2025-04-11T11:30:04-05:00 2023-12-31 570783795 SWAIMBROWN PA PO BOX 6404 SPARTANBURG SC 29304 990 2023-01-01 454028932 RDH12 FUND FOR SIGHT RDH1 8643576407 PO BOX 161481 BOILING SPRINGS SC 29316 VIRGINIA PRYOR TREASURER 8643576407 2025-02-11 1 1 VALERIE W HEYDE P01301332 8645850176 2025-02-11 2023 2025-03-06 01:10:19Z VIRGINIA PRYOR PO BOX 161481 BOILING SPRINGS SC 29316 137199 0 X RDH12.ORG X 2011 SC THE RDH 12 FUND FOR SIGHT SEEKS TO RAISE FUNDS TO BE DISBURSED TO RESEARCHERS WORKING ON A CURE AND/OR TREATMENT OF A RARE GENETIC DISORDER CALLED LEBER'S CONGENITAL AMAUROSIS, MORE SPECIFICALLY FOR LCA CAUSED BY A MUTATION ON THE RDH12 GENE. THE RDH 12 FUND FOR SIGHT COLLECTS AND DISTRIBUTES INFORMATION ABOUT LCA CAUSED BY THE RDH12 GENE MUTATION. 9 9 0 0 0 0 76722 116170 0 0 3362 15737 0 0 80084 131907 0 155333 0 0 0 0 0 0 0 19311 16281 19311 171614 60773 -39707 1641611 1599443 2461 0 1639150 1599443 X THE RDH 12 FUND FOR SIGHT SEEKS TO RAISE FUNDS TO BE DISBURSED TO RESEARCHERS WORKING ON A CURE AND/OR TREATMENT OF A RARE GENETIC DISORDER CALLED LEBER'S CONGENITAL AMAUROSIS, MORE SPECIFICALLY FOR LCA CAUSED BY A MUTATION ON THE RDH12 GENE. THE RDH 12 FUND FOR SIGHT COLLECTS AND DISTRIBUTES INFORMATION ABOUT LCA CAUSED BY THE RDH12 GENE MUTATION. 0 0 165659 155333 GRANTS FOR RESEARCH ON LEBER'S CONGENITAL AMAUROSIS, MORE SPECIFICALLY FOR LCA CAUSED BY A MUTATION ON THE RDH12 GENE. 4206 PREPARATION OF NEWSLETTER AND WEBSITE AS A FOCAL POINT FOR EDUCATION AND INFORMATION DISTRIBUTION. HOSTING A CONFERENCE TO DISCUSS THE PROGRESS OF RESEARCH. 169865 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 SC X VIRGINIA PRYOR 8643576407 PO BOX 161481 BOILING SPRINGS SC 29316 X JENNIFER PLETCHER PRESIDENT/DIRECTOR 4.00 X X 0 0 0 VIRGINIA PRYOR TREASURER/DIRECTOR 4.00 X X 0 0 0 THERESA COLE DIRECTOR 4.00 X 0 0 0 MICHELLE OLSEN VICE PRESIDENT/DIRECTOR 4.00 X X 0 0 0 MATHEW PLETCHER DIRECTOR 4.00 X 0 0 0 LORI KINNEY DIRECTOR 4.00 X 0 0 0 MICHAEL FIORE DIRECTOR 4.00 X 0 0 0 ALLISON GALLOWAY DIRECTOR 4.00 X 0 0 0 MICHAEL ASHWILL DIRECTOR 4.00 X 0 0 0 0 0 0 0 0 0 0 0 69943 46227 2792 116170 15737 15737 5292 69943 5292 0 131907 0 0 15737 122833 122833 32500 32500 500 500 1206 1206 3000 3000 CONTRACT SERVICES 10326 10326 BANK AND CREDIT CARD FE 1005 1005 POSTAGE, PRINTING AND M 192 192 ANNUAL FEES 52 52 171614 169865 1749 0 125470 145007 1516141 1454436 1641611 1599443 2461 0 2461 0 X 0 0 0 0 1639150 1599443 1639150 1599443 1641611 1599443 -39707 0 X 0 0 0 X 110962 69426 113214 76722 116170 486494 110962 69426 113214 76722 116170 486494 11524 474970 10905 4286 899 3362 15737 35189 521683 0.91050 0.93140 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 SOUTH AMERICA 0 1 GRANTS TO RECIPIENTS RESEARCH GRANT 32500 0 1 0 0 0 1 32500 0 32500 RESEARCH GRANT SOUTH AMERICA 1 32500 0 0 0 0 0 0 PART I, LINE 2: THE BUDGET WILL BE PAID OUT UPON THE COMPLETION OF THE APPROPRIATE MILESTONE (DETAILED IN RESEARCH PROJECT AGREEMENT). UPON COMPLETION OF EACH MILESTONE, THE INVESTIGATOR IS RESPONSIBLE FOR SUBMITTING THE APPROPRIATE DOCUMENTATION TO THE FUNDER TO VALIDATE THAT THE MILESTONE HAS BEEN MET. AT THE 6-MONTH MARK OF THE PROJECT, THE INVESTIGATOR MUST SUBMIT A ONE-PAGE SUMMARY OF THE WORK CONDUCTED TO DATE AND PROVIDE A PRESENTATION ON THE PROJECT TO THE RDH12 COMMUNITY (TO BE ORGANIZED BY THE FUNDER). AT THE 12-MONTH MARK OR COMPLETION OF THE PROJECT (WHICHEVER IS LATER), THE INVESTIGATOR MUST SUBMIT A TWO-PAGE SUMMARY OF THE FINAL DATA AND CONCLUSIONS AND PROVIDE A PRESENTATION ON THE PROJECT TO THE RDH12 COMMUNITY (TO BE ORGANIZED BY THE FUNDER). THE RESULTS OF THE PROJECT SHOULD BE MADE PUBLICLY AVAILABLE THROUGH THE PUBLICATION IN A REPUTABLE JOURNAL. FAILURE TO MEET ANY REPORTING REQUIREMENTS ARE GROUNDS FOR TERMINATION OF THIS AGREEMENT. FUN RUNS/GOLD BALL DROP 75235 69943 5292 5292 75235 69943 5292 5292 5292 0 0 TRUSTEES OF UNIVERSITY OF PENNSYLVANIA PO BOX 785541 PHILADELPHIA PA 191785541 231352685 501C3 122833 0 RESEARCH GRANT FORM 990, PART VI, SECTION A, LINE 2 MATHEW AND JENNIFER PLETCHER ARE HUSBAND AND WIFE. FORM 990, PART VI, SECTION B, LINE 11B CIRCULATED AND DISCUSSED AT A REGULAR BOARD MEETING, WITH COPIES SENT TO ANY ABSENT DIRECTORS FOR REVIEW AND COMMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST POLICY IS PROVIDED ANNUALLY TO THE DIRECTORS AND DISCUSSED AT THE ANNUAL BOARD OF DIRECTORS MEETING. FORM 990, PART VI, SECTION C, LINE 19 AVAILABLE UPON REQUEST.