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        <ExplanationTxt>TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS AND EVENTUALLY THEIR MENTAL CAPACITY. THE GOAL OF THIS CHARITY WAS TO RAISE ENOUGH FUNDS TO SUPPORT THE GENE THERAPY TO TREAT SPG50. THE FDA APPROVED A CLINICAL TRIAL FOR THAT GENE THERAPHY IN THE US IN AUGUST OF 2022.</ExplanationTxt>
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