2025-01-20T10:55:57-05:00 2024-06-30 840524006 THE ADAMS GROUP LLC 6000 GREENWOOD PLAZA BLVD STE 115 GREENWOOD VILLAGE CO 80111 990 2023-07-01 742485813 THE STURGE-WEBER FOUNDATION STUR 6105 S MAIN STREET 209 AURORA CO 80016 KAREN L BALL PRESIDENT/CEO 9738954445 2024-12-19 true true JASON D ADAMS CPA P00280895 3037333796 2025-01-20 2023 2024-10-15 13:58:12Z KAREN L BALL 6105 S MAIN STREET 209 AURORA CO 80016 392176 false X WWW.STURGE-WEBER.ORG X 1987 CO TO PROVIDE ASSISTANCE TO FAMILIES AFFECTED BY STURGE-WEBER SYNDROME AND PORT WINE BIRTHMARK CONDITIONS. 8 8 3 18 0 322660 286586 7699 15706 15944 88993 50682 427359 360911 0 0 175674 174421 0 6745 264801 239112 440475 413533 -13116 -52622 420811 411067 71463 114341 349348 296726 X TO PROVIDE ASSISTANCE TO FAMILIES AFFECTED BY STURGE-WEBER SYNDROME AND PORT WINE BIRTHMARK CONDITIONS. false false 304852 THE FOUNDATION DRIVES PATIENT ENGAGEMENT THROUGH DIVERSE AND ROBUST PROJECTS, CONFERENCES AND ONLINE SUPPORT. THE WEBSITE IS A RICH RESOURCE OF LEARNING AND UPLIFTING STORIES OF INSPIRATIONAL HOPE TO COPE WITH THE DIAGNOSIS. THE FOUNDATION SPONSORS AN INTERNATIONAL CONFERENCE EVERY TWO YEARS MOVING THE LOCATION TO ALLOW FAIR ACCESS TO ALL MINIMIZING FINANCIAL IMPACT TO ATTEND. THE FOUNDATION ALSO SPONSORS REGIONAL EDUCATIONAL CONFERENCES TO BUILD COMMUNITY IN PARTNERSHIP WITH VARIOUS CLINICAL CARE NETWORK (CCN) INSTITUIONS. THE CCN'S FACILITATE CLINICAL STUDIES AND TRIALS AND ANNUALLY ESTABLISH GOALS WHICH DRIVE PATIENT CARE AND IMPROVE TREATMENT. THE FOUNDATION RECENTLY LAUNCHED A TASK FORCE INITIATIVE TO BUILD A RICH VOLUNTEER NETWORK OF KNOWLEDGE AND SUPPORT AROUND KEY AREAS IMPACTING DAILY LIVING AND CARE. THE HOUSTON HOME OFFICE STAFF AND REMOTE OFFICE STAFF SUPPORT ALL THE ABOVE PROGRAMS AND PROJECTS AND REGULARLY MEET TO ENSURE STRATEGIC GOALS ARE MET. THE FOUNDATION'S RESEARCH PROGRAM IS LEAD BY A GLOBAL TEAM OF RESEARCHERS THAT COMPRISE THE STURGE-WEBER FOUNDATION INTERNATIONAL RESEARCH NETWORK TO FACILITATE INNOVATIVE AND COLLABERATIVE RESEARCH INVESTIGATIONS. THE FOUNDATION ATTENDS NATIONAL CONFERENCES FOCUSED ON RESEARCH IN THE EYE, BRAIN, SKIN AND GENETIC EXPRESSIONS OF THE SYNDROME TO GENERATE AWARENESS AND ENGAGE YOUNG INVESTIGATORS TO JOIN THEIR CAUSE. 304852 true true false false false false false false false false true false false false true true true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 4 0 true 3 true false false false false false false false false X 8 8 false false false false false false false true true false false false true true true true true false false false X THE ORGANIZATION 9738954445 6105 S MAIN STREET 209 PARKER CO 80016 KAREN L BALL PRESIDENT/CE 50.00 X X 88800 0 0 CURT STANTON CHAIRMAN 2.00 X X 0 0 0 MOLLY SPEERS VICE CHAIR/S 2.00 X X 0 0 0 DAN SCHMIDT TREASURER 2.00 X X 0 0 0 WITNEY ARCH DIRECTOR 2.00 X 0 0 0 CRYSTAL ELLIERS DIRECTOR 2.00 X 0 0 0 ROBERT ZARKO DIRECTOR 2.00 X 0 0 0 JOHN RASCHUBER DIRECTOR 2.00 X 0 0 0 DON WILLARD DIRECTOR 2.00 X 0 0 0 88800 false false false 286586 286586 CONSULTING 812900 7699 7699 7699 15944 -857 16801 77628 31265 46363 OTHER 4319 4319 4319 360911 11161 16801 88800 76748 10319 1733 64784 55990 7529 1265 3712 3208 431 73 3869 3343 450 76 13256 11457 1540 259 11340 11340 38465 38465 5056 4926 130 26946 21656 4536 754 17721 7460 7756 2505 1354 1354 70560 69984 576 459 290 151 18 9194 495 8637 62 FUND DEVELOPMENT 43056 43056 RESEARCH DATA REGISTRY 14627 5905 8722 RESEARCH GRANTS 334 334 413533 304852 101936 6745 70127 66107 346522 332888 101 3257 11727 19376 19031 804 345 420811 411067 27463 21082 3000 16000 68259 25000 25000 71463 114341 X 285981 233693 63367 63033 349348 296726 420811 411067 -52622 X false true X true false X 631451 294324 322457 322660 286586 1857478 631451 294324 322457 322660 286586 1857478 14710 1842768 8050 86 12510 15706 16801 53153 1910631 271545 0.96450 0.94590 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 19376 19031 345 345 REFUNDABLE ADVANCE 25000 25000 X 360911 360911 360911 413533 413533 413533 SCHEDULE D, PAGE 3, PART X THE FOUNDATION HAS RECEIVED AN INTERNAL REVENUE SERVICE EXEMPTION FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3). THE FOUNDATION FILES ITS FORM 990 IN THE U.S. FEDERAL JURISDICTION. THE FOUNDATION IS GENERALLY NO LONGER SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE FOR YEARS BEFORE 2021. REUNION OF CHAM 77628 77628 31265 77628 77628 31265 31265 46363 FORM 990, PAGE 2, PART III, LINE 4A THE FOUNDATION DRIVES PATIENT ENGAGEMENT THROUGH DIVERSE AND ROBUST PROJECTS, CONFERENCES AND ONLINE SUPPORT. THE WEBSITE IS A RICH RESOURCE OF LEARNING AND UPLIFTING STORIES OF INSPIRATIONAL HOPE TO COPE WITH THE DIAGNOSIS. THE FOUNDATION SPONSORS AN INTERNATIONAL CONFERENCE EVERY TWO YEARS MOVING THE LOCATION TO ALLOW FAIR ACCESS TO ALL MINIMIZING FINANCIAL IMPACT TO ATTEND. THE FOUNDATION ALSO SPONSORS REGIONAL EDUCATIONAL CONFERENCES TO BUILD COMMUNITY IN PARTNERSHIP WITH VARIOUS CLINICAL CARE NETWORK (CCN) INSTITUIONS. THE CCN'S FACILITATE CLINICAL STUDIES AND TRIALS AND ANNUALLY ESTABLISH GOALS WHICH DRIVE PATIENT CARE AND IMPROVE TREATMENT. THE FOUNDATION RECENTLY LAUNCHED A TASK FORCE INITIATIVE TO BUILD A RICH VOLUNTEER NETWORK OF KNOWLEDGE AND SUPPORT AROUND KEY AREAS IMPACTING DAILY LIVING AND CARE. THE HOUSTON HOME OFFICE STAFF AND REMOTE OFFICE STAFF SUPPORT ALL THE ABOVE PROGRAMS AND PROJECTS AND REGULARLY MEET TO ENSURE STRATEGIC GOALS ARE MET. FORM 990, PAGE 6, PART VI, LINE 11B A DRAFT COPY OF THE FORM 990 WAS PROVIDED TO THE BOARD PRIOR TO FILING WITH THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C MONITORING AND ENFORCEMENT OF THE POLICY IS REGULARLY DISCUSSED BY THE GOVERNING BODY. FORM 990, PAGE 6, PART VI, LINE 19 THE BOARD CONSIDERS REQUESTS FOR COPIES OF GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS ON A CASE BY CASE BASIS.