2025-05-29T09:51:58-07:00 2024-12-31 811585294 CNRG Accounting Advisory LLC 1031 33rd St Denver CO 80205 990EZ 2024-01-01 810960162 Turner Syndrome Colorado TURN 7207589038 11269 Lamar St Westminster CO 80020 Xan Davidson Treasurer 2025-05-29 true true Chyla Graham P02016884 8449322674 2024 2025-03-06 01:10:19Z X N/A X X 71075 X 71075 0 0 0 0 71075 35000 711 7093 42804 28271 30784 59055 30784 59055 30784 59055 30784 59055 The organization's mission is to connect individuals and families in the Turner Syndrome community and create and support local resources including a Turner Syndrome clinic program. In 2024, Turner Syndrome Colorado continued to provide resources and person-to-person support to girls, women, and families living with Turner syndrome (TS). We created six opportunities for families to connect. At each event, individuals with TS and their families benefitted from connecting with others and learning from and supporting each other. On February 10th 2024, TS Colorado hosted an educational meeting in a reserved room at the Ford-Warren library in Denver. Despite snowy weather, 22 people representing 13 families attended. Our speaker was Dr. Jennifer Barker who presented on hormones and TS. Board Member Mary Rose Masters also shared about an update on The Anxiety Project. On April 14th , TS Colorado invited families to participate in a Painting with A Purpose social and painting event. It was a great environment for girls and women with TS and their family members to meet others in our community in a comfortable environment. On May 18th , TS Colorado hosted a happy hour for adults to create an opportunity for adult women to meet each other. On June 23rd , TS Colorado organized tickets to a Colorado Rockies game. This created another opportunity for individuals and family members to connect. In August, TS Colorado hosted its annual Pool Party. It was well attended, including some first-time families. This is an opportunity for families to learn about Turner syndrome resources in Colorado. Our big event was held on September 22nd , our biennial Butterfly Parade and Family Fun walk. This community celebration brought out approximately 300 people including 30 families of individuals with TS. Doctors from the TS Clinic spoke and brought educational resources for families. Extended family members of individuals with TS and supporters learned more about the work of TS Colorado. This event also raises the funds we need to support the TS Clinic. In addition to events, TS Colorado uses its Facebook page (with 700 followers) and our newsletter (223 subscribers) to share external resources to families. We also widely shared flyers for The Anxiety Project, the first ever printed material to share strategies to support individuals with TS who experience anxiety, along with specific information and strategies for families and educators. TS Colorado supported research on TS by promoting recruitment information for the InsighTS Registry, the Anxiety Project, and the Voices Study. TS Colorado Board members made personal connections with families through emails and responding to social media inquiries. TS Colorado continues to provide the Turner Syndrome Multi-Disciplinary Clinic at Children?s Hospital Colorado with financial support and to work collaboratively with the Clinic Team to ensure that the patient community?s needs are met. Finally, we are contributing to an Endowment Fund through Children?s Hospital Foundation to help ensure perpetual funding of the TS Clinic. 35733 35733 Marybel Good Director 1.00 0 Laura Maugel Director 0.50 0 Jessica Budahn Secretary 0.50 0 Kelsey Smith President 3.00 0 Karen Regan Director 1.00 0 Deidre Lock Director 0.50 0 Xan Davidson Treasurer 3.00 0 Laurel Martinez Director 0.50 0 Mary Rose Masters Director 0.50 0 false false false false false false false 0 0 0 false 0 0 false Xan Davidson 6080 Virgil St Arvada CO 80403 7207589038 false false false false false false false false false false false NONE NONE true X 2672 34998 89269 13467 71075 211481 0 0 2672 34998 89269 13467 71075 211481 0 211481 0 0 0 211481 1.00000 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Grants and Similar Amounts Paid In Excess of $5,000.1 | Donee's Name: Children's Hospital CO Fnd | Donee's Address: 13123 E 16th Ave Box 045 Aurora CO 80045 | Cash Amount Given: $35000 Other Expenses.1002 Office Expenses $121 Other Expenses.1007 Conferences, Conventions, and Meetings $599 Other Expenses.1012 Insurance $819 Other Expenses.1 Annual Walk $5068 Other Expenses.2 Educational Outreach $351 Other Expenses.3 Other Program Expenses $135