2025-07-03T13:04:59-04:00 2024-12-31 990EZ 2024-01-01 311081176 Spina Bifida Association of Kentucky Inc % Sarah Richardson SPIN 5026377363 982 EASTERN PKWY STE 18 LOUISVILLE KY 40217 SARAH RICHARDSON EXECUTIVE DIRECTOR 2025-07-04 2024 2025-03-06 01:10:19Z X X spinabifidakentucky.org X X 173989 X 168937 0 0 330 0 0 0 4222 2848 1374 0 500 171141 8404 0 82000 1424 29520 0 54483 175831 -4690 169779 165089 X 111240 116995 60614 53405 171854 170400 2075 5311 169779 165089 Our mission is to build a better future for all those impacted by Spina Bifida. The Spina Bifida Association of Kentucky achieves this mission by providing FREE educational social and financial programs for those with Spina Bifida in Kentucky and Southern Indiana. Spina Bifida is a permanently disabling birth defect that presents lifelong physical and emotional challenges but with proper medical intervention those with Spina Bifida can live a full and productive life. SPINA BIFIDA FAMILY CAMP annual 3-day weekend at the Center for Courageous Kids in Scottsville KY. This camp allows children with Spina Bifida and their families to attend an accessible medically staffed sleep-away camp and participate in fishing archery swimming and more. In 2024 32 families attended camp. 0 18000 CHILDRENS PROGRAMS From newborn to teen providing social and educational programming to help kids with Spina Bifida and their parents guardians learn to navigate their ever-changing world. These programs provide a chance for kids to interact with others who have similar challenges and as they grow teaches them how to advocate for themselves and mange their own medical care. Parents guardians are provided with educational materials and a chance to get information and advice from experts and other parents who are facing similar challenges. 0 68465 MULTIGENERATIONAL PROGRAMS Programming for all those with Spina Bifida and their families. Includes social and holiday activities as well as educational programs and events and the SBAK Financial Assistance Fund. In 2024 the SBAK Financial Assistance Fund paid: the balance due for a childs leg braces and catheters that was not covered fully by insurance the cost to replace the wood wheelchair ramp at an adults home the cost of a specialized shower chair so an adult could bathe independently and a portable wheelchair ramp to make a grandparents home accessible for their grandchild with Spina Bifida new glasses for an adult with Spina Bifida and food gas gift cards to assist families during long periods of hospitalization. 8404 34998 121463 SARAH RICHARDSON EXECUTIVE DIRECTOR 40 57500 0 0 JONATHAN EVANS CHAIRMAN OF THE BOARD 2 0 0 0 SAMANTHA MILLER CHAIR ELECT OF THE BOARD 1 0 0 0 SAMUEL OLIVER TREASURER OF THE BOARD 2 0 0 0 CHRISTI McKIM SECRETARY OF THE BOARD 1 0 0 0 JEFFREY WHITE MD DIRECTOR 1 0 0 0 JESSICA WILKERSON DIRECTOR 1 0 0 0 JEFFREY SIMONIC DIRECTOR 1 0 0 0 ELIZABETH BRYANT DIRECTOR 1 0 0 0 DAKOTA HILTON DIRECTOR 1 0 0 0 ANDY ROOT DIRECTOR 1 0 0 0 DEBORAH MILES DIRECTOR 1 0 0 0 ALEXANDRIA LUSK DIRECTOR 1 0 0 0 KNANISHA GRIGGS DIRECTOR 1 0 0 0 false false false false false 0 false false false false KY MARIA BAKER 982 EASTERN PKWY STE 18 LOUISVILLE KY 40217 5026377363 false false false false false false false false false false false NONE NONE true X 224685 227740 313139 186572 168937 1121073 0 0 0 0 0 0 0 0 0 0 0 0 224685 227740 313139 186572 168937 1121073 0 1121073 26 20 162 308 330 846 0 0 0 0 0 0 1121919 97336 0.9992 0.98 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Item B - Amended Return Accounting error Part I Line 1 Contributions Part I, line 8 | Other Revenues:, Amount:| CREDIT CARD CASHBACK REWARDS, $500| Part I, line 10 | Grants And Similar Amounts Paid:, Amount:| FINANCIAL ASSISTANCE FUND: GRANTS TO BENEFIT SEVEN FAMILIES IMPACTED BY SPINA BIFIDA. THESE GRANTS WERE PAID DIRECTLY TO VENDORS FOR MEDICAL EQUIPMENT AND SUPPLIES AND HOME ACCESSABILITY MODIFICATIONS, $8404| Part I, line 16 | Other Expenses:, Amount:| ADVERTISING & PROMOTION, $1303| INFORMATION TECHNOLOGY, $5148| TRAVEL, $4154| DUES & SUBSCRIPTIONS, $523| DEPRECIATION, $2386| DIRECT FUNDRAISING EXPENSES, $7013| CONFERENCES CONVENTIONS MEETINGS, $2861| OFFICE EXPENSES, $6607| DIRECT PROGRAM EXPENSES, $21073| BUSINESS INSURANCE, $3415| Part II, line 24 | Explanation:, BOYAmount:, EOYAmount:| PLEDGES AND GRANTS RECEIVABLE, $54361, $48518| PREPAID EXPENSES, $115, $1135| EQUIPMENT AND LEASEHOLD IMPROVEMENTS NET OF DEPRECEIATION, $6138, $3752| Part II, line 26 | Explanation:, BOYAmount:, EOYAmount:| ACCOUNTS PAYABLE AND ACCRUED EXPENSES, $2075, $5311|