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      <TaxRevLeviedOrgnztnlBnft170Grp>
        <TotalAmt>0</TotalAmt>
      </TaxRevLeviedOrgnztnlBnft170Grp>
      <GovtFurnSrvcFcltsVl170Grp>
        <TotalAmt>0</TotalAmt>
      </GovtFurnSrvcFcltsVl170Grp>
      <TotalCalendarYear170Grp>
        <CurrentTaxYearMinus4YearsAmt>83704</CurrentTaxYearMinus4YearsAmt>
        <CurrentTaxYearMinus3YearsAmt>114641</CurrentTaxYearMinus3YearsAmt>
        <CurrentTaxYearMinus2YearsAmt>133513</CurrentTaxYearMinus2YearsAmt>
        <CurrentTaxYearMinus1YearAmt>126556</CurrentTaxYearMinus1YearAmt>
        <CurrentTaxYearAmt>184390</CurrentTaxYearAmt>
        <TotalAmt>642804</TotalAmt>
      </TotalCalendarYear170Grp>
      <SubstantialContributorsTotAmt>0</SubstantialContributorsTotAmt>
      <PublicSupportTotal170Amt>642804</PublicSupportTotal170Amt>
      <GrossInvestmentIncome170Grp>
        <CurrentTaxYearMinus4YearsAmt>578</CurrentTaxYearMinus4YearsAmt>
        <CurrentTaxYearMinus3YearsAmt>45</CurrentTaxYearMinus3YearsAmt>
        <CurrentTaxYearMinus2YearsAmt>93</CurrentTaxYearMinus2YearsAmt>
        <CurrentTaxYearMinus1YearAmt>1989</CurrentTaxYearMinus1YearAmt>
        <CurrentTaxYearAmt>14028</CurrentTaxYearAmt>
        <TotalAmt>16733</TotalAmt>
      </GrossInvestmentIncome170Grp>
      <UnrelatedBusinessNetIncm170Grp>
        <TotalAmt>0</TotalAmt>
      </UnrelatedBusinessNetIncm170Grp>
      <OtherIncome170Grp>
        <TotalAmt>0</TotalAmt>
      </OtherIncome170Grp>
      <TotalSupportAmt>659537</TotalSupportAmt>
      <PublicSupportCY170Pct>0.97460</PublicSupportCY170Pct>
      <PublicSupportPY170Pct>0.99520</PublicSupportPY170Pct>
      <ThirtyThrPctSuprtTestsCY170Ind>X</ThirtyThrPctSuprtTestsCY170Ind>
      <PublicSupportTotal509Amt>0</PublicSupportTotal509Amt>
      <PublicSupportCY509Pct>0</PublicSupportCY509Pct>
      <InvestmentIncomeCYPct>0</InvestmentIncomeCYPct>
    </IRS990ScheduleA>
    <IRS990ScheduleB documentId="IRS990ScheduleB-01">
      <ContributorInformationGrp>
        <ContributorNum>RESTRICTED</ContributorNum>
        <ContributorBusinessName>
          <BusinessNameLine1>RESTRICTED</BusinessNameLine1>
        </ContributorBusinessName>
        <ContributorUSAddress>
          <AddressLine1>RESTRICTED</AddressLine1>
          <AddressLine2>RESTRICTED</AddressLine2>
          <City>RESTRICTED</City>
          <State>RESTRICTED</State>
          <ZIPCode>RESTRICTED</ZIPCode>
        </ContributorUSAddress>
        <TotalContributionsAmt>RESTRICTED</TotalContributionsAmt>
      </ContributorInformationGrp>
    </IRS990ScheduleB>
    <IRS990ScheduleF documentId="IRS990ScheduleF-01" softwareId="24020153">
      <GrantsToOrgOutsideUSGrp>
        <RegionTxt>Europe</RegionTxt>
        <PurposeOfGrantTxt>FUND RESEARCH</PurposeOfGrantTxt>
        <CashGrantAmt>86906</CashGrantAmt>
        <MannerOfCashDisbursementTxt>WIRE TRANSFER</MannerOfCashDisbursementTxt>
        <NonCashAssistanceAmt>0</NonCashAssistanceAmt>
        <DescriptionOfNonCashAsstTxt>0</DescriptionOfNonCashAsstTxt>
        <ValuationMethodUsedDesc>0</ValuationMethodUsedDesc>
      </GrantsToOrgOutsideUSGrp>
      <GrantsToOrgOutsideUSGrp>
        <RegionTxt>East Asia and Pacific</RegionTxt>
        <PurposeOfGrantTxt>FUND RESEARCH</PurposeOfGrantTxt>
        <CashGrantAmt>20000</CashGrantAmt>
        <MannerOfCashDisbursementTxt>WIRE TRANSFER</MannerOfCashDisbursementTxt>
        <NonCashAssistanceAmt>0</NonCashAssistanceAmt>
        <DescriptionOfNonCashAsstTxt>0</DescriptionOfNonCashAsstTxt>
        <ValuationMethodUsedDesc>0</ValuationMethodUsedDesc>
      </GrantsToOrgOutsideUSGrp>
      <Total501c3OrgCnt>2</Total501c3OrgCnt>
      <TransferToForeignCorpInd>true</TransferToForeignCorpInd>
      <InterestInForeignTrustInd>false</InterestInForeignTrustInd>
      <ForeignCorpOwnershipInd>false</ForeignCorpOwnershipInd>
      <PassiveForeignInvestmestCoInd>false</PassiveForeignInvestmestCoInd>
      <ForeignPartnershipInd>false</ForeignPartnershipInd>
      <BoycottCountriesInd>false</BoycottCountriesInd>
      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>Other</FormAndLineReferenceDesc>
        <ExplanationTxt>PART IV LINE 1. THE FOUNDATION IS NOT REQUIRED TO FILE FORM 926 AS THE TRANSFER OF CASH TO THE FOREIGN ENTITY DID NOT RESULT IN OWNERSHIP OF 10% OR MORE OF THE VOTING POWER OF THE RECIPIENT ENTITY, NOR WAS THE AMOUNT TRANSFERRED MORE THAN $100,000 TO ANY SINGLE RECIPIENT</ExplanationTxt>
      </SupplementalInformationDetail>
    </IRS990ScheduleF>
    <IRS990ScheduleG documentId="IRS990ScheduleG-01">
      <FundraisingEventInformationGrp>
        <Event1Nm>CASINO NIGHT</Event1Nm>
        <GrossReceiptsEvent1Amt>53036</GrossReceiptsEvent1Amt>
        <GrossRevenueEvent1Amt>53036</GrossRevenueEvent1Amt>
        <OtherDirectExpensesEvent1Amt>17435</OtherDirectExpensesEvent1Amt>
        <GrossReceiptsTotalAmt>53036</GrossReceiptsTotalAmt>
        <GrossRevenueTotalEventsAmt>53036</GrossRevenueTotalEventsAmt>
        <OthDirectExpnssTotalEventsAmt>17435</OthDirectExpnssTotalEventsAmt>
        <DirectExpenseSummaryEventsAmt>17435</DirectExpenseSummaryEventsAmt>
        <NetIncomeSummaryAmt>35601</NetIncomeSummaryAmt>
      </FundraisingEventInformationGrp>
    </IRS990ScheduleG>
    <IRS990ScheduleI documentId="IRS990ScheduleI-01" softwareId="24020153">
      <GrantRecordsMaintainedInd>true</GrantRecordsMaintainedInd>
      <RecipientTable>
        <RecipientBusinessName>
          <BusinessNameLine1Txt>THE SPEAK FOUNDATION</BusinessNameLine1Txt>
        </RecipientBusinessName>
        <USAddress>
          <AddressLine1Txt>71 EAST AVENUE</AddressLine1Txt>
          <CityNm>NORWALK</CityNm>
          <StateAbbreviationCd>CT</StateAbbreviationCd>
          <ZIPCd>06851</ZIPCd>
        </USAddress>
        <RecipientEIN>262087516</RecipientEIN>
        <CashGrantAmt>15000</CashGrantAmt>
        <PurposeOfGrantTxt>2025 INTERNATIONAL LGMD CONFERENCE</PurposeOfGrantTxt>
      </RecipientTable>
      <RecipientTable>
        <RecipientBusinessName>
          <BusinessNameLine1Txt>UNIVERSITY OF IOWA</BusinessNameLine1Txt>
        </RecipientBusinessName>
        <USAddress>
          <AddressLine1Txt>285 NEWTON ROAD</AddressLine1Txt>
          <CityNm>IOWA CITY</CityNm>
          <StateAbbreviationCd>IA</StateAbbreviationCd>
          <ZIPCd>52242</ZIPCd>
        </USAddress>
        <RecipientEIN>426004813</RecipientEIN>
        <CashGrantAmt>10000</CashGrantAmt>
        <PurposeOfGrantTxt>DYSTROGLYCANOPATHY PATIENT AND FAMILY CONFERENCE</PurposeOfGrantTxt>
      </RecipientTable>
      <RecipientTable>
        <RecipientBusinessName>
          <BusinessNameLine1Txt>LGMD AWARENESS FOUNDATION</BusinessNameLine1Txt>
        </RecipientBusinessName>
        <USAddress>
          <AddressLine1Txt>638 KENNEDY DR</AddressLine1Txt>
          <CityNm>TWIN LAKES</CityNm>
          <StateAbbreviationCd>WI</StateAbbreviationCd>
          <ZIPCd>53181</ZIPCd>
        </USAddress>
        <RecipientEIN>851504937</RecipientEIN>
        <CashGrantAmt>7000</CashGrantAmt>
        <PurposeOfGrantTxt>10TH ANNUAL LGMD AWARENESS DAY SPONSORSHIP</PurposeOfGrantTxt>
      </RecipientTable>
      <RecipientTable>
        <RecipientBusinessName>
          <BusinessNameLine1Txt>UMASS CHAN MEDICAL SCHOOL</BusinessNameLine1Txt>
        </RecipientBusinessName>
        <USAddress>
          <AddressLine1Txt>55 LAKE AVENUE NORTH SUITE S1-859</AddressLine1Txt>
          <CityNm>WORCESTER</CityNm>
          <StateAbbreviationCd>MA</StateAbbreviationCd>
          <ZIPCd>01655</ZIPCd>
        </USAddress>
        <RecipientEIN>043108190</RecipientEIN>
        <CashGrantAmt>23000</CashGrantAmt>
        <PurposeOfGrantTxt>LGMD2I THERAPEUTICS FOR FKRP GENE CORRECTION VIA PRIME</PurposeOfGrantTxt>
      </RecipientTable>
      <RecipientTable>
        <RecipientBusinessName>
          <BusinessNameLine1Txt>NATIONWIDE CHILDREN'S HOSPITAL</BusinessNameLine1Txt>
        </RecipientBusinessName>
        <USAddress>
          <AddressLine1Txt>700 CHILDRENS DR</AddressLine1Txt>
          <CityNm>COLUMBUS</CityNm>
          <StateAbbreviationCd>OH</StateAbbreviationCd>
          <ZIPCd>43205</ZIPCd>
        </USAddress>
        <RecipientEIN>311036372</RecipientEIN>
        <PurposeOfGrantTxt>NOVEL GENE THERAPY</PurposeOfGrantTxt>
      </RecipientTable>
      <Total501c3OrgCnt>3</Total501c3OrgCnt>
      <TotalOtherOrgCnt>3</TotalOtherOrgCnt>
    </IRS990ScheduleI>
    <IRS990ScheduleO documentId="IRS990ScheduleO-01" softwareId="24020153">
      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>Pt VI, Line 11b</FormAndLineReferenceDesc>
        <ExplanationTxt>PRESIDENT OF FOUNDATION REVIEWS FORM 990 BEFORE RETURN IS FILED.</ExplanationTxt>
      </SupplementalInformationDetail>
      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>Pt VI, Line 2</FormAndLineReferenceDesc>
        <ExplanationTxt>PRESIDENT/CEO AND VICE PRESIDENT ARE HUSBAND AND WIFE.</ExplanationTxt>
      </SupplementalInformationDetail>
      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>Pt VI, Line 15a</FormAndLineReferenceDesc>
        <ExplanationTxt>THERE IS NO COMPENSATION PAID TO ANY OFFICER OF THE FOUNDATION.</ExplanationTxt>
      </SupplementalInformationDetail>
      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>Pt VI, Line 15b</FormAndLineReferenceDesc>
        <ExplanationTxt>THERE ARE NO COMPENSATED INDIVIDUALS OF THE FOUNDATION. ALL ASPECTS OF FOUNDATIONS ACTIVITIES ARE PERFORMED BY VOLUNTEERS.</ExplanationTxt>
      </SupplementalInformationDetail>
      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>Pt VI, Line 19</FormAndLineReferenceDesc>
        <ExplanationTxt>DOCUMENTS REQUIRED TO BE DISCLOSED TO PUBLIC ARE MADE AVAILABLE UPON REQUEST.</ExplanationTxt>
      </SupplementalInformationDetail>
      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>Pt XII, Line 2c</FormAndLineReferenceDesc>
        <ExplanationTxt>PRESIDENT OF FOUNDATION SELECTED AND OVERSEES THE FINANCIAL STATEMENT PROCESS OF THE ACCOUNTANT.</ExplanationTxt>
      </SupplementalInformationDetail>
    </IRS990ScheduleO>
  </ReturnData>
</Return>