2026-04-15T14:54:13-07:00 2025-12-31 216176601 EASY OFFICE DBA JITASA 1120 S RACKHAM WAY SUITE 300 MERIDIAN ID 83642 990 2025-01-01 452571898 BRAIN RECOVERY PROJECT BRAI 8336753335 969 COLORADO BLVD 101 LOS ANGELES CA 90041 MONIKA JONES PRESIDENT AND CEO 6268332067 2026-04-08 1 JEREMY CORK P01544850 2082874777 2026-04-08 2025 2025-03-06 01:10:19Z PEDIATRIC EPILEPSY SURGERY ALLIANCE MONIKA JONES 969 COLORADO BLVD 101 LOS ANGELES CA 90041 447453 0 X https://epilepsysurgeryalliance.org/ X 2011 CA WE ENHANCE THE LIVES OF CHILDREN WHO NEED NEUROSURGERY TO TREAT THEIR MEDICATION-RESISTANT SEIZURES BY EMPOWERING FAMILIES WITH RESOURCES, FINANCIAL AID, SUPPORT SERVICES, AND RESEARCH BEFORE AND AFTER SURGERY. 9 9 3 75 0 0 417287 431466 50125 0 0 0 0 897 467412 432363 28086 26137 0 0 107766 171292 0 0 37170 360677 140368 496529 337797 -29117 94566 202120 286184 14883 4381 187237 281803 WE ENHANCE THE LIVES OF CHILDREN WHO NEED NEUROSURGERY TO TREAT THEIR MEDICATION-RESISTANT SEIZURES BY EMPOWERING FAMILIES WITH RESOURCES, FINANCIAL AID, SUPPORT SERVICES, AND RESEARCH BEFORE AND AFTER SURGERY. 0 0 174534 0 0 INFORMATION AND RESOURCES: IN 2025, THE ALLIANCE TRANSITIONED FROM PROVIDING GENERAL INFORMATION TO DELIVERING HIGH-STAKES SUPPORT AND EDUCATION FOR THE EPILEPSY COMMUNITY. OUR "EPILEPSY SURGERY SAVES LIVES" CAMPAIGN REACHED OVER 70,000 UNIQUE INDIVIDUALS, PROVIDING FAMILIES WITH THE CLINICAL CONTEXT NEEDED TO PURSUE SURGICAL TREATMENT OPTIONS THAT ARE KNOWN TO IMPROVE THE TEN-YEAR LIFE EXPECTANCY OF CHILDREN WITH DRUG-RESISTANT SEIZURES. THIS DIGITAL OUTREACH WAS SUPPORTED BY A ROBUST ONLINE RESOURCE HUB THAT SAW 80,000 PAGE VIEWS, ALONGSIDE NINE EXPERT-LED WEBINARS AND TEN TECHNICAL BLOG POSTS THAT TRANSLATED COMPLEX SEIZURE MANAGEMENT INTO ACTIONABLE GUIDANCE FOR CAREGIVERS. TO IMPROVE THE DAILY LIVES OF STUDENTS, WE TRAINED 140 SCHOOL STAFF MEMBERS ACROSS 16 STATES, MOVING BEYOND BASIC SAFETY TO ADDRESS THE SPECIFIC COGNITIVE AND EDUCATIONAL HURDLES CHILDREN WHO HAVE HAD EPILEPSY SURGERY FACE IN THE CLASSROOM. ON A DIRECT-SERVICE LEVEL, OUR PARENT SUPPORT NAVIGATOR PROGRAM MANAGED MORE THAN 150 REQUESTS FOR ASSISTANCE, PROVIDING A CLEAR ROADMAP FOR FAMILIES OVERWHELMED BY A NEW DIAGNOSIS OR A CHANGE IN CARE. BY FACILITATING ONE-ON-ONE PEER MENTORSHIP FOR 90+ PARENTS, WE ENSURED THAT CAREGIVERS HAD THE EMOTIONAL AND PRACTICAL FORTITUDE TO ADVOCATE FOR THEIR CHILDREN WITHIN BOTH THE MEDICAL AND SCHOOL SYSTEMS. 44455 0 0 ADVOCACY AND COLLABORATION: THROUGH ACTIVE PARTICIPATION IN LEADING NATIONAL AND INTERNATIONAL NETWORKS, THE ALLIANCE ENSURES THE NEEDS OF FAMILIES NAVIGATING COMPLEX EPILEPSY ARE REPRESENTED WITHIN THE BROADER MEDICAL AND EDUCATIONAL SECTORS. IN 2025, WE CONTRIBUTED OUR EXPERTISE TO SEVERAL HIGH-IMPACT GROUPS, INCLUDING THE RARE EPILEPSIES NETWORK, THE INFANTILE SPASMS ACTION NETWORK, THE EPILEPSY LEADERSHIP COUNCIL OF THE AMERICAN EPILEPSY SOCIETY, AND PERKINS SCHOOL FOR THE BLIND. OUR STAFF PROVIDED TECHNICAL PRESENTATIONS AND ADVOCACY-FOCUSED SESSIONS AT MAJOR PROFESSIONAL MEETINGS, SUCH AS THE NATIONAL ASSOCIATION OF SCHOOL NURSES, THE COUNCIL OF PARENT ATTORNEYS AND ADVOCATES, THE AMERICAN EPILEPSY SOCIETY, AND THE AMERICAN ACADEMY OF AUDIOLOGY, DIRECTLY INFORMING THE CLINICIANS AND SCHOOL-BASED PROFESSIONALS WHO MANAGE PATIENT CARE AND SCHOLASTIC EDUCATION. FURTHERMORE, WE FACILITATED TWO IN-PERSON TRANSITION OF CARE MEETINGS, BRINGING TOGETHER CLINICIANS AND INDUSTRY STAKEHOLDERS TO ADDRESS THE SPECIFIC CHALLENGES YOUNG ADULTS WHO HAD EPILEPSY SURGERY FACE WHEN MOVING INTO ADULT HEALTHCARE SYSTEMS. 31744 26137 0 FINANCIAL AID :THE DREAMS FOR DANNY SURGICAL EVALUATION SCHOLARSHIP PROGRAM REMOVES FINANCIAL BARRIERS FOR FAMILIES SEEKING SPECIALIZED CARE FOR CHILDREN WITH DRUG-RESISTANT EPILEPSY. BY PROVIDING UP TO $1,000 FOR TRAVEL AND LODGING, THE PROGRAM ENSURES THAT GEOGRAPHICAL DISTANCE AND THE HIGH COSTS OF MULTI-DAY DIAGNOSTIC MONITORING DO NOT PREVENT CHILDREN FROM ACCESSING LEVEL 4 EPILEPSY SURGERY CENTERS. IN 2025, THE ALLIANCE AWARDED $46,000 IN FINANCIAL AID, AUTHORIZING CRITICAL SUPPORT FOR FAMILIES TRAVELING OVER 50 MILES TO REACH PEDIATRIC SPECIALISTS. OF THESE COMMITMENTS, $26,137 WAS DISBURSED DURING THE FISCAL YEAR TO COVER IMMEDIATE AIRFARE, TRANSPORTATION, AND ACCOMMODATIONS, WITH THE REMAINING BALANCE ALLOCATED FOR ONGOING CLINICAL EVALUATIONS. BY SUBSIDIZING THESE ESSENTIAL LOGISTICAL COSTS, THE SCHOLARSHIP ENABLES EQUITABLE ACCESS TO SURGICAL CONSULTATIONS AND ALLOWS CAREGIVERS TO FOCUS ENTIRELY ON THEIR CHILD'S MEDICAL PATH AND RECOVERY. 14197 0 0 RESEARCH: THE ALLIANCE INITIATES AND FUNDS PATIENT-POWERED RESEARCH DESIGNED TO UNDERSTAND AND IMPROVE LONG-TERM SURGICAL OUTCOMES. IN 2025, OUR GLOBAL PEDIATRIC EPILEPSY SURGERY REGISTRY THE REACHED A MILESTONE OF 494 ENROLLED PARTICIPANTS, PROVIDING THE ROBUST DATA SET NECESSARY TO FINALIZE A MAJOR MANUSCRIPT ON FUNCTIONAL OUTCOMES FOLLOWING HEMISPHERIC SURGERY. TO ENSURE THIS RESEARCH TRANSLATES INTO CLINICAL PRACTICE, WE CONVENED A CONSORTIUM OF LEADING CLINICIANS TO DEVELOP A FORMAL PAPER ON STANDARDIZED SYMPTOM SURVEILLANCE AND SCREENING PROTOCOLS AFTER HEMISPHERECTOMY. OUR COMMITMENT TO ADVANCING THE FIELD WAS FURTHER DEMONSTRATED AT THE AMERICAN EPILEPSY SOCIETY ANNUAL MEETING, WHERE WE CONVENED A CRITICAL WORKING GROUP OF NEUROLOGISTS AND NEUROSURGEONS TO ADDRESS THE SYSTEMIC GAPS IN TRANSITIONING PEDIATRIC PATIENTS TO ADULT NEUROSURGICAL CARE. BY FACILITATING THESE HIGH-LEVEL CLINICAL DIALOGUES AND SERVING ON RESEARCH COMMITTEES FOR THE PEDIATRIC EPILEPSY SURGERY CONSORTIUM AND THE INTERNATIONAL LEAGUE AGAINST EPILEPSY, RHE ALLIANCE ENSURES THAT THE CAREGIVER PERSPECTIVE DIRECTLY INFORMS THE GLOBAL RESEARCH AGENDA AND THE EVOLUTION OF CLINICAL STANDARDS. 14197 0 0 264930 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 3 0 1 3 1 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CA X X X MONIKA JONES 8336753335 969 COLORADO BLVD 101 LOS ANGELES CA 90041 MONIKA JONES PRESIDENT AND CEO 40 X 46673 0 0 MATT FLESH BOARD CHAIR 3 X X 0 0 0 DAPHNE MAGDALENO BOARD TREASURER 1 X X 0 0 0 MARY VERNICK BOARD SECRETARY 1 X X 0 0 0 SANDI LAM MD DIRECTOR 1 X 0 0 0 TAYLOR ABEL MD DIRECTOR 1 X 0 0 0 ARIA FALLAH MD DIRECTOR 1 X 0 0 0 GARY MATHERN MD DIRECTOR EMERITUS 1 X 0 0 0 LUKE SHEPARD DIRECTOR EMERITUS 1 X 0 0 0 KAITLYN O'CONNOR DIRECTOR 1 X 0 0 0 NATALIE ROBINSON DIRECTOR 1 X 0 0 0 46673 0 0 0 0 0 0 0 0 0 32136 0 0 399330 5000 431466 0 0 0 0 0 15875 32136 15090 785 0 785 REIMBURSEMENTS 900099 112 112 0 0 0 0 0 0 112 432363 112 0 785 26137 26137 46674 37466 1374 7834 111883 89810 3294 18779 606 606 12129 9299 404 2426 15312 15312 26942 26188 754 4 4 50921 36614 9764 4543 3612 24 3588 27160 27160 2264 2264 5687 1498 4189 DONATED GOODS 5000 5000 0 0 IRB FEES 3466 3466 0 0 337797 264930 35697 37170 194591 265184 3529 4000 21000 202120 286184 14883 4381 14883 4381 X 117400 178605 69837 103198 187237 281803 202120 286184 94566 0 0 0 0 0 X 0 0 0 X 239432 281182 266379 417287 431466 1635746 239432 281182 266379 417287 431466 1635746 141903 1493843 522 15272 112 15906 1651652 154074 0.90445 0.91129 X Schedule A, Part II, Line 10 OTHER RELATED REVENUE RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED MICRO-EVENTS 48011 32136 15875 0 0 2300 7350 330 5110 0 0 48011 32136 15875 0 0 2300 7350 330 5110 15090 785 1 FINANCIAL ASSISTANCE - DREAMS FOR DANNY TRAVEL 30 26137 Schedule I, Part I, Line 2 THE ORGANIZATION PROVIDES FUNDS WITH THE UNDERSTANDING THAT THEY WILL BE USED TO MEET THE SPECIFIC NEEDS OF THE RECIPIENTS. Form 990, Part VI, Section B, Line 11b THE FULL BOARD REVIEWS THE FORM 990 PRIOR TO EFILING. Form 990, Part VI, Section B, Line 12c EACH DIRECTOR, PRINCIPAL OFFICER, AND MEMBER OF A COMMITTEE WITH GOVERNING BOARD DELEGATED POWERS SHALL ANNUALLY SIGN A CONFLICT OF INTEREST STATEMENT. AFTER DISCLOSURE OF A CONFLICT OF INTEREST AND ALL MATERIAL FACTS, AND AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, HE/SHE SHALL LEAVE THE GOVERNING BOARD OR COMMITTEE MEETING WHILE THE DETERMINATION OF A CONFLICT OF INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD OR COMMITTEE MEMBERS SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS. AFTER EXERCISING DUE DILIGENCE, THE GOVERNING BOARD OR COMMITTEE SHALL DETERMINE WHETHER THE CORPORATION CAN OBTAIN WITH REASONABLE EFFORTS A MORE ADVANTAGEOUS TRANSACTION OR ARRANGEMENT FROM A PERSON OR ENTITY THAT WOULD NOT GIVE RISE TO A CONFLICT OF INTEREST. IF THE GOVERNING BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE A MEMBER HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT SHALL INFORM THE MEMBER OF THE BASIS FOR SUCH BELIEF AND AFFORD THE MEMBER AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE MEMBER'S RESPONSE AND AFTER MAKING FURTHER INVESTIGATION AS WARRANTED BY THE CIRCUMSTANCES, THE GOVERNING BOARD OR COMMITTEE DETERMINES THE MEMBER HAS FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, IT SHALL TAKE APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION. Form 990, Part VI, Section B, Line 15 THE BOARD REVIEWS REASONABLE COMPENSATION FOR THE GEOGRAPHICAL AREA AND ORGANIZATION SIZE. Form 990, Part VI, Section C, Line 19 AVAILABLE ON WEBSITE AND UPON REQUEST. FORM 990 CAN BE FOUND VIA IRS.GOV AND GUIDESTAR.ORG