2025-12-15T12:41:05-06:00 2025-01-31 562034483 NORTON COLLAR LUND LILLEY PLLC 7701 SIX FORKS ROAD SUITE 100 RALEIGH NC 27615 990 2024-02-01 561609591 ALS UNITED NORTH CAROLINA ALSU 9197559001 4 N BLOUNT STREET SUITE 200 RALEIGH NC 27601 MARY GRAMS PRESIDENT AND CEO 9197559001 2025-12-15 1 1 ROBERT M LANNING P01893629 9198411000 2025-12-07 2024 2025-03-06 01:10:19Z MARY GRAMS 4 N BLOUNT STREET SUITE 200 RALEIGH NC 27601 2078295 0 X WWW.ALSNC.ORG X 1988 NC TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. 13 13 17 80 0 0 2579312 1603538 9250 8215 108957 50728 -21781 -198123 2675738 1464358 0 0 0 0 1081624 1307014 0 0 139954 1527223 1419524 2608847 2726538 66891 -1262180 2809016 2150048 287857 196052 2521159 1953996 TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. 0 0 1638503 8215 CARE SERVICES IS A PROGRAM THAT SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. ALS UNITED NORTH CAROLINA CONTINUES TO SUPPORT ALL ALS CLINICS IN NORTH CAROLINA, MAINTAIN A MEDICAL EQUIPMENT LOAN PROGRAM, HOST MONTHLY SUPPORT GROUPS, AND PROVIDE FINANCIAL SUPPORT TO FAMILIES TO HELP ALLEVIATE STRESS RELATED TO THE COST OF MEDICAL TREATMENTS AND SERVICES FOR ALS AS IDENTIFIED IN THE FOCUS SURVEY "UNDERSTANDING INSURANCE NEEDS AND FINANCIAL BURDENS." IN THE 2024 FISCAL YEAR ALSUNC HELD 104 VIRTUAL SUPPORT GROUP MEETINGS, LOANED NEARLY 500 PIECES OF DURABLE MEDICAL EQUIPMENT, PAID FOR MORE THAN 2,700 HOURS OF IN-HOME CARE, AND SUPPORTED OUR MULTIDISCIPLINARY CLINICS THAT SERVED OVER 1500 HOURS OF PATIENT VISITS. THE GLOBAL RESEARCH PROGRAM PROVIDES FUNDING TO SUPPORT INTERNATIONAL MEDICAL RESEARCH TO DISCOVER EFFECTIVE TREATMENTS AND A CURE FOR ALS. 643195 THE PUBLIC EDUCATION AND AWARENESS PROGRAM IS DESIGNED TO INCREASE UNDERSTANDING, EDUCATION, AND AWARENESS OF THE IMPACT OF ALS AND THE ROLE THAT THE ASSOCIATION PLAYS IN PROVIDING CARE SERVICES, ADVANCING GLOBAL ALS RESEARCH, AND ADVANCING IMPORTANT PUBLIC POLICY INITIATIVES. 2281698 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 10 0 1 17 1 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 X X MARY GRAMS 9197559001 4 N BLOUNT ST SUITE 200 RALEIGH NC 27601 DOUGLAS NOREEN CHAIR 15.00 X X 0 0 0 KATHRYN FOSTER VICE CHAIR 6.00 X X 0 0 0 CHRISTY HALL SECRETARY 3.00 X X 0 0 0 ROBERT WHITED TREASURER 3.00 X X 0 0 0 KATHLEEN BOYCE DIRECTOR 2.00 X 0 0 0 BRAXTON ANTHONY DIRECTOR 2.00 X 0 0 0 BETH CHRISTINA DIRECTOR 2.00 X 0 0 0 MICHAEL BEDELL DIRECTOR 2.00 X 0 0 0 LINDA SHUFORD-REEVES DIRECTOR 2.00 X 0 0 0 ANN WHITE DIRECTOR 2.00 X 0 0 0 STEPHEN RIDDELL DIRECTOR 2.00 X 0 0 0 SARAH BOYCE DIRECTOR 2.00 X 0 0 0 TONY LUPER DIRECTOR 2.00 X 0 0 0 DAVID SHORE PRESIDENT & CEO 44.00 X 185308 0 18370 185308 0 18370 1 0 1 0 0 1066422 8408 528708 120000 1603538 CAREGIVERS CONFERENCE 900099 8215 8215 8215 75050 75050 390590 384088 30824 6502 -30824 -24322 -24322 0 1066422 199025 -199025 -199025 OTHER MISCELLANEOUS INCOME 900099 902 902 902 1464358 8215 0 -147395 207202 186482 20720 866886 817835 30670 18381 39417 35029 2276 2112 117951 111242 4040 2669 75558 70774 3455 1329 350 290 26 34 100673 100673 12567 12567 111912 89926 17947 4039 20704 2175 196 18333 8013 6488 797 728 101694 79133 11402 11159 125730 100235 7440 18055 24747 23717 434 596 269 161 90 18 80877 80877 10319 7709 1886 724 PROGRAM EXPENSES 683960 683650 310 MISCELLANEOUS 39233 31045 3377 4811 OTHER EVENT EXPENSES 34668 1894 0 32774 SERVICE CHARGES 20420 3631 2303 14486 43388 30282 3710 9396 2726538 2281698 304886 139954 330503 251203 10793 8500 239910 21715 23937 434369 148862 257998 285507 1728173 1472102 30413 11205 189511 97594 2809016 2150048 85123 92031 11803 6358 190931 97663 287857 196052 X 2506021 1909603 15138 44393 2521159 1953996 2809016 2150048 -1262180 125017 570000 0 X 0 1 X 1 0 X 2318060 2600340 2387308 2579312 1603538 11488558 2318060 2600340 2387308 2579312 1603538 11488558 200931 11287627 60988 179500 133702 78770 50728 503688 25 2929 902 3856 11996102 0.94090 0.94270 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1728173 0 206567 450071 12567 1472102 1680301 375158 184008 500000 11294 1728173 2737944 50730 -265520 827000 15853 1680301 2909687 597725 36776 783893 22351 2737944 2387504 909709 226954 595000 19480 2909687 1.00000 0 0 8939 2409 6530 425430 146453 278977 285507 LEASE LIABILITY 97663 97663 X 1804633 125017 28800 199025 352842 1451791 12567 12567 1464358 2941796 28800 199025 227825 2713971 12567 12567 2726538 PART X, LINE 2: ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRE MANAGEMENT TO EVALUATE TAX POSITIONS TAKEN BY THE ORGANIZATION AND RECOGNIZE A TAX LIABILITY (OR ASSET) IF THE ORGANIZATION HAS TAKEN AN UNCERTAIN POSITION THAT MORE LIKELY THAN NOT WOULD BE SUSTAINED UPON EXAMINATION BY THE IRS. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ORGANIZATION, AND HAS CONCLUDED THAT AS OF JANUARY 31, 2025, THERE ARE NO UNCERTAIN POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS. THE ORGANIZATION IS SUBJECT TO ROUTINE AUDITS BY TAXING JURISDICTIONS; HOWEVER, THERE ARE CURRENTLY NO AUDITS FOR ANY TAX PERIODS IN PROGRESS. MANAGEMENT BELIEVES IT IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR YEARS PRIOR TO 2022. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT EVENT EXPENSES 199,025. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT EVENT EXPENSES 199,025. WALKS 762061 762061 124566 COMMUNITY PARTNER EVENTS 304361 304361 74459 1066422 1066422 199025 199025 -199025 X X 0 0 0 0 0 0 0 0 0 DAVID SHORE PRESIDENT & CEO 185308 0 0 0 0 0 8339 0 10031 0 203678 0 0 0 PART I, LINE 3 THE BOARD CONSIDERS SALARIES PAID BY COMPARABLE ORGANIZATIONS BEFORE APPROVING ANNUAL COMPENSATION FOR THE PRESIDENT AND CEO. X POWER WHEELCHAIRS 48 120000 ESTIMATED FMV 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE TREASURER WILL REVIEW AND COMMENT ON A DRAFT OF THE FORM 990 AND ANNUAL AUDITED FINANCIAL STATEMENTS. AFTER ANY REQUESTED CHANGES, THE DRAFTS OF FORM 990 AND AUDITED FINANCIAL STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE FOR REVIEW. IF NEEDED, THE PREPARER SHALL SCHEDULE A PRESENTATION IN PERSON OR BY TELECONFERENCE WITH THE FINANCE COMMITTEE TO ADDRESS ANY QUESTIONS OR ISSUES. UPON RESOLUTION OF ANY ISSUES AND APPROVAL BY THE FINANCE COMMITTEE, COPIES OF THE FINAL AUDITED FINANCIAL STATEMENTS AND FORM 990 WILL BE PROVIDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THE PRESIDENT & CEO WILL EXECUTE AND MAIL OR ELECTRONICALLY FILE THE FINAL DOCUMENTS WITH THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C ALL EMPLOYEES ARE REQUIRED TO SIGN AN ACKNOWLEDGEMENT OF RECEIPT OF THE CONFLICT OF INTEREST POLICY. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE DETERMINES PRESIDENT & CEO'S COMPENSATION BASED ON A SALARY SURVEY AND PERFORMANCE EVALUTION. BOARD MEMBERS ARE NOT COMPENSATED. OTHER OFFICER COMPENSATION IS DETERMINED BASED ON SALARY SURVEYS, PERFORMANCE, AND BUDGETARY NEEDS AND IS APPROVED BY THE BOARD. FORM 990, PART VI, SECTION C, LINE 18 THE FORM 1023 AND 990 ARE KEPT ON FILE AT THE ORGANIZATION'S OFFICE AND ARE MADE AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST. FORM 990, PART VI, SECTION C, LINE 19 THE GOVERNING DOCUMENTS ARE KEPT ON FILE AT THE ORGANIZATION'S OFFICE AND ARE MADE AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST.