2026-08-07T16:12:20-04:00 2025-09-30 203746583 TAYLOR ROTH AND COMPANY 1580 LINCOLN ST STE 520 DENVER CO 802031517 990 2024-10-01 133292137 INTERSTITIAL CYSTITIS ASSOCIATION OF AMERICA INC INTE 7205151411 388 S MAIN STREET SUITE 440-157 AKRON OH 44311 LAURA SANTURRI EXECUTIVE DIRECTOR 7205151411 2026-08-07 true KEN ROTH P01389203 3038308109 2026-08-07 2024 2025-03-06 01:10:19Z LAURA SANTURRI 388 S MAIN ST SUITE 440-157 AKRON OH 44311 399060 false X ICHELP.ORG X 1984 NY TO ADVOCATE FOR RESEARCH DEDICATED TO DISCOVERY OF A CURE AND BETTER TREATMENTS, RAISE AWARENESS, AND SERVE AS A CENTRAL HUB FOR HEATHCARE PROVIDERS, RESEARCHERS AND MILLIONS OF PATIENTS WITH INTERSTITIAL CYSTITIS. 9 9 2 9 0 390726 315265 92884 83569 891 226 2463 0 486964 399060 0 0 246236 0 54629 633847 201304 633847 447540 -146883 -48480 165553 108396 47121 38444 118432 69952 TO ADVOCATE FOR RESEARCH DEDICATED TO DISCOVERY OF A CURE AND BETTER TREATMENTS, RAISE AWARENESS, AND SERVE AS A CENTRAL HUB FOR HEATHCARE PROVIDERS, RESEARCHERS AND MILLIONS OF PATIENTS WITH INTERSTITIAL CYSTITIS. false false 162275 83569 EDUCATION: THE ICA DELIVERS CRITICAL HEALTH INFORMATION TO PATIENTS, CAREGIVERS, HEALTHCARE PROVIDERS, RESEARCHERS, AND THE PUBLIC. PROGRAMS INCLUDE MONTHLY WEBINARS ABOUT IC/BPS FOR PATIENTS, FAMILY MEMBERS, HEALTHCARE PROVIDERS, AND THE PUBLIC; EDUCATIONAL RESOURCES SUCH AS THE ICA UPDATE MAGAZINE AND MONTHLY ICA ENEWS AND RESEARCH DIGEST; DIRECT PATIENT PROGRAMMING THAT PROVIDES EDUCATION AND SUPPORT, AND A COMPREHENSIVE WEBSITE. 82918 ADVOCACY: THE DISABLING PAIN, URGENCY, AND FREQUENCY OF IC/BPS STAYS WITH PATIENTS FOR THEIR LIFETIME. THE ICA RAISES AWARENESS AMONG LEGISLATORS AND KEY DECISION MAKERS ABOUT THE NEED FOR EXPANDED RESEARCH FUNDING TO FIND A CURE AND HEALTHCARE OPTIONS TO ADDRESS THE SPECIAL NEEDS OF IC/BPS PATIENTS. 80422 GENERAL PROGRAMS: IN ADDITION TO THE ICA'S EDUCATIONAL AND ADVOCACY INITIATIVES, THE ICA PROVIDES A COMMUNITY OF SUPPORT FOR PEOPLE LIVING WITH IC/BPS AND THOSE WHO CARE FOR THEM. THESE INITIATIVES INCLUDE ONLINE SUPPORT COMMUNITIES; THE ICA AMBASSADOR PROGRAM, PROVIDING GUIDANCE (BUT NOT MEDICAL ADVICE) IN RESPONSE TO DIRECT COMMUNITY INQUIRIES; AND OUR PODCAST THAT PROVIDES AN OUTLET FOR SHARING STORIES AND HELPING PATIENTS FEEL LESS ALONE. 325615 true true false true false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 5 0 true 2 true false false false false false false false false false false false false X 9 9 false false false false false false false true true false false true true true true true true false false false X X X LAURA SANTURRI 7205151411 388 S MAIN STREET SUITE 440-157 AKRON OH 44311 LAURA SANTURRI EXECUTIVE DI 40.00 X 0 0 0 CLAUDIA KING CEO 40.00 X 25000 0 0 AMBER CARTER FRAUENHOFER CHAIR 3.00 X X 0 0 0 CALLIE KRAJCIR VICE CHAIR 3.00 X X 0 0 0 ILKA ROSS TREASURER 3.00 X X 0 0 0 SHELLEY KARDON SECRETARY 3.00 X X 0 0 0 CHRISTOPHER MEENAN DIRECTOR 1.50 X 0 0 0 ERIC ZARNIKOW DIRECTOR 1.50 X 0 0 0 JANELLE FABA DIRECTOR 1.50 X 0 0 0 NATASHA BOSWELL DIRECTOR 1.50 X 0 0 0 LEE KING DIRECTOR 1.50 X 0 0 0 JESSE FRAUENHOFER DIRECTOR 1.50 X 0 0 0 SARAH COJOCARU DIRECTOR 1.50 X 0 0 0 THEDA KHRESTIN DIRECTOR 1.50 X 0 0 0 DAVID KLUMPP DIRECTOR 1.50 X 0 0 0 HOLLY GOODWIN DIRECTOR 1.50 X 0 0 0 AVERY SINGER DIRECTOR 1.50 X 0 0 0 LAURA SANTURRI CHAIR 3.00 X X 0 0 0 CLAUDIA KING VICE CHAIR 3.00 X X 0 0 0 25000 false false false 315265 315265 CORPORATE PARTNERSHIPS 900099 62429 62429 PROGRAM INCOME 900099 18524 18524 CONFERENCE REGISTRATION 2616 2616 83569 226 226 399060 83569 226 131250 111562 6563 13125 92626 78732 4631 9263 22360 19006 1118 2236 46065 40537 921 4607 9984 9984 15020 15020 26250 26250 13905 13905 10112 1605 3710 4797 28771 3586 14926 10259 7464 7464 2947 2947 INTERNET OUTREACH 32590 22041 207 10342 ALL OTHER 8196 927 7269 447540 325615 67296 54629 68894 90917 36281 26500 4500 354 33524 12979 165553 108396 21288 29294 25833 9150 47121 38444 X 118432 69952 118432 69952 165553 108396 -48480 X false true X true false X 718809 558771 542416 390726 315265 2525987 718809 558771 542416 390726 315265 2525987 73930 2452057 3 14 23 891 226 1157 451 7391 3216 2463 13521 2540665 343045 0.96510 0.82840 X PART II, LINE 10 13,521 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 26250 26250 396290 422540 84508 21127 119494 122334 120112 84508 446448 669672 53001 53736 54083 26250 187070 29874 30584 30028 21127 111613 167420 399060 399060 399060 447540 447540 447540 FORM 990, PAGE 6, PART VI, LINE 11B THE EXECUTIVE DIRECTOR REVIEWS THE FORM 990 AND PRESENTS IT TO THE TREASURER AND THE ENTIRE BOARD FOR REVIEW BEFORE IT IS SIGNED AND FILED. FORM 990, PAGE 6, PART VI, LINE 12C EACH DECEMBER, THE ICA SENDS WRITTEN REMINDERS TO MEMBERS OF THE BOARD ABOUT THE CONFLICT OF INTEREST POLICY. THE REMINDER IS SENT ALONG WITH A STANDARD DISCLOSURE FORM. BOARD MEMBERS ARE ASKED TO LIST CONFLICTS OF INTEREST, SIGN AND DATE THE FORM, AND RETURN IT TO THE ICA OFFICE FOR FILING. FORM 990, PAGE 6, PART VI, LINE 19 THE ICA MAKES FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON THE ICA WEBSITE (WWW.ICHELP.ORG) AS A DOWNLOADABLE PDF. A LIMITED NUMBER OF COPIES ARE ALSO AVAILABLE IN PRINTED FORMAT. THE ICA MAKES THE CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO STANDARD OF EXCELLENCE ORGANIZATIONS AND FUNDERS, AS REQUIRED. REQUESTS BY OTHERS ARE DETERMINED ON AN INDIVIDUAL BASIS BY THE EXECUTIVE DIRECTOR WHO CONSULTS WITH THE BOARD OF DIRECTORS, AS NEEDED, ON SUCH DECISIONS.