2025-11-17T14:43:28-05:00 2024-12-31 061352068 CARNEY ROY AND GERROL PC 35 COLD SPRING ROAD SUITE 111 ROCKY HILL CT 060673161 990 2024-01-01 222535999 EPILEPSY FOUNDATION OF CONNECTICUT INC EPIL 8603461924 386 MAIN STREET MIDDLETOWN CT 064573360 JAMES HART ECECUTIVE DIRECTOR 8603461924 2025-11-13 true true THOMAS D ROY P00292134 8607215786 2025-11-17 2024 2025-03-06 01:10:19Z JAMES HART 386 MAIN STREET MIDDLETOWN CT 06457 1168180 false X HTTP://WWW.EPILEPSYCT.COM/ X 1984 CT THE MISSION OF THE EPILEPSY FOUNDATION OF CONNECTICUT IS TO SUPPORT PEOPLE IMPACTED BY EPILEPSY THROUGH ADVOCACY, EDUCATION, PROGRAMS AND CONNECTIONS TO ENSURE THAT THEY CAN LIVE THEIR BEST LIVES. 15 15 10 60 0 445010 367390 51954 98924 102360 233159 0 599324 699473 0 0 475902 415847 0 109060 283432 301074 759334 716921 -160010 -17448 3405022 3467051 114138 79547 3290884 3387504 X THE MISSION OF THE EPILEPSY FOUNDATION OF CONNECTICUT IS TO SUPPORT PEOPLE IMPACTED BY EPILEPSY THROUGH ADVOCACY, EDUCATION, PROGRAMS AND CONNECTIONS TO ENSURE THAT THEY CAN LIVE THEIR BEST LIVES. false false 465839 98924 THE EPILEPSY FOUNDATION OF CONNECTICUT: PROVIDED INFORMATION I.E. BROCHURES, MEDICATION INFORMATION, LEGAL RIGHTS, ADVOCACY, ETC. TO CLIENTS. CONDUCTED EDUCATIONAL PROGRAMS THAT SERVED PARTICIPANTS INCLUDING SCHOOL NURSES, ALLIED HEALTHCARE PROFESSIONALS, TEACHERS, CAMP COUNSELORS, LIFEGUARDS, EARLY CHILDCARE EDUCATORS, OTHER AGENCY AND EMPLOYEE TRAINING, SENIOR CITIZENS, TRANSIT COMPANIES, ELEMENTARY SCHOOL STUDENTS, MIDDLE SCHOOL STUDENTS, HIGH SCHOOL STUDENTS, POLICE OFFICERS, AND FIRST RESPONDERS. HOSTED EDUCATIONAL WEBINARS WITH PROFESSIONALS PROVIDING INFORMATION ABOUT VARIOUS EPILEPSY RELATED TOPICS. SUCCESSFULLY ADVOCATED FOR EMERGENCY LEGISLATION EXPANDING ACCESS TO AND REIMBURSEMENT OF TELEHEALTH SERVICES DURING THE COVID PANDEMIC. SPONSORED A CAMPING PROGRAM FOR CHILDREN AND TEENS WITH EPILEPSY. MANAGED A PARENT & FAMILY TELEPHONE SUPPORT NETWORK. MANAGED A FRIEND TO FRIEND TELEPHONE SUPPORT NETWORK. SPONSORED VIRTUAL SUPPORT GROUPS THROUGHOUT CONNECTICUT, SERVING DOZENS OF PEOPLE MONTHLY. PROVIDED TRANSPORTATION ASSISTANCE FOR CLIENTS WITH EPILEPSY. OFFERED THE HALYN MURTHA FAMILY ASSISTANCE FUND TO HELP PEOPLE WITH EPILEPSY IN NEED OF FINANCIAL ASSISTANCE TO COVER THE COST OF EPILEPSY TREATMENT, AND CARE SERVICES ASSOCIATED WITH THE CONDITION. ENROLLED CLIENTS IN THE HOBSCOTCH MEMORY & COGNITION PROGRAM. ENROLLED CLIENTS IN PROJECT UPLIFT PROGRAM THAT IMPROVED MENTAL HEALTH THROUGH MINDFULNESS AND COGNITIVE BEHAVIORAL SKILLS. 465839 true true false true false false false false false false true false false false true false true false false false false false false false true false false false false false false false false false false false false false true false false false false false false false false true 1 0 10 true false false false false false true true false false false false false false X 15 15 false false false false false false false true true false false false true true true true true true false false CT X X X JAMES HART 8603461924 386 MAIN STREET MIDDLETOWN CT 06457 CHERIE POIRIER EXECUTIVE DI 40.00 X 91600 0 9843 DENISE BROWER PRESIDENT 5.00 X X 0 0 0 TAYLOR BROWN CPA TREASURER 2.00 X X 0 0 0 NATALIE COOPER DIRECTOR 1.00 X 0 0 0 CINDY DISCO DIRECTOR 1.00 X 0 0 0 DEREK FAULKNER DIRECTOR 1.00 X 0 0 0 ROBERT FIELDS DIRECTOR 1.00 X 0 0 0 DR JOHN GREENFIELD DIRECTOR 1.00 X 0 0 0 DR LETANYA LAWRENCE DIRECTOR 1.00 X 0 0 0 JESSICA LOFFREDO DIRECTOR 1.00 X 0 0 0 MICHELLE MECHANIC DIRECTOR 1.00 X 0 0 0 IAN RACE DIRECTOR 1.00 X 0 0 0 ALEX S ROBERTSON DIRECTOR 1.00 X 0 0 0 GARY R SIEGEL DIRECTOR 1.00 X 0 0 0 GREG SPARZO VICE PRESIDE 2.00 X X 0 0 0 RENEE SUPPA DIRECTOR 1.00 X 0 0 0 JAMES HART ECECUTIVE DI 40.00 X 0 0 0 91600 9843 false false false 205423 161967 28251 367390 PROGRAM SERVICE FEES 900099 98924 98924 98924 62065 62065 604651 433557 171094 171094 171094 35150 205423 35150 699473 98924 233159 96643 50049 40379 6215 267293 201727 3359 62207 2257 1779 96 382 9071 6278 1085 1708 40583 28099 4858 7626 52750 52750 21788 21788 23861 15689 2856 5316 6881 4588 2293 28482 19721 3409 5352 48929 33878 5857 9194 538 428 43 67 871 603 104 164 40 27 5 8 1885 1305 226 354 4440 3075 531 834 EDUCATION PROGRAM 71545 71545 OTHER DUES AND FEES 33032 22871 3954 6207 EQUIPMENT AND MAINT 6032 4177 722 1133 716921 465839 142022 109060 43306 18132 37720 87413 57100 7802 19777 12668 2156 2717 27954 26283 2388 1671 3160080 3289017 82495 47631 3405022 3467051 31505 32645 82633 46902 114138 79547 X 3166081 3275491 124803 112013 3290884 3387504 3405022 3467051 X -17448 114068 X false true X true false X 300644 344500 289705 445010 367390 1747249 300644 344500 289705 445010 367390 1747249 86395 1660854 51173 114431 79154 86406 62065 393229 2140478 614780 0.77590 0.81980 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 716921 716921 132538 33135 102271 77355 138589 132538 450753 676130 15454 1000 16454 25568 19339 34647 33135 112689 169034 1000 1000 27954 26283 1671 1671 RIGHT-OF-USE OPERATING LEASE LIABILI 46581 RIGHT-OF-USE FINANCE LEASE LIABILITY 321 46902 826903 114068 35150 149218 677685 21788 21788 699473 730283 35150 35150 695133 21788 21788 716921 SCHEDULE D, PAGE 4, PART XI, LINE 2D FUNDRAISING EVENT DIRECT EXPENSES 35,150 SCHEDULE D, PAGE 4, PART XII, LINE 2D FUNDRAISING EVENT DIRECT EXPENSES 35,150 WALK TO END EPI 112375 100926 11449 2587 1686 1700 2033 GALA 69917 53941 15976 11598 4378 2 58281 50556 7725 1949 4760 3139 1320 240573 205423 35150 1949 7347 16423 1700 7731 35150 X 3 12104 X AUCTION ITEMS 66 16147 false false false SCHEDULE M, PAGE 2, PART II THE ORGANIZATION IS REPORTING THE NUMBER OF DONATIONS RECEIVED IN PART I COLUMN (B) FORM 990, PAGE 2, PART III, LINE 4A THE EPILEPSY FOUNDATION OF CONNECTICUT: PROVIDED INFORMATION I.E. BROCHURES, MEDICATION INFORMATION, LEGAL RIGHTS, ADVOCACY, ETC. TO CLIENTS. CONDUCTED EDUCATIONAL PROGRAMS THAT SERVED PARTICIPANTS INCLUDING SCHOOL NURSES, ALLIED HEALTHCARE PROFESSIONALS, TEACHERS, CAMP COUNSELORS, LIFEGUARDS, EARLY CHILDCARE EDUCATORS, OTHER AGENCY AND EMPLOYEE TRAINING, SENIOR CITIZENS, TRANSIT COMPANIES, ELEMENTARY SCHOOL STUDENTS, MIDDLE SCHOOL STUDENTS, HIGH SCHOOL STUDENTS, POLICE OFFICERS, AND FIRST RESPONDERS. HOSTED EDUCATIONAL WEBINARS WITH PROFESSIONALS PROVIDING INFORMATION ABOUT VARIOUS EPILEPSY RELATED TOPICS. SUCCESSFULLY ADVOCATED FOR EMERGENCY LEGISLATION EXPANDING ACCESS TO AND REIMBURSEMENT OF TELEHEALTH SERVICES DURING THE COVID PANDEMIC. SPONSORED A CAMPING PROGRAM FOR CHILDREN AND TEENS WITH EPILEPSY. MANAGED A PARENT & FAMILY TELEPHONE SUPPORT NETWORK. MANAGED A FRIEND TO FRIEND TELEPHONE SUPPORT NETWORK. SPONSORED VIRTUAL SUPPORT GROUPS THROUGHOUT CONNECTICUT, SERVING DOZENS OF PEOPLE MONTHLY. PROVIDED TRANSPORTATION ASSISTANCE FOR CLIENTS WITH EPILEPSY. OFFERED THE HALYN MURTHA FAMILY ASSISTANCE FUND TO HELP PEOPLE WITH EPILEPSY IN NEED OF FINANCIAL ASSISTANCE TO COVER THE COST OF EPILEPSY TREATMENT, AND CARE SERVICES ASSOCIATED WITH THE CONDITION. ENROLLED CLIENTS IN THE HOBSCOTCH MEMORY & COGNITION PROGRAM. ENROLLED CLIENTS IN PROJECT UPLIFT PROGRAM THAT IMPROVED MENTAL HEALTH THROUGH MINDFULNESS AND COGNITIVE BEHAVIORAL SKILLS. FORM 990, PAGE 6, PART VI, LINE 11B THE FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR AND THE SIGNING OFFICER PRIOR TO SUBMISSION TO THE INTERNAL REVENUE SERVICE. THE ENTIRE BOARD VOTES ON THE SUBMITTED 990. FORM 990, PAGE 6, PART VI, LINE 12C MEMBERS OF THE BOARD ARE REQUESTED TO SIGN ANNUAL CONFLICT OF INTEREST STATEMENTS, ACCORDING TO THE FOUNDATIONS POLICIES. ANY MEMBER OF THE BOARD OF DIRECTORS WHO HAS A CONFLICT RELATED TO A BUSINESS MATTER UNDER DISCUSSION IS REQUIRED TO RECUSE HIM/HERSELF FROM THE DISCUSSION AND ABSTAIN FROM VOTING. FORM 990, PAGE 6, PART VI, LINE 15A COMPENSATION FOR THE EXECUTIVE DIRECTOR IS CURRENTLY DETERMINED BY THE EXECUTIVE COMMITTEE. THE COMPENSATION IS INCLUDED IN THE BUDGET THAT IS VOTED ON BY THE ENTIRE BOARD. FORM 990, PAGE 6, PART VI, LINE 19 ALL GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XI, LINE 9 FUNDRAISING EVENT DIRECT EXPENSES 35,150 FUNDRAISING EVENT DIRECT EXPENSES -35,150