2025-11-17T13:27:14-06:00 2024-12-31 271375413 BWK Rogers PC 431 South 7th Street Suite 2424 Minneapolis MN 55415 990 2024-01-01 200811343 Karen Wyckoff Rein in Sarcoma KARE 7632051467 7401 Central Avenue NE A Fridley MN 55432 Lachelle Semanko Executive Director 7632051467 2025-11-17 1 1 Melissa J Baraibar P02464922 6123325446 2025-11-17 2024 2025-03-06 01:10:19Z Rein in Sarcoma Mitch Atherton 7401 Central Avenue NE A Fridley MN 55432 1487574 0 X reininsarcoma.org X 2004 MN Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers. 14 14 4 117 0 0 589192 539554 0 5000 21052 18940 -3890 13941 606354 577435 61025 209783 0 0 289921 393671 0 0 138259 203537 93888 554483 697342 51871 -119907 1175955 1093636 15280 55531 1160675 1038105 X Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers. 0 0 381571 209783 5484 Rein in Sarcoma (RIS) was started in 2001 by Karen Wyckoff, a 25-year-old Synovial Sarcoma patient. As she fought this rare cancer, she thought there were things that needed doing to increase the quality of life and odds of survival for all sarcoma patients. As she started the organization, she developed the mission as it still remains today: We are dedicated to educating the public and medical community about sarcoma, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancer. Research for Sarcoma Cancer: RIS has partnered with many top-notch research institutions including: University of Minnesota, Mayo Clinic, Children's Minnesota, University of Calgary, Case Western Reserve, University of Michigan, and Aveni Foundation. RIS has funded seed money of more than $2.5M in high impact and collaborative research, which has generated more than $13M in additional support. Ninety-one research funding awards have been made to date. Education: RIS has established and expanded its Sarcoma Scholar Program to educate Medical Students and Advanced Practice students about sarcoma. This program began in 2009 with 2 scholars participating from the University of Minnesota and has now grown to 16 scholars from across the country in 2024, participating from University of Minnesota, Mayo Clinic Alix School of Medicine, University of Florida, University of Michigan, University of Iowa, Winona State University, Medical School of Wisconsin, and University of Wisconsin-Madison. Scholars educate their peers and public about sarcoma, complete sarcoma related projects, and go through a year-long sarcoma education program offered by RIS and sarcoma experts, specialists, and mentors. In addition, RIS provides free Patient Education Sarcoma Guidebooks to newly diagnosed patients and their caregivers. Guidebooks are also sent to sarcoma centers across the nation for distribution and are available for free download on the RIS website. The 9th Edition Guidebook was completed in 2024. Other educational activities include RIS participation in annual sarcoma related conferences, presenting and tabling opportunities to increase education. RIS has a YouTube channel that houses patient stories and educational videos. Patient and Family Support: Each year, RIS holds a Party in the Park event which is free to sarcoma patients, family members and those who have lost a loved one to sarcoma. Other patient and family support activities include peer to peer mentorship from other sarcoma survivors, Tote Bags of Hope filled with items for newly diagnosed and/or hospitalized patients, an active social media group for sarcoma patients and loved ones, Microgrants for patients in need of financial support during treatment and an in person monthly support group. Rein in Sarcoma is the largest and most well-known sarcoma foundation in the Midwest and continues to expand their services and reach nationwide. 381571 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 4 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 14 14 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MN X The Organization 7632051467 7401 Central Avenue NE Suite A Fridley MN 55432 Scott Okuno MD Board Member 1.00 0.00 X 0 0 0 Colin Ryan Board Member 1.00 0.00 X 0 0 0 Maureen Anderson DNP Board Member 1.00 0.00 X 0 0 0 Laura Gagne Board Member 1.00 0.00 X 0 0 0 Jason Patalonis Board Member 1.00 0.00 X 0 0 0 Brendan Dillon Board Member 1.00 0.00 X 0 0 0 Stephanie Terezakis MD Board Member 1.00 0.00 X 0 0 0 Andrea Espejo Freire MD Board Member 1.00 0.00 X 0 0 0 John Charlson MD Board Member 1.00 0.00 X 0 0 0 Dr David Largaespada Board Member 1.00 0.00 X 0 0 0 Blake Hastings Board Member 1.00 0.00 X 0 0 0 Eric Lien President 2.00 0.00 X X 0 0 0 Conner O'Brien Vice President 2.00 0.00 X X 0 0 0 Mitch Atherton Treasurer 1.00 0.00 X X 0 0 0 Aaron Halbe Secretary 1.00 0.00 X X 0 0 0 Lachelle Semanko Executive Director 40.00 0.00 X 115385 0 5720 115385 0 5720 1 0 0 0 0 181194 358360 20272 539554 Administrative Fee 561000 5000 5000 5000 11203 11203 836072 828335 7737 7737 7737 92835 181194 81763 11072 11072 2385 0 2385 2385 525 41 484 484 577435 5484 0 32397 209783 209783 121105 58130 38754 24221 228672 78663 61970 88039 19790 6808 5363 7619 24104 9483 6973 7648 4862 4862 8163 1792 5650 721 643 643 43681 9761 25137 8783 20556 20556 5700 3990 855 855 5373 1123 3877 373 2846 1395 1451 1287 1287 777 777 697342 381571 177512 138259 580569 505753 236645 5352 7687 11963 718 6250 350336 548997 0 15321 1175955 1093636 15280 55531 15280 55531 X 587102 508608 573573 529497 1160675 1038105 1175955 1093636 -119907 10019 -12682 0 X 0 0 0 X 445627 960917 744809 589192 539554 3280099 305 5525 5830 445627 961222 744809 589192 545079 3285929 30000 17061 11106 58167 0 30000 17061 11106 58167 3227762 77 1844 2770 21052 11203 36946 77 1844 2770 21052 11203 36946 445704 963066 747579 610244 556282 3322875 0.97140 0.97800 0.01110 0.00790 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Sunflower Soiree 186885 121001 65884 520 3095 18598 13075 1303 Party in the Park 48166 35805 12361 1500 2600 6335 15463 5311 1 38978 24388 14590 13899 64 274029 181194 92835 2020 5695 38832 28538 6678 81763 11072 1 University of Minnesota Foundation 200 Oak Street SE Suite 500 Minneapolis MN 554552010 416042488 501(c)(3) 62500 0 Sarcoma Research & educating medical students about Sarcoma, who, in turn, educate peers with long-lasting impact. University of Michigan 3003 S State St 5082 Wolverine Tower Ann Arbor MI 481091287 386006309 501(c)(3) 7500 0 Sarcoma Research & educating medical students about Sarcoma, who, in turn, educate peers with long-lasting impact. University of Wisconsin Foundation 1848 University Avenue Madison WI 537264090 390743975 501(c)(3) 6000 0 Educating medical students about Sarcoma, who, in turn, educate peers with long-lasting impact. Aveni Foundation 2811 Wilshire Blvd 420 Santa Monica CA 90403 830731767 501(c)(3) 76666 0 Sarcoma Research Mayo Clinic 400 South Broadway Ste 106 Rochester MN 55904 416011702 501(c)(3) -12883 0 Return of Sarcoma Research funds awarded in 2023 5 0 Part I, Line 2: Grants are administered and overseen through a Rein in Sarcoma research committee and the receiving foundation. Form 990, Part VI, Section A, line 2 Maureen Anderson, Blake Hastings, and Colin Ryan have a family relationship. All are volunteer Board member positions with no compensation or influence. Form 990, Part VI, Section B, line 11b Upon completion of the Form 990 by the CPA firm, it is reviewed with the Finance Committee, who votes to approve our tax document and send it on to the Board of Directors for review before a meeting. The form is discussed at a quarterly Board meeting. The Board votes to approve upon any suggested edits being made. Form 990, Part VI, Section B, line 12c At every first quarter Board meeting, RIS reviews the conflict of interest policy and sends it out to every Board member to review, sign, and return to the office digitally or via paper. During votes, if there is a conflict of interest, the voting member recuses themselves from that vote. Form 990, Part VI, Section B, line 15 The Executive Director position is paid an annual salary that is aligned to the Nonprofit Salary and Benefits Survey published by Minnesota Council of Nonprofits. All other employees also have salaries aligned with the Nonprofit Salary and Benefits Publication. The ED performance and salary are reviewed by the Board of Directors annually. Form 990, Part VI, Section C, line 18 The Form 990 is available on the Organization's website and upon request. The Form 1023 is available upon request. Form 990, Part VI, Section C, line 19 The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. Additionally, the annual reports can be found on the organization's website.