2026-07-08T08:04:18-07:00 2025-12-31 043068663 BERNARD JOHNSON & COMPANY PC 15 S MAIN STREET TOPSFIELD MA 01983 990 2025-01-01 463749890 ALD CONNECT INC ALDC 8335253266 35 VILLAGE ROAD MIDDLETON MA 019491202 TIMOTHY J MAGUIRE TREASURER 8335253266 2026-02-17 true Timothy F Hagan CPA P00365820 9788872220 2026-07-08 2025 2025-03-06 01:10:19Z TIMOTHY J MAGUIRE 35 VILLAGE ROAD MIDDLETON MA 01949 982449 false X www.aldconnect.org X 2013 MA TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY (ALD) BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION 14 14 1 25 0 0 574274 962007 0 35 20442 0 574309 982449 30425 208200 0 147926 0 42298 323349 423993 353774 780119 220535 202330 1252052 1505709 16211 30836 1235841 1474873 TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY (ALD) BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION false false 583392 216188 962007 ALD CONNECT IMPROVES HEALTH OUTCOMES FOR INDIVIDUALS AND FAMILIES AFFECTED BY ADRENOLEUKODYSTROPHY (ALD) THROUGH COMMUNITY ENGAGEMENT, RESEARCH, EDUCATION, PATIENT SUPPORT, AND ADVOCACY. THE ORGANIZATION PROVIDES EDUCATIONAL PROGRAMS, WEBINARS, COMMUNITY CALLS, PEER MENTORING, FINANCIAL ASSISTANCE, AND PATIENT RESOURCES; SUPPORTS RESEARCH THROUGH GRANTMAKING, THE EMERGING INVESTIGATOR PROGRAM, AND THE COLLABORATIVE RESEARCH NETWORK; CONVENES PATIENTS, CAREGIVERS, PHYSICIANS, RESEARCHERS, AND INDUSTRY STAKEHOLDERS THROUGH THE ANNUAL MEETING AND PATIENT LEARNING ACADEMY AND OTHER COLLABORATIVE INITIATIVES; AND ADVANCES AWARENESS, ADVOCACY, AND DATA-DRIVEN PROJECTS TO IMPROVE DIAGNOSIS, CARE, TREATMENT, AND QUALITY OF LIFE FOR INDIVIDUALS AFFECTED BY ALD. 583392 true true false false false false false false false false false false false false false true true false false false true true false false false false false true true false false false false false false false false false false false false false false false false false false true 0 0 1 true false false false false false false false false false false X 14 14 false false false false false false false true true false false true true true true true true false false false MA AL AK AR CA CO CT FL HI IL KS KY ME MD MI MN MS NV NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WV X X KATHLEEN M O'SULLIVAN-FORTIN 9782892395 6 BUTTONWOOD LANE IPSWICH MA 01938 FLORIAN EICHLER MD PRESIDENT 1.00 X X 0 0 0 TIMOTHY J MAGUIRE TREASURER 1.00 X X 0 0 0 GREGORY BENTON SECRETARY 1.00 X X 0 0 0 PATRICIA CHAPMAN DIRECTOR 2.00 X 0 0 0 JOSH BONKOWSKY MD PHD DIRECTOR 1.00 X 0 0 0 S ALI FATEMI MD DIRECTOR 1.00 X 0 0 0 STEPHAN KEMP PHD DIRECTOR 1.00 X 0 0 0 KATHLEEN O'SULLIVAN-FORTIN DIRECTOR 10.00 X 17538 0 0 TROY LUND PHD MD DIRECTOR 1.00 X 0 0 0 AMBER SALZMAN PHD DIRECTOR 1.00 X 0 0 0 PATRICIA MUSOLINO DIRECTOR 1.00 X 0 0 0 KEITH VAN HAREN MD DIRECTOR 1.00 X 0 0 0 AMENA SMITH-FINE DIRECTOR 1.00 X 0 0 0 KELLY MIETTUNEN EXECUTIVE DIRECTOR 28.00 X 128606 0 0 146144 0 0 1 false false false 97005 865002 962007 20442 0 20442 97005 982449 0 0 20442 6600 6600 201600 201600 128606 25721 90024 12861 17538 17538 0 0 1782 1782 0 0 24786 19617 3037 2132 28960 0 28960 0 6714 0 6714 0 42962 20512 0 22450 18604 0 18604 0 2186 0 2186 0 11949 11949 0 0 165649 165649 0 0 215 0 215 0 1475 0 1475 0 BANK SERVICE FEES 3989 2313 688 988 PATIENT SUPPORT/OUTREACH 26881 26881 0 0 PRINTING AND PUBLISHING 3867 0 0 3867 PAYROLL SERVICE FEES 406 406 0 0 85350 82824 2526 0 780119 583392 154429 42298 554475 743590 185411 11214 13945 873 798 497824 745336 2255 2040 1252052 1505709 16211 30836 16211 30836 X 1079208 861591 156633 613282 1235841 1474873 1252052 1505709 202330 36702 X true X false false false X 0 0 461563 378083 412502 574274 962007 2788429 -510 0 0 0 0 -510 0 0 461053 378083 412502 574274 962007 2787919 0 0 0 2787919 0 267 825 1209 20442 22743 0 267 825 1209 20442 22743 461053 378350 413327 575483 982449 2810662 0.99190 0.99890 0.00810 0.00110 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 1012437 36702 36702 975735 6714 6714 982449 773405 773405 6714 6714 780119 Pt X, Line 2 THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE FINANCIAL STATEMENTS. UNDER THAT GUIDANCE, ALD CONNECT MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WILL BE SUSTAINED ON EXAMINATION BY THE TAXING AUTHORITIES BASED ON THE TECHNICAL MERITS OF THE POSITION. THE TAX BENEFITS RECOGNIZED IN THE FINANCIAL STATEMENTS FROM SUCH A POSITION ARE MEASURED BASED ON THE LARGEST BENEFIT THAT HAS A GREATER THAN 50% LIKELIHOOD OF BEING REALIZED UPON ULTIMATE SETTLEMENT. THERE WERE NO UNRECOGNIZED TAX BENEFITS IDENTIFIED OR RECORDED AS LIABILITIES AT DECEMBER 31, 2025. true Europe 0 0 MEDICAL RESEARCH GRANTMAKING 201600 0 0 0 0 201600 201600 Europe RESEARCH 6600 CHECK 0 0 FMV Europe RESEARCH 195000 CHECK 0 0 FMV 2 false false false false false false Pt I Line 2 INTERNATIONAL ORGANIZATIONS MUST BE PREDETERMINED TO BE EQUIVALENT TO DOMESTIC 501(C)(3) ORGANIZATIONS OR FOLLOW THE EXPENDITURE RESPONSIBILITY PROCESS FOR ALD CONNECT TO CONSIDER THEM ELIGIBLE TO RECEIVE GRANTS. GRANTS ARE MONITORED THROUGH PERIODIC FINANCIAL REPORTS. GRANTEES ARE REQUIRED TO SUBMIT A FINANCIAL REPORT ACCOUNTING FOR THE USE OF GRANT FUNDS, INCLUDING AN ITEMIZATION OF EXPENSES, A LIST OF OTHER SOURCES OF FUNDING, AND OTHER RELEVANT ACCOUNTING INFORMATION. DETAILED REPORTS COVERING THE IMPLEMENTATION OF PROJECTS, ANALYSIS OF RESEARCH OUTCOMES, AND MEETING WITH REPRESENTATIVES OF GRANTEE ORGANIZATIONS AND BENEFICIARIES ARE FILED BY STAFF OR CONTRACTORS. true JOHNS HOPKINS UNIVERSITY 3400 N CHARLES STREET BALTIMORE MD 21218 520595110 6600 RESEARCH 0 0 Pt VI, Line 11b A DRAFT OF FORM 990 IS DISTRIBUTED TO ALL BOARD MEMBERS; IN PARTICULAR, THE BOARD TREASURER, TO REVIEW AND APPROVE PRIOR TO FILING. ANY CONCERNS ARE BROUGHT TO THE ATTENTION OF THE BOARD TREASURER FOR DISCUSSION AND RESOLUTION. Pt VI, Line 12c ON AN ANNUAL BASIS, EACH BOARD MEMBER AND KEY EMPLOYEE COMPLETES, SIGNS AND DELIVERS TO THE BOARD TREASURER OR BOARD PRESIDENT AN ANNUAL AFFILIATION DISCLOSURE STATEMENT NAMING ANY AFFILIATION WITH ALD CONNECTS COMPETING/COLLABORATING ORGANIZATIONS, VENDORS AND CONSULTANTS OR OTHER BOARD MEMBERS. ALL RESPONSES ARE REVIEWED BY THE EXECUTIVE BOARD. ANY RESPONSES RAISING CONCERN ARE ADDRESSED AND RESOLVED IN COMPLIANCE WITH POLICY REGARDING CONFLICTS OF INTEREST. Form 990, Part IX, Line 24e HR CONSULTING 2526. 0. 2526. 0. Form 990, Part IX, Line 24e PROGRAM EXPENSES 82824. 82824. 0. 0.