2025-10-09T11:01:08-05:00 2025-05-31 363168081 SIKICH LLC 3051 HOLLIS DRIVE 3RD FLOOR SPRINGFIELD IL 62704 990 2024-06-01 770324654 NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES NORT 2176980800 2050 W ILES STE A SPRINGFIELD IL 62704 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 2176980800 2025-10-08 1 1 BRIDGETTE MUGGE P00671418 2177933363 2025-10-07 2024 2025-03-06 01:10:19Z KAREN KNIGHT 2050 W ILES STE A SPRINGFIELD IL 62704 4676469 0 X WWW.NAACCR.ORG X 1987 IL DEVELOPMENT/APPLICATION OF CANCER REGISTRATION 10 10 14 453 0 0 3339426 3686955 653609 802259 119217 105804 151 16443 4112403 4611461 268000 392746 0 0 2261871 2228542 0 0 0 1753714 1726505 4283585 4347793 -171182 263668 3259159 3466501 800102 676312 2459057 2790189 X NAACCR INC. IS A COLLABORATIVE UMBRELLA ORGANIZATION FOR CANCER REGISTRIES, GOVERNMENTAL AGENCIES, PROFESSIONAL ASSOCIATIONS AND PRIVATE GROUPS IN NORTH AMERICA INTERESTED IN ENHANCING THE QUALITY AND USE OF CANCER REGISTRY DATA. 0 0 1207908 74697 NCI CONTRACT - THE PURPOSE OF THE NCI CONTRACT IS TO ENHANCE NATIONAL CANCER SURVEILLANCE EFFORTS IN THREE SPECIFIC AREAS: 1. STRENGTHEN THE NATIONAL CAPACITY FOR COLLECTING, ANALYZING, AND USING COMPARABLE CANCER REGISTRY DATA FOR CANCER SURVEILLANCE AND RESEARCH. 2. DEVELOP AND IMPROVE METHODS FOR ASSESSING THE QUALITY AND COMPARABILITY OF CANCER REGISTRY DATA. THIS INCLUDES, BUT IS NOT LIMITED TO TIMELINESS, COMPLETENESS, AND ACCURACY. 3. IMPROVE THE EFFICIENCY AND QUALITY OF REGISTRY OPERATIONS THROUGH PROMOTING ESTABLISHED STANDARDS, DISSEMINATING TECHNICAL INFORMATION, AND FACILITATING COLLAOBRATION AMONG FEDERAL, STATE, PROVINCIAL AND LOCAL REGISTRY PROFESSIONALS. 926062 339700 57267 NATIONAL CHILDHOOD CANCER REGISTRY (NCCR) - THE PURPOSE OF THIS TASK ORDER IS TO CREATE A COORDINATING CENTER SUPPORTING THE NCCR - AN AGGREGATED NATIONAL LEVEL CHILDHOOD CANCER PATIENT DATABASE IN PARTNERSHIP WITH MANY LEADING PEDIATRIC ONCOLOGY ORGANIZATIONS ACROSS THE U.S. 574961 641086 CONFERENCES AND WEBINARS -NON-FEDERAL PROGRAMS INCLUDING A YEAR- LONG MONTHLY WEBINAR SERIES SUPPORTING AND TRAINING IN CASE ABSTRACTING AND PROCESSING OF CANCER RECORDS PROVIDING CONTINUING EDUCATION CREDITS TO THE CANCER REGISTRAR COMMUNITY. ALSO INCLUDES THE NAACCR ANNUAL CONFERENCE WHICH IS THE ANNUAL SCIENTIFIC MEETING OF THE CANCER SURVEILLANCE COMMUNITY EITHER IN-PERSON OR VIRTUALLY. ADDITIONAL WORKSHOP COURSES ARE USUALLY PROVIDED AS ADJACENT EVENTS. ODS EXAM PREP AND REVIEW WEBINAR SERIES IS ALSO PROVIDED THREE TIMES PER YEAR WITH LIVE INTERACTIVE INSTRUCTION. 343771 53046 21259 THE PURPOSE OF THE VIRTUAL POOLED REGISTRY CANCER LINKAGE SYSTEM (VPR-CLS) PROJECT SHALL EXPAND INTO A SCALED-UP EFFORT TO FACILITATE LINKAGES WITH CENTRAL CANCER REGISTRIES USING THE VPR-CLS. IT WILL ALSO CONTINUE TO REFINE A CAPACITY SIMILAR TO THE NATIONAL DEATH INDEX WITHOUT THE NEED TO CREATE AN AGGREGATED NATIONAL LEVEL CANCER PATIENT DATABASE. THE VPR-CLS WILL PROVIDE RESEARCHERS WITH A SINGLE LOCATION AND STANDARD PROCESSES FOR AN INITIAL LINKAGE BEHIND THE FIREWALL OF MULTIPLE REGISTRIES, RECEIPT OF MATCH COUNTS, STREAMLINED APPLICATION PROCESS FOR RELEASE OF INDIVIDUAL-LEVEL REGISTRY DATA, AND TRACKING OF STUDY STATUS ACROSS REGISTRIES. 394462 24393 CDC COOPERATIVE AGREEMENT - THE TITLE OF THE PROGRAM IS THE NATIONAL PARTNERSHIPS TO PROMOTE CANCER SURVEILLANCE STANDARDS AND SUPPORT DATA QUALITY AND OPERATIONS OF NATIONAL PROGRAM OF CANCER REGISTRIES, EDUCATION, STANDARDS, AND TRANSLATION. NAACCR WORKS COLLABORATIVELY WITH NPCR LEADERSHIP TO SUPPORT THE DEVELOPMENT, PROMOTION, MAINTENANCE, AND COMMUNICATION OF DATA STANDARDS FOR POPULATION-BASED CENTRAL CANCER REGISTRATION. IMPROVE CENTRAL CANCER REGISTRY OPERATIONS THROUGH THE DEVELOPMENT AND DISSEMINATION OF DOCUMENTED BEST PRACTICES. INCREASE REPORTING VIA ELECTRONIC MECHANISMS AND MEANINGFUL USE IMPLETMENTATION. 738233 53046 45652 3447164 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 18 0 14 1 0 0 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 IL X X ADELE HILEMAN 2176980800 2050 W ILES STE A SPRINGFIELD IL 62704 WENDY ALDINGER PRESIDENT 1.00 X X 0 0 0 ERIC DURBIN PRESIDENT-ELECT 1.00 X X 0 0 0 KEVIN WARD TREASURER 1.00 X X 0 0 0 LORI SWAIN SMO REPRESENTATIVE 1.00 X 0 0 0 VALERIE SOMMA REP AT LARGE 1.00 X 0 0 0 JOSHUA MAZURYK REP AT LARGE 1.00 X 0 0 0 LIHUA LIU REP AT LARGE 1.00 X 0 0 0 BOZENA MORAWSKI REP AT LARGE 1.00 X 0 0 0 LORI KOCH REP AT LARGE 1.00 X 0 0 0 SARAH NASH REP AT LARGE 1.00 X 0 0 0 KAREN KNIGHT EXECUTIVE DIRECTOR 37.50 X 163770 0 40383 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 37.50 X 171778 0 25041 STEPHANIE HILL ASSOCIATE DIRECTOR 37.50 X 170956 0 22362 BETSY KOHLER THRU 11142024 EXECUTIVE DIRECTOR 37.50 X 260803 0 15305 JIM HOFFERKAMP PROGRAM MANAGER 37.50 X 139505 0 23350 ADELE HILEMAN CONTROLLER 37.50 X 137019 0 25134 CASTINE CLERKIN PROGRAM MANAGER 37.50 X 133169 0 29954 LORI HAVENER PROGRAM MANAGER 37.50 X 125497 0 30063 FERNANDA SILVA MICHELS PROGRAM MANAGER 37.50 X 107979 0 20208 1410476 0 231800 9 0 1 0 INFORMATION MANAGEMENT SYSTEMS 6110 EXECUTIVE BOULEVARD SUITE 310 ROCKVILLE MD 20852 CANCER SURVEILLANCE TECH ASSISTANCE 452041 1 3666955 20000 3686955 WEBINAR 611710 370526 370526 CONFERENCE REGISTRATIO 611710 208175 208175 MEMBERSHIP DUES 611710 123029 123029 COURSE REGISTRATION 611710 62385 62385 CONSULTING FEE REVENUE 611710 32794 32794 5350 5350 802259 88110 88110 81903 799 63481 1527 18422 -728 17694 17694 MISCELLANEOUS 611710 16443 16443 16443 4611461 818702 0 105804 392746 392746 789916 537000 252916 1073642 905010 168632 63540 53003 10537 167234 135045 32189 134210 103547 30663 11989 11989 12113 12113 360476 290064 70412 9129 3697 5432 129913 18149 111764 44729 44729 142985 125999 16986 142180 136830 5350 55233 55233 10670 200 10470 CONTRACTED SERVICES 629529 629529 AUDIO VISUAL 71385 67163 4222 BANK CHARGES 54174 12113 42061 SUPPLIES 17452 13030 4422 34548 24039 10509 4347793 3447164 900629 0 313410 288677 324069 327226 634684 598871 96435 288787 543517 265142 313671 278375 1438395 1574644 138495 109921 3259159 3466501 343315 349790 318292 216601 138495 109921 800102 676312 X 2459057 2790189 2459057 2790189 3259159 3466501 263668 67464 0 X 0 1 X 1 0 X 2981764 3198319 3584970 3339426 3686955 16791434 2981764 3198319 3584970 3339426 3686955 16791434 16791434 31645 59558 61636 65715 88110 306664 17098098 2886012 0.98210 0.98350 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 543517 265142 278375 278375 OPERATING LEASE 109921 109921 X 4666812 67464 67464 4599348 12113 12113 4611461 4335680 0 4335680 12113 12113 4347793 PART X, LINE 2: THE ASSOCIATION IS A NOT-FOR-PROFIT ORGANIZATION EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE UNITED STATES INTERNAL REVENUE CODE. THE ASSOCIATION IS NOT CONSIDERED TO BE A PRIVATE FOUNDATION. THE ASSOCIATION FOLLOWS GUIDANCE ISSUED BY THE FINANCIAL ACCOUNTING STANDARDS BOARD (FASB) ON ACCOUNTING FOR INCOME TAXES AND HAS EVALUATED ITS TAX POSITIONS, EXPIRING STATUTES OF LIMITATIONS, AUDITS, PROPOSED SETTLEMENTS, CHANGES IN TAX LAW AND NEW AUTHORITATIVE RULINGS, AND BELIEVES THAT NO PROVISION FOR INCOME TAXES IS NECESSARY TO COVER ANY UNCERTAIN TAX POSITIONS. THE ASSOCIATION'S RETURN FOR TAX YEARS 2021 AND LATER REMAIN SUBJECT TO EXAMINATION BY TAXING AUTHORITIES. 1 FLORIDA CANCER DATA SYSTEMUNIVERSITY OF MIAMI ORA PO BOX 405803 ATLANTA GA 303845803 590624458 GOV 21800 0 CONTRIBUTION ALASKA CANCER REGISTRYHAVRS PO BOX 110675 JUNEAU AK 998110675 926001185 GOV 9500 0 CONTRIBUTION ARKANSAS DEPT OF HEALTH 4815 W MARKHAM SLOT 19 LITTLE ROCK AR 722053867 716007358 GOV 21600 0 CONTRIBUTION TREASURER STATE OF MAINEMAINE CANCER REGISTRY 220 CAPITOL ST 11 STATE HOUSE AUGUSTA ME 043330011 016000001 GOV 9500 0 CONTRIBUTION MT DPHHS 1400 BROADWAY RM C317 HELENA MT 596202952 810302402 GOV 9500 0 CONTRIBUTION NEBRASKA DEPT OF HEALTH & HUMAN SERVICES PO BOX 95026 LINCOLN NE 68509 470491233 GOV 9500 0 CONTRIBUTION ND STATEWIDE CANCER REGISTRY 1301 N COLUMBIA RD STOP 9037 GRAND FORKS ND 58202 456002491 GOV 8500 0 CONTRIBUTION OHIO DEPARTMENT OF HEALTH PO BOX 15278 COLUMBUS OH 43215 311334820 GOV 20100 0 CONTRIBUTION CURATORS OF THE UNIVERSITY OF MISSOURI PO BOX 807012 KANSAS CITY MO 641807012 436003859 GOV 40600 0 CONTRIBUTION RHODE ISLAND GENERAL TREASURER 3 CAPITOL HILL RM 409 PROVIDENCE RI 02908 056000522 GOV 8500 0 CONTRIBUTION NORTH CAROLINA CENTRAL CANCER REGISTRY 1908 MAIL SERVICE CENTER RALEIGH NC 276991908 562033116 GOV 8000 0 CONTRIBUTION VIRGINIA CANCER REGISTRY 109 GOVERNOR ST 10TH FLR RICHMOND VA 23219 546001775 GOV 9500 0 CONTRIBUTION OEPS DIVISION OF CANCER EPIDEMIOLOGY 350 CAPITOL ST RM 125 CHARLESTON WV 253013715 556000810 GOV 9500 0 CONTRIBUTION TRUSTEES OF DARTMOUTH NEW HAMPSHIRE STATE REGISTRY PO BOX 186 HANOVER NH 03755 020222111 GOV 15000 0 CONTRIBUTION OREGON STATE CANCER REGISTRY 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 930576060 GOV 21600 0 CONTRIBUTION PENNSYLVANIA CANCER REGISTRY 555 WALNUT ST - 6TH FLR HARRISBURG PA 171011914 236003104 GOV 21600 0 CONTRIBUTION SOUTH CAROLINA CENTRAL CANCER REGISTRY 2600 BULL ST COLUMBIA SC 29201 576000286 GOV 9500 0 CONTRIBUTION INDIANA STATE CANCER REGISTRY 2 N MERIDIAN ST INDIANAPOLIS IN 46204 356000158 GOV 19000 0 CONTRIBUTION MN CANCER REPORTING SYSTEM 625 ROBERT ST N PO BOX 64975 ST PAUL MN 551640975 416007162 GOV 18300 0 CONTRIBUTION NEVADA CENTRAL CANCER REGISTRY 4126 TECHNOLOGY WAY CARSON CITY NV 89706 886000022 GOV 17500 0 CONTRIBUTION OKLAHOMA CENTRAL CANCER REGISTRY 123 ROBERT S KERR AVE STE 1702 OKLAHOMA CITY OK 731026406 736017987 GOV 9500 0 CONTRIBUTION PUERTO RICO COMPREHENSIVE CANCER CENTER PO BOX 363027 SAN JUAN PR 009363027 660654313 GOV 19000 0 CONTRIBUTION MICHIGAN CANCER SURVEILLANCE PROGRAM 333 S GRAND 2 FLR LANSING MI 48933 386000134 GOV 21600 0 CONTRIBUTION WYOMING CANCER SURVEILLANCE PROGRAM 122 WEST 25TH ST 3RD FLR W CHEYENNE WY 82002 830208667 GOV 17500 0 CONTRIBUTION 24 PART I, LINE 2: THE EXECUTIVE DIRECTOR (ED), AS PRINCIPAL INVESTIGATOR OF COOPERATIVE AGREEMENTS, CONTRACTS, OR GRANTS SHALL HAVE FULL AUTHORITY OF ALL APPROVED EXPENSES. THE ED SHALL INFORM THE BOARD OF ANY SIGNIFICANT CHANGES TO FUNDING LEVELS OF AT THE FOLLOWING BOARD MEETING. X 1 1 X X X 0 0 0 0 0 0 0 0 0 BETSY KOHLER THRU 11142024 EXECUTIVE DIRECTOR 242753 0 18050 0 0 0 14214 0 1091 0 276108 0 0 0 KAREN KNIGHT EXECUTIVE DIRECTOR 163770 0 0 0 0 0 10545 0 29838 0 204153 0 0 0 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 171778 0 0 0 0 0 10376 0 14665 0 196819 0 0 0 STEPHANIE HILL ASSOCIATE DIRECTOR 170956 0 0 0 0 0 10376 0 11986 0 193318 0 0 0 CASTINE CLERKIN PROGRAM MANAGER 133169 0 0 0 0 0 8402 0 21552 0 163123 0 0 0 JIM HOFFERKAMP PROGRAM MANAGER 139505 0 0 0 0 0 8369 0 14981 0 162855 0 0 0 ADELE HILEMAN CONTROLLER 137019 0 0 0 0 0 8205 0 16929 0 162153 0 0 0 LORI HAVENER PROGRAM MANAGER 125497 0 0 0 0 0 7519 0 22544 0 155560 0 0 0 FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS FULL MEMBERS AND SPONSORING MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A MEMBERS WHO ELECT THE GOVERNING BODY ARE COMPRISED OF REPRESENTATIVES FROM FULL MEMBERS AND SPONSORING MEMBERS. FULL MEMBER ORGANIZATIONS ARE CENTRAL REGISTRIES, WHICH ARE, OR HAVE THE POTENTIAL TO BECOME POPULATION-BASED REGISTRIES. SPONSORING MEMBER ORGANIZATIONS ARE NATIONAL PROFESSIONAL OR NATIONAL GOVERNMENTAL ORGANIZATIONS PRIMARILY INVOLVED IN ANY OF THE FOLLOWING AREAS: CANCER EPIDEMIOLOGY, PATIENT CARE, CANCER CONTROL, CANCER REGISTRATION, PROFESSIONAL EDUCATION, RESEARCH, OR BIOSTATISTICS. FORM 990, PART VI, SECTION A, LINE 7B THE ONLY DECISIONS THAT REQUIRE APPROVAL BY MEMBERS ARE AMENDMENTS TO THE BYLAWS. FORM 990, PART VI, SECTION B, LINE 11B THE AUDIT FIRM PRESENTS THE COMPLETE AUDIT AND 990 ANNUALLY AT THE OCTOBER BOARD MEETING. THE 990 IS SENT TO THE BOARD ELECTRONICALLY FOR THEIR REVIEW PRIOR TO THE MEETING. ADDITIONALLY, THE 990 IS POSTED TO THE NAACCR WEB SITE FOR BOARD AND PUBLIC REVIEW. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED ANNUALLY BY THE BOARD. THE POLICY IS AVAILABLE FOR REVIEW AT ANYTIME ON THE NAACCR SECURE BOARD WEB SITE AS WELL AS THE PUBLIC WEB SITE UNDER "POLICIES" ON THE "GOVERNANCE" WEB PAGE. THE BOARD SELF-ENFORCES THE POLICY WITH ASSISTANCE FROM THE BOARD SECRETARY, THE NAACCR EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR KEY PERSONNEL IS DETERMINED BY SEVERAL FACTORS. THESE INCLUDE CONSIDERATION OF THE CURRENT SALARY RANGE OF THE POSITION. BUDGET FOR THE POSISTION; EXPERIENCE OF THE INDIVIDUAL; EDUCATIONAL QUALIFICATIONS; MARKET CONDITIONS FOR ATTRACTING AND RETAINING THE POSITION HELD BY THE PERSON; AND OVERALL PERFORMANCE OF THE INDIVIDUAL IF THEY ARE A CURRENT EMPLOYEE. SALARY RANGES FOR ALL POSITIONS ARE APPROVED BY THE NAACCR BOARD. THE NAACCR BOARD APPROVES THE COMPENSATION OF THE EXECUTIVE DIRECTOR. ALL OTHER POSITION'S COMPENSATIONS ARE DETERMINED BY THE EXECUTIVE DIRECTOR. COMPENSATION FOR ALL EMPLOYEES IS REVIEWED BY THE NAACCR BOARD. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS SUCH AS POLICIES, BYLAWS, STANDING RULES, AND THE 990 FORM ARE PUBLICALLY POSTED ON THE NAACCR WEB SITE. THEY ARE CLEARLY MARKED AND AVAILABLE ON OUR GOVERNANCE WEB PAGE. THE NAACCR MONTHLY FINANCIAL STATEMENT PRESENTATIONS TO THE BOARD ARE RECORDED IN THE MONTHLY MINUTES. THESE ARE AVAILABLE PUBLICALLY ON THE NAACCR BOARD WEB PAGE. THE ANNUAL BUSINESS MEETING AGENDA IS ALSO PUBLICALLY AVAILABLE ON THE NAACCR WEB SITE.