2025-11-11T14:22:32-06:00 2024-12-31 561131459 Stancil PC 4909 Windy Hill Drive Raleigh NC 27609 990 2024-01-01 920598936 Hidradenitis Suppurativa Foundation Inc HIDR 9193780707 964 High House Road 3064 Cary NC 27513 BRENT HAZELETT CHIEF EXECUTIVE OFFICER 9193780707 2025-11-11 1 0 David Piscorik P01440747 9198721260 2025-11-10 2024 2025-03-06 01:10:19Z BRENT HAZELETT 964 High House Road 3064 Cary NC 27513 1803205 0 X www.hs-foundation.org X 2005 NC THE HIDRADENITIS SUPPURATIVA FOUNDATION (HSF) IS A NONPROFIT PUBLIC BENEFIT CORPORATION DEDICATED TO IMPROVING THE QUALITY OF LIFE AND QUALITY OF CARE FOR INDIVIDUALS AND FAMILIES AFFECTED BY HIDRADENITIS SUPPURATIVA (HS). THE HSF FOSTERS AND ENCOURAGES WORLDWIDE RESEARCH BY DEVELOPING AND SUPPORTING AN INTERDISCIPLINARY FAMILY OF SCIENTISTS AND PHYSICIANS DEVOTED TO STUDYING THE MOLECULAR AND CELLULAR BASIS OF HS, IN ORDER TO DEVELOP AND DELIVER MORE EFFECTIVE FORMS OF TREATMENT AND PREVENTATIVE MEASURES FOR THOSE WITH THIS DEBILITATING AND EMINENTLY CHRONIC DISEASE. 16 16 1 40 0 0 637160 941347 414320 818997 27263 42861 0 0 1078743 1803205 300501 347000 0 0 267602 256766 0 0 28511 676973 745582 1245076 1349348 -166333 453857 1268561 2109589 270751 648400 997810 1461189 THE MISSION OF THE HS FOUNDATION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY HS THROUGH ADVOCACY, EDUCATION AND RESEARCH. 0 0 382654 584997 The Ninth Annual Symposium on Hidradenitis Suppurativa Advances (SHSA) was held November 1-3, 2024, in Austin, Texas. Co-organized with the Canadian HS Foundation (CHSF), over 450 attendees from 18 countries participated in the event, including 39 patients and 65 medical students. The latest advancements in HS treatment and research were presented, including the submission of 150 abstracts. 347000 347000 Over $305,000 in grant funding was provided through three HSF programs. The Danby Grant provided five grants totaling $100,000, while the Translational Grant Program provided two grants totaling $150,000. Finally, the HSF funded a Career Development Award through a partnership with the Dermatology Foundation for $55,000. The grants all fund research and researchers focused on the field of HS. 206974 150000 The HS Foundation held its fourth annual educational event for dermatology residents, called HS Academy. The purpose of the event is to educate the next generation of practicing dermatologists about the latest advancements in diagnosis, pathogenesis, epidemiology, and comorbidities, as well as medical and procedure-based treatments for Hidradenitis Suppurativa through lecture, break-out sessions, and case-based studies with renowned experts and patient faculty. The event takes place over the course of three days and all expenses for attendees, including travel, is completely covered by the Foundation. 127048 84000 127048 84000 1063676 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 1 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 1 1 0 0 NC X Brent Hazelett 9193780707 964 High House Road 3064 Cary NC 27513 ILTEFAT HAMZAVI MD IMMEDIATE PAST PRESIDENT 0.50 X 0 0 0 JOSLYN R SCIACCA KIRBY MD PAST PRESIDENT 0.50 X X 0 0 0 HADAR LEV-TOV MD PRESIDENT 3.00 X X 0 0 0 MARTIN OKUN MD PAST SECRETARY 0.50 X X 0 0 0 ATHENA GIERBOLINI DIRECTOR 0.50 X 0 0 0 JENNIFER HSIAO MD DIRECTOR 0.50 X 0 0 0 CHRISTOPHER SAYED MD SECRETARY 1.00 X X 0 0 0 HALEY NAIK MD VICE PRESIDENT 1.00 X X 0 0 0 MICHELLE LOWES MBBS PHD DIRECTOR 0.50 X 0 0 0 AMIT GARG MD DIRECTOR 0.50 X 0 0 0 BARRY RESNIK MD DIRECTOR 0.50 X 0 0 0 STEPHANIE GOLDBERG MD DIRECTOR 0.50 X 0 0 0 VIVIAN SHI MD TREASURER 1.00 X X 0 0 0 STEVEN DAVELUY MD DIRECTOR 0.50 X 0 0 0 AFSANEH ALAVI MD DIRECTOR 0.50 X 0 0 0 DONNA ATHERTON DIRECTOR 0.50 X 0 0 0 GINETTE OKOYE MD DIRECTOR 0.50 X 0 0 0 LAUREN ORENSTEIN MD DIRECTOR 0.50 X 0 0 0 COLLEEN COTTON MD DIRECTOR 0.50 X 0 0 0 BRENT HAZELETT CHIEF EXECUTIVE OFFICER 45.00 X 233758 0 9350 233758 0 9350 1 0 1 0 0 941347 941347 CONFERENCE FEES 900099 734997 734997 PROJECTS 900099 84000 84000 818997 42861 42861 1803205 818997 0 42861 345000 345000 2000 2000 242923 81379 134417 27127 13843 4153 8306 1384 715 715 13274 13274 1559 1559 79184 79184 1749 1749 9160 9160 39140 31312 7828 591682 591682 1582 1582 Dues and Subscriptions 5516 5516 Miscellaneous 1136 1136 Taxes and Licenses 885 885 1349348 1063676 257161 28511 691865 1575411 4661 3925 128400 79285 40946 25727 402689 425241 1268561 2109589 270751 243400 405000 270751 648400 X 997810 1461189 997810 1461189 1268561 2109589 453857 9522 0 X X 0 1 X 0 0 X 422453 526644 574862 637160 941347 3102466 17906 144983 598777 414320 818997 1994983 440359 671627 1173639 1051480 1760344 5097449 0 381808 381808 381808 381808 4715641 4447 2362 5546 27263 42861 82479 4447 2362 5546 27263 42861 82479 5055 5055 444806 679044 1179185 1078743 1803205 5184983 0.90950 0.97630 0.01590 0.02370 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 Charles Schwab - Long Term Investments 425241 F 425241 X 1811167 9521 9521 1801646 1559 1559 1803205 1347788 0 1347788 1559 1 1560 1349348 Part X, Line 2: The Foundation is a not-for-profit organization and is exempt from income taxes under Section 501(c)(3) of the Internal Revenue Code. Accordingly, no provision for income taxes has been made in the accompanying financial statements. The Foundation has evaluated their income tax positions and has determined that they have no uncertain tax positions. The Foundation is not currently under examination by the Internal Revenue Service or the State of North Carolina. Part XII, Line 4b - Other Adjustments: Rounding Europe (Including Iceland & Greenland) 0 0 Corporate Sponsorships: $160,000 received 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 Yale University Yale University New Haven CT 06520 060646973 501(c)(3) 20000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. University of Miami 1320 S Dixie HWY STE 100 Coral Gables FL 33146 590624458 501(c)(3) 95000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Dermatology Foundation 1560 Sherman AVE STE 500 Evanston IL 60201 046115524 501(c)(3) 55000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. The Regents of the University of California 1111 Franklin Street 12th floor Oakland CA 94607 943067788 501(c)(3) 75000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Stanford University School of Medicine 291 Campus Drive Stanford CA 94305 941156365 501(c)(3) 20000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Beth Israel Deaconess Medical Center Inc 330 Brookline Ave Boston MA 02215 042103881 501(c)(3) 20000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Children's Research Institute 2801 Blue Ridge Road Ground Floor Raleigh NC 27607 521654453 501(c)(3) 20000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. American Academy of Dermatology 9500 WBryan Mawr Avenue Suite 500 Rosemont IL 60018 410793046 501(c)(3) 40000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Mentorship Program 1 2000 The scholarships were provided as part of the mentor program. Part I, Line 2: THE GRANT APPLICATIONS GO TO THE GRANT REVIEW COMMITTEE, WHICH RATES THE APPLICANTS BASED ON THEIR POTENTIAL IMPORTANCE TO HS RESEARCH. THE HSF BOARD THEN APPROVES THE FINAL RECOMMENDATIONS AND DETERMINES FUNDING LEVELS. GRANTEES ARE ALSO REQUIRED TO SUBMIT REPORTS TO THE HSF AFTER THE PROJECT IS COMPLETED, AND MUST ALSO AGREE TO PUBLISH THEIR FINDINGS. X 0 0 0 0 0 0 0 0 0 BRENT HAZELETT CHIEF EXECUTIVE OFFICER 222425 0 11333 0 0 0 9350 0 0 0 243108 0 0 0 Form 990, Part VI, Section B, line 11b A copy of the Form 990 is reviewed by the Executive Director and Board of Directors before it is filed. Form 990, Part VI, Section B, line 12c THE HS FOUNDATION REQUIRES LEADERS TO COMPLETE A CONFLICT OF INTEREST FORM ANNUALLY AND REQUIRES MEMBERS TO ROUTINELY CITE IF THEY HAVE A WORKING RELATIONSHIP WITH A COMPANY THAT IS BEING DISCUSSED. Form 990, Part VI, Section B, line 15a THE BOARD OF DIRECTORS REVIEWS AND APPROVES THE FORM 990 PRIOR TO ITS FILING. Form 990, Part VI, Section C, line 18 INFORMATION WILL BE MADE AVAILABLE UPON REQUEST. Form 990, Part VI, Section C, line 19 The Organization makes information available through the Organization's website. Form 990, Part XII, Line 2c: The Executive Committee oversees the review process. The process has not changed since last year.