2025-04-24T12:56:34-04:00 2024-12-31 203746583 TAYLOR ROTH AND COMPANY 1580 LINCOLN ST STE 520 DENVER CO 802031517 990 2024-01-01 840607069 EPILEPSY FOUNDATION OF COLORADO EPIL 3033779774 6025 S QUEBEC ST SUITE 150 CENTENNIAL CO 80111 SARA PREVOST CEO 3033779774 2025-04-21 true true KEN ROTH P01389203 3038308109 2025-04-24 2024 2025-03-06 01:10:19Z EPILEPSY FOUNDATION OF CO & WY SARA PREVOST 6025 S QUEBEC ST SUITE 150 CENTENNIAL CO 80111 1199587 false X WWW.EPILEPSYCOLORADOWYOMING.ORG X 1964 CO THE EPILEPSY FOUNDATION OF COLORADO & WYOMING LEADS THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES. 11 11 11 240 0 727468 755994 45699 38197 37781 43822 140340 136206 951288 974219 0 0 726971 732733 0 56295 346879 321935 1073850 1054668 -122562 -80449 1512927 1417374 168993 100710 1343934 1316664 X THE EPILEPSY FOUNDATION OF COLORADO & WYOMING LEADS THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES. false false 522175 38197 PATIENT SERVICES - IN 2024 WE PROVIDED A VARIETY OF PROGRAMS AND SERVICES TO PEOPLE LIVING WITH EPILEPSY AND THEIR FAMILIES, INCLUDING SUPPORT GROUPS THROUGHOUT THE REGION, A TOLL-FREE INFORMATION AND REFERRAL LINE, TOOLKITS FOR NEWLY DIAGNOSED PATIENTS, AND DIRECT FINANCIAL ASSISTANCE TO INDIVIDUALS AND FAMILIES IN CRISIS. WE DISTRIBUTED 700 "NEWLY DIAGNOSED" INFORMATION KITS, ENGAGED HUNDREDS OF ATTENDEES IN EDUCATIONAL PROGRAMS ON EPILEPSY-RELATED TOPICS, HELD VIRTUAL AND IN-PERSON CAMPS FOR KIDS, TEENS, YOUNG ADULTS, AND FAMILIES WITH EPILEPSY, AND OFFERED SPECIALIZED MENTAL HEALTH SERVICES. 174058 PROFESSIONAL EDUCATION - IN 2024 WE PROVIDED EDUCATION AND SEIZURE FIRST AID TRAINING TO THE MEDICAL COMMUNITY AND HEALTHCARE PROVIDERS, INCLUDING, BUT NOT LIMITED TO, FIRST RESPONDERS, SCHOOL NURSES AND SCHOOL PERSONNEL, AND NEUROLOGY OFFICES. WE ALSO OFFERED CONTINUING MEDICAL EDUCATION OPPORTUNITIES FOR HEALTHCARE PROFESSIONALS FOCUSED ON EPILEPSY-SPECIFIC TOPICS. 174058 PUBLIC HEALTH - IN 2024, WE TRAINED ALMOST 4000 INDIVIDUALS IN SEIZURE FIRST AID, INCLUDING FAMILIES IMPACTED BY EPILEPSY, EMPLOYERS, FIRST RESPONDERS, SCHOOL NURSES, SCHOOL PERSONNEL, AND THE GENERAL PUBLIC. WE ENGAGED IN ONGOING EFFORTS TO PROTECT THE RIGHTS OF PEOPLE WITH EPILEPSY AND PROMOTE PUBLIC POLICIES THAT BENEFIT PEOPLE WITH CHRONIC ILLNESS SUCH AS ACCESS TO MEDICATION AND SPECIALTY HEALTHCARE SERVICES, PATIENT SAFETY AND MENTAL HEALTH. OUR PUBLIC POLICY AGENDA IS PROMOTED THROUGH GRASSROOTS EFFORTS AND REGULAR COMMUNICATION WITH POLICY MAKERS. 870291 true true false false false false false false false true true false false false true false true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 29 0 true 11 true false false false false false true true false false false true false false false X 11 11 false false false false false false false true true false false true true true true true true true false false X X CATHLEEN M HELLMER CPA 3036890849 6027 EAST BRIARWOOD CIRCLE CENTENNIAL CO 80112 SARA PREVOST CEO 40.00 X 36058 0 0 SARAH KLEIN CEO 40.00 X 116728 0 9176 EVAN CRIST PSYD CO-PRESIDENT 2.00 X X 0 0 0 SARA YERKEY CO-PRESIDENT 2.00 X X 0 0 0 COREY EDWARDS VICE PRESIDE 2.00 X X 0 0 0 BRIAN THOMAS SECRETARY 2.00 X X 0 0 0 CRYSTAL EUSTIS CPA TREASURER 2.00 X X 0 0 0 RICHARD G SANDER PAST PRESIDE 2.00 X X 0 0 0 SARA BETH BENNETT MEMBER 2.00 X 0 0 0 HEIDI BERG MEMBER 2.00 X 0 0 0 BROOKE GORDON MEMBER 2.00 X 0 0 0 IMAN JODEH MEMBER 2.00 X 0 0 0 BREIGH KEMPA MEMBER 2.00 X 0 0 0 RACHEL PETERSON MEMBER 2.00 X 0 0 0 JOSEPH QUINTANA MEMBER 2.00 X 0 0 0 LAURA STROM MD MEMBER 2.00 X 0 0 0 152786 9176 1 false false false 255534 48901 451559 2263 755994 ACTIVITY FEES 624100 38197 38197 38197 43822 43822 358026 255534 225368 132658 132658 OTHER INCOME 3548 3548 3548 974219 41745 176480 161962 144147 9717 8098 484308 431034 29059 24215 7334 6528 440 366 30464 27113 1828 1523 48665 43311 2920 2434 29790 29790 23752 15914 1900 5938 6652 6652 19515 12203 2590 4722 6677 5342 601 734 49627 44664 3474 1489 26251 23606 1852 793 472 472 7590 3036 3036 1518 11163 3349 3349 4465 CAMP 86732 86732 DUES 37054 37054 CLIENT SERVICES 15568 15568 STEWARDSHIP 1045 1045 47 47 1054668 870291 128082 56295 186660 142849 9130 24065 31155 19308 87179 63624 31145 23555 1152757 1142784 102080 64813 1512927 1417374 53822 26006 2250 112921 74704 168993 100710 X 728339 631281 615595 685383 1343934 1316664 1512927 1417374 -80449 53179 X false true X true false X 851490 819399 827997 727468 755994 3982348 851490 819399 827997 727468 755994 3982348 273990 3708358 30645 35423 53466 37781 43822 201137 4183485 129817 0.88640 0.87810 X PART II, LINE 10 OTHER INCOME 0 WORKER'S COMPENSATION REFUND 0 GAIN ON SAVERS 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 571646 571646 554668 16978 571646 677684 -73016 -50000 554668 650285 1647 75752 -50000 677684 651056 49229 -50000 650285 1.00000 false false 57054 51574 5480 30125 12050 18075 23555 OPERATING LEASE OBLIGATION 69700 COPIER LEASE OBLIGATION 5004 74704 1053386 53179 25988 79167 974219 974219 1080656 25988 25988 1054668 1054668 SCHEDULE D, PAGE 2, PART V, LINE 4 THE FOUNDATION'S ENDOWMENT CONSISTS OF DONOR-RESTRICTED ENDOWMENT FUNDS. ENDOWMENT EARNINGS ARE RESTRICTED TO YOUNG ADULT AND MENTAL HEALTH SERVICES. GALA DINNER/AUC 203523 145700 57823 117622 DENVER WALK 155373 27500 127873 30976 6 254664 82334 172330 76770 613560 255534 358026 225368 225368 132658 FORM 990 OVER THE PAST YEAR, THE EPILEPSY FOUNDATION OF COLORADO & WYOMING HAS EXPERIENCED A REMARKABLE IMPROVEMENT IN OUR FINANCIAL POSITION, LARGELY OWING TO THE EXTRAORDINARY GENEROSITY OF OUR DONORS AND THE REBOUND IN THE STOCK MARKET. THROUGH OUR DONORS' UNWAVERING SUPPORT, THE FOUNDATION HAS BEEN ABLE TO BOLSTER OUR RESOURCES, EXPAND OUR OUTREACH, AND ENHANCE OUR SERVICES FOR INDIVIDUALS AFFECTED BY EPILEPSY. FORM 990, PART III THE MISSION OF THE EPILEPSY FOUNDATION OF COLORADO & WYOMING IS TO CONNECT, EDUCATE AND EMPOWER THE NEARLY 65,000 INDIVIDUALS IN COLORADO AND WYOMING DIAGNOSED WITH EPILEPSY TO LIVE THEIR BEST LIVES. WITH ONE IN 26 PEOPLE DEVELOPING EPILEPSY IN HIS OR HER LIFETIME IT IS OUR GOAL TO REDUCE STIGMA AND RAISE AWARENESS, ADVOCATE FOR BETTER PROGRAMS AND RESOURCES, AND PROVIDE KNOWLEDGE AND SUPPORT TO THE COMMUNITY. WE ARE THE ONLY ORGANIZATION IN COLORADO AND WYOMING FIGHTING TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES AND SAVE LIVES. FOR 60 YEARS, THE EPILEPSY FOUNDATION OF COLORADO & WYOMING HAS BROUGHT HOPE AND OPPORTUNITIES TO THOUSANDS OF CHILDREN, ADULTS, FAMILIES, FRIENDS AND CAREGIVERS. THROUGH OUR PROGRAMS AND SERVICES WE CONNECT PEOPLE TO HEALTHCARE PROVIDERS, SUPPORT NETWORKS, AND TO EACH OTHER. WE EDUCATE SCHOOLS, EMPLOYERS, AND THE COMMUNITY AT LARGE, TO REDUCE STIGMA AND RAISE AWARENESS. WE ALSO EMPOWER PEOPLE AFFECTED BY EPILEPSY WITH KNOWLEDGE, RESOURCES, AND ADVOCACY. WE HAVE EXTENDED OUR REACH TO THE BROADER COMMUNITY THROUGH STRONG PARTNERSHIPS WITH COMMUNITY NONPROFITS, HOSPITALS, PHARMACEUTICAL COMPANIES AND PATIENT AND CAREGIVER GROUPS TO SPONSOR EDUCATIONAL EVENTS TO RAISE AWARENESS AND BUILD CONNECTIONS FOR PEOPLE WITH EPILEPSY. SOME EXAMPLES OF OUR COMPREHENSIVE PROGRAMS INCLUDE: EPILEPSY EDUCATION THROUGH PROGRAMS LIKE COMMUNITY TRAINING AND SEIZURE FIRST AID, SPANISH- LANGUAGE OUTREACH, AND AN ANNUAL EPILEPSY CONNECT SYMPOSIUM; INFORMATION AND REFERRAL ON MEDICATIONS, PROCEDURES, PHYSICIANS, AND MORE; EMERGENCY FINANCIAL ASSISTANCE FOR PRESCRIPTION DRUGS, UTILITIES, AND GROCERIES FOR FAMILIES IN CRISIS; MENTAL HEALTH PROGRAMS SUCH AS PROJECT UPLIFT, CASE MANAGEMENT, AND ART THERAPY AVAILABLE TO ASSIST THOSE WITH EPILEPSY WHO ARE AS MUCH AS FIVE TIMES MORE LIKELY TO HAVE DEPRESSION AND ANXIETY COMPARED TO THE GENERAL POPULATION; AND SCHOOL TRAINING, SUMMER CAMPS AND YOUTH LEADERSHIP OPPORTUNITIES FOCUSING ON ADVOCACY AND SUPPORT FOR CHILDREN AND TEENS IMPACTED BY EPILEPSY, WHICH CAN BE AN ISOLATING AND LONELY DIAGNOSIS. FORM 990, PAGE 6, PART VI, LINE 11B THE ORGANIZATION'S 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE EXECUTIVE COMMITTEE OF THE FOUNDATION, WHICH CONSISTS OF THE FOUNDATION OFFICERS. THE COMPLETED 990 WAS MADE AVAILABLE TO BOARD MEMBERS AT A FULL BOARD MEETING PRIOR TO FILING WITH THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C EACH NEW BOARD MEMBER RECEIVES A BOARD MANUAL THAT INCLUDES A DISCLOSURE DOCUMENT THAT MUST BE SIGNED IN ORDER TO SERVE ON THE BOARD. THE CEO REVIEWS THE DISCLOSURE DOCUMENT AND BRINGS ANY POTENTIAL CONFLICT OF INTEREST TO THE ATTENTION OF THE BOARD PRESIDENT. THE BOARD PRESIDENT REVIEWS THE SITUATION AND DECIDES WHETHER A CONFLICT EXISTS AND, IF SO, WHAT MEASURES SHOULD BE TAKEN. ALL BOARD MEMBERS MUST SIGN THE CONFLICT OF INTEREST DISCLOSURE STATEMENT ON AN ANNUAL BASIS. EMPLOYEES OF THE ORGANIZATION SIGN A CONFLICT OF INTEREST DISCLOSURE STATEMENT UPON HIRE, AND BRING POTENTIAL CONFLICTS TO THE ATTENTION OF THEIR SUPERVISOR, WHO WILL ALERT THE CEO. IF THE CEO IS UNABLE TO RESOLVE THE SITUATION, IT IS BROUGHT TO THE ATTENTION OF THE BOARD OF DIRECTORS. FORM 990, PAGE 6, PART VI, LINE 15A SENIOR MANAGEMENT COMPENSATION IS DETERMINED BY THE BOARD OF DIRECTORS BASED ON PERFORMANCE AND MARKET CONDITIONS. THE CEO MEETS WITH THE BOARD TREASURER, FINANCE COMMITTEE CHAIR, AND AN HR EXPERT TO DISCUSS STAFF INCREASES BASED ON STATEWIDE COMPENSATION SURVEY AND BENCHMARK DATA. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE FOR INSPECTION UPON REQUEST BY PHONE, WEBSITE, OR OTHER METHOD OF COMMUNICATION.