2025-10-17T11:17:09-07:00 2024-12-31 811513563 The Charity CFO LLC 1310 Papin Street Suite 300 Saint Louis MO 63103 990 2024-01-01 853950356 COALITION FOR HEADACHE AND MIGRAINE PATIENTS COAL 7074693865 1001 Lootens Place Suite 200 San Rafael CA 94901 Susan Doughty Executive Director 8562616873 2025-09-12 1 1 Zachary Meyer P02529579 3143901301 2025-09-08 2024 2025-03-06 01:10:19Z Susan Doughty 2041 East St PMB 222 Concord CA 94520 413287 0 X https://headachemigraine.org/ X 2020 CA CHAMP's mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices. CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster and headache diseases. CHAMP enhances communication, coordination, and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our coalition participants. They show the strength of people who live with headache diseases. 3 3 4 3 0 0 1302089 401579 42734 6215 269 181 1419 5312 1346511 413287 0 0 0 0 536226 337213 0 0 44625 945851 166995 1482077 504208 -135566 -90921 715926 472686 196768 44449 519158 428237 X CHAMP mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices. 1 0 134870 0 6215 Migraine at School collects and creates the best resources to ensure every student has the opportunity to flourish in school. This program as active in 126 schools in 36 states. It currently has 100+ volunteer ambassadors in the U.S. 70281 0 0 In 2024, CHAMP connected more than 80 patients, doctors, advocacy organizations, industry partners and national nonprofit leaders to strategize and partner on headache disease challenges, including diagnosis timeline, barriers to treatment and care, and disease education efforts for patients and healthcare providers. Action items developed out of the 2024 Elevate meetings include plans for headache language into medical exam processes, expanded provider community engagement, and enhanced research engagement and headache representation. 48208 0 0 In 2024, Retreat Migraine was produced in a virtual format and continued to be the only conference in the U.S. created by and designed for people living with migraine disease. With a focus on education, advocacy and community-building from the patient-perspective, this experiential event brings together patients and care-givers with leading migraine stakeholders. The event hosted 427 attendees and included 4 patient stories and 5 education sessions. 32710 0 0 The Coalition for Headache and Migraine Patients (CHAMP) engages its 22 coalition leaders in meetings throughout the year to communicate, educate and advocate on behalf of people living with headache diseases. In 2024, we reached an estimated 1.4 million individuals through our collective social media efforts. In addition, the Coalition leveraged Migraine and Headache Awareness Month to continue unified messaging across the headache disease community. The theme, Myth Truth Action, was used to help end myths about headache disease and illuminate the truth of the debilitating symptoms. Outcomes of the campaign included 546 media pickups, 170.3 million audience reach and 45,000 website views. 32710 0 0 286069 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 4 0 1 4 1 0 0 0 0 0 0 0 0 0 0 0 0 X 3 3 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 1 0 0 0 CA X X The Charity CFO LLC 3143901301 1310 Papin St Suite 300 Saint Louis MO 63103 Susan Doughty Executive Director 40.00 0 X 140000 0 0 William Young Board President 10.00 0 X X 0 0 0 Vera Gibb Board Secretary 2.00 0 X X 0 0 0 Isiah Lineberry Board Treasurer 2.00 0 X X 0 0 0 140000 0 0 1 0 0 0 0 0 0 0 0 0 401579 0 401579 6215 6215 0 0 6215 181 0 0 181 0 0 0 0 0 0 0 0 0 0 0 0 0 Other income 900099 5312 5312 0 0 0 0 0 0 5312 413287 11527 0 181 140000 70000 42000 28000 0 142565 91543 44103 6919 0 33391 19928 9154 4309 21257 12883 5675 2699 0 5021 5021 41345 41345 6040 5120 920 10044 8445 1599 11143 686 10420 37 16699 8536 7941 222 13283 13283 51706 51706 52 52 6512 3887 1785 840 5150 5150 504208 286069 173514 44625 73575 36983 633122 308303 127400 5150 4079 715926 472686 46768 44449 150000 0 196768 44449 X 477820 303237 41338 125000 519158 428237 715926 472686 -90921 0 0 0 0 0 X 0 0 0 X 2068358 1310893 1302089 401579 5082919 0 2068358 1310893 1302089 401579 5082919 3586400 1496519 2687 186 269 5493 8635 0 0 0 0 0 0 5091554 73818 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990, Part III, Line 2 CHAMP stopped incubation of Migraine at School programming and delivered all program materials to the Danielle Byron Henry Foundation, resulting in a reduction in CHAMP staffing. CHAMP also opted to change the annual in-person Retreat Migraine event to a virtual webinar in an effort to 1) re-evaluate the program for ROI and impact on patient community and 2) recognize shift in funding support for Retreat Migraine programming. Form 990, Part VI, Section B, Line 11b The Board of Directors reviews Form 990 upon its completion. Once accepted by the board, the return is then filed. Form 990, Part VI, Section B, Line 12c Conflicts of interest are documented by the board, signed, and reviewed on an annual basis. Form 990, Part VI, Section C, Line 19 Documents are available upon request.