2025-11-17T15:00:20-05:00 2024-12-31 990EZ 2024-01-01 871365230 THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION THRI 6124017436 7801 95th St W Bloomington MN 55438 Conor Stoebner Treasurer 6124017436 2025-11-17 2024 2025-03-06 01:10:19Z X https: thrivewithpkd.org X X 104752 X 104467 285 0 0 0 104752 39134 17605 64848 121587 -16835 37369 20534 X 34702 17867 0 0 2667 2667 37369 20534 37369 20534 The organizations mission is to advocate educate and connect those with Pyruvate Kinase Deficiency a disorder that affects the red blood cells. This disease is very rare our organization provides resources to those affected by it by connecting patients with doctors who understand how to treat this rare disease. Thrive with PKD has been attending several medical conferences as well as sponsoring certain representatives of various communities to attend said conferences. 1145 1145 Thrive with PKD hosted a conference jointly with the Pyruvate Kinase Deficiency Foundation in 2024. The goal was to bring together people affected by PKD and doctors who are experts in the area. Thrive with PKD gave travel and lodging grants to eligible attendees to the conference making sure that as many people who needed to come were able to attend. This included some attendees from other countries U.K. Canada Australia Mexico. The large majority of attendees were from the United States. 37989 X 37989 39134 Tamara Schryver President 10 0 0 0 Carl Lander International Collaboration Coordinator and Record Keeper 2 0 0 0 Conor Stoebner Treasurer 0.5 0 0 0 false false false false false 0 false false false false MN Conor Stoebner 110696 Village Rd Unit 316 Chaska MN 55318 6124017436 false false false false false false false false false false false NONE NONE true X 0 18225 144794 55029 104467 322515 0 0 0 0 285 285 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 18225 144794 55029 104752 322800 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 322800 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 18225 144794 55029 104752 322800 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Part I, line 10 | Grants And Similar Amounts Paid:, Amount:| In July of 2024 Thrive with PKD held a joint conference with the Pyruvate Kinase Deficiency Foundation. Thrive with PKD gave lodging grants to eligible attendees to learn about managing this chronic illness for themselves and others., $21005| In July of 2024 Thrive with PKD held a joint conference with the Pyruvate Kinase Deficiency Foundation. Thrive with PKD gave travel grants airfare and mileage to eligible attendees to learn about managing this chronic illness for themselves and others., $16984| Thrive with PKD will send representatives who are not on the board to conferences to learn and advocate about PKD. In this case a representative was sent to a conference held by NORD. This grant covered travel related expenses airfare lodging meals., $1145| Part I, line 16 | Other Expenses:, Amount:| Conference: Food. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. This is the food expense incurred during the conference including private dinning area for all attendees., $47807| Conference: Misc.. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. These expenses were related to some small decorations and branding., $335| Conference: Speakers Fees. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. These are the speaker fees the organization incurred to bring high quality experts to the conference., $2199| Event Registration. Our president attended a conference held by Sickle Cell Disease Association of America. This was the registration fee., $125| Bank fees & service charges. These fees were incurred for using wire and direct deposit transfer services., $299| Filing Fees. This fee was incurred by using a service to file our 2023 990., $101| Memberships & subscriptions. These fees were incurred from services related to stock photos email and other subscription services., $593| Office supplies. These expenses were incurred by purchasing supplies such as pencils paper markers etc., $171| Software Subscription. These expenses are related to bookkeeping software contract signing software electronic distribution software digital design software and social media management software., $2488| Webhosting. This is the cost of running our two websites the second being https: pkdguidelines.org ., $1146| Organization Membership Dues. Credentialing fee from Academy of Nutrition and Dietetics., $234| Airfare. Board member travel to conference in Minneapolis., $1971| Lodging. Hotel stayed in by president for RAIN conference in Romania., $303| Website Building and Maintenance. Built website https: pkdguidelines.org to help those affected PKD manage their illness., $6013| Conference: Audio Visual. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. This expense was related to audio visual equipment purchased for conference., $1063| Part II, line 24 | Explanation:, BOYAmount:, EOYAmount:| Other assets: Website built for Thrive with PKD, $2667, $2667|