2025-09-02T19:15:58-07:00 2024-12-31 990EZ 2024-01-01 862807827 Eosinophilic & Rare Disease Cooperative EOSI 5206904233 8049 W Black Eagle Ct Tucson AZ 85757 Pamela Squires CEO 2025-09-02 true 2024 2025-03-06 01:10:19Z X X www.eosinophilraredisease.org X X 126504 X 8604 117900 0 0 0 0 126504 40255 2370 17277 10508 70410 56094 3933 60027 3933 60027 3933 60027 3933 60027 Provide education and tools for people with rare disease. In 2024 we distributed 1936 disease-specific Hospital Emergency & Advocacy Kits to people with Vasculitis, Myasthenia Gravis, and 40 other rare diseases, enabling higher quality medical care. 17277 We participated in 10 separate nonprofit coalitions to provide support and education to the rare disease community, and ensure their medications are available and accessible. 3000 We published 9 Rare Candor Podcasts on navigating care, disease, and medical access. We provided 5 livestreams about accessing medications. 7508 27785 Pamela Squires CEO 40.00 40255 Roni Byrne Director 2.00 0 Carol Jones Director 2.00 0 Donna McArthur Director 2.00 0 John Stadler Director 2.00 0 false false false false false false false 0 0 0 false 0 0 false Sarah Jones 8049 W Black Egle Ct Tucson AZ 857571645 5206904233 false false false false false false false false false false false NONE NONE true X 500 7218 126504 134222 0 0 500 7218 126504 134222 0 134222 0 0 0 134222 X 0.00000 Other Expenses.2 Other exp $10508 ERDC As people with rare diseases - we need absolutely every resource we can get! It's tough out there!ERDC is all about improving access to quality care and treatments. We do this through our education, Rare Candor podcasts, and by developing and distributing our flagship tool - the Hospital Emergency Advocacy & Treatment Kit (HEAT Kit). The kit is availabe free to anyone impacted by one of the rare diseases we serve. Most of our work is focused on Vasculitis, Myasthenia Gravis, and IGG4, however, in 2024, we served 40 additional rare diseases by providing our disease-specific HEAT Kits to individuals impacted by rare disease. Our tools help patients and loved ones gain confidence and agency as they seek to access care.In addition to the livestream education, our Rare Candor Podcast and collaborative coalition work noted, we also provide individual support and resources as requested. These resources are to assist people navigating rare disease with resources and support. Many times that involved referring them to other organizations, connecting them with facilities, discussing insurance navigation, or simply being an ear. We do this through individual outreach as well as connection through provate patient Facebook groups. Because the individuals involved in ERDC ARE patient and care partners, we access most of our community through our patient channels.At ERDC we pride ourselves on NOT duplicating what other organizations are already doing. We take the time to see what other organizations are providing and step in to fill the gaps. We are so incredibly grateful for large entities who have so much to offer in disease state education: every single person who is educated and supported on this incredibly difficult journey is a bonus!Our focus - 100% of the time is improving qccess to quality care and treatments. Full stop.Because we're patients and care partners we know how vital it is to embrace all education and supportive resource that is out there. We also have a unique connection, understanding of pain points, and the reality of living with the disease we collectively serve.