2025-06-20T11:39:41-05:00 2024-12-31 362239746 SASSETTI LLC 2107 SWIFT DRIVE SUITE 210 OAK BROOK IL 60523 990 2024-01-01 271642251 DANNY DID FOUNDATION DANN 7733072336 3008 CENTRAL STREET EVANSTON IL 60201 THOMAS STANTON PRESIDENT 7733072336 2025-06-18 1 0 TIMOTHY G GRIFFITH P00299751 7083861433 2025-06-17 2024 2025-03-06 01:10:19Z THOMAS STANTON 3008 CENTRAL STREET EVANSTON IL 60201 3583624 0 X WWW.DANNYDID.ORG X 2010 IL TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES. 16 16 5 115 0 0 1672029 1782198 0 0 69907 94533 -169472 -179485 1572464 1697246 523173 698710 0 0 385056 410503 0 0 160364 340199 357416 1248428 1466629 324036 230617 2995274 3226076 102916 86210 2892358 3139866 X TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES. 3.4 MILLION PEOPLE ARE FACING THE CHALLENGES OF EPILEPSY IN THE U.S. AND MORE THAN 50 MILLION PEOPLE ARE AFFECTED BY EPILEPSY WORLDWIDE. THE ISSUE OF AGGRESSIVELY ADDRESSING SUDEP IS AS URGENT AS IT IS LOGICAL. 0 0 1117403 698710 THE FOUNDATION ADVANCES PUBLIC AWARENESS OF EPILEPSY AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), STRIVES TO IMPROVE SUDEP DISCLOSURE BETWEEN MEDICAL PROFESSIONALS AND FAMILIES AFFECTED BY SEIZURES, AND ADVOCATES FOR THE MAINSTREAM ACCEPTANCE AND USE OF SEIZURE DETECTION AND PREDICTION DEVICES THAT MAY ASSIST IN PREVENTING SEIZURE-RELATED DEATHS. IN 2024, DANNY DID SUBSIDIZED 712 SEIZURE DETECTION DEVICES FOR FAMILIES IN FINANCIAL NEED AND HUNDREDS MORE WERE COUNSELED ON DEVICES AND WAYS TO PROTECT THEIR LOVED ONES LIVING WITH EPILEPSY. IN 2024, THIRTY NINE FAMILIES WERE PROVIDED TRAVEL ASSISTANCE GRANTS SO THEY COULD ATTEND EPILEPSY EDUCATIONAL CONFERENCES. SUDEP AWARENESS WAS SHARED ON BILLBOARDS ALONG HIGHWAYS AND IN AIRPORTS, IN SPANISH ON BUILDING BOARDS THROUGHOUT CHICAGO, ON WEBMD, MEDSCAPE, STREAMING TV CHANNELS, ON ELEVEN RADIO STATIONS, THROUGHOUT CHICAGO ON A BUS, AND AT WALKS, CONFERENCES AND EXPOS. 1117403 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 1 8 0 1 5 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 16 16 1 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 1 0 IL X TOM STANTON 7733072336 3008 CENTRAL STREET EVANSTON IL 60201 KURT FLORIAN BOARD PRESIDENT 3.00 X X 0 0 0 JULIE DIX DIRECTOR 3.00 X 0 0 0 JOSH GABBY TREASURER 3.00 X X 0 0 0 DIANE GARVEY SECRETARY 3.00 X X 0 0 0 LYNN HANLEY DIRECTOR 3.00 X 0 0 0 KARI HEIDEMAN DIRECTOR 3.00 X 0 0 0 TRACY JABLONSKI DIRECTOR 3.00 X 0 0 0 JEANINE MCSHEA DIRECTOR 3.00 X 0 0 0 CAROLINE MCATEER VICE PRESIDENT 3.00 X X 0 0 0 JENNIFER SIME DIRECTOR 3.00 X 0 0 0 JOHN WRENN DIRECTOR 3.00 X 0 0 0 REBECCA GARCIA SOSA DIRECTOR 3.00 X 0 0 0 SCOT GILLESPIE DIRECTOR 3.00 X 0 0 0 KATIE ONSAGER DIRECTOR 3.00 X 0 0 0 JENNIFER STONER DIRECTOR 3.00 X 0 0 0 JOHN DREIXLER DIRECTOR 3.00 X 0 0 0 MARY DUFFY EXECUTIVE DIRECTOR 50.00 X 110963 0 0 THOMAS F STANTON PRESIDENT 50.00 X 171765 0 0 282728 0 0 2 0 1 0 0 779144 1003054 96376 1782198 63584 63584 1678380 1647431 30949 30949 30949 57900 779144 238947 -181047 -181047 362 0 362 362 MISCELLANEOUS REVENUE 900099 1200 1200 1200 1697246 1562 0 -86514 71060 71060 627650 627650 282728 164727 56695 61306 80089 46663 16060 17366 19548 11695 3684 4169 28138 16396 5636 6106 2596 2596 61959 53736 8223 67303 102 11092 56109 10293 10293 26215 26215 19320 18071 1249 369 369 1620 1620 7620 7620 PUBLIC AWARENESS 155080 150746 4334 PUBLIC RELATIONS 5041 2659 2382 1466629 1117403 188862 160364 950524 602205 444226 25785 69470 6913 5440 1116 0 55330 52908 4042 2422 1929206 2048011 77688 54302 2995274 3226076 25043 31509 77873 54701 102916 86210 X 2892358 3139866 2892358 3139866 2995274 3226076 230617 16890 0 X X 0 1 X 1 0 X 306064 1058514 1500488 1672029 1782198 6319293 306064 1058514 1500488 1672029 1782198 6319293 110097 6209196 22732 21719 24481 43344 63584 175860 6495153 6254 0.95600 0.97000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 18945 18945 0 36385 33963 2422 2422 LEASE LIABILITY 54701 54701 2348532 16890 395449 238947 651286 1697246 0 1697246 2101024 395449 238947 634396 1466628 0 1466628 PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRASING EXPENSE 238,947. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSE 238,947. HEARTS AND HUGS 629939 572039 57900 60727 178220 BOA MARATHON 179861 179861 1 27244 27244 837044 779144 57900 60727 178220 238947 -181047 1 EPILEPSY FOUNDATION 3540 CRAIN HWY SUITE 675 BOWIE MD 20716 520856660 501C3 25000 0 SUPPORT FOR EPILEPSY COMMUNITY EVENTS & CONFERENCES AMERICAN EPILEPSY SOCIETY 135 S LASALLE ST STE 2850 CHICAGO IL 60603 046112600 501C3 15000 0 SUPPORT FOR SUDEP EDUCATIONAL CONFERENCE ROW FOUNDATION 400 E DIEHL RD STE 400 NAPERVILLE IL 60563 471520191 501C3 10000 0 SUPPORT FOR SUDEP EDUCATION 3 GRANTS TO OFFSET COSTS OF EPILEPSY DEVICES 712 565430 TRAVEL GRANTS 39 62220 PART I, LINE 2: ALL GRANTEES MUST PROVIDE RECEIPTS FROM THE SEIZURE DETECTION DEVICE COMPANY OR THE TRAVEL RECEIPTS IF A TRAVEL GRANT WAS PROVIDED. X X 0 0 0 0 0 0 0 0 0 THOMAS F STANTON PRESIDENT 171765 0 0 0 0 0 0 0 0 0 171765 0 0 0 PART I, LINE 3 OUR BOARD BENCHMARKS SALARY COMPENSTATION USING THE CANDID/GUIDESTAR COMPENSATION REPORT. OUR STAFF COMPENSATION IS REVIEWED AND APPROVED BY VOTE OF OUR BOARD OF DIRECTORS. BRENDEN DUFFY FAMILY RELATIONSHIP TO MARY DUFFY 11508 EMPLOYEE OF ORGANIZATION 0 X 1 24717 FMV X AUCTION ITEMS 300 68689 FMV X GALA BEVERAGES 150 1520 FMV X GUEST GIFT BOXES 300 840 FMV X GALA INVITATIONS 500 610 FMV 0 1 0 FORM 990, PART V, LINE 13A IL FORM 990, PART VI, SECTION A, LINE 2 TOM STANTON, PRESIDENT, HAS A FAMILY RELATIONSHIP WITH MICHAEL STANTON, CO-FOUNDER. FORM 990, PART VI, SECTION A, LINE 8B THERE ARE NO COMMITTEES THAT MAY ACT ON BEHALF OF THE FULL BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11B THE FORM IS FIRST REVIEWED BY THE TREASURER, EXECUTIVE DIRECTOR AND PRESIDENT. THE BOARD MEMBERS ARE THEN ASKED TO REVIEW THE FORM 990. FORM 990, PART VI, SECTION B, LINE 12C A. A PERSON WHO HAS A CONFLICT OF INTEREST SHALL NOT PARTICIPATE IN OR BE PERMITTED TO HEAR THE BOARD'S OR COMMITTEE'S DISCUSSION OF THE MATTER EXCEPT TO DISCLOSE MATERIAL FACTS AND TO RESPOND TO QUESTIONS. SUCH PERSON SHALL NOT ATTEMPT TO EXERT HIS OR HER PERSONAL INFLUENCE WITH RESPECT TO THE MATTER, EITHER AT OR OUTSIDE THE MEETING. B. A PERSON WHO HAS A CONFLICT OF INTEREST WITH RESPECT TO A CONTRACT OR TRANSACTION THAT WILL BE VOTED ON AT A MEETING SHALL NOT BE COUNTED IN DETERMINING THE PRESENCE OF A QUORUM FOR PURPOSES OF THE VOTE. THE PERSON HAVING A CONFLICT OF INTEREST MAY NOT VOTE ON THE CONTRACT OR TRANSACTION AND SHALL NOT BE PRESENT IN THE MEETING ROOM WHEN THE VOTE IS TAKEN, UNLESS THE VOTE IS BY SECRET BALLOT SUCH PERSON'S INELIGIBILITY TO VOTE SHALL BE REFLECTED IN THE MINUTES OF THE MEETING. FOR PURPOSES OF THIS PARAGRAPH, A MEMBER OF THE BOARD OF DIRECTORS OF DANNY DID FOUNDATION HAS A CONFLICT OF INTEREST WHEN HE OR SHE STANDS FOR ELECTION AS AN OFFICER OR FOR RE-ELECTION AS A MEMBER OF THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 15 BOARD MEMBERS COMPARED RELEVANT DATA AND MET TO DISCUSS AND APPROVE COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 COPIES OF THE ORGANIZATION'S PUBLIC DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C THERE WERE NO CHANGES TO THE AUDIT SELECTION PROCESS FROM THE PRIOR YEAR.