2025-03-06T11:25:59+00:00 2024-06-30 440160260 Forvis Mazars LLP 500 Ridgefield Court Asheville NC 28806 990 2023-07-01 581654301 Rheumatology Research Foundation RHEU 4046333777 2200 Lake Boulevard NE Atlanta GA 30319 Rachel Myslinski Executive Director 4046333777 2025-03-06 true true Amy Bibby P00445891 8282542254 2025-02-27 2023 2025-03-06 01:10:19Z Rachel Myslinski 2200 Lake Boulevard NE Atlanta GA 30319 46759005 false X www.rheumresearch.org X 1985 IL SUPPORT RESEARCH & TRAINING THAT ADVANCES THE PREVENTION, TREATMENT AND CURE OF RHEUMATIC DISEASES. 18 18 0 0 0 0 12592717 8533094 0 0 446682 5432787 66 0 13039465 13965881 12550802 12418699 0 0 47300 0 0 0 1795802 4804667 4979493 17402769 17398192 -4363304 -3432311 70496543 70729610 501818 1605570 69994725 69124040 THE MISSION OF THE RHEUMATOLOGY RESEARCH FOUNDATION IS TO ADVANCE RESEARCH AND TRAINING TO IMPROVE THE HEALTH OF PEOPLE WITH RHEUMATIC DISEASES. false false 14851433 12168795 FOUNDATION PROGRAMS SUPPORT RESEARCH INVESTIGATING THE BROAD SPECTRUM OF RHEUMATIC DISEASES, INCLUDING but not limited to: JUVENILE IDIOPATHIC ARTHRITIS, OSTEOARTHRITIS, PEDIATRIC SYSTEMIC LUPUS ERYTHEMATOSUS, RHEUMATOID ARTHRITIS, SCLERODERMA, SPONDYLOARTHROPATHIES, SYSTEMIC LUPUS ERYTHEMATOSUS, AND VASCULITIS. PLEASE SEE SCHEDULE O FOR A CONTINUATION OF PROGRAM SERVICES. THE RHEUMATOLOGY RESEARCH FOUNDATION MAINTAINS AN EXTENSIVE AWARDS AND GRANTS PORTFOLIO, WITH 23 SUPPORT MECHANISMS FOR RHEUMATOLOGISTS AND RHEUMATOLOGY HEALTH PROFESSIONALS IN THE U.S. EACH GRANT APPLICATION CONTAINS VERY SPECIFIC ELIGIBILITY AND REVIEW CRITERIA (DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.RHEUMRESEARCH.ORG). ALL APPLICATIONS UNDERGO RIGOROUS PEER REVIEW IN THEIR ASSIGNED STUDY SECTION, AND ARE SCORED AND RANKED ACCORDING TO THE REVIEW CRITERIA AND OVERALL MERIT OF THE PROPOSAL. ALL STUDY SECTION RECOMMENDATIONS ARE SENT TO THE FOUNDATION'S SCIENTIFIC ADVISORY COUNCIL FOR QUALIFICATION BEFORE BEING PRESENTED (BLINDED) TO THE FOUNDATION BOARD OF DIRECTORS FOR FINAL APPROVAL. AFTER THE AWARDS ARE MADE, ALL RECIPIENTS ARE REQUIRED TO COMPLETE FUNDING CONTRACTS WITH INSTITUTIONAL SIGN-OFF, AND MUST ALSO SUBMIT ANNUAL REPORTS ON THEIR PROGRESS, INCLUDING FINANCIAL RECONCILIATION AND ASSURANCE OF COMPLIANCE WITH FOUNDATION POLICIES (AVAILABLE ON THE WEBSITE). ALL REPORTS ARE REVIEWED BY THE FOUNDATION'S SCIENTIFIC ADVISORY COUNCIL TO ENSURE COMPLIANCE WITH PROGRAMMATIC, SCIENTIFIC, FISCAL AND ADMINISTRATIVE POLICES AND REQUIREMENTS. IF A RECIPIENT IS FOUND TO BE IN COMPLIANCE AND MAKING REASONABLE PROGRESS (I.E., MEETING PROJECT BENCHMARKS), THE NEXT YEAR OF FUNDING IS APPROVED FOR DISBURSEMENT. IF NOT, THE AWARD MAY BE TERMINATED. SUCH PROGRAMMATIC OVERSIGHT ALLOWS FOR EXCELLENT STEWARDSHIP OF FOUNDATION FUNDS. IN ADDITION TO REGULAR OVERSIGHT AS DESCRIBED ABOVE, PORTFOLIO REVIEWS ARE CONDUCTED EVERY FIVE YEARS TO ENSURE THAT FUNDING MECHANISMS ARE EFFECTIVELY MEETING THE FOUNDATION'S GOALS OUTLINED IN THE STRATEGIC PLAN. IN ADDITION, THE RHEUMATOLOGY RESEARCH FOUNDATION ABIDES BY THE FOLLOWING CONFLICT OF INTEREST GUIDELINES: GUIDELINES FOR AWARDING OF FOUNDATION AWARDS AND GRANTS I. THE COLLEGE WILL NOT PERMIT ANY EXTERNAL ENTITIES TO SELECT (OR INFLUENCE THE SELECTION OF) RECIPIENTS OF FOUNDATION AWARDS OR GRANTS. II. THE COLLEGE WILL APPOINT INDEPENDENT COMMITTEES TO SELECT RECIPIENTS OF FOUNDATION AWARDS OR GRANTS BASED ON PEER REVIEW OF GRANT APPLICATIONS. III. THE COLLEGE WILL NOT REQUIRE RECIPIENTS OF FOUNDATION AWARDS OR GRANTS TO MEET WITH EXTERNAL ENTITIES. IV. THE COLLEGE WILL NOT PERMIT ANY EXTERNAL ENTITY THAT SUPPORTS FOUNDATION AWARDS OR GRANTS TO REQUIRE INTELLECTUAL PROPERTY RIGHTS OR ROYALTIES ARISING OUT OF THE GRANT-FUNDED RESEARCH. V. THE COLLEGE WILL NOT PERMIT ANY EXTERNAL ENTITY THAT SUPPORTS FOUNDATION AWARDS OR GRANTS TO CONTROL OR INFLUENCE MANUSCRIPTS THAT ARISE FROM THE GRANT-FUNDED RESEARCH. THE FOUNDATION PROVIDES FUNDING TO HELP RECRUIT STUDENTS AND RESIDENTS INTO THE SUBSPECIALTY AND SUPPORTS INVESTIGATORS AND PRACTITIONERS WORKING IN THE FIELD OF RHEUMATOLOGY. GRANTS ARE AWARDED FOR DIFFERENT TRAINING OPPORTUNITIES, FROM UNDERGRADUATE STUDENTS TO ESTABLISHED INVESTIGATORS, BUILDING A MORE CAPABLE, ROBUST TEAM OF RHEUMATOLOGY PROFESSIONALS AROUND THE NATION. IN THE LAST FIVE YEARS, RESEARCHERS RECEIVING FOUNDATION FUNDING HAVE PUBLISHED 463 PAPERS, RECEIVED $122.5M IN RELATED NIH FUNDING AND GIVEN 97 SCIENTIFIC PRESENTATIONS ON THEIR PROJECTS WORLDWIDE. THE FOUNDATION IS A 501(C)(3) CHARITABLE ORGANIZATION DEDICATED TO ADVANCING TREATMENT FOR PEOPLE LIVING WITH RHEUMATIC DISEASE AND IS THE LARGEST PRIVATE FUNDING SOURCE OF RHEUMATOLOGY RESEARCH AND TRAINING IN THE UNITED STATES. THE ORGANIZATION HAS RECEIVED A 4-STAR RATING, THE HIGHEST OFFERED BY CHARITY NAVIGATOR, FOR SIXTEEN CONSECUTIVE YEARS BASED ON GOOD GOVERNANCE, SOUND FISCAL MANAGEMENT, AND COMMITMENT TO ACCOUNTABILITY AND TRANSPARENCY. THE ORGANIZATION HAS COMMITTED OVER $232M DIRECTLY TO RESEARCH AND TRAINING SINCE IT WAS FOUNDED IN 1985 BY THE GRANTING OF 4,690 INDIVIDUAL AWARDS. 14851433 true true false false false false false false true true true false false false true true false false false false false false false false false false true true true false false false false false false false false false false false false false true false true false true X 0 0 0 false false false false false false false false false false false false X 18 18 false true false false false true false true true false false true true true true true true true true false GA X X X Colleen Merkel 4046333777 2200 Lake Boulevard NE Atlanta GA 30319 Ann Bass MD Treasurer 14.0 X X 0 6000 0 Bryce Binstadt MD PhD Foundation Vice President 14.0 X X 0 4459 0 Carol Langford MD MHS Treasurer (2021 - 2023) 14.0 X X 0 49300 0 Liana Fraenkel MD Foundation President 14.0 X X 0 2750 0 V Michael Holers MD Foundation President (2021 - 2023) 14.0 X X 0 69000 0 William Harvey MD Secretary 2.0 X X 0 26150 0 Alfred Kim MD PhD Chair, Impact Adv Council 2.0 X 0 0 0 Bernie Rubin DO MPH Corporate Rountable Rep (2021-2023) 2.0 X 0 0 0 Bethany Marston MD ACR Training Rep 2.0 X 0 6250 0 Carol Young MD MEmber at Large 2.0 X 0 0 0 Carrie Hansen Member at Large 2.0 X 0 0 0 Corinne Karp MAEd MEmber at Large 2.0 X 0 0 0 Edward Behrens MD Chair, Scientific Advisory 2.0 X 0 4199 0 Elain Husni MD Member at Large 2.0 X 0 0 0 Firas Kassab MD MEmber at Large 2.0 X 0 0 0 Jody Hargrove MD Chair, Development Advisor 2.0 X 0 0 0 Kristine A Kuhn MD PhD ACR Research Rep (2020-2023) 2.0 X 0 5000 0 Leo Wegemer JD LLM Member at Large 2.0 X 0 0 0 Linda Hiraki MD MS ScD ACR Research Rep 2.0 X 0 0 0 Marian Hannan DSc MPH ARP Rep 2.0 X 0 0 0 Marta Bean MD Fellow-in-Training 2.0 X 0 0 0 Ryan DeMasi MD Corporate Rountable Rep 2.0 X 0 0 0 Steve Russell MBA Chair, Impact Adv Council (2020-2023) 2.0 X 0 0 0 Ted Mikuls MD Member at Large 2.0 X 0 1500 0 Vikas Majithia MD MPH FACR FACP Member at Large 2.0 X 0 0 0 Colleen Merkel CPA VP, Operations and Finance 1.0 40.0 X 0 242013 50858 Paula Reed VP, Philanthropy 1.0 40.0 X 0 175217 29869 Rachel Myslinski Executive Director 1.0 40.0 X 0 215764 46022 Benjamin Walkuski Director, Individual Engagement & Philanthropy 1.0 40.0 X 0 119377 24201 Eryn Marchiolo VP, Mission 1.0 40.0 X 0 170084 29110 Katherine Butts-Pruett Sr. Director, Philanthropy 1.0 40.0 X 0 132113 26121 Shelley Malcolm Sr. Director, Impact 1.0 40.0 X 0 121222 24447 0 1350398 230628 7 false true false American College of Rheumatology Inc 2200 Lake Boulevard NE Atlanta GA 30319 Management Services 3224690 Marstein Consulting LLC 1801 5th Avenue N Birmingham AL 35203 Marketing Consulting 326379 Mill Creek Capital Advisors LLC 161 Washington St STE 1500 Conshohocken PA 19428 Contracted Investment Officer 120182 3 8533094 8533094 0 0 0 0 0 856747 856747 0 0 37369164 32793124 4576040 0 4576040 4576040 0 0 0 0 0 13965881 0 0 5432787 12122855 12122855 295844 295844 3224690 1627894 207519 1389277 49486 492 34818 14176 86969 46390 24872 15707 137669 119817 2703 15149 440889 397275 32951 10663 36131 26191 1777 8163 114839 27783 4294 82762 363096 208630 77618 76848 489012 223995 84304 180713 Miscellaneous 36712 4171 30197 2344 0 0 0 0 17398192 15101337 501053 1795802 8600923 3254756 11513000 9553362 0 0 87105 90127 210311 210311 0 42974638 51023383 7320877 6807982 0 0 0 70496543 70729610 501818 1605570 0 0 0 501818 1605570 X 39721401 47749292 30273324 21374748 69994725 69124040 70496543 70729610 X -3432311 2311722 249904 X false true X true false X 9254386 20491960 6103597 12592717 8533094 56975754 0 0 9254386 20491960 6103597 12592717 8533094 56975754 29137865 27837889 965562 782069 816681 853682 856747 4274741 0 0 0 0 66 0 66 61250561 0 0.4545 0.4388 X Schedule A, Part II, Line 10 Other Income DESCRIPTION - MISCELLANEOUS, COLUMN A - , COLUMN B - , COLUMN C - , COLUMN D - 66.0, COLUMN E - , COLUMN F - 66.0; RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 42967157 1001000 6384332 1681990 48670499 39522525 1002666 4404643 1962677 42967157 47563294 2000 -6129935 1912834 39522525 39200385 602750 9624706 1864547 47563294 39051276 500 1548139 1399530 39200385 0.6367 0.1467 0.2166 false false 210311 210311 0 0 6807982 F 6807982 0 X 16277603 2311722 0 2311722 13965881 0 0 13965881 17148288 0 0 17148288 249904 249904 17398192 Schedule D, Part V, Line 4 Intended uses of endowment funds The Foundation's endowments consist of seventeen individual funds established to support the Foundation's mission through programs of research and training. Endowments include both donor-restricted endowment funds, and funds designed by the Board of Directors to function as a general endowment. Schedule D, Part X, Line 2 FIN 48 (ASC 740) footnote The Foundation is recognized as an organization exempt from Federal income tax under Section 501(a) of the Internal Revenue Code (the "Code") as an organization described in Section 501(c)(3) whereby only unrelated business income, as defined by Section 512(a) of the Code, is subject to Federal income tax. Accordingly, no provision for income taxes has been recorded. The Foundation has evaluated its tax positions and determined that it does not have any material unrecognized tax benefits or obligations as of June 30, 2024. Schedule D, Part XII, Line 4(b) Other expenses in form 990 not in audited financial statements recoveries of prior year grants - 249904 true Albert Einstein College of Medicine 472209056 37499 Career Development Bridge Funding Award - K Bridge American College of Rheumatology 581627547 501(C)(6) 18750 Underrepresented Medical Students (Project LEAD) Amicus Arthritis & Osteoporosis Center Inc 474037872 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion Arthritis & Rheumatology of Metairie 270004741 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion Augusta University Research Institute Inc 581418202 50000 Scientist Development Award - Clinical Augusta University Research Institute Inc 581418202 1000 Medical and Graduate Student Preceptorship Baylor College of Medicine 741613878 501(C)(3) 124998 Clinician Scholar Educator Award, Innovative Research Award, Innovative Research Award for Community Practitioners, Investigator Award, or the Scientist Development Award Baylor College of Medicine 741613878 501(C)(3) 50000 Fellowship Training Award for Workforce Expansion Baylor College of Medicine 741613878 501(C)(3) 50000 Fellowship Training Award Benaroya Research Institute at Virginia Mason 910653422 80000 Norman B. Gaylis, MD, Research Award for Rheumatologists in Community Practice Beth Israel Deaconess Medical Center 042103881 501(C)(3) 50000 Fellowship Training Award for Workforce Expansion Board of Trustees of the University of Illinois 376000511 501(c)(3) 200000 Innovative Research Award - Translational Boston University 042103547 GOVT 125000 Investigator Award - Clinical Boston University 042103547 GOVT 299988 Innovative Research Award - Health Services Boston University 042103547 GOVT 24999 Career Development Bridge Funding Award - K Supplement Boston University 042103547 GOVT 100000 Career Development Bridge Funding Award - R Bridge Boston University 042103547 GOVT 15000 Resident Research Preceptorship Boston University 042103547 GOVT 99988 Clinician Scholar Educator Award, Innovative Research Award, Innovative Research Award for Community Practitioners, Investigator Award, or the Scientist Development Award Brigham and Women's Hospital 042312909 501(C)(3) 388724 Innovative Research Award - Basic Brigham and Women's Hospital 042312909 501(C)(3) 125000 Scientist Development Award - Basic Brigham and Women's Hospital 042312909 501(C)(3) 50000 Scientist Development Award - Clinical Carewell Arthritis Center 825246482 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion Cary Rheumatology & Arthritis Associates PA 273637831 24902 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion Children's Hospital Corporation 042774441 501(c)(3) 24999 Career Development Bridge Funding Award - K Supplement Children's Hospital Corporation 042774441 501(c)(3) 50000 Scientist Development Award - Translational Children's Hospital Medical Center 310833936 501(c)(3) 25000 Fellowship Training Award for Workforce Expansion Children's Hospital Medical Center 310833936 501(c)(3) 25000 Fellowship Training Award for Workforce Expansion Children's Hospital of Los Angeles 951690977 501(C)(3) 50000 Fellowship Training Award for Workforce Expansion Children's Hospital of Pittsburgh Foundation 251865744 501(C)(3) 50000 Fellowship Training Award for Workforce Expansion Children's National Medical Center and Children's Research Institute 521654453 501(c)(3) 158952 Innovative Research Award - Health Services Duke University 560532129 GOVT 50000 FOREUM/RRF Partnership Award Duke University 560532129 GOVT 125000 Investigator Award - Clinical Duke University 560532129 GOVT 125000 Investigator Award - Translational Duke University 560532129 GOVT 100000 Fellowship Training Award for Workforce Expansion Emory University 580566256 501(c)(3) 1000 Medical and Graduate Student Preceptorship Georgetown University 530196603 GOVT 50000 Fellowship Training Award for Workforce Expansion Good Samaritan Foundation 237017276 60000 Clinician Scholar Educator Award Good Samaritan Foundation 237017276 200000 Innovative Research Award - Basic Hospital for Special Surgery 131624135 501(C)(3) 1000 Medical and Graduate Student Preceptorship - Chevrier Lupus Research Fund Hospital for Special Surgery 131624135 501(C)(3) 75000 Career Development Bridge Funding Award - K Bridge Hospital for Special Surgery 131624135 501(C)(3) 125000 Scientist Development Award - Basic Icahn School of Medicine at Mount Sinai 136171197 50000 Fellowship Training Award for Workforce Expansion Idaho Arthritis Center 820536242 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion Indiana University 356001673 GOVT 50000 Fellowship Training Award for Workforce Expansion Larkin Community Hospital Foundation Inc 453939411 501(c)(3) 50000 Fellowship Training Award for Workforce Expansion Louisiana State University Health Sciences Center Shreveport 720702002 GOVT 50000 Fellowship Training Award for Workforce Expansion Mayo Clinic 416011702 501(C)(3) 250000 Investigator Award - Clinical Mayo Clinic 416011702 501(C)(3) 50000 Scientist Development Award - Translational Munson Healthcare foundations 382642724 15004 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion New York University School of Medicine 135562308 GOVT 50000 Fellowship Training Award for Workforce Expansion Northwestern University 362167817 GOVT 1000 Medical and Graduate Student Preceptorship - Chevrier Lupus Research Fund Northwestern University 362167817 GOVT 60000 Clinician Scholar Educator Award Northwestern University 362167817 GOVT 200000 Innovative Research Award - Translational Northwestern University 362167817 501(c)(3) 50000 Fellowship Training Award for Workforce Expansion Ohio University 316025986 GOVT 200000 Innovative Research Award - Basic Oregon Health & Science University 931176109 GOVT 50000 Fellowship Training Award for Workforce Expansion PCI Medical Associates PLLC 844847899 1000 Medical and Graduate Student Preceptorship Regents of the Univ of Calif UC San Diego 956006144 GOVT 200000 Innovative Research Award - Translational Regents of the Univ of Calif UC San Diego 956006144 GOVT 50000 Fellowship Training Award for Workforce Expansion Regents of the University of California SF 946036493 GOVT 199846 Innovative Research Award - Health Services Regents of the University of California SF 946036493 GOVT 50000 Fellowship Training Award for Workforce Expansion Regents of the University of California SF 946036493 GOVT 125000 Scientist Development Award - Basic Regents of the University of California SF 946036493 GOVT 50000 Scientist Development Award - Translational Regents of the University of Michigan 386006309 GOVT 200000 Innovative Research Award - Translational Regents of the University of Michigan 386006309 GOVT 15000 Lawren H. Daltroy Preceptorship in Health Communication Regents of the University of Michigan 386006309 GOVT 60000 Student & Resident Research Award Regents of the University of Michigan 386006309 GOVT 50000 Fellowship Training Award for Workforce Expansion Regents of the University of Michigan 386006309 GOVT 75000 Scientist Development Award - Basic Regents of the University of Minnesota 416007513 GOVT 62500 Investigator Award - Basic Regents of the University of Minnesota 416007513 GOVT 200000 Innovative Research Award - Basic Regents of the University of Minnesota 416007513 GOVT 100000 Fellowship Training Award for Workforce Expansion Regents of the University of Minnesota 416007513 GOVT 75000 Scientist Development Award - Basic Rheumatology and Allergy Institute of Connecticut LLC 061621838 24931 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion Rheumatology Center of San Diego PC 463944459 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion Rheumatology Solutions PLLC 272571855 50000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion RS Venuturupalli MD Inc 202566670 24999 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion Saint Louis University 430654872 501(c)(3) 83976 Scientist Development Award - Clinical Scott & White Clinic 742958277 501(c)(3) 24919 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion Seattle Children's Hospital 910564748 4000 Medical and Graduate Student Preceptorship Seattle Children's Hospital Foundation 911156519 501(C)(3) 50000 Audrey M. Nelson, MD Pediatric Rheumatology Fellowship Endowment in Training The Board of Regents of the University of Nebraska 470049123 GOVT 100000 Innovative Research Award - Health Services The Board of Regents of the University of Nebraska 470049123 GOVT 50000 Career Development Bridge Funding Award - K Supplement The Board of Regents of the University of Nebraska 470049123 GOVT 30000 Student & Resident Research Award The Board of Regents of the University of Nebraska 470049123 GOVT 100000 Clinician Scholar Educator Award, Innovative Research Award, Innovative Research Award for Community Practitioners, Investigator Award, or the Scientist Development Award The Board of Regents of the University of Nebraska 470049123 GOVT 50000 Fellowship Training Award for Workforce Expansion The Board of Regents of the University of Nebraska 470049123 GOVT 75000 Scientist Development Award - Clinical The Board of Regents of the University of Nebraska 470049123 GOVT 3000 Medical and Graduate Student Preceptorship The Board of Trustees of the Leland Stanford Junior University 941156365 50000 Fellowship Training Award for Workforce Expansion The Board of Trustees of the Leland Stanford Junior University 941156365 50000 Fellowship Training Award for Workforce Expansion The Children's Hospital of Philadelphia 231352166 501(C)(3) 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion The Children's Hospital of Philadelphia 231352166 501(C)(3) 50000 Fellowship Training Award for Workforce Expansion The Feinstein Institutes for Medical Research - GMO 112673595 501(C)(3) 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion The General Hospital Corporation 042697983 501(C)(3) 50000 Career Development Bridge Funding Award - K Supplement The General Hospital Corporation 042697983 501(C)(3) 50000 Fellowship Training Award for Workforce Expansion The General Hospital Corporation 042697983 501(C)(3) 75000 Scientist Development Award - Clinical The General Hospital Corporation 042697983 501(C)(3) 50000 Scientist Development Award - Translational The George Washington University 530196584 501(c)(3) 199999 Innovative Research Award - Translational The Johns Hopkins University 520595110 GOVT 1000 Medical and Graduate Student Preceptorship - Chevrier Lupus Research Fund The Johns Hopkins University 520595110 GOVT 124985 Investigator Award - Basic The Johns Hopkins University 520595110 GOVT 75000 Career Development Bridge Funding Award - K Bridge The Johns Hopkins University 520595110 GOVT 100000 Career Development Bridge Funding Award - K Supplement The Johns Hopkins University 520595110 GOVT 50000 Fellowship Training Award for Workforce Expansion The Johns Hopkins University 520595110 GOVT 50000 Scientist Development Award - Clinical The Johns Hopkins University 520595110 GOVT 1000 Medical and Graduate Student Preceptorship The Medical College of Wisconsin Inc 390806261 501(c)(3) 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion The Ohio State University 316025986 GOVT 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion The Pennsylvania State University 246000376 GOVT 15000 Resident Research Preceptorship The Research Foundation for The State University of New York 141368361 501(c)(3) 199557 Innovative Research Award - Basic The Trustees of Columbia University in the City of New York 135598093 501(c)(3) 15000 Resident Research Preceptorship The Trustees of Columbia University in the City of New York 135598093 501(c)(3) 75000 Scientist Development Award - Translational The University of Chicago 362177139 GOVT 84888 Investigator Award - Basic The University of Chicago 362177139 GOVT 100000 Fellowship Training Award for Workforce Expansion The University of Tennessee 626001636 GOVT 500 Medical and Graduate Student Preceptorship The University of Texas Health Science Center at Houston 741761309 501(C)(3) 11326 Investigator Award - Basic Thomas Jefferson University 231352651 501(c)(3) 175000 Scientist Development Award - Basic Trustees of the University of Pennsylvania 231352685 GOVT 200000 Innovative Research Award - Translational Trustees of the University of Pennsylvania 231352685 GOVT 50000 Tobe and Stephen E. Malawista, MD, Endowment in Academic Rheumatology Trustees of the University of Pennsylvania 231352685 GOVT 200000 Clinician Scholar Educator Award, Innovative Research Award, Innovative Research Award for Community Practitioners, Investigator Award, or the Scientist Development Award Trustees of the University of Pennsylvania 231352685 GOVT 50000 Fellowship Training Award for Workforce Expansion Trustees of the University of Pennsylvania 231352685 GOVT 24960 Scientist Development Award - Translational Trustees of the University of Pennsylvania 231352685 GOVT 1000 Medical and Graduate Student Preceptorship Tufts Medical Center Inc 043400617 501(C)(3) 1000 Medical and Graduate Student Preceptorship - Chevrier Lupus Research Fund Tufts Medical Center Inc 043400617 501(C)(3) 199975 Innovative Research Award - Clinical Tufts Medical Center Inc 043400617 501(C)(3) 50000 Fellowship Training Award for Workforce Expansion Tufts Medical Center Inc 043400617 501(C)(3) 1000 Medical and Graduate Student Preceptorship University of Alabama at Birmingham 636005396 GOVT 249868 Investigator Award - Clinical University of Alabama at Birmingham 636005396 GOVT 50000 Fellowship Training Award for Workforce Expansion University of Arizona 742652689 GOVT 200000 Clinician Scholar Educator Award, Innovative Research Award, Innovative Research Award for Community Practitioners, Investigator Award, or the Scientist Development Award University of Arizona 742652689 GOVT 50000 Fellowship Training Award for Workforce Expansion University of California Los Angeles 956036494 GOVT 200000 Innovative Research Award - Translational University of California Los Angeles 956036494 GOVT 50000 Fellowship Training Award for Workforce Expansion University of California Los Angeles 956036494 GOVT 1000 Medical and Graduate Student Preceptorship University of Colorado Denver 846000555 GOVT 60000 DonorDirect Telehealth - CSE Award University of Colorado Denver 846000555 GOVT 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion University of Colorado Denver 846000555 GOVT 1000 Medical and Graduate Student Preceptorship University of Delaware 516000297 GOVT 4000 Medical and Graduate Student Preceptorship University of Florida 596002052 GOVT 125000 Investigator Award - Clinical University of Houston 746001118 GOVT 200000 Innovative Research Award - Basic University of Maryland Baltimore 526002033 GOVT 50000 Fellowship Training Award for Workforce Expansion University of Massachusetts Chan Medical School 043167352 GOVT 25000 Mentored Nurse Practitioner/Physician Assistant Award for Workforce Expansion University of North Carolina at Chapel Hill 566001393 GOVT 200000 Innovative Research Award - Translational University of North Carolina at Chapel Hill 566001393 GOVT 4000 Medical and Graduate Student Preceptorship University of Oklahoma Hlth Sciences Center 736017987 GOVT 181762 Career Development Bridge Funding Award - R Bridge University of Pittsburgh Medical Center 232919472 GOVT 50000 Fellowship Training Award for Workforce Expansion University of South Carolina 576001153 GOVT 15000 Lawren H. Daltroy Preceptorship in Health Communication University of Texas Southwestern Medical Center 756002868 GOVT 200000 Innovative Research Award - Basic University of Texas Southwestern Medical Center 756002868 GOVT 75000 Scientist Development Award - Translational University of Texas Southwestern Medical Center 756002868 GOVT 2000 Medical and Graduate Student Preceptorship University of Utah 876000525 GOVT 50000 Fellowship Training Award for Workforce Expansion University of Utah 876000525 GOVT 1500 Pediatric Visiting Professorship University of Washington 916001537 GOVT 15000 Ephraim P. Engleman Endowed Resident Research Preceptorship University of Washington 916001537 GOVT 199790 Clinician Scholar Educator Award, Innovative Research Award, Innovative Research Award for Community Practitioners, Investigator Award, or the Scientist Development Award Vanderbilt University Medical Center 352528741 GOVT 50000 Fellowship Training Award for Workforce Expansion Vanderbilt University Medical Center 352528741 GOVT 37500 Scientist Development Award - Clinical Virginia Commonwealth University 546001758 GOVT 50000 Fellowship Training Award for Workforce Expansion Washington University in St Louis 430653611 GOVT 60000 DonorDirect Telehealth - CSE Award Washington University in St Louis 430653611 GOVT 50000 Career Development Bridge Funding Award - K Supplement Washington University in St Louis 430653611 GOVT 50000 Paula de Merieux Fellowship Training Award Washington University in St Louis 430653611 GOVT 14725 Resident Research Preceptorship Washington University in St Louis 430653611 GOVT 138415 Scientist Development Award - Basic Yale University 060646973 GOVT 180134 Innovative Research Award - Health Services Yale University 060646973 GOVT 50000 Career Development Bridge Funding Award - K Supplement 67 19 Edmund L. Dubois, MD, Memorial Lectureship 1 750 Health Professional Online Education Grant 2 1598 Health Professional Online Education Grant 4 7996 Marshall J. Schiff, MD, Memorial Fellow Research Award 4 6000 Medical and Graduate Student Preceptorship 3 4500 Medical and Graduate Student Preceptorship 19 57000 Medical and Graduate Student Preceptorship - Chevrier Lupus Research Fund 4 12000 Oscar S. Gluck, MD, Memorial Lectureship 1 1500 Paul Klemperer, MD, Memorial Lectureship 1 1500 Pediatric Rheumatology Fellow Research Award 2 3000 Pediatric Visiting Professorship 16 24000 Philip Hench, MD Memorial Lectureship 1 1500 Rheumatology Research Foundation Memorial Lectureship 1 2500 Student & Resident Research Award 24 24000 Student & Resident Research Award 74 148000 Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds. THE RHEUMATOLOGY RESEARCH FOUNDATION MAINTAINS AN EXTENSIVE AWARDS AND GRANTS PORTFOLIO, WITH 23 SUPPORT MECHANISMS FOR RHEUMATOLOGISTS AND RHEUMATOLOGY HEALTH PROFESSIONALS IN THE U.S. EACH GRANT APPLICATION CONTAINS VERY SPECIFIC ELIGIBILITY AND REVIEW CRITERIA (DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.RHEUMRESEARCH.ORG. ALL APPLICATIONS UNDERGO RIGOROUS PEER REVIEW IN THEIR ASSIGNED STUDY SECTION AND ARE SCORED AND RANKED ACCORDING TO THE stated REVIEW CRITERIA AND OVERALL MERIT OF THE PROPOSAL. ALL STUDY SECTION RECOMMENDATIONS ARE SENT TO THE FOUNDATION'S SCIENTIFIC ADVISORY COUNCIL FOR QUALIFICATION BEFORE BEING PRESENTED (BLINDED) TO THE FOUNDATION BOARD OF DIRECTORS FOR FINAL APPROVAL. AFTER THE AWARDS ARE MADE, ALL RECIPIENTS ARE REQUIRED TO COMPLETE FUNDING CONTRACTS WITH INSTITUTIONAL SIGN-OFF, AND MUST ALSO SUBMIT ANNUAL REPORTS ON THEIR PROGRESS, INCLUDING FINANCIAL RECONCILIATION AND ASSURANCE OF COMPLIANCE WITH FOUNDATION POLICIES (AVAILABLE ON THE WEBSITE). ALL REPORTS ARE REVIEWED BY THE FOUNDATION'S SCIENTIFIC ADVISORY COUNCIL TO ENSURE COMPLIANCE WITH PROGRAMMATIC, SCIENTIFIC, FISCAL AND ADMINISTRATIVE POLICES AND REQUIREMENTS. IF A RECIPIENT IS FOUND TO BE IN COMPLIANCE AND MAKING REASONABLE PROGRESS (I.E., MEETING PROJECT BENCHMARKS), THE NEXT YEAR OF FUNDING IS APPROVED FOR DISBURSEMENT. IF NOT, THE AWARD MAY BE TERMINATED. SUCH PROGRAMMATIC OVERSIGHT ALLOWS FOR EXCELLENT STEWARDSHIP OF FOUNDATION FUNDS. IN ADDITION TO REGULAR OVERSIGHT AS DESCRIBED ABOVE, PORTFOLIO REVIEWS ARE CONDUCTED EVERY FIVE YEARS TO ENSURE THAT FUNDING MECHANISMS ARE EFFECTIVELY MEETING THE FOUNDATION'S GOALS OUTLINED IN THE STRATEGIC PLAN. IN ADDITION, THE RHEUMATOLOGY RESEARCH FOUNDATION ABIDES BY THE FOLLOWING CONFLICT OF INTEREST GUIDELINES: GUIDELINES FOR AWARDING OF FOUNDATION AWARDS AND GRANTS I. THE COLLEGE WILL NOT PERMIT ANY EXTERNAL ENTITIES TO SELECT (OR INFLUENCE THE SELECTION OF) RECIPIENTS OF FOUNDATION AWARDS OR GRANTS. II. THE COLLEGE WILL APPOINT INDEPENDENT COMMITTEES TO SELECT RECIPIENTS OF FOUNDATION AWARDS OR GRANTS BASED ON PEER REVIEW OF GRANT APPLICATIONS. III. THE COLLEGE WILL NOT REQUIRE RECIPIENTS OF FOUNDATION AWARDS OR GRANTS TO MEET WITH EXTERNAL ENTITIES. IV. THE COLLEGE WILL NOT PERMIT ANY EXTERNAL ENTITY THAT SUPPORTS FOUNDATION AWARDS OR GRANTS TO REQUIRE INTELLECTUAL PROPERTY RIGHTS OR ROYALTIES ARISING OUT OF THE GRANT-FUNDED RESEARCH. V.THE COLLEGE WILL NOT PERMIT ANY EXTERNAL ENTITY THAT SUPPORTS FOUNDATION AWARDS OR GRANTS TO CONTROL OR INFLUENCE MANUSCRIPTS THAT ARISE FROM THE GRANT-FUNDED RESEARCH. X X true true X X X false false false false false false false false false Colleen Merkel CPA VP, Operations and Finance 0 232988 0 8000 0 1025 0 25429 0 25429 0 292871 0 0 Rachel Myslinski Executive Director 0 210526 0 5000 0 238 0 23011 0 23011 0 261786 0 0 Paula Reed VP, Philanthropy 0 166192 0 8000 0 1025 0 15111 0 14758 0 205086 0 0 Eryn Marchiolo VP, Mission 0 161846 0 8000 0 238 0 14339 0 14771 0 199194 0 0 Katherine Butts-Pruett Sr. Director, Philanthropy 0 128764 0 3000 0 349 0 10893 0 15228 0 158234 0 0 Schedule J, Part I, Line 1a First-class or charter travel Partner or Significant other travel costs are reimbursed for Executive Committee members only, under the following circumstances: Travel covered for up to 3 meetings per year, including one international trip, to be used anytime during the official year. For the international meeting partner or significant others may travel business class. Schedule J, Part I, Line 1a Travel for companions Partner or Significant other travel costs are reimbursed for Executive Committee members only, under the following circumstances: Travel covered for up to 3 meetings per year, including one international trip, to be used anytime during the official year. For the international meeting partner or significant others may travel business class. Form 990, Part V, Line 2a EXPLANATION OF FULL TIME EMPLOYEES: The filing organization has a management agreement with related organization, American College of Rheumatology (ACR), under which ACR provides a variety of management services, including executive personnel and other appropriate staffing. The organization pays a management fee to the ACR for these services, which includes salary expenses for all staff devoting effort to the organization's programs and services, as well as administrative and fundraising activities. During the filing year, there were approximately 21 full time equivalent staff who devoted effort to the organization. Form 990, Part VI, Line 3 Delegation of management duties THE AMERICAN COLLEGE OF RHEUMATOLOGY PROVIDES MANAGEMENT AND ADMINISTRATIVE SERVICES FOR THE FOUNDATION. MANAGEMENT FEES CHARGED TO THE FOUNDATION BY THE COLLEGE AMOUNTED TO $3,224,690 FOR THE FISCAL YEAR ENDING JUNE 30, 2024 AND ARE INCLUDED IN MANAGEMENT FEES IN THE ACCOMPANYING STATEMENTS OF FUNCTIONAL EXPENSES. Form 990, Part VI, Line 7a Members or stockholders electing members of governing body THE BOARD OF DIRECTORS OF THE FOUNDATION SHALL BE NOMINATED BY THE ACR COMMITTEE ON NOMINATIONS AND APPOINTMENTS AND CONFIRMED BY THE BOARD OF DIRECTORS OF THE FOUNDATION. Form 990, Part VI, Line 11b Review of form 990 by governing body A DRAFT COPY OF THE FORM 990 WAS PROVIDED TO THE FULL BOARD FOR THEIR REVIEW AND COMMENT PRIOR TO FILING OF THE RETURN. THE QUESTION AND ANSWER PERIOD OF THE MEETING WAS HELD WITH ASSISTANCE FROM THE VICE PRESIDENT, OPERATIONS AND FINANCE, AND THE TAX PREPARER AND WAS DOCUMENTED IN THE MINUTES. THE EXECUTIVE DIRECTOR SIGNED THE RETURN AFTER CONSIDERING COMMENTS. Form 990, Part VI, Line 12c Conflict of interest policy ALL BOARD MEMBERS ANNUAL SUBMISSION OF DISCLOSURE STATEMENTS ARE ON FILE WITH LEGAL COUNSEL. ANY INDIVIDUAL WHO GIVES NOTICE OF POTENTIAL CONFLICT IS TO ABSTAIN FROM PARTICIPATING IN ANY ITEM OF BUSINESS WHICH COMES BEFORE THE BOARD. Form 990, Part VI, Line 15a Process to establish compensation of top management official THE RHEUMATOLOGY RESEARCH FOUNDATION HAS A MANAGEMENT AGREEMENT WITH AMERICAN COLLEGE OF RHEUMATOLOGY. AMERICAN COLLEGE OF RHEUMATOLOGY'S POLICIES APPLY TO THE FOUNDATION. THE EXECUTIVE DIRECTOR AND DIRECTOR OF HUMAN RESOURCES USES COMPARABILITY DATA TO DEVELOP COMPENSATION RANGES AND TARGETS. THE DIRECTOR OF HUMAN RESOURCES CONTEMPORANEOUSLY DOCUMENTS AND MAINTAINS CONFIDENTIAL RECORDS OF ALL DECISIONS AFFECTING COLLEGE AND FOUNDATION EMPLOYEES. Form 990, Part VI, Line 15b Process to establish compensation of other employees THE RHEUMATOLOGY RESEARCH FOUNDATION HAS A MANAGEMENT AGREEMENT WITH AMERICAN COLLEGE OF RHEUMATOLOGY. AMERICAN COLLEGE OF RHEUMATOLOGY'S POLICIES APPLY TO THE FOUNDATION. THE EXECUTIVE DIRECTOR AND DIRECTOR OF HUMAN RESOURCES USES COMPARABILITY DATA TO DEVELOP COMPENSATION RANGES AND TARGETS. THE DIRECTOR OF HUMAN RESOURCES CONTEMPORANEOUSLY DOCUMENTS AND MAINTAINS CONFIDENTIAL RECORDS OF ALL DECISIONS AFFECTING COLLEGE AND FOUNDATION EMPLOYEES. Form 990, Part VI, Line 19 Required documents available to the public THE ORGANIZATION MAKES IT GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC UPON REQUEST. THE ORGANIZATION MAKES ITS FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST AND ON THE ORGANIZATION'S WEBSITE. Form 990, Part XI, Line 9 Other changes in net assets or fund balances Recoveries of prior year grants - 249904; Form 990, Part XII, Line 2c THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. American College of Rheumatology Inc 2200 Lake Boulevard NE Atlanta GA 30319 581627547 Provides education, research, advocacy and patient support. IL 501(c)(6) NA false false true false false false false false false false false true false false true true true true false false American College of Rheumatology Inc M 3224690 Cash American College of Rheumatology Inc B 18750 Cash