2025-10-29T11:27:14-04:00 2024-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2024-01-01 463405526 RARE CANCER RESEARCH FOUNDATION RARE 9198278373 703 FOSTER STREET DURHAM NC 27701 MARSHALL THOMPSON PRESIDENT 9198278373 2025-10-29 true true SUSAN DEAN P01281194 9196621001 2025-10-29 2024 2025-03-06 01:10:19Z MARSHALL THOMPSON 703 FOSTER ST DURHAM NC 27701 1773373 false X WWW.RCRF.ORG X 2013 NC THE RARE CANCER RESEARCH FOUNDATION IS DEDICATED TO CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH AND ACCELERATE DEPLOYMENT OF PROMISING THERAPIES. 4 3 10 0 2606409 1184545 891959 541563 47265 5592 0 3503960 1773373 81890 0 1039281 1204406 0 146564 1128338 954175 2167619 2240471 1336341 -467098 3033890 3059554 942133 743703 2091757 2315851 THE RARE CANCER RESEARCH FOUNDATION IS DEDICATED TO CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH AND ACCELERATE DEPLOYMENT OF PROMISING THERAPIES. false false 788639 81890 535188 PPOI (FORMERLY H37) IS ON A MISSION TO CREATE EXCEPTIONAL OUTCOMES FOR INDIVIDUALS FACING ADVANCED CANCER BY PUSHING THE BOUNDARIES OF SCIENCE, RESEARCH, AND CLINICAL INNOVATIONS. WORKING IN DEEP PARTNERSHIP WITH A SMALL GROUP OF CLIENTS WITH ADVANCED CANCERS, PPOI EXPLORES THE DETAILED MOLECULAR AND CLINICAL CHARACTERISTICS OF INDIVIDUAL CLIENT'S DISEASE TO HELP THEM AND THEIR CLINICAL TEAM MAKE MORE DATA-INFORMED DECISIONS ABOUT THEIR TREATMENT JOURNEY. WE HAVE ALREADY SEEN THE SUCCESS OF THIS PROGRAM IN THE FIRST PERSONALIZED VACCINE VALIDATED WITH MASS SPECTROMETRY IN THE COUNTRY AS WELL AS DAILY WINS AS WE WORK TO NAVIGATE THROUGH THIS COMPLEX AND EVER-CHANGING LANDSCAPE ON BEHALF OF THESE PATIENTS. 346025 6375 PATTERN.ORG IS A GROUNDBREAKING PLATFORM THAT ALLOWS RCRF TO WORK DIRECTLY WITH CANCER PATIENTS ACROSS THE COUNTRY TO IDENTIFY PATIENTS ELIGIBLE TO DONATE TISSUE TO RESEARCH, EDUCATE THOSE PATIENTS ON RESEARCH OPPORTUNITIES, CONSENT THEM INTO SUCH RESEARCH PROGRAMS, AND THEN COORDINATE THE BIO-LOGISTICS OF MOVING THEIR TISSUE FROM THEIR LOCAL HOSPITALS TO WORLD-CLASS RESEARCH INSTITUTIONS. PATTERN.ORG WAS LAUNCHED WITH GREAT SUCCESS IN 2016, AND IN 2024, DELIVERED HIGH QUALITY, VIABLE, LIVING RARE CANCER TISSUE FROM BOTH ACADEMIC AND COMMUNITY HOSPITALS ACROSS THE U.S. TO CRITICAL,INNOVATIVE RESEARCH INITIATIVES. 512752 A PROGRAM INITIATED IN 2023 TO DEVELOP A UNIFIED PLATFORM TO HOST COMBINED MOLECULAR AND CLINICAL RARE CANCER DATA WHICH WILL BE SHARED BROADLY WITH THE CANCER RESEARCH COMMUNITY. 1647416 true true false false false false false false false false false false false true false true false false false false false false false false false false false true false true false false false false false false true false false false false false false false false false false true 36 0 true 10 true false false false false false false false false false false false false X 4 3 true false false false false false false true true false false true true true true true true true true false X X BARBARA VAN HARE 9198278373 703 FOSTER STREET DURHAM NC 27701 MARSHALL THOMPSON PRESIDENT 40.00 X 189510 0 5393 ROBIN KAGEYAMA DIR DATA PLA 40.00 X 162277 0 5388 AMBER SMITH BIOBANK MANA 40.00 X 150000 0 12 SUSAN HORRELL DIR STRATEGI 40.00 X 139166 0 5400 KATHRYN KAY COLEMAN PROD ENGINEE 40.00 X 130977 0 5187 BARBARA VAN HARE PRES. OF PAT 40.00 X X 119409 0 300 BENJAMIN DAVID KAMPHAUS TECHNICAL FE 40.00 X 102597 0 4050 HANA LITTLEFORD CLINICAL DAT 40.00 X 97702 0 4500 CHRIS HEERY CHAIRMAN 1.00 X 0 0 0 KEITH LAABS DIRECTOR 1.00 X 0 0 0 RYAN PRIPSTEIN DIRECTOR 1.00 X 0 0 0 1091638 30230 7 false true false X SECTOR LABS LLC 1729 RELIEZ VALLEY RD LAFAYETTE CA 94549 CONSULTANTING 114843 1 1184545 1184545 PARTICIPANT SERVICE FEES 535188 535188 PROGRAM SERVICE REVENUE 6375 6375 541563 47265 47265 1773373 541563 47265 X 81890 81890 807028 643543 142308 21177 250348 199633 44146 6569 56014 44667 9877 1470 91016 72579 16049 2388 7612 698 6914 41500 41500 670004 463872 91172 114960 71474 44866 26608 15671 4419 11252 83727 58863 24864 41593 13404 28189 3612 3612 RESEARCH SUPPLIES 17895 17895 MISC EXPENSE 1087 1087 2240471 1647416 446491 146564 2881110 2553244 47140 127681 52628 25099 406542 3033890 3059554 112964 718703 829169 25000 942133 743703 X 2091757 1965845 350006 2091757 2315851 3033890 3059554 -467098 691192 X false true X true false X 23945 1050279 37638 2606409 1184545 4902816 23945 1050279 37638 2606409 1184545 4902816 1993534 2909282 47265 47265 4950081 1517383 0.58770 0.64070 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED SOFTWARE IN PROGRESS - DATA COMMONS 391478 SOFTWARE IN PROGRESS - PATTERN.ORG 15064 406542 X 1773373 1773373 1773373 2240471 2240471 2240471 SCHEDULE D, PAGE 3, PART X THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATIONS POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2024 AND 2023. true UNC AT CHAPEL HILL 104 AIRPORT DR SUITE 2200 CB1350 CHAPPEL HILL NC 275991350 566001393 501C3 31890 RESEARCH H LEE MOFFITF CANCER CENTER 12902 MAGNOLIA DR TAMPA FL 33612 592451713 501C3 50000 RESEARCH 2 SCHEDULE I, PAGE 1, PART I, LINE 2 THE ORGANIZATION OBTAINS REPORTS FROM EACH GRANTEE PERIODICALLY PERTAINING TO THE PROGRESS AND STATUS OF RESEARCH AND USE OF GRANT FUNDS. IN ADDITION, ANY PUBLISHED FINDINGS RELATED TO THE RESEARCH IS ALSO REQUESTED BY THE ORGANIZATION FOR REVIEW. false false false false false false false false false MARSHALL THOMPSON PRESIDENT 189510 5393 194903 ROBIN KAGEYAMA DIR DATA PLATFORM 162277 5388 167665 AMBER SMITH BIOBANK MANAGER 150000 12 150012 BARBARA VAN HARE FAMILY MEMBER 119409 COMPENSATION false SCHEDULE L, PART V BARBARA VAN HARE, THE AUNT OF BOARD MEMBER KEITH LAABS, IS EMPLOYED BY RCRF AS THE DIRECTOR OF PARTNERSHIPS. FORM 990, PAGE 6, PART VI, LINE 2 BARBARA VAN HARE MARK LAABS DIRECTOR OFFICER AUNT FORM 990, PAGE 6, PART VI, LINE 11B THE FORM 990 "REVIEW PROCESS" WILL INVOLVE E-MAIL CIRCULATION AND INSPECTION BY EACH OF THE BOARD MEMBERS FOLLOWED BY DOCUMENTED APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C TO ENSURE THE CORPORATION OPERATES IN A MANNER CONSISTENT WITH CHARITABLE PURPOSES AND DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS TAX- EXEMPT STATUS, PERIODIC REVIEW SHALL BE CONDUCTED. THE PERIODIC REVIEWS SHALL, AT A MINIMUM, INCLUDE WHETHER COMPENSATION ARRANGEMENTS AND BENEFITS ARE REASONABLE, BASED ON COMPETENT SURVEY INFORMATION, AND THE RESULT OF ARM'S LENGTH BARGAINING, AND WHETHER PARTNERSHIPS, JOINT VENTURES, AND ARRANGEMENTS WITH MANAGEMENT ORGANIZATIONS CONFORM TO THE CORPORATION'S WRITTEN POLICIES, ARE PROPERLY RECORDED, REFLECT REASONABLE INVESTMENT OR PAYMENTS FOR GOODS AND SERVICES, FURTHER CHARITABLE PURPOSES AND DO NOT RESULT IN INUREMENT, IMPERMISSIBLE PRIVATE BENEFIT OR IN AN EXCESS BENEFIT TRANSACTION. FORM 990, PAGE 6, PART VI, LINE 15A NO EXECUTIVE OFFICERS WERE COMPENSATED IN THE CURRENT YEAR. FORM 990, PAGE 6, PART VI, LINE 15B NO EXECUTIVE OFFICERS WERE COMPENSATED IN THE CURRENT YEAR. FORM 990, PAGE 6, PART VI, LINE 19 ALL DOCUMENTS ARE CURRENTLY AVAILABLE TO THE PUBLIC UPON REQUEST. PROSPECTIVELY, ALL INFORMATION WILL ALSO BE AVAILABLE ON WWW.GUIDESTAR.COM. FORM 990, PART IX, LINE 11G CONTRACTED SERVICES 447,214 81,838 114,960 PROFESSIONAL RESEARCH SERVICE 11,524 0 0 OTHER PROFESSIONAL FEES 5,134 9,334 0 TOTAL 463,872 91,172 114,960