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        <FormAndLineReferenceDesc>FORM 990 - ORGANIZATION'S MISSION</FormAndLineReferenceDesc>
        <ExplanationTxt>THE CORPORATION WILL PROVIDE FREE CONSULT &amp; INFORMATION SERVICES TO FAMILIES OF INDIVIDUALS OR INDIVIDUALS WITH VELO-CARDIO-FACIAL SYNDROME (VCFS), CRANIOFACIAL DISORDERS AND GENETIC SYNDROMES AND THE CLINICIANS WHO ARE TREATING PEOPLE WITH THESE DISORDERS IN ORDER TO PROVIDE THEM WITH THE LATEST INFORMATION ABOUT THEIR DISORDERS, RELEVANT RESEARCH AND TREATMENT OUTCOMES. THE ORGANIZATION WILL PROVIDE A FORUM FOR DISCUSSION OF THE PROBLEMS, TREATMENTS, AND RECENT ADVANCEMENTS ASSOCIATED WITH VCFS, CRANIOFACIAL DISORDERS, GENETIC SYNDROMES AND THEIR MANAGEMENT. THESE SERVICES WILL BE PROVIDED AT NO COST TO THOSE SEEKING INFORMATION AND WILL SUPPORTED BY CHARITABLE DONATIONS.</ExplanationTxt>
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        <FormAndLineReferenceDesc>FORM 990, PAGE 1, PART I, LINE 6</FormAndLineReferenceDesc>
        <ExplanationTxt>VOLUNTEERS PROVIDE INFORMATION TO REGISTRANTS USING VIDEO CONFERENCES ANYWHERE FROM 2 TO 3 HOURS A MONTH OR LESS. THERE ARE NO BENEFITS AND NO STIPENDS, OTHER THAN BEING COVERED BY THE ORGANIZATIONS LIABILITY INSURANCE FOR WHAT THEY DO.</ExplanationTxt>
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        <FormAndLineReferenceDesc>FORM 990, PAGE 6, PART VI, LINE 9</FormAndLineReferenceDesc>
        <ExplanationTxt>WILLIAM D GRAF, MD 11 COTTAGE ST NEW HAVEN, CT 06511 DEBORAH MENTER 4428 SWISSVALE DRIVE MANLIUS, NY 13104 JODI BLOOM 415 HOMEWOOD DRVIE FAYETTEVILLE, NY 13066 KAREN J. GOLDING-KUSHNER 8138 SOLOMAN SEAL LANE MANLIUS, NY 13104 ADAM SHPRINTZEN 8138 SOLOMAN SEAL LANE MANLIUS, NY 13104</ExplanationTxt>
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        <FormAndLineReferenceDesc>FORM 990, PAGE 6, PART VI, LINE 12C</FormAndLineReferenceDesc>
        <ExplanationTxt>SEE SECTION 3.3 PROCEDURES FOR ADDRESSING THE CONFLICT OF INTEREST AND SECTION 3.4 VIOLATIONS OF THE CONFLICT OF INTEREST POLICY AS PART OF THE BYLAWS OF VCFS AVAILABLE AT THE OFFICE OR ONLINE THROUGHT THE CHARITIES BUREAU WEBSITE.</ExplanationTxt>
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        <FormAndLineReferenceDesc>FORM 990, PAGE 6, PART VI, LINE 15A</FormAndLineReferenceDesc>
        <ExplanationTxt>SEE SECTION V OF THE BYLAWS: COMPENSATION.</ExplanationTxt>
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        <FormAndLineReferenceDesc>FORM 990, PAGE 6, PART VI, LINE 15B</FormAndLineReferenceDesc>
        <ExplanationTxt>SEE SECTION V OF THE BYLAWS: COMPENSATION.</ExplanationTxt>
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        <FormAndLineReferenceDesc>FORM 990, PAGE 6, PART VI, LINE 19</FormAndLineReferenceDesc>
        <ExplanationTxt>THE GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST AND ARE ALSO AVAILABLE ON THE NEW YORK CHARITIES WEBSITE.</ExplanationTxt>
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