2025-11-14T15:05:21-05:00 2024-12-31 383270278 O'BRIEN RIVAMONTE SLATE & SCHULTE PC 25800 NORTHWESTERN HWY STE 1100 SOUTHFIELD MI 48075 990 2024-01-01 550899427 MITOACTION INC MITO 8886486228 PO BOX 310 NOVI MI 48376 KIRA MANN CEO 8886486228 2025-11-13 true false MICHAEL J SCHULTE P00965338 2483532800 2025-11-13 2024 2025-03-06 01:10:19Z KIRA MANN PO BOX 310 NOVI MI 48376 543540 false X WWW.MITOACTION.ORG X 2005 TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE. 9 8 2 0 566950 237769 0 40340 43706 146789 135099 754079 416574 0 0 184934 182148 0 53342 335953 321167 520887 503315 233192 -86741 1077866 1040564 22788 25177 1055078 1015387 X TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE. false false 297107 OUTREACH AND EDUCATION PROGRAMS - MITOACTION OFFERS OUTREACH AND EDUCATION PROGRAMS THAT ENHANCE UNDERSTANDING OF MITOCHONDRIAL DISEASE AND PROMOTE INFOMED CARE AND DECISION-MAKING FOR PATIENTS AND THEIR FAMILIES. THESE PROGRAMS INCLUDE A MONTHLY EDUCATIONAL WEBINAR SERIES FEATURING CLINICAL AND RESEARCH EXPERTS, WEEKLY SUPPORT CALLS, SCHOOL AND WORKLACE ADVOCACY RESOURCES, AND DISTRIBUTION OF NO-COST EDUCATION MATERIALS. MITOACTION ALSO CONDUCTS COMMUNITY AWARENESS ACTIVITIES, INCLUDING ANNUAL WALKS AND ENGAGEMENT EVENTS, TO INCREASE VISIBILITY AND KNOWLEDGE OF MITOCHONDRIAL DISEASE AMONG THE GENERAL AND MEDICAL COMMUNITIES. 37678 PATIENT & FAMILY SUPPPORT - MITOACTION PROVIDES FREE PRACTICAL SUPPORT SERVICES TO INDIVIDUALS AND CAREGIVERS AFFECTED BY MITOCHONDRIAL DISEASE, HELPING THEM NAVIGATE MEDICAL, EDUCATIONAL, AND DAILY LIVING CHALLENGES. KEY RESOURCES INCLUDE MITO411, A TOLL-FREE PEER SUPPORT HOTLINE; WEEKLY AND MONTHLY SUPPORT GROUPS; THE MONTHLY MITO EXPERT SERIES FEATURING CLINICIANS AND RESEARCHERS; AND ACCESS TO EDUCATIONAL MATERIALS, TOOLS, AND RESOURCES THROUGH THE MITOACTION WEBSITE. ADDITIONAL SUPPORT INCLUDES ONLINE DISCUSSION FORUMS, ON-DEMAND PODCASTS AND VIDEOS, AND FAMILY CONNECTION EVENTS. THESE SERVICES OFFER DIRECT GUIDANCE, CREDIBLE INFORMATION, AND ACCESSIBLE PEER SUPPORT. 37677 MITOACTION PROVIDES PROGRAMS THAT IMPROVE THE QULITY OF LIFE FOR CHILDREN AND FAMILIES AFFECTED BY MITOCHONDIAL DISEASE. THROUGH PARTNERSHIPS WITH CAMPS IN THE SERIOUSFUN CHILDREN'S NETWORK, THE MATTHEW HARTY CAMER FUND COVERS THE FULL COST FOR CHILDREN WITH MITOCHONDRIAL DISEASE TO ATTEND MEDICALLY SUPPORTED SUMER CAMPS. THE PROGRAM ALSO OFFERS ANNUAL SCHOLARSHIPS TO GRADUATING STUDENTS WHO HAVE BEEN AFFECTED BY MITOCHONDRIAL DISEASE OR ARE PURSUING STUDIES RELATED TO SPECIAL NEEDS POPULATIONS. ADDITIONALLY, THROUGH DELIA'S WISH, THE MITOACTION COLLABORATES WITH GIVE KIDS THE WORLD VILLAGE TO OFFER WISH TRIPS FOR ELIGIBLE CHILDREN AND THEIR FAMILIES. 372462 true false false false false false false false false false true false false false false false true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 7 0 true 2 true false false false false false false false false X 9 8 false false false false false false false true true false false true true true true true true true true false MA X X KIRA MANN 8886486228 PO BOX 310 NOVI MI 48376 KIRA MANN CEO 40.00 X 111765 0 0 PHILIP BORDEN FORMER PRESI 2.00 X 0 0 0 NATASHIA CHEATHAM MEMBER 2.00 X 0 0 0 SAAD DINNO MEMBER 2.00 X 0 0 0 JESSIE FEIN MEMBER 2.00 X 0 0 0 PAUL HARTY PRESIDENT 10.00 X 0 0 0 JOHN KELLY MEMBER 2.00 X 0 0 0 GORDON RUSSELL VICE PRESIDE 5.00 X 0 0 0 ALLEN WILLIAMS MEMBER 2.00 X 0 0 0 111765 1 false false false 237769 237769 43706 43706 262065 126966 135099 416574 43706 X 169259 116535 24644 28080 12889 8874 1877 2138 137239 93984 24545 18710 7582 6066 1137 379 54819 53364 1455 1937 1937 PROGRAM COSTS 37370 37370 MEMBERSHIP COMMUNICATION 36693 36693 OFFICE SUPPLIES 15581 961 14620 MERCHANT / BANK FEES 12070 9656 1811 603 17876 8959 5485 3432 503315 372462 77511 53342 392900 222126 212719 264482 35410 1923 6000 63004 63004 465497 512546 4827 1077866 1040564 22788 25177 22788 25177 X 422951 292518 632127 722869 1055078 1015387 1077866 1040564 -86741 47050 X false true true false X 755712 178970 284894 566950 237769 2024295 755712 178970 284894 566950 237769 2024295 2024295 277 247 21616 40340 43706 106186 2130481 1189411 0.95020 0.97090 X 63004 63004 416574 416574 416574 503315 503315 503315 EVENTS 262065 262065 126966 262065 262065 126966 126966 135099 FORM 990 - ORGANIZATION'S MISSION TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE. FORM 990, PAGE 6, PART VI, LINE 11B THE EXECUTIVE DIRECTOR REVIEWS AND SIGNS THE FORM 990 BEFORE IT IS FILED. ADDITIONALLY, THE EXECUTIVE DIRECTOR FORWARDS A PDF VERSION OF THE FORM 990 TO THE GOVERNING BOARD PRIOR TO FILING AND THE FORM 990 IS DISCUSSED BY THE GOVERNING BOARD AT THE NEXT MOST OPPORTUNE BOARD MEETING. FORM 990, PAGE 6, PART VI, LINE 12C THE BOARD IS REQUIRED TO ANNUALLY REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY. FORM 990, PAGE 6, PART VI, LINE 15A THE PRESIDENT OF MITOACTION PERFORMED THE REVIEW AND SALARY ANALYSIS OF THE EXECUTIVE DIRECTOR BASED ON EDUCATION, EXPERIENCE, AND COMPARABILITY DATA. COMPENSATION FOR THE EXECUTIVE DIRECTOR WAS DETERMINED BY THE INDEPENDENT BOARD OF DIRECTORS BASED ON THIS COMPARABILITY INFORMATION TO DETERMINE FAIR COMPENSATION FOR THIS POSITION. THE EXECUTIVE DIRECTOR'S PERFORMANCE AND SALARY WAS DISCUSSED AND APPROVED AT ONE OF THE BOARD OF DIRECTOR MEETINGS IN WHICH THE EXECUTIVE DIRECTOR WAS NOT IN ATTENDANCE AND IS DOCUMENTED IN THE MINUTES OF THAT MEETING. FORM 990, PAGE 6, PART VI, LINE 15B SAME AS 15A. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION PROVIDES ACCCESS TO THE FORM 990 ON ITS WEBSITE. FINANCIAL STATEMENTS, FORM 990 AND MASSACHUSETTS FORM PC ARE AVAILABLE ON THE MASSACHUSETTS ATTORNEY GENERAL'S WEBSITE. ALL OTHER INFORMATION IS AVAILABLE UPON WRITTEN REQUEST. FORM 990, PART IX, LINE 11G PROFESSIONAL FEES 13,069 8,125 0 PROFESSIONAL FEES 1,634 0 0 PROFESSIONAL FEES 1,634 0 0 CONTRACTORS 61,058 16,140 18,391 CONTRACTORS 7,632 0 0 CONTRACTORS 7,632 0 0 PAYROLL SERVICE FEES 1,059 280 319 PAYROLL SERVICE FEES 133 0 0 PAYROLL SERVICE FEES 133 0 0 TOTAL 93,984 24,545 18,710