2025-03-04T17:56:01-06:00 2024-06-30 521853933 JM&M 10500 LITTLE PATUXENT PARKWAY SUITE 770 COLUMBIA MD 21044 990 2023-07-01 453568770 AMERICAN COCHLEAR IMPLANT ALLIANCE FOUNDATION AMER 7035346146 PO BOX 103 MCLEAN VA 221010103 DONNA SORKIN EXECUTIVE DIRECTOR 7035346146 2025-03-04 1 1 SEAN MCELWANEY P01608821 4108840220 2023 2025-03-06 01:10:19Z DONNA SORKIN PO BOX 103 MCLEAN VA 221010103 483427 0 X WWW.ACIALLIANCE.ORG X 2011 DE TO ADVANCE ACCESS TO THE GIFT OF HEARING PROVIDED BY COCHLEAR IMPLANTATION THROUGH RESEARCH, ADVOCACY AND AWARENESS. 14 14 4 14 12000 0 718534 438009 560745 12000 16326 33418 4948 0 1300553 483427 1920 0 0 0 538221 551344 0 0 30774 880095 337005 1420236 888349 -119683 -404922 2621143 2566432 529328 866525 2091815 1699907 X TO ADVANCE ACCESS TO THE GIFT OF HEARING PROVIDED BY COCHLEAR IMPLANTATION THROUGH RESEARCH, ADVOCACY AND AWARENESS. 1 0 330000 12000 AWARENESS - THE ACI ALLIANCE CONDUCTS AWARENESS ACTIVITIES ABOUT CANDIDACY AND OUTCOMES ASSOCIATED WITH COCHLEAR IMPLANTATION. THE ACI ALLIANCE PROVIDES EXTENSIVE INFORMATION ABOUT INSURANCE COVERAGE AND OTHER ACCESS ISSUES THROUGH ITS WEBSITE AND ARTICLES, PAPERS AND PRESENTATIONS. ADDITIONALLY, THE ACI ALLIANCE ENCOURAGES COVERAGE OF COCHLEAR IMPLANTS IN PRIVATE AND PUBLIC INSURANCE PLANS. 146294 ADVOCACY - MEMBERS OF ACIA ARE INFORMED OF ACTIVITIES IN THE PUBLIC POLICY REALM; ACIA DISCUSSES BARRIERS TO RECEIVING SERVICES FOR CHILDREN; ACIA DESCRIBES EXISTING LAWS AND HOW TO SUPPORT FAMILIES IN NEGOTIATING THE SYSTEM. 135000 ANNUAL CONFERENCE - THE CONFERENCE BRINGS TOGETHER COCHLEAR IMPLANT CLINICIANS, EDUCATORS, AND GOVERNMENT OFFICIALS TO EXPLORE THE LATEST RESEARCH RESULTS, DISCUSS THE CLINICAL POPULATION, AND RAISE QUESTIONS REGARDING CLINICAL IMPLICATIONS. DURING THE YEAR ENDED JUNE 30, 2024, THE ACI ALLIANCE DID NOT HOLD THE ANNUAL CONFERENCE, WHICH OCCURRED ON JULY 10-13, 2024. AS OF JUNE 30, 2024, THE ACI ALLIANCE HAD $833,405 IN DEFERRED CONFERENCE REVENUE RELATED TO PAYMENTS RECEIVED FOR REGISTRATION, EXHIBIT FEES AND SPONSORSHIPS FOR THE ANNUAL CONFERENCE THAT OCCURRED IN JULY 2024, WHICH WERE NOT RECOGNIZED AS REVENUE UNTIL THE ANNUAL CONFERENCE OCCURRED DURING THE FISCAL YEAR ENDED JUNE 30, 2025. 80000 RESEARCH - THE ACI ALLIANCE STRATEGICALLY SUPPORTS RESEARCH THAT COULD IMPROVE ACCESS TO COCHLEAR IMPLANTATION, WHICH WAS NOT BEING SUFFICIENTLY ADDRESSED ELSEWHERE. PROJECT SUPPORT WAS PROVIDED TO MEDICAL UNIVERSITY OF SOUTH CAROLINA TO EXPLORE THE DEVELOPMENT OF NEW INSTRUMENTS THAT MAY PROVIDE A MORE COMPREHENSIVE AND PATIENT-CENTERED UNDERSTANDING OF CI PATIENT OUTCOMES THAN JUST USING SPEECH RECOGNITION. SUPPORT WAS ALSO PROVIDED TO A PROJECT THAT SEEKS TO EXPAND MEDICARE COVERAGE FOR COCHLEAR IMPLANTS. AN INTERNAL RESEARCH PROJECT EXPLORED MEDICAID LIMITATIONS IN CERTAIN STATES. 80000 691294 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 3 0 1 4 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 1 1 0 1 1 0 0 0 1 1 1 0 0 0 0 0 VA X SMITHBUCKLIN CORPORATION 8005399740 2001 K STREET NW 300 WASHINGTON DC 20006 ANDREA WARNER-CZYZ PHD CHAIR 3.00 X X 0 0 0 MELISSA JW HALL MA AUD SECRETARY 3.00 X X 0 0 0 DAVID KELSALL MD VICE CHAIR 3.00 X X 0 0 0 KEVIN D BROWN MD PHD TREASURER 3.00 X X 0 0 0 AMY BIRATH AUD DIRECTOR 3.00 X 0 0 0 CAMILLE C DUNN PHD DIRECTOR 3.00 X 0 0 0 FRED TELISCHI MD DIRECTOR 3.00 X 0 0 0 DAN ZEITLER MD DIRECTOR 3.00 X 0 0 0 BARBARA MELLERT MPH DIRECTOR 3.00 X 0 0 0 BRITTNEY SPROUSE AUD PASC DIRECTOR 3.00 X 0 0 0 KRISTEN LEWIS AUD DIRECTOR 3.00 X 0 0 0 MAURA COSETTI MD DIRECTOR 3.00 X 0 0 0 MATT BUSH MD PHD MBA DIRECTOR 3.00 X 0 0 0 LINDSAY ZOMBEK MS DIRECTOR 3.00 X 0 0 0 DONNA SORKIN EXECUTIVE DIRECTOR 40.00 X 191360 0 10015 LAURA ODATO DIRECTOR OF OPERATIONS AND MARKETING 40.00 X 119167 0 3575 NICHOLE J WESTIN DIR. OF GOVERNMENTAL AFFAIRS 40.00 X 108108 0 0 418635 0 13590 3 0 1 0 AMERICAN COLLEGE OF SURGEONS 20 F STREET NW 1000 WASHINGTON DC 20001 MEETING PLANNING SERVICES 139046 1 128645 309364 438009 ADVERTISING 541800 12000 12000 12000 33418 33418 483427 0 12000 33418 X 197248 158389 27951 10908 314235 252331 44527 17377 1806 1450 256 100 999 803 141 55 37056 29756 5251 2049 70715 70715 40900 40900 175 175 134734 133355 1379 33367 22219 11148 41730 20865 20865 9011 1222 7789 122 122 83 67 11 5 1525 1525 DUES AND SUBSCRIPTIONS 3113 2833 280 MISCELLANEOUS 1362 1362 OTHER TAXES 168 168 888349 691294 166281 30774 1570255 1390784 793928 828184 200000 12310 49589 200000 7288 135154 4225 4225 83 0 2621143 2566432 516328 33120 12000 1000 833405 529328 866525 X 2084753 1692845 7062 7062 2091815 1699907 2621143 2566432 X -404922 1014 12000 X 0 1 X 0 0 X 806242 1009398 824841 718534 438009 3797024 806242 1009398 824841 718534 438009 3797024 1944508 1852516 13890 6039 249 16326 33418 69922 530 4948 8719 14197 3881143 2490167 0.47730 0.55750 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: REFUNDS - 2019 AMOUNT: $ 530. 2022 AMOUNT: $ 4,948. 2023 AMOUNT: $ 8,719. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 1 0 0 1 12812 0 0 12812 0 PART II-B, LINE 1: ACIA ADVOCATES IN WASHINGTON TO EXPAND KNOWLEDGE ABOUT COCHLEAR IMPLANTS AND ISSUES OF ACCESS, AND STATE CHAMPIONS MONITOR AND INITIATE PROACTIVE MEASURES TO ADDRESS COCHLEAR IMPLANT INSURANCE COVERAGE AT THE STATE AND FEDERAL LEVELS. 4225 4225 0 0 X 496266 1014 12000 13014 483252 175 175 483427 888174 0 888174 175 175 888349 PART X, LINE 2: ACI ALLIANCE BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR ANY TAX POSITIONS TAKEN, AND AS SUCH, DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS OR THAT WOULD HAVE AN EFFECT ON ITS TAX-EXEMPT STATUS. THERE ARE NO UNRECOGNIZED TAX BENEFITS OR LIABILITIES THAT NEED TO BE RECORDED. PART XI, LINE 2D - OTHER ADJUSTMENTS: WRITE OFF OF GRANTS PAYABLE 12,000. X 0 0 0 0 0 0 0 0 0 DONNA SORKIN EXECUTIVE DIRECTOR 191360 0 0 0 0 0 5741 0 4274 0 201375 0 0 0 FORM 990, PART III, LINE 2 THE PROGRAM SERVICE "ADVOCACY" WAS NOT PREVIOUSLY LISTED ON FORM 990. FORM 990, PART VI, SECTION A, LINE 1A THE EXECUTIVE COMMITTEE SHALL BE A COMMITTEE OF THE BOARD AND SHALL BE COMPOSED OF THE CHAIR OF THE BOARD, THE VICE CHAIR OF THE BOARD, THE SECRETARY, THE TREASURER, THE CHAIR OF MEMBERSHIP, THE CHAIR OF NOMINATING AND OTHER CHAIRS AS THE BOARD OF DIRECTORS SO DESIGNATES. THE CHAIR SHALL SERVE AS THE CHAIRPERSON AND THE SECRETARY SHALL SERVE AS THE SECRETARY OF THE EXECUTIVE COMMITTEE. THE HONORARY CHAIRMAN OF ACIA MAY ALSO SERVE AS AN EX-OFFICIO, NON-VOTING MEMBER. EXCEPT FOR THE POWER TO AMEND THE ARTICLES OF INCORPORATION AND BYLAWS, THE POWER TO REMOVE OR FILL VACANCIES OF DIRECTORS OR OFFICERS, AND SUCH OTHER POWERS AS MAY BE RESERVED TO THE BOARD BY LAW, THE EXCECUTIVE COMMITTEE SHALL MANAGE THE AFFAIRS OF ACIA REQUIRING ATTENTION BETWEEN THE MEETINGS OF THE BOARD AND SHALL HAVE THE POWER TO CONDUCT THE CURRENT AND ORDINARY BUSINESS OF ACIA WHILE THE BOARD OF DIRECTORS IS NOT IN SESSION. FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS 2 CLASSES OF MEMBERS; VOTING AND NON-VOTING. CORPORATE MEMBERS HAVE NO VOTING RIGHTS, NOR ARE THEY ELIGIBLE TO HOLD OFFICE. ALL OTHER MEMBERS HAVE VOTING RIGHTS. FORM 990, PART VI, SECTION A, LINE 7A VOTING MEMBERS OF THE ORGANIZATION HAVE THE POWER TO ELECT OR APPOINT MEMBERS OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11B THE 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR AND TREASURER PRIOR TO FILING. THE EXECUTIVE COMMITTEE IS SENT THE FINAL 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION ANNUALLY REVIEWS THEIR CONFLICT OF INTEREST POLICY. FORM 990, PART VI, SECTION C, LINE 19 AMERICAN COCHLEAR IMPLANT ALLIANCE FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 133,355. MANAGEMENT AND GENERAL EXPENSES 1,379. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 134,734. FORM 990, PART XI, LINE 9: WRITE OFF OF GRANTS PAYABLE 12,000.