2025-10-31T12:16:54-05:00 2024-12-31 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2024-01-01 814532089 PALTOWN DEVELOPMENT FOUNDATION PALT 4108499660 64 W CENTRAL AVE PMB 717 EDGEWATER MD 21037 TIFFANY STUDEBAKER FREEMAN DIR. OPERATIONS & FINANCE 4108499660 2025-10-31 1 0 JANNA GOUDARZI P00397829 3019519090 2024 2025-03-06 01:10:19Z X LINDSAY SICHTA 64 W CENTRAL AVE PMB 717 EDGEWATER MD 21037 998050 0 X WWW.PALTOWN.ORG X 2016 MD SEE PART III, LINE 1. 9 9 5 120 0 0 704965 998050 0 0 5 0 0 0 704970 998050 0 19213 0 0 273994 219193 0 0 32607 505558 480109 779552 718515 -74582 279535 216976 496330 12529 26627 204447 469703 X EMPOWERING PATIENTS AND CAREGIVERS BY CREATING DISEASE-SPECIFIC COMMUNITIES TO ADDRESS SOCIAL ISOLATION AND INFORMATION NEEDS THROUGH TRAINING, TECHNOLOGY, AND DEVELOPING PURPOSE-DRIVEN LEADERSHIP. 1 0 257997 COLONTOWN: THE COLONTOWN ONLINE COMMUNITY FOR COLORECTAL CANCER PATIENTS AND CAREGIVERS GREW FROM SERVING 10,000 MEMBERS AT THE BEGINNING OF THE YEAR TO OVER 12,600 BY YEAR END. THE COMMUNITY OF OVER 100 DISTINCT SUBGROUPS IS MANAGED BY A TEAM OF PATIENTS AND CAREGIVERS, INCLUDING A FULL-TIME PROGRAM MANAGER, ALONG WITH MORE THAN 100 VOLUNTEER MEMBER ADMINS. 54347 COLONTOWN UNIVERSITY IS AN ONLINE COLORECTAL CANCER EDUCATION RESOURCE CREATED WITH A PATIENT CENTRIC LENS. PATIENTS AND CAREGIVERS WORK TOGETHER WITH OUR DIGITAL EDITOR TO CREATE HUNDREDS OF PAGES OF HIGH-QUALITY EDUCATIONAL CONTENT. IN 2024 COLONTOWN UNIVERSITY SERVED 50,000+ VISITORS WITH GUIDES AND LEARNING CENTERS CREATED BY AND FOR PATIENTS AND CAREGIVERS PLUS 100 ZOOM PRESENTATIONS FROM LEADING RESEARCHERS AND CLINICIANS. 41613 PLATFORM: COLONTOWN HAS GROWN SINCE ITS INCEPTION IN 2011 TO MORE THAN 100 PRIVATE FACEBOOK GROUPS SERVING OVER 11,000 COLORECTAL CANCER PATIENTS AND CAREGIVERS. FACEBOOK OFFERS NO NATIVE CAPABILITY TO MANAGE COLLECTIONS OF GROUPS IN A CENTRALIZED WAY, AND PROVIDES VERY LIMITED ANALYTIC AND ADMINISTRATIVE CAPABILITIES. AS COLONTOWN GROWS, THESE CONSTRAINTS POSE AN INCREASING BURDEN ON THE MANAGEMENT TEAM'S ABILITY TO EFFECTIVELY SERVE THE MEMBERSHIP. IN ADDITION, PALTOWN HAS NO CONTROL OVER FEATURES, DATA, OR EVEN HOW GROUP MEMBERS CAN ACCESS, VIEW, AND RETRIEVE INFORMATION. THE COMMUNITY PLATFORM SPACE NOW OFFERS ROBUST OPTIONS FOR MANAGING COMPLEX COMMUNITIES AND ASSOCIATED RESOURCES. MIGRATION TO A DEDICATED HOSTED PLATFORM AND BRANDED MOBILE APP USING A COMMERCIALLY AVAILABLE SOLUTION WOULD ENABLE COLONTOWN TO BETTER SERVE CURRENT AND FUTURE MEMBERS IN A PRIVATE SPACE. PALTOWN WOULD RETAIN CONTROL OVER DATA AND WOULD BE ABLE TO LEVERAGE ITS DISEASE EDUCATION RESOURCES TO SUPPORT COMMUNITY MEMBERS IN A MORE EFFECTIVE WAY.IN Q3 OF 2024, PALTOWN BEGAN PHASE 1 OF A PROJECT TO MIGRATE THE COLONTOWN VIRTUAL COLORECTAL CANCER COMMUNITY FROM FACEBOOK TO A DEDICATED PLATFORM AND CUSTOM BRANDED MOBILE APP. AS PART OF THIS PROJECT, PALTOWN CONDUCTED A NEEDS ASSESSMENT, DEVELOPED DETAILED PROJECT REQUIREMENTS, AND COMPLETED A VENDOR LANDSCAPE SURVEY. PALTOWN SELECTED AND CONTRACTED WITH A SOFTWARE PROVIDER BY THE END OF 2024. THE PROJECT LEAD DEVELOPED A DETAILED ROADMAP TO ENABLE WORK TO BEGIN IN Q1 OF 2025 TO BUILD OUT THE NEW SITE AND APP. 28065 EMPOWERED PATIENT LEADERS WORKSHOPS: PALTOWN'S EMPOWERED PATIENT LEADERS (EPL) WORKSHOPS TEACH PATIENTS AND CAREGIVER MEMBERS OF OUR ONLINE COMMUNITY TO BECOME LEADERS, AND ROLE MODELS FOR OTHERS BOTH IN AND OUT OF THE COLONTOWN COMMUNITY. IN 2024, OUR EPL WORKSHOPS WERE HELD BOTH IN PERSON AND VIRTUALLY, AND WE ALSO BEGAN WORK ON AN ONLINE ASYNCHRONOUS COURSE TO BE LAUNCHED IN 2025. PALTOWN'S PROGRAM AND MANAGEMENT STAFF IS DRAWN ALMOST ENTIRELY FROM THE RANKS OF EPL GRADUATES, AS ARE OUR COLONTOWN COMMUNITY VOLUNTEERS. PARTICIPANTS LEARN BEST PRACTICES IN COMMUNITY MANAGEMENT, SHARE EXPERIENCES, AND WORK TOGETHER TO DEVELOP SOLUTIONS FOR THE MANY ISSUES THAT ARISE IN THE CONVERSATIONS IN COLONTOWN'S 100+ NEIGHBORHOODS. 22374 CLINICAL TRIALS & ALANNA PROJECT: COLONTOWN HAS COLLECTED DEIDENTIFIED TRIALS DATA OF REAL PATIENTS IN A SPREADSHEET NAMED THE ALANNA PROJECT. THIS DATA INCLUDES REAL TIME UPDATES ON SIDE EFFECTS, EFFICACY, AND OTHER REAL LIFE EXPERIENCES OF PATIENTS IN SPECIFIC CLINICAL TRIALS. WE HAVE BEGUN TO EXPAND ON THIS WORK WITH THE CREATION OF THE TRIALS HUB. THIS IS A CLINICAL TRIAL RESEARCH TOOL WHICH ALLOWS MEMBERS TO ACCESS ALL AVAILABLE INFORMATION ON A SPECIFIC TRIAL WITHIN ANY AREA OF COLONTOWN. A SEARCH OF TRIAL MAY GARNER LINKS TO POSTS IN THE COMMUNITY, ALANNA PROJECT UPDATES, LINKS TO OUR FEATURED CLINICAL TRIALS SECTION ON CTU, OR A SPECIFIC DOCTALK AND THE LIKE. IT WILL BE A ONE STOP SHOP FOR GATHERING THE MOST RELEVANT, PATIENT CENTRIC DATA ABOUT A SPECIFIC TRIAL. IN 2024 THE FOCUS HAS BEEN ON BUILDING OUT THE BACK END OF THIS REPOSITORY. 4436 PARTNERSHIP WITH BLKHLTH: MID-2024, PALTOWN WAS INTRODUCED TO AN ATLANTA-BASED NON-PROFIT ORGANIZATION, BLKHLTH, WHICH FOCUSES ON ADDRESSING HEALTH INEQUITIES WITHIN THE BLACK COMMUNITY. THIS PARTNERSHIP RESULTED IN JOINT FUNDING TO BEGIN EXPLORING THE RELATIONSHIP BETWEEN BLACK AMERICANS AND PATIENT ADVOCACY GROUPS, LIKE COLONTOWN. THROUGH THIS CONNECTION, OUR ORGANIZATIONS HELD TWO LISTENING SESSIONS, ONE VIRTUAL, ONE IN-PERSON, TO LISTEN AND LEARN FROM THE BLACK COMMUNITY DIRECTLY, ABOUT THE BARRIERS TO JOINING AND PARTICIPATING IN PATIENT ADVOCACY. THE INFORMATION GATHERED DURING THESE TWO FEEDBACK SESSIONS WILL GUIDE OUR FUTURE WORK IN 2025. 7476 DERRIERE DIPLOMATS: DERRIERE DIPLOMATS IS PALTOWN'S PATIENT AND CAREGIVER OUTREACH PROGRAM. PATIENTS AND CAREGIVERS SIGN UP TO REPRESENT COLONTOWN BY BRINGING INFORMATIONAL PIECES TO THEIR LOCAL ONCOLOGY CENTERS; SHARING THE INFORMATION WITH THE MEDICAL TEAMS AS WELL AS LEAVING BROCHURES FOR OTHER COLORECTAL CANCER PATIENTS. IN 2024, 44 INDIVIDUALS SIGNED UP TO REPRESENT COLOTOWN THROUGH THIS PROGRAM. 19343 19213 2ND OPINION PROJECT: PROVIDES FINANCIAL SUPPORT FOR STAGE IV COLORECTAL CANCER PATIENTS SEEKING SECOND OPINIONS AND NEW TREATMENT OPTIONS. SUPPORT IS PROVIDED FOR TRAVEL, LODGING, AND OTHER EXPENSES DIRECTLY RELATED TO THE SECOND OPINION APPOINTMENT. 13009 LEADERSHIP SUMMIT: AS AN ENTIRELY VIRTUAL ORGANIZATION, WE TRY TO GATHER IN PERSON ONCE A YEAR TO PLAN FOR THE COMING YEAR'S PROGRAMS. WE HELD OUR 2023 RETREAT IN THE DC AREA, WORKING THROUGH A FULL AGENDA GENERATING A WEALTH OF IDEAS AND ENERGY FOR THE FUTURE OF PALTOWN. WE ALSO ENJOYED THE RARE CHANCE TO ENGAGE IN TEAM-BUILDING EXERCISES. 94703 19213 448660 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 35 0 1 5 1 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 AL AR CA FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI X X DONEEN FRAZIER 2408638305 56 ELLSWORTH HEIGHTS ST SILVER SPRING MD 20910 HOWARD BROWN CHAIR (UNTIL 11/24) 4.00 X X 0 0 0 MARY HANNON DIR., THEN CO-CHAIR (TRANS @ 11/24) 2.00 X X 0 0 0 JULIE WRIGLEY DIR., THEN CO-CHAIR (TRANS @ 11/24) 2.00 X X 0 0 0 LESLIE CLOUD DIR., THEN CO-CHAIR (TRANS @ 11/24) 0.25 X X 0 0 0 PATRICIA GELLASCH TREASURER (FROM 6/24) 0.25 X X 0 0 0 SAM DHARIA TREASURER (UNTIL 6/24) 0.25 X X 0 0 0 SUSAN PFAU DIRECTOR 0.25 X 0 0 0 EVELYN POST DIRECTOR 0.25 X 0 0 0 KELLY NELSON DIRECTOR (UNTIL 2/24) 0.25 X 0 0 0 MICHAEL SCHOENBAUM DIRECTOR (UNTIL 2/24) 0.25 X 0 0 0 DENEEN RICHMOND DIRECTOR (FROM 6/24) 0.25 X 0 0 0 RONI DASGUPTA DIRECTOR (FROM 9/24) 0.25 X 0 0 0 JOSEPH RITCHIE DIRECTOR (FROM 9/24) 0.25 X 0 0 0 LINDSAY SICHTA EXECUTIVE DIR. (FROM 11/24) 40.00 X 18215 0 1785 TIFFANY STUDEBAKER FREEMAN DIR OF OPS & FINANCE (FROM 6/24) 40.00 X 49624 0 0 NANCY SEYBOLD COO (UNTIL 6/24) 40.00 X 35028 0 4972 102867 0 6757 0 0 0 0 0 998050 998050 998050 0 0 0 X 19213 19213 109624 25280 78596 5748 92167 74832 16315 1020 2717 2717 14685 7538 6637 510 11569 8710 1917 942 50302 50302 150 150 268009 201766 44412 21831 2187 1911 225 51 44188 18898 23279 2011 29250 27436 1814 27622 25054 2568 8455 8455 3220 3220 PATIENT SUPPORT 23677 23677 MERCHANT FEES 7347 3142 3871 334 PAYROLL PROCESSING FEES 1968 1482 326 160 DUES & SUBSCRIPTIONS 1309 810 499 856 456 400 718515 448660 237248 32607 178384 470992 615 3588 26779 1250 11198 20500 216976 496330 12529 11627 0 15000 12529 26627 X 201418 267270 3029 202433 204447 469703 216976 496330 279535 9303 -23582 0 X 0 1 X 1 0 X 440319 566444 699483 704965 998050 3409261 440319 566444 699483 704965 998050 3409261 1172626 2236635 23 25 5 53 2 2 3409316 0.65600 0.64460 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 REFUNDABLE ADVANCE 15000 15000 1007203 9303 9303 997900 150 150 998050 718365 0 718365 150 150 718515 NORTH AMERICA 0 3 PROGRAM SERVICES COLONTOWN, COLONTOWN UNIVERSITY, EMPOWERED PATIENT LEADERS WORKSHOPS, CLINICAL TRIALS & ALANNA PROJECT, PARTNERSHIP WITH BLKHLTH, DERRIERE DIPLOMATS, PLATFORM & SECOND OPINION PROJECT 23750 EUROPE 0 2 PROGRAM SERVICES COLONTOWN, COLONTOWN UNIVERSITY, EMPOWERED PATIENT LEADERS WORKSHOPS, CLINICAL TRIALS & ALANNA PROJECT, PARTNERSHIP WITH BLKHLTH, DERRIERE DIPLOMATS, PLATFORM & SECOND OPINION PROJECT 3054 EAST ASIA AND THE PACIFIC 0 1 PROGRAM SERVICES COLONTOWN, COLONTOWN UNIVERSITY, EMPOWERED PATIENT LEADERS WORKSHOPS, CLINICAL TRIALS & ALANNA PROJECT, PARTNERSHIP WITH BLKHLTH, DERRIERE DIPLOMATS, PLATFORM & SECOND OPINION PROJECT 25 0 6 0 0 0 6 26829 0 26829 0 0 0 0 0 0 1 SECOND OPINION PROJECT TRAVEL ASSISTANCE 40 19213 PART I, LINE 2: THE ORGANIZATION REQUIRED RECEIPTS FOR ALL EXPENDITURES FROM THIS DISBURSEMENT AND REVIEWED THEM TO ENSURE THEY WERE USED FOR THE ALLOWED PURPOSE. FORM 990, PART III, LINE 2 THE ORGANIZATION BEGAN TWO NEW PROGRAMS DURING THE YEAR, PARTNERSHIP WITH BLKHLTH AND PLATFORM. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY OUTSIDE ACCOUNTANTS AND DISTRIBUTED ELECTRONICALLY TO THE BOARD OF DIRECTORS. THE COO REQUESTS FEEDBACK AND RECEIVED WRITTEN APPROVAL TO FILE FROM THE BOARD CHAIR AND TREASURER PRIOR TO SUBMITTING TO THE IRS. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, PRINCIPAL OFFICER, AND MEMBER OF A COMMITTEE WITH GOVERNING BOARD DELEGATED POWERS ANNUALLY SIGNS A CONFLICT OF INTEREST STATEMENT. IN CONNECTION WITH ANY ACTUAL OR POSSIBLE CONFLICT OF INTEREST, AN INTERESTED PERSON DISCLOSES THE POSSIBLE CONFLICT AND IS GIVEN THE OPPORTUNITY TO DISCLOSE ALL MATERIAL FACTS TO THE DIRECTORS AND MEMBERS OF COMMITTEES WITH GOVERNING BOARD DELEGATED POWERS CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, HE OR SHE LEAVES THE GOVERNING BOARD OR COMMITTEE MEETING WHILE THE DETERMINATION OF A CONFLICT OF INTEREST IS DISCUSSED AND VOTED UPON. THE CHAIRPERSON OF THE GOVERNING BOARD OR COMMITTEE, IF APPROPRIATE, APPOINTS A DISINTERESTED PERSON OR COMMITTEE TO INVESTIGATE ALTERNATIVES TO THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER EXERCISING DUE DILIGENCE, THE GOVERNING BOARD OR COMMITTEE DETERMINS WHETHER THE FOUNDATION CAN OBTAIN WITH REASONABLE EFFORTS A MORE ADVANTAGEOUS TRANSACTION OR ARRANGEMENT FROM A PERSON OR ENTITY THAT WOULD NOT RISE TO A CONFLICT OF INTEREST. IF THIS IS NOT REASONABLY POSSIBLE, THE GOVERNING BOARD OR COMMITTEE DETERMINES BY A MAJORITY VOTE OF THE DISINTERESTED DIRECTORS WHETHER THE TRANSACTION OR ARRANGEMENT IS IN THE FOUNDATION'S BEST INTEREST, FOR ITS OWN BENEFIT, AND WHETHER IT IS FAIR AND REASONABLE. IN CONFORMITY WITH THE ABOVE DETERMINATION IT MAKES ITS DECISION AS TO WHETHER TO ENTER INTO THE TRANSACTION OR ARRANGEMENT. ALL DISCUSSIONS ARE RECORDED IN THE BOARD MEETING MINUTES. IF A GOVERNING BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE A PERSON HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT INFORMS THE PERSON OF THE BASIS FOR THE BELIEF AND AFFORDS THE PERSON AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE PERSON'S RESPONSE AND AFTER MAKING FURTHER INVESTIGATION AS WARRANTED BY THE CIRCUMSTANCES, THE GOVERNING BOARD OR COMMITTEE DETERMINES THE PERSON HAS FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, IT TAKES APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION OF OFFICERS IS DETERMINED AND APPROVED BY THE BOARD AND DOCUMENTED IN THE BOARD MEETING MINUTES. THE LAST COMPENSATION REVIEW TOOK PLACE DECEMBER 2024. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. THE DOCUMENTS ARE ALSO AVAILABLE ON THE ORGANIZATIONS WEBSITE. FORM 990, PART IX, LINE 11G PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 32,211. MANAGEMENT AND GENERAL EXPENSES 7,090. FUNDRAISING EXPENSES 3,485. TOTAL EXPENSES 42,786. PROGRAM MANAGER: PROGRAM SERVICE EXPENSES 169,555. MANAGEMENT AND GENERAL EXPENSES 37,322. FUNDRAISING EXPENSES 18,346. TOTAL EXPENSES 225,223.