 4684854 35166 69825 91946 196937 11667884 123013 0.40150 0.43150 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 3995717 0 3995717 0 3995717 2971092 0 2971092 0 2971092 PART X, LINE 2: THE FOUNDATION IS A NOT-FOR-PROFIT FOUNDATION THAT IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(A) AS DESCRIBED UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND COMPARABLE STATE LAW AS A CHARITABLE FOUNDATION, WHEREBY ONLY UNRELATED BUSINESS INCOME, AS DEFINED BY SECTION 512 OF THE CODE IS SUBJECT TO FEDERAL INCOME TAX. THE FOUNDATION CURRENTLY HAS NO UNRELATED BUSINESS INCOME. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN RECORDED. THE FOUNDATION IS REQUIRED TO FILE FORM 990, RETURN OF FOUNDATION EXEMPT FROM INCOME TAX, WITH THE INTERNAL REVENUE SERVICE AND THE NEW JERSEY CHARITIES REGISTRATION & INVESTIGATION FORM (CRI). THE FOUNDATION FOLLOWS THE INCOME TAX STANDARDS FOR UNCERTAIN TAX POSITIONS. THIS STANDARD HAD NO IMPACT ON THE FOUNDATION'S FINANCIAL STATEMENTS. THE FOUNDATION'S INCOME TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. THE FOUNDATION IS NOT AWARE OF ANY ACTIVITIES THAT WOULD JEOPARDIZE ITS TAX-EXEMPT STATUS OR ANY ACTIVITIES THAT ARE SUBJECT TO TAX ON UNRELATED BUSINESS INCOME TAXES. 0 COLUMBIA UNIVERSITY IRVING MEDICAL CENTER 516 WEST 168TH STREET 3FL NEW YORK NY 10032 135598093 501C3 100000 0 RESEARCH CULINARY NUTRITION FOR KIDNEYS INC 11 BLAKELY AVE SOMERVILLE MA 02145 874734309 501C3 16900 0 PROGRAM SUPPORT LOMA LINDA UNIVERSITY HEALTH 24887 TAYLOR STREET SUITE 202 LOMA LINDA CA 02350 953804495 501C3 66000 0 PROGRAM SUPPORT UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVE S BIRMINGHAM AL 35294 636001138 501C3 97000 0 RESEARCH 4 0 PATIENT ASSISTANCE 14 14678 CASH VALUE 1 X 0 0 0 0 0 0 0 0 0 BONNIE SCHNEIDER EXECUTIVE DIRECTOR 180000 0 0 0 0 0 7200 0 0 0 187200 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 TWO OTHER BOARD MEMBERS, MARGARET AND MICHAEL WARNER ARE RELATED BY MARRIAGE. MARY KATE SCHNEIDER AND EDWARD SCHNEIDER ARE THE DAUGHTER AND SON OF THE EXECUTIVE DIRECTOR. EDWARD SCHNEIDER IS MARRIED TO THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD PROVIDES THE FULL 990 TO THE BOARD PRIOR TO FILING FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES INFORMATION AVAILABLE FOR PUBLIC INSPECTION UPON WRITTEN REQUEST. FORM 990, PART IX, LINE 11G OTHER CONSULTANTS: PROGRAM SERVICE EXPENSES 336,771. MANAGEMENT AND GENERAL EXPENSES 13,425. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 350,196. MARKETING: PROGRAM SERVICE EXPENSES 78,240. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 78,240. RETIREMENT PLAN ADVISOR: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 4,878. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 4,878. HONORARIUMS: PROGRAM SERVICE EXPENSES 6,849. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 6,849.