2025-10-22T10:53:51-05:00 2024-12-31 812920484 ADEM Enterprises Inc PO Box 5444 Greenwood Village CO 80155 990 2024-01-01 814663562 Peggy Lillis Foundation % Christian Lillis PEGG 9173644658 415 Avenue C STE 4D Brooklyn NY 11218 CHRISTIAN LILLIS Executive Director 9173644658 2025-10-22 true true AMY MCLAUGHRY P02062237 7204649347 2025-10-22 X 2024 2025-03-06 01:10:19Z Christian John Lillis 415 Avenue C Ste 4D Brooklyn NY 11218 425276 false X https://cdiff.org/ X 2016 NY Building a nationwide colostridium difficle awareness movement by educating the public empowering advocates and shaping policy 12 11 2 0 0 351279 332983 0 0 64525 60893 415804 393876 0 0 154394 168053 0 56010 241840 188894 396234 356947 19570 36929 38141 45461 54179 24569 -16038 20892 X The Peggy Lillis Foundation is building a nationwide colostridium difficle awareness movement by educating the public, empowering advocates, and shaping policy false false 71050 In 2024 Peggy Lillis Foundation (PLF) held its ninth annual National C. diff Advocacy Summit in Washington D.C. This year, we welcomed fresh perspectives and insights into the difficulties patients and healthcare professionals are facing in the battle against C diff as well as some new strategies to prevent and treat the deadly infection. We had ten presentations, ranging from more science-based, such as Breakthrough Binding Proteins: A Paradigm Shift in Primary & Recurr- ing C. diff to ones that emphasizing public awareness, like Reaching Out: Educating the Public on AMR. We also proudly hosted several panels that featured patient voices, including our Advocates Kee Kee Buckley, Pamela McCollister, Carol Raye and Maryann Webb. (Sched O) 5758 In 2024 we held out inaugural C. diff Scientific Symposium. The virtual event brought together clinicians scientists, nurses, pharmacists, industry professionals, and patients to intermingle and hear from 23 speakers for a day of collaboration and discovery. Ranging in topics from the Epidemiology of C. diff to Health-Related Quality of Life with CDI, attendees were able to hear updates on a wide variety of topics and learn about cutting-edge research, innovative treatments, and new prevention strategies. A highlight of the day was hearing directly from patients who courageously shared their experiences through powerful testimonials. (Schedule O). 2454 This year, our campaign these was See C. diff Diagnosed and centered around the critical need for early and accurate diagnosis of C. diff. As part of this campaign, we highlighted the 4 Elements of Diagnosing C. diff Infections, ranging from patient history to imaging. The campaign underscored the need for better understanding of C. diff diagnostic tools and equitable access, driving home that accurate diagnosis is the first step in treatment. We were able to engage millions across our social media channels and website. Peggy Lillis Foundation CEO Christian John Lillis and several PLF Advocates were featured across several notable outlets, such as CDC Safe Healthcare Blog, Pharmacy Times and Medscape. 79262 true true false true false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 6 0 true 2 true false false false false false false false false X 12 11 true false false false false false false true true false false true true true true true true false false false NY X CHRISTIAN JOHN LILLIS 9173644658 415 Avenue C Brooklyn NY 11218 CHRISTIAN JOHN LILLIS Executive Director 40.00 0.00 X 110000 0 0 VICTORIA NEWMAN Board Member 5.00 0.00 X 0 0 0 HELEN BEIGEL RN Board Member 5.00 0.00 X 0 0 0 DAVID SHLAES Board Member 5.00 0.00 X 0 0 0 PAUL FEUERSTADT MD Board Member 5.00 0.00 X 0 0 0 DEBORAH TRINKER Board Member 5.00 0.00 X 0 0 0 KENNETH LAWRENCE PHARMD Board Member 5.00 0.00 X 0 0 0 BRUCE HIRSCH Board Member 5.00 0.00 X 0 0 0 CAROL RAYE Board Member 5.00 0.00 X 0 0 0 VINCENT YOUNG MD Board Member 5.00 0.00 X 0 0 0 GERARD HONIG PHD President 4.00 0.00 X 0 0 0 ALICIA SKOVERA MSW Treasurer 5.00 0.00 X 0 0 0 MARYANN WEBB Secretary 5.00 0.00 X 0 0 0 110000 0 0 1 false false false 332983 332983 92293 31400 60893 393876 0 0 0 X 110000 66000 16500 27500 45664 31965 6850 6849 12389 8053 1858 2478 8845 8845 76742 43614 23401 9727 21553 18438 3065 50 23192 6332 11721 5139 17603 12834 720 4049 38101 38101 218 218 2640 2640 356947 225337 75600 56010 3141 17961 35000 27500 38141 45461 37204 8572 16975 15997 54179 24569 X -16038 20892 -16038 20892 38141 45461 X 36929 1 X false false false X 190111 294106 284033 403676 425276 1597202 190111 294106 284033 403676 425276 1597202 1597202 1597202 1.00000 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 15467 15467 15467 3093 773 12374 false 3093 3093 4640 15467 15467 773 773 1160 Annual Gala 92215 92215 6528 19225 5432 92215 92215 6528 19225 5432 31185 -31185 Part VI Line 2 Helen is related to the Executive Director. Part VI Line 11b The 990 will be emailed to the board prior to filing. Part VI Line 12c Board Members are asked to indicate a potential conflict of interest on a Part VI Line 12c yearly basis with annual reporting requirements. Part VI Line 19 The documents are available upon request. Part IX Line 11g Virtual Assistant Total expenses - $13709.00 Program service expenses - $0.00 Mgmt and general expenses - $12802.00 Fundraising expenses - $907.00 Part IX Line 11g Web & Social Media Total expenses - $17038.00 Program service expenses - $16439.00 Mgmt and general expenses - $599.00 Fundraising expenses - $0.00 Part IX Line 11g Event Planning Total expenses - $22875.00 Program service expenses - $22875.00 Mgmt and general expenses - $0.00 Fundraising expenses - $0.00 Part IX Line 11g Video Production Total expenses - $12320.00 Program service expenses - $3500.00 Mgmt and general expenses - $0.00 Fundraising expenses - $8820.00 Part IX Line 11g Strategic Planning Total expenses - $10000.00 Program service expenses - $0.00 Mgmt and general expenses - $10000.00 Fundraising expenses - $0.00 Part IX Line 11g Writing & Editing Total expenses - $800.00 Program service expenses - $800.00 Mgmt and general expenses - $0.00 Fundraising expenses - $0.00 Part XI Line 9 Rounding adjustment 4a The day after our Summit, a group of 11 PLF Advocates 4a took to Capitol Hill for a day of advocacy in Congress. 4a C. diff experts, survivors and their loved ones met with 4a staff and members of Congress to sare their stories and 4a promote the sponsorship of passage of the Safe Step 4a (S 652/HR 2630), HELP Copays (S 1375/HR 830), ad PASTEUR 4a (S 1355/HR 2940) Acts. We met with 17 offices last week 4a week and continue to hold virtual meetings with Advocates 4a who could not join us in person. Many offices were 4a amenable to the Safe Step and HELP Copays measures 4a and also indicated interest in the soon-to-be-introduced 4a Peggly Lillis C. difficile Inclusion Act. 4b These stories provided clinicians with invaluable insight 4b into the human impact of C. diff infections, helping 4b beidge the gap between clinical care and patient needs. 4b The success of this inaugural event exceeded our 4b expectations, with robust participation and meaningful 4b discussions that will undoubtedly drive the science of 4b C. diff forward.