2025-06-11T07:34:33-05:00 2024-12-31 351307701 KRUGGEL LAWTON & COMPANY LLC 210 S MICHIGAN ST SUITE 200 SOUTH BEND IN 46601 990 2024-01-01 382813140 EHLERS-DANLOS SOCIETY EHLE 4106707577 447 BROADWAY 2ND FLOOR 670 NEW YORK NY 10013 ERIC ALLEY CFO 4106707577 2025-06-09 1 0 MARGENE ZINK P01222961 5742894011 2025-05-27 2024 2025-03-06 01:10:19Z LARA BLOOM 447 BROADWAY 2ND FLOOR 670 NEW YORK NY 10013 4976588 0 X WWW.EHLERS-DANLOS.COM X 1988 MI THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGNIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITIY SPECTRUM DISPORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLAVORATIVELY TO IMPOVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD. 11 11 6 5 7693 6693 9359005 4394416 395170 538854 543 566 9335 23103 9764053 4956939 217511 1182364 0 0 1281230 1661403 0 0 255088 3686830 1671860 5185571 4515627 4578482 441312 8734113 8202898 1513855 529120 7220258 7673778 X THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGANIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLABORATIVELY TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD. 0 0 2131636 1162364 421241 BRINGING TOGETHER MEDICAL PROFESSIONALS FROM ALL OVER THE WORLD TO WORK ON GROUND-BREAKING MANAGEMENT AND CARE. AT THE CORE OF THIS RESEARCH IS THE GLOBAL EDS AND HSD REGISTRY. THE REGISTRY WILL ALSO PROVIDE NEW OPPORTUNITIES FOR RESEARCH, INCLUDING IDENTIFYING LINKS BETWEEN EDS AND HSD AND OTHER CONDITIONS. THE EHLERS-DANLOS SOCIETY HAS AWARDED FUNDING FOR RESEARCH GRANTS INTO THE EHLERS-DANLOS SYNDROMES AND HYPERMOBILITY SPECTRUM DISORDERS. OUR GOAL IS TO ENSURE CONSISTENT AND GROUNDBREAKING RESEARCH INTO THESE CONDITIONS TO HELP INDIVIDUALS LIVING WITH THESE CONDITIONS, WORLDWIDE. 1003123 20000 133023 THE EHLERS-DANLOS SOCIETY ORGANIZES MEDICAL AND SCIENTIFIC SYMPOSIUMS TO EXAMINE THE LATEST RESEARCH AND UPDATE THE DIAGNOSTIC CRITERIA AND GUIDELINES FOR MANAGEMENT AND CARE. WE WORK WITH THE COMORBIDITY COALITION AND THE INTERNATIONAL CONSORTIUM ON DEVELOPED CLINICAL CARE PATHWAYS FOR MANAGEMENT AND DIAGNOSIS. EVENTS FOR HEALTH PROFESSIONALS ARE HELD GLOBALLY AND ARE CME-ACCREDITED. ANNUAL GLOBAL LEARNING CONFERENCES BRING TOGETHER AND UNITE OUR COMMUNITY, PROVIDING OPPORTUNITIES TO INTERACT, FIND SUPPORT, AND LEARN MANAGEMENT STRATEGIES AND INFORMATION FROM WORLD-LEADING EXPERTS IN EDS AND HSD. 3134759 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 1 0 1 1 1 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 16 0 6 1 1 1 1 UK 0 0 0 0 0 0 0 0 0 0 X 11 11 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 0 1 1 0 AL AK CA CO CT FL GA HI KS KY ME MD MA MN MS NV NH NM ND OH OK OR PA RI SC TN UT VA WA WV WI X ERIC ALLEY 4106707577 25354 S 4130 RD CLAREMORE OK 74019 MELANIE MACLEOD DIRECTOR 1.00 X 0 0 0 WOODROW GANDY DIRECTOR 1.00 X 0 0 0 SUSAN HASKEL DIRECTOR 1.00 X 0 0 0 AMY ROCHLIN DIRECTOR 1.00 X 0 0 0 MICHELLE JALALI DIRECTOR 1.00 X 0 0 0 CLAIR FRANCOMANO DIRECTOR 1.00 X 0 0 0 FRANCES FITZGERALD DIRECTOR 1.00 X 0 0 0 ANOUSHE HUSAIN DIRECTOR 1.00 X 0 0 0 AISLING GREEN DIRECTOR 1.00 X 0 0 0 AKILAH CADET DIRECTOR 1.00 X 0 0 0 WARD FITZGERALD DIRECTOR 1.00 X 0 0 0 ROBERT RUBIN TREASURER 5.00 X X 0 0 0 JOHN ZONARICH SECRETARY 5.00 X X 0 0 0 SUSAN HAWKINS PRESIDENT 5.00 X X 0 0 0 LARA BLOOM CEO 50.00 X 0 215131 0 ERIC ALLEY CFO 40.00 X 86347 0 0 86347 215131 0 0 0 1 0 METABOLON 617 DAVIS DR SUITE 100 MORRISVILLE NC 27560 ANALYSIS OF BLOOD SAMPLES TO RESEARCH EH 572950 SOMALOGIC 2945 WILDERNESS PL BOULDER CO 80301 ANALYSIS OF BLOOD SAMPLES TO RESEARCH EH 478286 2 4394416 4394416 CONFERENCE 611710 538854 538854 538854 566 566 27342 19649 7693 7693 MISCELLANEOUS REVENUE 541900 15410 15410 15410 4956939 554264 7693 566 546256 546256 20000 20000 616108 616108 301478 163544 86273 51661 1272484 575543 599731 97210 5634 3662 845 1127 30718 19966 4608 6144 51089 33208 7663 10218 231259 128737 96612 5910 18221 18221 44650 44650 234805 199112 25457 10236 35465 28028 878 6559 64799 32439 11590 20770 45350 7293 38057 935 935 286210 172148 112835 1227 568905 566824 2081 22916 22916 29207 29207 DUES AND SUBSCRIPTIONS 74933 17921 31463 25549 MISCELLANEOUS EXPENSES 14205 3970 9979 256 4515627 3134759 1125780 255088 2549225 4021550 596048 496326 4113723 2645775 1233052 543334 141958 380689 19978 7828 6330 12150 7566 14421 86211 88653 8734113 8202898 1365051 26890 95238 362067 53566 140163 1513855 529120 X 462641 925414 6757617 6748364 7220258 7673778 8734113 8202898 441312 2208 10000 0 X 0 1 X 1 0 X 2154718 4066340 3933892 9359005 4394416 23908371 2154718 4066340 3933892 9359005 4394416 23908371 6619131 17289240 110 58 543 566 1277 4162 8553 9334 7693 29742 1 15410 15411 23954801 1827705 0.72170 0.71120 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 19978 7828 12150 12150 X PART X, LINE 2: THE SOCIETY IS A NOT-FOR-PROFIT ORGANIZATION THAT IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE INTERNAL REVENUE SERVICE (IRS) HAS DETERMINED THAT THE SOCIETY IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A). THE INCOME TAXES TOPIC, FASB ASC 740, CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN AN ENTITY'S FINANCIAL STATEMENTS. ASC 740 REQUIRES AN ENTITY TO DISCLOSE THE NATURE OF UNCERTAIN TAX POSITIONS TAKEN, IF ANY, WHEN FILING ITS INCOME TAX RETURN UTILIZING A TWO-STEP PROCESS TO RECOGNIZE AND MEASURE ANY UNCERTAIN TAX POSITIONS TAKEN. THE ENTITY RECOGNIZES A TAX BENEFIT ONLY IF IT IS MORE LIKELY THAN NOT THE POSITION WOULD BE SUSTAINED IN A TAX EXAMINATION, WITH A TAX EXAMINATION BEING PRESUMED TO OCCUR. NO TAX BENEFIT WILL BE RECORDED ON TAX POSITIONS NOT MEETING THE MORE LIKELY THAN NOT TEST. INTEREST AND PENALTIES ACCRUED OR INCURRED, IF ANY, AS A RESULT OF APPLYING ASC 740 WILL BE RECORDED TO INTEREST EXPENSE AND OTHER EXPENSE, RESPECTIVELY. BASED ON ITS EVALUATION, THE SOCIETY HAS CONCLUDED THAT THERE ARE NO UNCERTAIN TAX POSITIONS REQUIRING RECOGNITION IN ITS FINANCIAL STATEMENTS. THE SOCIETY'S EVALUATION WAS PERFORMED FOR ALL FEDERAL AND STATE TAX PERIODS STILL SUBJECT TO EXAMINATION. THE SOCIETY'S 2021 THROUGH 2023 FEDERAL AND STATE EXEMPT ORGANIZATION RETURNS REMAIN SUBJECT TO EXAMINATION BY THE IRS AND STATE TAXING AUTHORITIES. THE SOCIETY IS CURRENTLY REGISTERED OR HAS HISTORICALLY BEEN REGISTERED IN A NUMBER OF STATES AND JURISDICTIONS WITH VARIOUS REPORTING REQUIREMENTS. THE SOCIETY IS IN THE PROCESS OF BRINGING REGISTRATIONS UP TO DATE WITH THE REQUIRED INFORMATION. THE STATES AND JURISDICTIONS MAY IMPOSE LATE FEES, FILING FEES, OR PENALTIES. ANY SUCH ASSESSMENTS ARE UNABLE TO BE ESTIMATED AT THIS TIME. 0 UNITED KINGDOM 0 22 PROGRAM SERVICES GENERAL 1913390 0 22 0 0 0 22 1913390 0 1913390 UNITED KINDGOM RESEARCH GRANT 611108 WIRE 0 UNITED KINDGOM RESEARCH GRANT 5000 WIRE 0 2 0 0 0 0 0 0 PART I, LINE 2: GRANTEE WILL PROVIDE TO THE EHLERS-DANLOS SOCIETY AN ANNUAL REPORT AND AUDITED FINANCIAL STATEMENTS AT THE END OF GRANTEE'S FISCAL YEAR. THE GRANTEE AGREES TO PROVIDE A WRITTEN ANNUAL UPDATE BY DECEMBER 31ST EACH YEAR, FOR THE DURATION OF FUNDING SUPPORT FOR OUR WEBSITE. GRANTEE WILL PROVIDE PROMPTLY SUCH ADDITIONAL INFORMATION AND DOCUMENTS AS THE EHLERS-DANLOS SOCIETY MAY REQUEST AND WILL ALLOW THE EHLERS-DANLOS SOCIETY AND ITS REPRESENTATIVES TO HAVE REASONABLE ACCESS DURING REGULAR BUSINESS HOURS TO FILES, RECORDS, ACCOUNTS OR PERSONNEL THAT ARE ASSOCIATED WITH THIS GRANT, FOR THE PURPOSE OF MAKING SUCH FINANCIAL REVIEWS, VERIFICATIONS OR PROGRAM EVALUATIONS AS MAY BE DEEMED NECESSARY BY THE EHLERS-DANLOS SOCIETY. GRANTEE WILL ALLOW THE EHLERS-DANLOS SOCIETY TO REVIEW AND APPROVE THE TEXT OF ANY PROPOSED PUBLICITY CONCERNING THIS GRANT PRIOR TO ITS RELEASE. IF THIS GRANT IS TO BE USED FOR A FILM, VIDEO, BOOK, OR OTHER SUCH PROJECT, THE EHLERS-DANLOS SOCIETY RESERVES THE RIGHT TO REQUEST A SCREENING OR PREVIEW OF THE PRODUCT, DURING THE FINAL PRODUCTION STAGES, BEFORE DECIDING WHETHER OR NOT TO BE CREDITED AS A FOUNDER OF THE PRODUCT. PART I, LINE 3: TRACKED IN QUICKBOOKS BY ERIC ALLEY, CFO 1 CARLE FOUNDATION HOSPITAL 611 W PARK ST URBANA IL 61801 371119538 501(C)(3) 75854 0 RESEARCH GRANT STANFORD UNIVERSITY 450 JANE STANFORD WAY STANFORD CA 94305 941156365 501(C)(3) 332067 0 RESEARCH GRANT CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON MA 02115 042774441 501(C)(3) 133573 0 RESEARCH GRANT 3 MEDICAL SCHOOL SCHOLARSHIPS 2 20000 PART I, LINE 2: GRANTS ARE AWARDED BY THE BOARD OF DIRECTORS BASED ON APPLICATIONS FOR SPECIFIC RESEARCH FUNDING. EACH AWARDEE ENTERS INTO A GRANT AGREEMENT THAT OUTLINES THE TERMS OF THE GRANT, INCLUDING REQUIRED MILESTONES AND ANNUAL OR BIANNUAL REPORTING. X 0 0 0 0 0 0 0 0 0 LARA BLOOM CEO 0 203504 0 8967 0 2660 0 0 0 0 0 215131 0 0 PART I, LINE 3 LARA BLOOM'S COMPENSATION IS ESTABLISHED BY APPROVAL FROM THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION A, LINE 2 WARD FITZGERALD, WHO MAINTAINS THE BOARD POSITION OF PRESIDENT EMERITUS, A NON VOTING POSITION, HAS A FAMILIAL RELATIONSHIP WITH BOARD MEMBER FRANCES FITZGERALD. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PROVIDED TO THE BOARD OF DIRECTORS FOR REVIEW AND APPROVAL PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS ARE REQUIRED TO SIGN THE CONFLICT OF INTEREST POLICY ANNUALLY. FORM 990, PART VI, SECTION B, LINE 15 LARA BLOOM'S COMPENSATION IS APPROVED BY THE BOARD OF DIRECTORS AND REVIEWED ANNUALLY. FORM 990, PART VI, SECTION C, LINE 18 AVAILABLE UPON REQUEST FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE AVAILABLE TO PUBLIC UPON WRITTEN REQUEST TO ORGANIZATION'S EXECUTIVE DIRECTOR. THE EHLERS-DANLOS SOCIETY UK 35-37 LUDGATE HILL OFFICE 7 LONDON UK EC4M 7JN PROVIDING INTERNATIONAL SUPPORT UK N/A 0 0 1 1 0 0 0 0 0 0 0 0 0 1 1 1 1 0 0 0 THE EHLERS-DANLOS SOCIETY UK B 1185608 CASH PAID IN US CURRENCY THE EHLERS-DANLOS SOCIETY UK M THE EHLERS-DANLOS SOCIETY UK N THE EHLERS-DANLOS SOCIETY UK O THE EHLERS-DANLOS SOCIETY UK P THE EHLERS-DANLOS SOCIETY UK C 338357