2025-02-07T13:03:41-06:00 2024-06-30 582676261 Rogers & Company PLLC 8300 Boone Boulevard Suite 600 Vienna VA 22182 990 2023-07-01 542048636 Parkinson Foundation of the National Capital Area PARK 3018446510 3570 Olney Laytonsville Rd 490 Olney MD 208307521 Jared D Cohen CEO 3018446510 2025-02-07 1 1 Lori A Collingsworth P00639819 7038930300 2025-02-07 2023 2025-03-06 01:10:19Z ParkinsonFoundationorg & PFNCA Jared D Cohen 3570 Olney Laytonsville Rd 490 Olney MD 208307521 904179 0 X www.parkinsonfoundation.org X 2001 VA To improve the quality of the life for people living with Parkinson disease. (See Part III) 14 14 5 50 0 0 791933 678204 65105 58163 69762 137589 -2654 -5916 924146 868040 0 0 0 0 506315 442991 0 0 50451 319954 242990 826269 685981 97877 182059 3780063 4089574 51164 53890 3728899 4035684 X The Parkinson Foundation of the National Capital Area (PFNCA) improves the quality of life of those impacted by Parkinson's disease, their care partners and families, and fosters a sense of community to ensure that no one battles this disease alone. Full mission on Schedule O. 0 0 366678 15286 Education programs & support: PFNCA provided extensive educational programing for families impacted by Parkinson's disease in Fiscal Year 2024. PFNCA produced its annual educational conference - the PFNCA Symposium. Developed by PFNCA's Medical Advisory Board, the event was held online May 18, 2024. Additional lectures were provided using an online view on demand format. Lectures included Orthostatic Hypotension, Understanding Your Health Team, Anxiety in Parkinson's Disease, Pros and Cons of Deep Brain Stimulation and Focused Ultrasound for Parkinson's Disease, Constipation, Clinical Trials in Parkinson's Disease, Medication Options After Diagnosis, New Therapies and Current Trials - cell therapies and surgical, Updates to the diagnosis and classification of Parkinson's disease, (continued in Sch O) 108404 42877 Wellness classes/programs: A large part of PFNCA's service emphasizes allowing those diagnosed with Parkinson's disease to slow the negative aspects of how the disease makes them feel. Key components of this effort include movement (exercise, boxing, yoga and dance) and voice strengthening (communications club and choir) programs. During Fiscal Year 2024, PFNCA offered program sessions at no per session cost for people impacted by Parkinson's disease who reside in Washington, D.C., Maryland, Virginia and elsewhere. In FY24, more than 2,500 wellness class sessions were provided, an increase of 25% over the number of classes provided in FY23. Classes focused on various types of exercise (seated, high aerobic, boxing, dance, etc.) and maintaining communication skills. (continued in Sch O) 6774 Public awareness: PFNCA works to raise awareness within our community about Parkinson's disease. The Foundation's e-newsletter - PD Info for You helps educate readers about the disease. PFNCA also produces print materials and maintains a website with educational resources. One popular aspect of the organization's website is the Parkinson's Scorecard, developed by PFNCA to share information to help people diagnosed with Parkinson's get a snapshot of their knowledge of considerations when living with the disease. PFNCA's Community Outreach Vehicle and mascot (AMP) attended several events in FY24 to raise awareness of living well with Parkinson's. 481856 1 1 0 0 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 20 0 1 5 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 0 0 VA MD X Jared D Cohen CEO 3018446510 3570 Olney Laytonsville Rd 490 Olney MD 208307521 Jared Cohen President/CEO 40.00 X 235187 0 46180 Jessica Wunder Chair 4.00 X X 0 0 0 Anthony Massoud Vice Chair 2.00 X X 0 0 0 Geoffrey Abrahams Treasurer 2.00 X X 0 0 0 Sarah Clarke Secretary 2.00 X X 0 0 0 Monique Yingling Board Member 2.00 X 0 0 0 Debora Broderick Board Member 2.00 X 0 0 0 Pritha Ghosh Board Member 2.00 X 0 0 0 Myron Marlin Board Member 2.00 X 0 0 0 Paul Hagens Jr Board Member 2.00 X 0 0 0 Alexis Tsonos Board Member 2.00 X 0 0 0 Kyri Jacobs Board Member 2.00 X 0 0 0 Stephanie Janard Board Member 2.00 X 0 0 0 Steven Berk Board Member 2.00 X 0 0 0 Cathy Renkiewicz Board Member 2.00 X 0 0 0 235187 0 46180 1 0 1 0 0 228411 58632 391161 16466 678204 Wellness registrations 611710 42877 42877 Symposia registrations 611710 15286 15286 58163 137054 137054 30758 30223 535 535 535 0 228411 5916 -5916 -5916 868040 58163 0 131673 270178 197869 47679 24630 130242 104193 13024 13025 6224 6224 15264 8338 5927 999 21083 17035 1919 2129 35 35 42531 42531 31298 20987 5511 4800 4640 2596 2044 30997 16937 11236 2824 318 22 296 809 312 497 1833 985 848 1393 1393 12204 12204 Exercise classes 112754 108404 4350 Outreach truck (PMRU) 4178 4178 685981 481856 153674 50451 265899 177333 2142220 2391247 60296 26100 35589 34196 1336355 1486798 3780063 4089574 51164 53890 51164 53890 X 3728899 4035684 3728899 4035684 3780063 4089574 182059 124726 0 X X 0 1 X 1 0 X 960322 845515 1426250 791933 678204 4702224 960322 845515 1426250 791933 678204 4702224 434992 4267232 28970 14776 34860 69830 137054 285490 4987714 373898 0.85550 0.88450 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 783892 109830 893722 705802 78090 783892 807148 -101346 705802 602091 205057 807148 596421 5670 602091 1.00000 0.00000 0.00000 0 0 60296 26100 34196 34196 X 1586206 124726 587524 5916 718166 868040 0 868040 1279421 587524 5916 593440 685981 0 685981 Part V, Line 4: The Foundation's Board-designated quasi-endowment fund was established in 2012 through a capital campaign to better assure a continued availability of funds to help support program services. Part X, Line 2: Management has evaluated the Foundation's tax positions and concluded that the Foundation's financial statements do not include any uncertain tax positions. Part XI, Line 2d - Other Adjustments: Direct fundraising event expenses 5,916. Part XII, Line 2d - Other Adjustments: Direct fundraising event expenses 5,916. Walk Off Parkinson's 228411 228411 485 1525 3906 228411 228411 485 1525 3906 5916 -5916 X X 0 0 0 0 0 0 0 1 0 Jared Cohen President/CEO 206130 0 29057 0 0 0 12124 0 34056 0 281367 0 0 0 Part I, Line 7 The CEO is eligible for bonus based on performance and time of service. .99J3 . M*4,89,S,1 Form 990, Part III, Line 1: The Parkinson Foundation of the National Capital Area (PFNCA) improves the quality of life of those impacted by Parkinson's disease, their care partners and families, and fosters a sense of community to ensure that no one battles this disease alone. PFNCA offers exercise, communication and education programs to strengthen the physical and emotional health of people impacted by Parkinson's. Form 990, Part III, Line 4a, Education programs & support: (continued) New Therapies and Current Trials - Medication, Navigating Psychosis in Parkinson's Disease: Perspectives on Patient Experiences and Emerging Therapies, Motor Fluctuations, Urinary Considerations, Benefits of Physical Therapy, Depression and mood changes in PD, Reclaiming Sexual Health and Intimacy in Parkinson Disease and Cognitive Disorders in Parkinson Disease. The PFNCA Symposium included presentations by 21 physicians that specialize in Parkinson's (Movement Disorder Specialists) who represented Johns Hopkins University, Georgetown University, National Institutes of Health, George Washington University, the Cleveland Clinic, the University of Florida, Christiana Care, Inova and other practices. PFNCA's Parkinson's Pointers program returned with in-person lectures in FY24. A presentation by Dr. Pritha Ghosh of George Washington University titled Updating/Developing Your Parkinson's Action Plan took place October 26, 2023 and was live streamed to 11 locations in Maryland, Virginia and Washington, D.C. On February 25, 2024 lecture by Dr. Evan Gray titled Parkinson's and Nutrition was live streamed to eight locations in Maryland, Virginia and Washington, D.C. At both programs, attendees gathered to view the lectures, enjoy refreshments and socialize. Started in 2018, Parkinson's Pointers is a lecture series where people gather in various locations for a presentation and a question-and-answer session by a physician or other person that specializes in Parkinson's. Powerful practical information is shared in a positive setting. Lectures are live streamed to the locations and refreshments are served. The organization's Walk Off Parkinson's program took place September 24, 2023, and included lectures from physicians, exercise demonstrations and question and answer sessions. Lecture topics at this program included Overview of Parkinson's, Benefits of Attending A Support Group and What's Next: Information for Those Newly Diagnosed or Just Now Focusing on Their Diagnosis and DBS: A Movement Disorder Specialist's Perspective. Many physicians attended the program allowing for attendees to ask questions in an informal setting. PFNCA also supported a network of more than 45 support groups for those impacted by Parkinson's. Additionally, PFNCA led several support groups designed for people newly diagnosed during FY24. Form 990, Part III, Line 4b, Wellness classes/programs: (continued) In consultation with our Medical Advisory Board some PFNCA wellness classes returned in person in FY23. In person wellness classes returned to 13 locations in Maryland, Virginia and Washington, D.C. PFNCA's wellness classes also encourage socialization to combat isolation that people with Parkinson's may experience. Form 990, Statement Highlighting In-Kind Support Received in the fiscal year ended June 30, 2024: Donated services or use of equipment, materials, or facilities not included on Form 990: PFNCA also received donations of facilities and services (in-kind) valued at $587,524 during the fiscal year ended June 30, 2024. These in-kind donations included: Program-related: $582,917, General and Administrative: $3,599, and Fundraising: $1,008. Factoring in this in-kind support and the offsetting in-kind expenses, PFNCA ratios for the year are Program-related: 83.67%, General and Administrative: 12.31% and Fundraising-related: 4.02%. Form 990, Part VI, Section B, line 11b Form 990 is prepared by an outside independent accounting firm with the assistance of PFNCA staff. The 990 is circulated to the full Board of Directors prior to submission to the IRS Form 990, Part VI, Section B, line 12c PFNCA officers and directors are required to disclose annually any interests that could give rise to conflicts. Form 990, Part VI, Section B, line 15a The Board reviews and approves the CEO compensation. The organization has no additional compensated officers or key employees. All other employees have their compensation reviewed and adjusted by the CEO. The Board of Directors approves the annual budget which includes the compensation for all employees. Form 990, Part VI, Section C, line 19 The bylaws, budget, conflict of interest policy and standard financial reports are available to the public upon request. Form 990, Part XII, line 2c: The Treasurer & CEO are responsible for oversight of the audit. The Board of Directors is reponsible for the selection of the independent accountant. The process is consistent with prior years.