2025-11-13T13:09:33-06:00 2024-12-31 410746749 CLIFTONLARSONALLEN LLP 6116 EXECUTIVE BLVD 500 NORTH BETHESDA MD 20852 990 2024-01-01 770229244 THE SCLERODERMA FOUNDATION OF CALIFORNIA SCLE 4242276475 8929 S SEPULVEDA BLVD 401 LOS ANGELES CA 90045 LAURA FUHRMAN PRESIDENT 4242276475 2025-11-10 1 0 JOSHUA G DZYAK CPA P01398949 3017705100 2025-11-10 2024 2025-03-06 01:10:19Z LAURA FUHRMAN 8929 S SEPULVEDA BLVD 401 LOS ANGELES CA 90045 1027565 0 X HTTPS://WWW.MYSCLERODERMA.ORG X 1989 CA TO EMPOWER THE SCLERODERMA COMMUNITY TO LIVE BETTER LIVES. 14 14 3 65 0 0 340488 979917 0 0 0 3293 -65712 -38646 274776 944564 29500 9833 0 0 205921 255712 0 0 60562 101480 182669 336901 448214 -62125 496350 298863 787598 10204 2589 288659 785009 X EMPOWERING THE SCLERODERMA COMMUNITY TO LIVE BETTER LIVES THROUGH PROGRAMS COMMITTED TO SUPPORT, EDUCATION, AND RESEARCH.PILLARS OF OUR MISSION: SUPPORT: INSPIRING OUR COMMUNITY THROUGH PATIENT SUPPORT SERVICES AND RESOURCES FOR PATIENTS INCLUDING 26 VOLUNTEER DRIVEN LOCAL COMMUNITY & PEER LED SUPPORT GROUPS, STAFF DRIVEN ONE-ON-ONE PROFESSIONAL GUIDANCE THAT ALLOWS THEM TO THRIVE. EDUCATION: FOR MEDICAL PROFESSIONALS TO HELP THEM UNDERSTAND AND PROPERLY DIAGNOSIS SCLERODERMA EARLY, AND FOR PATIENTS TO HELP THEM AND COPE AND THRIVE WHILE LIVING WITH SCLERODERMA. RESEARCH: FUNDING RESEARCH PROJECTS THAT WILL LEAD THE WAY TO FINDING A CURE FOR SCLERODERMA. 0 0 81416 SUPPORT GROUPS:OUR 26 SUPPORT GROUPS LOCATED IN THE COMMUNITIES WE SERVE, PROVIDE A SAFE, COMPASSIONATE SPACE WHERE PARTICIPANTS CAN SHARE EXPERIENCES, FIND UNDERSTANDING, AND BUILD RESILIENCE ALONGSIDE OTHERS WHO FACE SIMILAR CHALLENGES. FACILITATED BY PROFESSIONAL TRAINED VOLUNTEERS OUR SUPPORT GROUPS OFTEN FEATURE SPEAKERS SPECIALIZING IN SCLERODERMA OR RELATED TOPICS AND FOSTER EMOTIONAL WELL-BEING, REDUCE ISOLATION, AND PROMOTE A SENSE OF BELONGING. THEY ALSO CONNECT PATIENTS AND FAMILIES WITH OTHERS WHO CAN SHARE PRACTICAL KNOWLEDGE ABOUT TREATMENT OPTIONS, COPING STRATEGIES, LIFESTYLE MANAGEMENT, AND COMMUNITY RESOURCES. 53014 9833 EDUCATION DAYS:WHETHER YOU'RE A PATIENT, CAREGIVER, OR HEALTHCARE PROFESSIONAL OUR EDUCATION DAYS EMPOWER ATTENDEES WITH THE LATEST INFORMATION AND STRATEGIES FOR LIVING WELL WITH SCLERODERMA. WITH LEADING EXPERT PRESENTATIONS SHARING THEIR KNOWLEDGE ABOUT SCLERODERMA AND ITS MANAGEMENT. DESIGNED TO ENHANCE SELF-ADVOCACY, IMPROVE HEALTH OUTCOMES, AND ENCOURAGE PROACTIVE ENGAGEMENT IN ONE'S OWN CARE. FOR MANY, IT ALSO PROVIDES THE OPPORTUNITY TO CONNECT WITH OTHERS WHO UNDERSTAND THEIR JOURNEY AND FIND COMFORT IN A SUPPORTIVE COMMUNITY. ALL EDUCATION DAYS ARE FREE FOR PATIENTS, FAMILY, FRIENDS AND CAREGIVERS TO ATTEND. 149365 PATIENT OUTREACH:OUR PATIENT OUTREACH PROGRAM IS DEDICATED TO EMPOWERING INDIVIDUALS AND THEIR FAMILIES AFFECTED BY SCLERODERMA. WE CONNECT THE PATIENTS TO THE COMMUNITY AND PROVIDE THE SUPPORT AND KNOWLEDGE, TO LIVE SUCCESSFULLY. WE REACH OUT TO PATIENTS AND CAREGIVERS TO ENSURE THEY ARE AWARE OF AVAILABLE RESOURCES, SERVICES, AND OPPORTUNITIES FOR ENGAGEMENT. THROUGH PERSONALIZED COMMUNICATION AND OUR OUTREACH EFFORTS WE CAN HELP INDIVIDUALS ACCESS CARE, NAVIGATE COMPLEX HEALTH SYSTEMS, AND FEEL SUPPORTED EVERY STEP OF THE WAY. 67925 HEALTHCARE AND PROFESSIONAL OUTREACH PROGRAM:WE WORK CLOSELY WITH HOSPITALS, CLINICS, AND COMMUNITY-BASED ORGANIZATIONS TO INTEGRATE BEST PRACTICES AND STRENGTHEN REFERRAL RELATIONSHIPS. WE AIM TO CREATE A COORDINATED NETWORK OF INFORMED PROFESSIONALS WHO CAN DELIVER TIMELY, COMPASSIONATE, AND COMPREHENSIVE CARE ULTIMATELY IMPROVING OUTCOMES AND QUALITY OF LIFE FOR THE PATIENTS AND FAMILIES WE SERVE. WE PARTNER WITH PHYSICIANS, NURSES, AND ALLIED HEALTH PROFESSIONALS TO PROVIDE SUPPORT AND RESOURCES TO HELP THEIR PATIENTS, ENSURING THAT PROVIDERS CONNECT THEM TO APPROPRIATE SERVICES. WE ALSO WORK TOGETHER THROUGH EDUCATIONAL PROGRAMS, COLLABORATIVE INITIATIVES, AND DIRECT COMMUNICATION. OUR CONTINUING MEDICAL EDUCATION PROGRAM WAS DESIGNED FOR PRIMARY CARE PHYSICIANS, NURSE PRACTITIONERS, NURSES AND OTHER ALLIED HEALTHCARE PROFESSIONALS AND IS FOR EARLY DETECTION AND DIAGNOSIS OF SCLERODERMA. THIS FREE, ACCREDITED CME EXISTS TO ENHANCE PATIENT OUTCOMES AND IMPROVE AWARENESS OF SCLERODERMA AMONG PROVIDERS. THE PROGRAM IS MANAGED BY THE OFFICE OF CONTINUING MEDICAL EDUCATION AND LIFELONG LEARNING AT THE UNIVERSITY OF MICHIGAN MEDICAL SCHOOL AND IS ACCREDITED BY THE ACCREDITATION COUNCIL FOR CONTINUING MEDICAL EDUCATION (ACCME) AND WORTH 3.75 AMA PRA CATEGORY 1 CREDITS. THERE IS NO FEE TO REGISTER OR TO CLAIM CME CREDIT. 67925 351720 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 3 1 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X X ANDREW EMMETT 4242276475 8929 S SEPULVEDA BLVD S 412 LOS ANGELES CA 90045 ANDREW EMMETT EXECUTIVE DIRECTOR 45.00 X 125500 0 4489 LAURA FUHRMAN PRESIDENT 2.00 X X 0 0 0 JOEL CHERMAN VICE PRESIDENT 2.00 X X 0 0 0 SHARON FRIEDMAN VP GOVERNANCE 2.00 X X 0 0 0 DAVID PARKER SECRETARY 2.00 X X 0 0 0 DR DAN FURST PAST PRESIDENT 2.00 X X 0 0 0 CHRIS PETTIT TREASURER 2.00 X X 0 0 0 CHRIS CORMAN DIRECTOR 1.00 X 0 0 0 STEPHEN ELROD DIRECTOR 1.00 X 0 0 0 NANCY GARZA DIRECTOR 1.00 X 0 0 0 EVAN GREENBURG DIRECTOR 1.00 X 0 0 0 SHERVIN GHANOONGOOI DIRECTOR 1.00 X 0 0 0 JOHANNA HERRMANN DIRECTOR 2.00 X 0 0 0 JIM HINES DIRECTOR 2.00 X 0 0 0 KRISTY KUBOTA DIRECTOR 1.00 X 0 0 0 125500 0 4489 1 0 0 0 0 355648 624269 979917 3293 3293 44355 355648 83001 -38646 -38646 944564 0 0 -35353 X 9833 9833 129898 106411 7450 16037 101972 83534 5849 12589 6484 4313 852 1319 17358 12982 1020 3356 5750 5750 65708 55833 2175 7700 32859 21025 7485 4349 24414 16578 3031 4805 21596 17464 815 3317 22310 21415 895 3243 2332 326 585 MISCELLANEOUS EXPENSES 6789 284 6505 448214 351720 35932 60562 295597 169832 0 600000 0 15000 500 0 2766 2766 298863 787598 3474 1310 6730 1279 10204 2589 X 288659 785009 288659 785009 298863 787598 496350 0 X 0 0 0 X 319091 422662 283435 340488 979917 2345593 319091 422662 283435 340488 979917 2345593 770250 1575343 3293 3293 2348886 0.67070 0.87780 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 FUNDS RESTRICTED TO RESEARCH 1279 1279 VERTICAL CURE 34398 31617 2781 6614 115 GALA 234530 206780 27750 30167 29949 1 131075 117251 13824 3689 12467 400003 355648 44355 40470 42531 83001 -38646 0 FRIENDS OF WORLD SCLERODERMA FOUNDATION 49 ELMWOOD ROAD BOX 559 SWAMPSCOTT MA 01907 811305611 501C3 9833 0 FOR CONTINUING MEDICAL EDUCATION 1 FORM 990, PART VI, SECTION B, LINE 11B FORM 990 WILL BE DISTRIBUTED AND DISCUSSED WITH THE FINANCE COMMITTEE AND THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C EVERY YEAR BOARD MEMBERS SIGN A STATEMENT DISCLOSING WHETHER ANY CONFLICTS OF INTEREST EXIST. FORM 990, PART VI, SECTION B, LINE 15 COMMITTEE OF THE BOARD OF DIRECTORS REVIEWS COMPARATIVE SALARY DATA AND THE PERFORMANCE OF THE EMPLOYEE OF THE ORGANIZATION. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS AVAILABLE FOR PUBLIC INSPECTION UPON REQUEST. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 55,833. MANAGEMENT AND GENERAL EXPENSES 2,175. FUNDRAISING EXPENSES 7,700. TOTAL EXPENSES 65,708.