2025-11-16T14:32:50-06:00 2024-12-31 871353108 EISNER ADVISORY GROUP LLC 111 WOOD AVENUE SOUTH ISELIN NJ 088302700 990 2024-01-01 270341021 THE FIBROLAMELLAR CANCER FOUNDATION FIBR 2033407800 20 HORSENECK LANE 2ND FLOOR GREENWICH CT 06830 KURT LOSERT CEO 2033407800 2025-11-14 1 1 BARBARA TAIBI P00179526 7322437000 2024 2025-03-06 01:10:19Z KURT LOSERT 14 WHITE OAK ROAD WELLESLEY MA 02481 3683771 0 X WWW.FIBROFOUNDATION.ORG X 2009 DE FIBROLAMELLAR CANCER FOUNDATION,(THE "FOUNDATION") WAS ESTABLISHED TO RAISE AWARENESS AND RESEARCH FUNDS FOR FIBROLAMELLAR CARCINOMA, A RARE FORM OF LIVER CANCER THAT IS PRIMARILY SEEN IN TEENS AND YOUNG ADULTS. CURRENTLY, THERE ARE NO VIABLE TREATMENT OPTIONS OTHER THAN LIVER RESECTION SURGERY. OUR MISSION IS TO FIND A CURE AND RELIABLE TREATMENT OPTIONS FOR THOSE DIAGNOSED WITH THIS RARE DISEASE AS WELL AS ENHANCE COMMUNICATIONS AMONG HEALTHCARE PROFESSIONALS AND PATIENTS. 11 10 4 50 0 0 2241100 3088534 0 0 719035 325349 0 0 2960135 3413883 4235649 1654708 0 0 751053 789038 0 0 29608 498338 409488 5485040 2853234 -2524905 560649 10499605 10229754 4097846 3307756 6401759 6921998 X FIBROLAMELLAR CANCER FOUNDATION,(THE "FOUNDATION") WAS ESTABLISHED TO RAISE AWARENESS AND RESEARCH FUNDS FOR FIBROLAMELLAR CARCINOMA, A RARE FORM OF LIVER CANCER THAT IS PRIMARILY SEEN IN TEENS AND YOUNG ADULTS. CURRENTLY, THERE ARE NO VIABLE TREATMENT OPTIONS OTHER THAN LIVER RESECTION SURGERY. OUR MISSION IS TO FIND A CURE AND RELIABLE TREATMENT OPTIONS FOR THOSE DIAGNOSED WITH THIS RARE DISEASE AS WELL AS ENHANCE COMMUNICATIONS AMONG HEALTHCARE PROFESSIONALS AND PATIENTS. 0 0 2338262 1654708 GRANTS TO RESEARCH ORGANIZATIONS FOR FIBROLAMELLAR CARCINOMA STUDIES. 2338262 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 4 0 1 4 1 0 0 0 0 0 1 1 0 0 0 0 X 11 10 1 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 CT X X KURT LOSERT 2033407800 14 WHITE OAK ROAD WELLESLEY MA 02481 MARNA O DAVIS CO-CHAIRPERSON 25.00 X X 0 0 0 CHARLES W BEERMANN DIRECTOR 1.00 X 0 0 0 DEREK GILCHRIST DIRECTOR, SECRETARY 2.00 X X 0 0 0 ANNE ADLER DIRECTOR 25.00 X 0 0 0 JOHN CRAIG DIRECTOR 1.00 X 0 0 0 TAL FRIEDMAN DIRECTOR 1.00 X 0 0 0 CHARLES A DAVIS CO-CHAIRPERSON 1.00 X X 0 0 0 LESLIE GRAVES TREASURER 1.00 X X 0 0 0 CRAIG MARTIN DIRECTOR 1.00 X 0 0 0 KURT LOSERT CEO 40.00 X X 250500 0 10295 GUY LEVY DIRECTOR 1.00 X 0 0 0 DR MARK FURTH CHIEF SCIENCE OFFICER 40.00 X 165271 0 6935 PAYAL RAY PROGRAM RESEARCH DIRECTOR 40.00 X 153656 0 5956 569427 0 23186 3 0 1 0 0 1123967 1964567 19011 3088534 155352 155352 169997 0 169997 169997 169997 269888 1123967 269888 0 3413883 0 0 325349 1402248 1402248 252460 252460 250500 250500 400336 330197 70139 19728 10001 9727 69820 18050 51770 48654 26462 22192 111075 86575 24500 29608 29608 4841 4841 2374 2374 18810 18810 EVENTS 170480 170480 MISC EXPENSES 40781 14102 26679 RESEARCH 27687 27687 WEBSITE 3832 3832 2853234 2338262 485364 29608 7851796 6905914 25000 84944 15456 56697 3917 3917 0 0 2607353 3182199 10499605 10229754 298384 52603 3799462 3255153 4097846 3307756 X 6401759 6921998 0 6401759 6921998 10499605 10229754 X 560649 -65410 25000 X X 0 1 X 1 0 X 1838453 4039921 6073580 2241100 3088534 17281588 1838453 4039921 6073580 2241100 3088534 17281588 7136644 10144944 2942 3726 3055 138665 155352 303740 17585328 0.57690 0.56140 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 3917 3917 0 0 INVESTMENTS 3182199 F 3182199 X 3348473 -65410 -65410 3413883 0 3413883 2904439 76205 76205 2828234 25000 25000 2853234 PART XII, LINE 4B - OTHER ADJUSTMENTS: WRITE-OFF OF GRANTS $25,000 PART X, LINE 2: ASC 740-10-05-6 THE INTERNAL REVENUE SERVICE ("IRS") HAS DETERMINED THAT THE FOUNDATION QUALIFIES AS A TAX-EXEMPT ORGANIZATION UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE ("IRC") AND IS EXEMPT FROM TAX ON RELATED INCOME PURSUANT TO SECTION 501(A) OF THE IRC. THE FOUNDATION IS CLASSIFIED AS A PUBLIC CHARITY. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN RECORDED IN THE ACCOMPANYING FINANCIAL STATEMENTS. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE FOUNDATION, AND HAS CONCLUDED THAT AS OF DECEMBER 31, 2024, THERE ARE NO UNCERTAIN POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE THE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THESE FINANCIAL STATEMENTS. THE FOUNDATION RECOGNIZES ACCRUED INTEREST AND PENALTIES ASSOCIATED WITH UNCERTAIN TAX PROVISIONS, IF ANY. THERE WERE NO INCOME TAX-RELATED INTEREST AND PENALTIES RECORDED FOR THE YEAR ENDED DECEMBER 31, 2024. 1 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 PROGRAM SERVICES SCIENTIFIC RESEARCH 252460 0 0 0 0 0 0 252460 0 252460 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM SCIENTIFIC RESEARCH 252460 TRANSFER 0 FMV 1 0 0 0 0 0 0 PART I, LINE 2: THE ORGANIZATION HAS CONTACT WITH INDIVIDUALS FROM THE FOREIGN ORGANIZATIONS AND RECEIVES WRITTEN UPDATES. GOLF TOURNAMENT 1393855 1123967 269888 269888 1393855 1123967 269888 269888 269888 0 1 UNIVERSITY OF WISCONSIN CSC K41748 600 HIGHLAND AVENUE MADISON MI 53792 396006492 501(C)(3) 138212 0 SCIENTIFIC RESEARCH UNIVERSITY OF WASHINGTON 1959 NE PACIFIC STREET BOX 357750 SEATTLE WA 98195 916001537 501(C)(3) 200000 0 SCIENTIFIC RESEARCH FRED HUTCHINSON CANCER CENTER 1100 FAIRVIEW AVE N SEATTLE WA 98109 911935159 501(C)(3) 125000 0 SCIENTIFIC RESEARCH DANA-FARBER CANCER INSTITUTE 450 BROOKLINE AVE 10BP BOSTON MA 02215 042263040 501(C)(3) 15040 0 SCIENTIFIC RESEARCH MASSACHUSETTS GENERAL HOSPITAL CANCER CENTER 185 CAMBRIDGE STREET CPZN 4216 BOSTON MA 02114 041564655 501(C)(3) 199996 0 SCIENTIFIC RESEARCH X-CHEM INC 100 BEAVER STREET WALTHAM MA 02453 300596178 400000 0 SCIENTIFIC RESEARCH SEVEN BRIDGES GENOMICS INC 529 MAIN STREET SUITE 6610 CHARLESTOWN MA 02129 453415885 324000 0 SCIENTIFIC RESEARCH 7 2 PART I, LINE 2: THE FOUNDATION MAKES GRANTS TO 501(C)(3) RESEARCH INSTITUTIONS. THE ACCEPTANCE OF THE GRANTS BY THE RESEARCH ORGANIZATIONS IS CONTINGENT UPON THE FOUNDATION'S RECEIPT OF PERIOD UPDATE REPORTS AS TO PROGRESS AND EXPENDITURES. X X X X X 0 0 0 0 0 0 0 0 0 KURT LOSERT CEO 250500 0 0 0 0 0 7616 0 2679 0 260795 0 0 0 DR MARK FURTH CHIEF SCIENCE OFFICER 165271 0 0 0 0 0 5044 0 1891 0 172206 0 0 0 PAYAL RAY PROGRAM RESEARCH DIRECTOR 153656 0 0 0 0 0 4615 0 1341 0 159612 0 0 0 SCHEDULE J PART II LINE 1(D) THE NONTAXABLE BENEFITS INCLUDE MEDICAL AND DENTAL BENEFITS X 2 19011 FMV 0 1 0 FORM 990, PART VI, SECTION A, LINE 2 THE DIRECTORS MARNA DAVIS AND CHARLES DAVIS ARE SPOUSES. FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A MEMBERS HAVE THE SOLE AUTHORITY TO ELECT OR REMOVE DIRECTORS, AND ELECT NEW MEMBERS. FORM 990, PART VI, SECTION A, LINE 7B MEMBER APPROVAL IS ALSO REQUIRED FOR ANY ADDITIONS, ALTERATIONS, OR REPEAL OF ANY OF THE CORPORATION'S BYLAWS. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD WILL REVIEW THE FORM 990 PRIOR TO FILING AND A FULL COPY OF THE FINAL 990 WILL BE SENT TO THE BOARD PRIOR TO THE 990 BEING FILED WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C 1. NEW OFFICERS OR DIRECTORS ARE GIVEN A COPY OF THE POLICY. THE POLICY IS REVIEWED ANNUALLY WITH DIRECTORS AND/OR OFFICERS EMPOWERED TO ENTER INTO FINANCIAL TRANSACTIONS AT A DIRECTORS MEETING. 2. ALL MATERIAL FINANCIAL TRANSACTIONS, GRANTS, AND EXPENDITURES ARE REVIEWED AND APPROVED BY THE EXECUTIVE COMMITTEE AND/OR THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 15 ANNUALLY, THE COMPENSATION COMMITTEE DESIGNATED BY THE BOARD OF DIRECTORS ASSESSES THE PERFORMANCE OF THE CEO AND OTHER OFFICERS AND KEY EMPLOYEES. THE COMPENSATION COMMITTEE MAKES A RECOMMENDATION TO THE FULL BOARD FOR THE COMPENSATION OF EACH ASSESSED INDIVIDUAL, BASED ON A REVIEW OF COMPENSATION LEVELS AND BENEFITS FOR SIMILARLY QUALIFIED INDIVIDUALS IN COMPARABLE POSITIONS AT SIMILAR ORGANIZATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST AND AT MANAGEMENT'S DISCRETION. FORM 990, PART XI, LINE 9: WRITE-OFF OF GRANTS 25,000.