2026-06-04T12:24:24-04:00 2025-12-31 341602442 H & J CERTIFIED PUBLIC ACCOUNTANTS INC 7555 FREDLE DR STE 110 CONCORD OH 44077 990 2025-01-01 223611011 PLATELET DISORDER SUPPORT ASSOCIATION PLAT 4407469003 8751 BRECKSVILLE RD BRECKSVILLE OH 44141 CAROLINE KRUSE PRESIDENT & CEO 4407469003 2026-05-26 true ROLLAND B STANDISH P00169705 4409512997 2026-06-04 2025 2025-03-06 01:10:19Z PETER PRUITT 8751 BRECKSVILLE RD NO 150 CLEVELAND OH 44141 2988718 false X WWW.PDSA.ORG X 1998 NJ PDSA IS DEDICATED TO ENHANCING THE LIVES OF PEOPLE WITH IMMUNE THROMBOCYTOPENIA (ITP) AND OTHER PLATELET DISORDERS THROUGH EDUCATION, ADVOCACY, RESEARCH, AND SUPPORT. 7 7 8 100 0 2347315 2401343 362372 303500 197970 249490 14312 15763 2921969 2970096 64000 50000 0 718388 619145 0 75770 836600 1157159 1618988 1826304 1302981 1143792 8064974 9972061 374374 533119 7690600 9438942 X PDSA IS DEDICATED TO ENHANCING THE LIVES OF PEOPLE WITH IMMUNE THROMBOCYTOPENIA (ITP) AND OTHER PLATELET DISORDERS THROUGH EDUCATION, ADVOCACY, RESEARCH, AND SUPPORT. false false 1552897 50000 303500 NOW IN OUR 27TH YEAR, PDSA CONTINUES TO GROW AND EXPAND OUR REACH TO SUPPORT AND EDUCATE TENS OF THOUSANDS OF ITP PATIENTS AND FAMILIES AROUND THE WORLD. PDSA'S PATIENT AND CAREGIVER SUPPORT GROUPS EXPANDED TO 68 LOCATIONS IN THE U.S., AND CANADA; 80 MEETINGS TOOK PLACE IN VIRTUAL OR IN-PERSON FORMAT, WITH OVER 1,200 PATIENTS/CAREGIVERS PARTICIPATING. ITP CONFERENCE 2025, PDSA'S 25TH ANNUAL CONFERENCE, TOOK PLACE FOR THE FIRST TIME IN PHILADELPHIA, PA WITH MORE THAN 300 ATTENDEES REPRESENTING 15 COUNTRIES, 35 US STATES AND TWO CANADIAN PROVINCES. IN ADDITION, WE OFFERED A VIRTUAL CONFERENCE PLATFORM WITH MORE THAN 1,400 PDSA MEMBERS GIVEN ACCESS TO THE VIRTUAL CONTENT IN SEPTEMBER FOR ITP AWARENESS MONTH. PDSA ALSO HOSTED THE INTERNATIONAL ITP ALLIANCE MEETING WITH THIRTEEN GLOBAL AMBASSADORS REPRESENTING 12 COUNTRIES PARTICIPATED IN THE MEETING. PDSA STAFF AND OUR MEDICAL ADVISORS CONTINUED TO ANSWER PATIENT/CAREGIVER CALLS AND EMAILS VIA OUR ITP HELPLINE. THIS WAS ALL IN ADDITION TO PDSA'S REGULAR PROGRAMS AND RESOURCES, INCLUDING THE ITP POKE-R-CLUB FOR KIDS ENROLLING OUR 200TH CHILD, COLLEGE SCHOLARSHIP PROGRAM, PRODUCING A 28-PAGE QUARTERLY NEWSLETTER AND MONTHLY E-NEWSLETTER, AND UPDATING AND TRANSLATING NUMEROUS EDUCATIONAL BOOKLETS. TO DATE, OUR INTERNATIONAL COLLECTION TOTALS 44 TRANSLATED BOOKLETS IN 17 DIFFERENT LANGUAGES. ON THE RESEARCH FRONT, PDSA STAFF ATTENDED, EXHIBITED AND PRESENTED EDUCATIONAL PROGRAMS AT A NUMBER OF SCIENTIFIC/MEDICAL MEETINGS INCLUDING AMERICAN SOCIETY OF PEDIATRIC HEMATOLOGY /ONCOLOGY (ASPHO), NATIONAL ORGANIZATION OF RARE DISORDERS (NORD) RARE DISEASE SUMMIT AND THE NORD LIVING RARE, LIVING STRONGER PATIENT/FAMILY FORUM, AND THE AMERICAN SOCIETY OF HEMATOLOGY/ONCOLOGY ANNUAL MEETING AND EXHIBITION (ASH). PDSA ALSO ORGANIZED AND HOSTED THE ASH ITP BREAKFAST AND ICON (ITP CONSORTIUM OF NORTH AMERICA) ANNUAL MEETING WITH 250 ATTENDEES. OUR ABSTRACTS ON SHARED DECISION-MAKING WAS PRESENTED AT ASH AND NORD. WE FUNDED THREE INNOVATIVE PATIENT-CENTERED ITP RESEARCH STUDIES IN 2025. IN PARTNERSHIP WITH THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD), PDSA ADMINISTERS THE ONE AND ONLY ITP NATURAL HISTORY STUDY PATIENT REGISTRY, AN IMPORTANT GLOBAL COLLECTION OF PATIENT DATA THAT AIMS TO INFORM ITP RESEARCH AND TREATMENT DEVELOPMENT. 2,500+ PATIENTS ARE ENROLLED IN THE REGISTRY TO DATE. PDSA WAS VERY ACTIVE ON THE ADVOCACY FRONT, WITH ITP PATIENTS, CAREGIVERS, BOARD MEMBERS, STAFF AND MEDICAL ADVISORS MEETING WITH OUR CONGRESSIONAL LEADERS. WE ORGANIZED OUR LARGEST HILL DAY IN WASHINGTON, DC, WITH 30 PATIENTS, CAREGIVERS AND MEDICAL ADVISORS MEETING WITH 34 CONGRESSIONAL OFFICES TO EDUCATE THEM ON THE UNMET NEEDS AND BURDEN OF DISEASE OF ITP PATIENTS AND URGING THEM TO SUPPORT FEDERAL PROGRAMS FOR ITP. 1552897 true true false false false false false false false false false false false false true true true false false true true true false false true false false true true true false false false false false false false false false false false false false false false false false true 18 0 8 true false false false false false false false false false false false false false false X 7 7 false false false false false false false true true false false true true true true true true true false false MD NJ IL CA NY WI OH FL PA VA WA MI NC KS X X CAROLINE KRUSE 4407469003 8751 BRECKSVILLE RD NO 150 CLEVELAND OH 44141 CAROLINE KRUSE PRESIDENT & 40.00 0.00 X 212995 0 9239 PETER PRUITT CHAIR 1.00 X X 0 0 0 DALE PAYNTER VICE CHAIR 1.00 X X 0 0 0 BRUCE PRESCOTT TREASURER 1.00 X X 0 0 0 LEILANI FITZGERALD SECRETARY 1.00 X X 0 0 0 ROBERT FEINER DIRECTOR 1.00 X 0 0 0 JENNIFER GRIMES DIRECTOR 1.00 X 0 0 0 DEREK ZIMMERMAN DIRECTOR X 0 0 0 212995 9239 1 false true false 146744 23056 2231543 2401343 ROYALTIES ITP-PAQ 303500 303500 303500 249490 249490 23056 10990 18622 -7632 -7632 MISCELLANEOUS 23395 23395 23395 2970096 545358 23395 X 20000 20000 10000 10000 20000 20000 215494 150846 32324 32324 336602 258974 57096 20532 5390 4001 873 516 11840 8788 1918 1134 49819 36965 8071 4783 26740 26740 24739 24739 264076 241693 20979 1404 93099 72530 12495 8074 54679 50414 4265 36003 32228 2543 1232 90639 85843 2995 1801 378870 378870 7249 7249 6275 4539 1736 RESEARCH ADMIN/CONSULT 50877 50877 ITP DEVELOP. CONSULTING 50000 50000 RESEARCH-RELATED EXP 29015 29015 EXHIBIT EXPENSES 26845 26845 18053 13220 863 3970 1826304 1552897 197637 75770 506025 593820 1473167 2099925 180858 130638 62699 78043 5707077 6959620 135148 110015 8064974 9972061 153207 269836 10000 85000 155000 126167 108283 374374 533119 X 6849544 8381810 841056 1057132 7690600 9438942 8064974 9972061 X 1143792 604550 X false true X true false X 1740329 1681746 2171956 2347315 2401343 10342689 1740329 1681746 2171956 2347315 2401343 10342689 3084520 7258169 74993 15724 136105 197970 424792 11716 13168 11652 13722 23395 73653 10841134 972653 0.66950 0.70550 X PART II, LINE 10 CUMULATIVE 5-YEAR OTHER INCOME 73,653 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED LONGTERM LEASE LIABILITY 108283 108283 X 3568529 604550 18622 623172 2945357 24739 24739 2970096 1820187 18622 18622 1801565 24739 24739 1826304 SCHEDULE D, PAGE 3, PART X PDSA IS INCORPORATED AS A NOT-FOR-PROFIT THAT IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND IS NOT CONSIDERED A PRIVATE FOUNDATION UNDER SECTION 509(A)(1). PDSA CURRENTLY HAS NO UNRELATED BUSINESS INCOME. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN RECORDED. SCHEDULE D, PAGE 4, PART XI, LINE 2D COGS NET W/REV ON 990 18,622 SCHEDULE D, PAGE 4, PART XII, LINE 2D COGS NET W/REV ON 990 18,622 true CANADA GRANT AWARD RESEARCH 20000 20000 20000 RESEARCH 20000 CHECK 1 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 THE ORGANIZATION OFFERS SCHOLARSHIPS TO INDIVIDUALS WHO WISH TO ATTEND THE ORGANIZATION'S ANNUAL CONFERENCE. INDIVIDUALS WHO APPLY ARE CHOSEN BASED ON THEIR CONNECTION TO ITP OR ANOTHER PLATELET DISORDER, DESIRE TO ATTEND THE CONFERENCE, AS WELL AS THEIR NEED FOR FINANCIAL SUPPORT. THE PDSA COLLEGE SCHOLARSHIP PROGRAM PROVIDES FINANCIAL ASSISTANCE TO SENIOR HIGH SCHOOL STUDENTS, COLLEGE STUDENTS OR ADULTS INTERESTED IN CONTINUING EDUCATION WHO ARE SUFFERING FROM ITP OR A SIMILAR INHERITED OR NON-INHERITED PLATELET DISORDER. SIX MONETARY SCHOLARSHIPS TOTALING 10,250 ARE AWARDED ANNUALLY. SCHOLARSHIP RECIPENTS ARE SELECTED BY A PATIENT PANEL. IN 2016, PDSA ESTABLISHED RESEARCH GUIDELINES WITH THE GOAL OF FUNDING THE MOST PROMISING RESEARCH PROJECTS BY INVESTIGATORS TO FURTHER UNDERSTAND THE PATHOGENISIS AND MANAGEMENT OF PRIMARY ITP, HAVE THE POTENTIAL TO RAISE THE QUALITY OF LIFE FOR ITP PATIENTS, AND LEAD TO NEW THERAPIES AND A CURE. PROPOSALS MUST INCLUDE BUDGET AND USE OF FUNDS. TWO AWARDS OF 20,000 EACH ARE GIVEN ANNUALY. PROGRESS REPORTS ARE REQUIRED. RESEARCH FINDINGS IS PRESENTED AT THE ANNUAL ITP CONFERENCE. IN 2017, PDSA ESTABLISHED A RESEARCH PROGRAM TO SUPPORT EXCELLENCE IN ACADEMIC ITP RESEARCH FOR UNDERGRADUATES, MEDICAL OR GRADUATE STUDENTS INTERESTED IN THE LABORATORY OR CLINICAL STUDY OF IMMUNE THROMBOCYTOPENIA. ONE 10,000 SCHOLARSHIP IS AWARDED ANNUALLY. BOTH RESEARCH PROGRAMS ARE REVIEWED AND SELECTED BY A COMMITTEE COMPRISED OF PATIENTS AND PDSA MEDICAL ADVISORS. SCHEDULE F, PAGE 1, PART I, LINE 3 CANADA 20,000 0 WALK/RUN EVENTS 23056 23056 23056 23056 true THE OHIO STATE UNIV 281 W LANE AVE COLUMBUS OH 43210 316025986 C3 20000 ITP RESEARCH 1 ITP RESEARCH AWARD 1 10000 SCHEDULE I, PAGE 1, PART I, LINE 2 THE ORGANIZATION OFFERS SCHOLARSHIPS TO INDIVIDUALS WHO WISH TO ATTEND THE ORGANIZATION'S ANNUAL CONFERENCE. INDIVIDUALS WHO APPLY ARE CHOSEN BASED ON THEIR CONNECTION TO ITP OR ANOTHER PLATELET DISORDER, DESIRE TO ATTEND THE CONFERENCE, AS WELL AS THEIR NEED FOR FINANCIAL SUPPORT. THE PDSA COLLEGE SCHOLARSHIP PROGRAM PROVIDES FINANCIAL ASSISTANCE TO SENIOR HIGH SCHOOL STUDENTS, COLLEGE STUDENTS OR ADULTS INTERESTED IN CONTINUING EDUCATION WHO ARE SUFFERING FROM ITP OR A SIMILAR INHERITED OR NON-INHERITED PLATELET DISORDER. SIX MONETARY SCHOLARSHIPS TOTALING 10,250 ARE AWARDED ANNUALLY. SCHOLARSHIP RECIPENTS ARE SELECTED BY A PATIENT PANEL. IN 2016, PDSA ESTABLISHED RESEARCH GUIDELINES WITH THE GOAL OF FUNDING THE MOST PROMISING RESEARCH PROJECTS BY INVESTIGATORS TO FURTHER UNDERSTAND THE PATHOGENISIS AND MANAGEMENT OF PRIMARY ITP, HAVE THE POTENTIAL TO RAISE THE QUALITY OF LIFE FOR ITP PATIENTS, AND LEAD TO NEW THERAPIES AND A CURE. PROPOSALS MUST INCLUDE BUDGET AND USE OF FUNDS. TWO AWARDS OF 20,000 EACH ARE GIVEN ANNUALY. PROGRESS REPORTS ARE REQUIRED. RESEARCH FINDINGS IS PRESENTED AT THE ANNUAL ITP CONFERENCE. IN 2017, PDSA ESTABLISHED A RESEARCH PROGRAM TO SUPPORT EXCELLENCE IN ACADEMIC ITP RESEARCH FOR UNDERGRADUATES, MEDICAL OR GRADUATE STUDENTS INTERESTED IN THE LABORATORY OR CLINICAL STUDY OF IMMUNE THROMBOCYTOPENIA. ONE 10,000 SCHOLARSHIP IS AWARDED ANNUALLY. BOTH RESEARCH PROGRAMS ARE REVIEWED AND SELECTED BY A COMMITTEE COMPRISED OF PATIENTS AND PDSA MEDICAL ADVISORS. false false false false false false false false false CAROLINE KRUSE PRESIDENT & CEO 170495 42500 9239 222234 FORM 990, PAGE 2, PART III, LINE 4A NOW IN OUR 27TH YEAR, PDSA CONTINUES TO GROW AND EXPAND OUR REACH TO SUPPORT AND EDUCATE TENS OF THOUSANDS OF ITP PATIENTS AND FAMILIES AROUND THE WORLD. PDSA'S PATIENT AND CAREGIVER SUPPORT GROUPS EXPANDED TO 68 LOCATIONS IN THE U.S., AND CANADA; 80 MEETINGS TOOK PLACE IN VIRTUAL OR IN-PERSON FORMAT, WITH OVER 1,200 PATIENTS/CAREGIVERS PARTICIPATING. ITP CONFERENCE 2025, PDSA'S 25TH ANNUAL CONFERENCE, TOOK PLACE FOR THE FIRST TIME IN PHILADELPHIA, PA WITH MORE THAN 300 ATTENDEES REPRESENTING 15 COUNTRIES, 35 US STATES AND TWO CANADIAN PROVINCES. IN ADDITION, WE OFFERED A VIRTUAL CONFERENCE PLATFORM WITH MORE THAN 1,400 PDSA MEMBERS GIVEN ACCESS TO THE VIRTUAL CONTENT IN SEPTEMBER FOR ITP AWARENESS MONTH. PDSA ALSO HOSTED THE INTERNATIONAL ITP ALLIANCE MEETING WITH THIRTEEN GLOBAL AMBASSADORS REPRESENTING 12 COUNTRIES PARTICIPATED IN THE MEETING. PDSA STAFF AND OUR MEDICAL ADVISORS CONTINUED TO ANSWER PATIENT/CAREGIVER CALLS AND EMAILS VIA OUR ITP HELPLINE. THIS WAS ALL IN ADDITION TO PDSA'S REGULAR PROGRAMS AND RESOURCES, INCLUDING THE ITP POKE-R-CLUB FOR KIDS ENROLLING OUR 200TH CHILD, COLLEGE SCHOLARSHIP PROGRAM, PRODUCING A 28-PAGE QUARTERLY NEWSLETTER AND MONTHLY E-NEWSLETTER, AND UPDATING AND TRANSLATING NUMEROUS EDUCATIONAL BOOKLETS. TO DATE, OUR INTERNATIONAL COLLECTION TOTALS 44 TRANSLATED BOOKLETS IN 17 DIFFERENT LANGUAGES. ON THE RESEARCH FRONT, PDSA STAFF ATTENDED, EXHIBITED AND PRESENTED EDUCATIONAL PROGRAMS AT A NUMBER OF SCIENTIFIC/MEDICAL MEETINGS INCLUDING AMERICAN SOCIETY OF PEDIATRIC HEMATOLOGY /ONCOLOGY (ASPHO), NATIONAL ORGANIZATION OF RARE DISORDERS (NORD) RARE DISEASE SUMMIT AND THE NORD LIVING RARE, LIVING STRONGER PATIENT/FAMILY FORUM, AND THE AMERICAN SOCIETY OF HEMATOLOGY/ONCOLOGY ANNUAL MEETING AND EXHIBITION (ASH). PDSA ALSO ORGANIZED AND HOSTED THE ASH ITP BREAKFAST AND ICON (ITP CONSORTIUM OF NORTH AMERICA) ANNUAL MEETING WITH 250 ATTENDEES. OUR ABSTRACTS ON SHARED DECISION-MAKING WAS PRESENTED AT ASH AND NORD. WE FUNDED THREE INNOVATIVE PATIENT-CENTERED ITP RESEARCH STUDIES IN 2025. IN PARTNERSHIP WITH THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD), PDSA ADMINISTERS THE ONE AND ONLY ITP NATURAL HISTORY STUDY PATIENT REGISTRY, AN IMPORTANT GLOBAL COLLECTION OF PATIENT DATA THAT AIMS TO INFORM ITP RESEARCH AND TREATMENT DEVELOPMENT. 2,500+ PATIENTS ARE ENROLLED IN THE REGISTRY TO DATE. PDSA WAS VERY ACTIVE ON THE ADVOCACY FRONT, WITH ITP PATIENTS, CAREGIVERS, BOARD MEMBERS, STAFF AND MEDICAL ADVISORS MEETING WITH OUR CONGRESSIONAL LEADERS. WE ORGANIZED OUR LARGEST HILL DAY IN WASHINGTON, DC, WITH 30 PATIENTS, CAREGIVERS AND MEDICAL ADVISORS MEETING WITH 34 CONGRESSIONAL OFFICES TO EDUCATE THEM ON THE UNMET NEEDS AND BURDEN OF DISEASE OF ITP PATIENTS AND URGING THEM TO SUPPORT FEDERAL PROGRAMS FOR ITP. FORM 990, PAGE 6, PART VI, LINE 11B PRIOR TO FILING, THE FORM 990 IS PRESENTED TO THE PRESIDENT AND CEO AND FINANCE STAFF FOR REVIEW AND APPROVAL. THE FORM 990 IS THEN ELECTRONICALLY DISTRIBUTED TO THE BOARD OF DIRECTORS IN ADVANCE OF FILING. A BOARD OFFICER SIGNS THE 990 (OR 8879-EO) AND THE 990 IS ELECTRONICALLY FILED. FORM 990, PAGE 6, PART VI, LINE 12C EACH YEAR, THE BOARD MEMBERS ARE ASKED TO REVIEW THE ORGANIZATION'S CONFLICT OF INTEREST POLICY. AMONG OTHER THINGS, THE POLICY MAKES CLEAR THAT ALL DECISIONS OF THE BOARD, OFFICERS, AND EMPLOYEES OF THE ORGANIZATION ARE MADE SOLELY ON THE BASIS OF A DESIRE TO PROMOTE THE BEST INTEREST OF THE ORGANIZATION AND THE PUBLIC GOOD. THE CONFLICT OF INTEREST STATEMENT REQUESTS BOARD MEMBERS TO IDENTIFY TO THE BEST OF THEIR KNOWLEDGE AFFILIATIONS WITH ORGANIZATIONS THAT MAY BE POTENTIALLY RELATED TO THE FINANCIALS OR OTHER SUBSTANTIVE OPERATIONS OF THE ORGANIZATION. THEY ARE ALSO ASKED TO IDENTIFY CIRCUMSTANCES INVOLVING EITHER THEMSELVES, OR A MEMBER OF THEIR EXTENDED FAMILY, THAT MAY BE CONSTRUED AS A CONFLICT OF INTEREST. AT THE STAFF LEVEL, THE ORGANIZATION'S PERSONNEL ALSO ENSURE THAT THERE ARE NO CONFLICTS OF INTEREST WHEN CONSIDERING THE ENGAGEMENT OF A NEW VENDOR. IF A POTENTIAL CONFLICT IS IDENTIFIED, APPROPRIATE STEPS ARE TAKEN TO BOTH ASSESS THE NATURE OF THE POTENTIAL CONFLICT AND, SUBSEQUENTLY, TO ENSURE THAT THE POSSIBILITY OF AN ACTUAL CONFLICT IS MITIGATED. SUCH MITIGATION IS MANAGED AND THE LETTER AND SPIRIT OF THE CONFLICTS POLICY ARE UPHELD. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE ANNUALLY EVALUATES THE PERFORMANCE OF THE PRESIDENT AND CEO. COMPENSATION IS BASED ON PERFORMANCE AND COMPARED TO OTHER AREA MISSION-COMPARABLE ORGANIZATIONS OF SIMILAR SIZE. COMPENSATION FOR STAFF WITHIN THE ORGANIZATION IS DETERMINED BY THE PRESIDENT AND CEO. THE LEVEL OF COMPENSATION IS SET BASED ON PERFORMANCE AND IN RELATION TO OTHER AREA MISSION-COMPARABLE ORGANIZATIONS OF SIMILAR SIZE. THIS COMPENSATION IS A COMPONENT OF THE BUDGET, WHICH IS REVIEWED AND APPROVED BY THE FINANCE COMMITTEE AND ALSO BY THE BOARD AS A WHOLE. FORM 990, PAGE 6, PART VI, LINE 17 KANSAS FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, FORM 1023, FORM 990 CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. THE FORM 990, WITHOUT SCHEDULE B) CAN ALSO BE FOUND ON SEVERAL PUBLICLY-ACCESSIBLE WEBSITES. FORM 990, PART IX, LINE 11G PROFESSIONAL FEES 241,693 20,979 1,404 FORM 990, PART XI, LINE 9 COGS NET W/REV ON 990 18,622 COGS NET W/REV ON 990 -18,622