2025-07-14T16:01:38-04:00 2024-12-31 233020053 THE BLOCK TEITELMAN GROUP 20 E SECOND AVE SUITE 300 CONSHOHOCKEN PA 194281880 990 2024-01-01 272978110 GENE SPOTLIGHT INC GENE 3054982937 3800 NE 1ST AVENUE STE 200 MIAMI FL 33137 DENNIS A BRADY JR PRESIDENT 3054982937 2025-07-11 true ROBERT L BLOCK CPA P00601631 6109411040 2025-07-11 2024 2025-03-06 01:10:19Z DENNIS A BRADY JR 1447 WAVERLY ROAD GLADWYNE PA 19035 779317 false X WWW.GENESPOTLIGHT.ORG X 2010 FL TO PROVIDE FUNDING AND SUPPORT FOR THE RESEARCH AND AWARENESS OF RARE GENETIC DISEASES 4 4 2 0 431217 171225 0 10991 -47909 0 442208 123316 127210 84783 0 68791 67810 0 0 113008 44515 309009 197108 133199 -73792 2640249 15011328 10210 0 2630039 15011328 TO PROVIDE FUNDING AND SUPPORT FOR THE RESEARCH AND AWARENESS OF RARE GENETIC DISEASES false false 170031 84783 PROVIDE MONETARY GRANTS FOR RESEARCH TREATMENT AND CURE OF RARE GENETIC DISEASES AND CONDUCT AWARENESS CAMPAIGNS INFORMING THE GENERAL PUBLIC ON ISSUES RELATED TO THE TREATMENT AND CURE OF SUCH RARE DISEASES 170031 true true false false false false false false false false false false true false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 2 true false false false false false false false false X 4 4 true false false false false false false true true false false true true true true false false false false false PA FL X DENNIS A BRADY JR 3054982937 1447 WAVERLY ROAD GLADWYNE PA 19035 DENNIS A BRADY JR PRESIDENT 15.00 X X 30000 0 0 MARTIN KEANE VICE PRESIDE 1.00 X X 2688 0 0 NATASHA BRAVO SECRETARY 1.00 X X 0 0 0 ALLISON WEISS DIRECTOR 1.00 X 0 0 0 32688 false false false 171225 171225 59520 59520 548504 68 656001 -107497 68 -107429 -107429 123316 -47909 84783 84783 32688 32688 30000 30000 5122 5122 19794 19794 2693 2693 3822 3822 3314 3314 147 147 6057 6057 8688 8688 197108 170031 27077 0 585216 470933 835029 1220004 14462203 78192 2640249 15011328 10210 10210 0 X 2630039 15011328 2630039 15011328 2640249 15011328 -73792 12398416 -3848 60513 X false false false X 337343 285052 337343 442208 171225 1573171 337343 285052 337343 442208 171225 1573171 36537 1536634 1573171 59520 0.97680 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1,262,506 SHS JUNS 13508814 F FIDELITY BROKERAGE 490052 F UBS BROKERAGE 393144 F TRUIST BROKERAGE 70193 F 14462203 true UNIVERSITY OF PENNSYLVANIA 160 CHESTNUT ST PHILADELPHIA PA 19104 231352685 501C3 82210 RESEARCH PROJECTS 1 SCHEDULE I, PAGE 1, PART I, LINE 2 THE UPENN GRANTS ARE ADMINISTERED BY THE ORPHAN DISEASE CENTER MPS I PROGRAM OF EXCELLENCE. ANY FUNDING DONE THROUGH THEM REQUIRES A REPORT AT THE END OF THE 1 YEAR GRANT TERM FOR THE RESEARCH CONDUCTED AND RESULTS. FOR GRANTS WE MAKE DIRECTLY, WE STAGGER PAYMENTS AND REQUIRE REPORTS ON FINDINGS BEFORE WE RELEASE MORE FUNDS. FORM 990, PAGE 6, PART VI, LINE 2 DENNIS A BRADY, JR ALLISON WEISS PRESIDENT DIRECTOR MARRIED FORM 990, PAGE 6, PART VI, LINE 11B ALL BOARD MEMBERS REVIEWED FORM 990 BEFORE IT WAS FILED WITH THE IRS FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION CONSISTENTLY MONITORS AND ENFORCES ALL COMPLIANCE POLICIES FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST