2025-11-13T11:14:55-08:00 2025-06-30 812852311 W Stevens LLP 9485 E 191st St Noblesville IN 46060 990 2024-07-01 933058183 Headache Alliance Inc HEAD 6093166714 148 Rt 73 Ste 3 192 Voorhees NJ 08043 Alex Doty Treasurer 2152394749 2025-11-10 true true Wendy Stevens CPA P01964214 3172819063 X 2024 2025-03-06 01:10:19Z Alex Doty 148 Rt 73 Ste 3 192 Voorhees NJ 08043 386225 false X www.headachealliance.org X 2023 NJ To improve the quality of life of those living with headache disorders through patient and provider education, communications campaigns, and support of early-stage research. 6 6 5 50 0 245001 356104 438 27807 2314 0 245439 386225 0 0 51495 129818 0 18354 64356 263488 115851 393306 129588 -7081 129588 122518 10 129588 122508 X To improve the quality of life of those living with headache disorders through patient and provider education, communications campaigns, and support of early-stage research. true false 165368 113500 National Mall Installation Project (Flags for Headache) Purpose and Activities: The Flags for Headache National Mall Installation Project is a large-scale public awareness and education initiative designed to make the invisible burden of headache disorders visible. Activities included: -Designed and implemented a multi-week flag installation with 30,000 flags on the National Mall in Washington, DC (May 31June 15, 2025). -Created educational signage and a microsite to engage the public in learning about headache disorders. -Mobilizing patients, caregivers, and healthcare professionals to participate as volunteers and share their stories. -Supported home lawn installations and smaller pop-up installations in communities across the country. -Secured over 50 Proclamations for Migraine and Headache Awareness Month on the state and local level. -Secured over 50 buildings and landmarks to shine purple during Migraine and Headache Awareness Month. Accomplishments: -Successfully launched the first annual flag installation. -Reached an estimated 5 million people through earned media, social media, and in-person engagement. -Engaged nationwide participants in awareness-building activities. How it Furthers Exempt Purpose: The installation educates the public, reduces stigma, and raises national visibility for headache disorders as a major public health issue, fulfilling the organizations awareness and community engagement mission. 103691 215835 Headache on the Hill (HOH) Purpose and Activities: Headache on the Hill is a biannual professional development and educational conference for patients, caregivers, and healthcare providers interested in civic engagement. Offered in September 2024 (virtual) and March 2025 (in-person in Washington, DC), HOH provides: -Educational workshops and trainings on topics such as storytelling, social media as an advocacy tool, and preparing for both virtual and in-person meetings with policymakers, and media training. -Community-building activities through affinity groups, fostering peer connections and collective problem-solving. -Wellness programming, including mindfulness sessions, a headache care room at the in-person event, and post-event self-care resources. -Youth-specific programming with art, science, and writing workshops to reduce isolation, build confidence, and introduce advocacy skills. Accomplishments: -156 participants attended the Fall 2024 Virtual HOH. -254 participants attended the Spring 2025 In-Person HOH. -Piloted a youth track with 20 youth participants. -Developed new training modules to strengthen the advocacy community and improve participant readiness for engagement. -Integrated wellness and self-care programming, supporting participants health and resilience. -Supported travel scholarships for low-income participants to attend How it Furthers Exempt Purpose: The program advances the organizations mission by educating and empowering individuals to engage in civic life, fostering a connected patient and caregiver community, and increasing public understanding of headache disorders. 10000 Lunch & Learn Webinar Series Purpose and Activities: The Lunch & Learn program is a virtual education series for patients, caregivers, and healthcare providers, focused on topics like navigating education with headache disorders, understanding the military journey to headache care, and managing access-to-care challenges. Accomplishments: -7 webinars hosted with approximately 900 registrants. -Provided recordings and downloadable resources to extend learning beyond live participants. How it Furthers Exempt Purpose: This program educates the public and patient community, reduces stigma, and equips people living with headache disorders with tools to better manage their condition and engage in civic life. 5000 5000 Youth Programming Purpose and Activities: The Youth Program builds community and reduces isolation for young people living with headache disorders or supporting family members living with these conditions. Programming includes: -Art, science, and writing workshops to help youth understand headache disorders and express their experiences. -Community-building sessions to connect participants with peers and provide a supportive environment for sharing. -Civic education. Accomplishments: -20 youth participants engaged in the Spring 2025 pilot program. -Established a framework for an ongoing youth program integrated with HOH and other educational initiatives. How it Furthers Exempt Purpose: By educating and empowering youth, the program fosters future patient leaders and reduces the stigma and isolation associated with headache disorders. 5000 5000 284059 true true false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true false false false true 4 0 true 5 true false false false false false false false 0 false false false false false false false X 6 6 false false false false false true true true true false false true true true true true false true true false X X X Julienne Verdi 6093166714 148 Rt 73 Ste 3 192 Voorhees NJ 08043 Julienne Verdi Executive Dir. 40.00 0.00 X 100155 0 0 Karla Neville Director 5.00 0.00 X 0 0 0 Mirabella Macias Director 1.00 0.00 X 0 0 0 Sarah Shaw Director 1.00 0.00 X 0 0 0 Annika Ehrlich President 5.00 0.00 X 0 0 0 Amaal Starling Vice President 5.00 0.00 X 0 0 0 Stephanie Nahas-Geiger Secretary 5.00 0.00 X 0 0 0 Alex Doty Treasurer 5.00 0.00 X 0 0 0 100155 1 false false false 0 250 355854 356104 Headache On The Hill 25835 25835 Products Sold 1972 1972 27807 2314 2314 0 0 0 0 0 0 0 0 386225 30121 0 0 0 0 112956 83098 19843 10015 0 5913 5322 591 0 229 229 10720 8520 2200 0 2440 2440 9738 9738 21871 21871 0 0 13087 13087 20221 5679 14542 1045 3 1011 31 17147 917 16230 0 0 12534 8995 2679 860 0 61914 58615 203 3096 0 0 0 3314 3314 Installation Project 86968 84000 2968 State Licensing Fees 6684 6249 435 Merchant Fees 3680 6 3674 Printing and Publications 1586 185 608 793 1259 370 889 393306 284059 90893 18354 129588 53204 69314 0 0 0 0 0 0 0 0 0 0 0 0 0 129588 122518 10 0 10 X 129588 122508 129588 122508 129588 122518 X -7081 1 X false false false X 244776 341939 586715 0 0 244776 341939 586715 0 586715 2314 2314 0 0 589029 X 0.00000 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false 9429 9429 9429 1886 472 7543 false 2640 1886 4526 6789 9429 9429 660 472 1132 1698 Form 990, Part III, Line 2 The Flags for Headache Installation Project Form 990, Part VI, Section A, Line 1a There is an Executive Committee that makes some decisions in-between full board meetings. Form 990, Part VI, Section A, Line 7a New Board Members are voted on by the Board of Directors of The Alliance for Headache Disorders Advocacy. Form 990, Part VI, Section A, Line 7b New Board Members are voted on by the Board of Directors of The Alliance for Headache Disorders Advocacy. Form 990, Part VI, Section B, Line 11b Board Members review the 990 and vote to approve it before it is filed. Form 990, Part VI, Section B, Line 12c Organization has a conflict of interest policy that it follows. Form 990, Part VI, Section B, Line 15a The Board of Directors votes on compensation and hiring. Form 990, Part VI, Section B, Line 15b The Executive Committee makes compensation decisions for the Executive Director by reviewing comparable data. Form 990, Part VI, Section C, Line 18 It is available upon request and posted on the Candid website. Form 990, Part VI, Section C, Line 19 There are bylaws and Board Members are provided financial statements at every board meeting. Form 990, Part XI, Line 9 Rounding = $1 Alliance for Headache Disorders Advocacy 148 Rt 73 St 3 Ste 192 Voorhees NJ 08043 264384626 Headache Disorder Advocacy NJ 501(c)6 N/A N/A false false false false false false false false false false false false false false false false false false false false