2025-10-15T18:53:03-04:00 2024-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2024-01-01 261761329 A Foundation Building Strength Inc % Kelly Lloyd AFOU 4082120207 3825 El Camino Real Palo Alto CA 94306 KELLY LLOYD Treasurer 4082120207 2025-10-15 true true JOHN MULLINS P01429307 2027706371 2025-10-15 2024 2025-03-06 01:10:19Z Marc Guillet 3825 El Camino Real Palo Alto CA 94306 1062932 false X buildingstrength.org X 2008 CA To find treatments for Nemaline Myopathy 9 9 1 25 0 0 1269206 950307 0 51267 110613 140955 -12157 1461428 1048763 617501 821705 0 101009 124588 0 76139 188502 216813 907012 1163106 554416 -114343 3531624 3358607 185612 128832 3346012 3229775 To find treatments for Nemaline Myopathy false false 1042113 821705 The largest program services include research grants to foreign and domestic organizations advancing Nemaline Myopathy science. Domestically, grants supported the development of gene therapy for ACTA1-based Nemaline Myopathy; gene replacement and drug screening studies for KLHL40-, KLHL41-related forms; creation of patient-derived 3D muscle models to test potential treatments; maintenance of a national biobank to advance research and clinical trial readiness; and development of soft robotic garments to assist lower-limb movement and improve mobility for children with NM. Internationally, grants supported research to test therapies for KBTBD13-related Nemaline Myopathy (NEM6) using a mouse model to determine treatment timing and efficacy in preventing or reversing disease progression. 1042113 true true false false false false false false false false false false false false false false false false false false true true false false true false false true false false false false false false false false false false false false false false false false false false false true 7 0 true 1 true false false false false false false false false false false false false X 9 9 true false false false false false false true true false false true true true true true false true false false CA X The Organization 4082120207 3825 El Camino Real Palo Alto CA 94306 X Jennifer Tozer Executive Director 40.00 0.00 X 115000 0 0 Marc Guillet President 5.00 0.00 X X 0 0 0 Lyn Baier Director 3.00 0.00 X 0 0 0 Sam Lipsick Director 3.00 0.00 X 0 0 0 Matt Lloyd Director 3.00 0.00 X 0 0 0 Kelly Lloyd Treasurer 5.00 0.00 X X 0 0 0 Leticia Machado Director 3.00 0.00 X 0 0 0 Guilherme Machado Director 3.00 0.00 X 0 0 0 Boris Shimanovsky Director 3.00 0.00 X 0 0 0 Sharon Shimanovsky Secretary 5.00 0.00 X X 0 0 0 115000 0 0 1 false false false 347596 602711 950307 110613 110613 347596 12352 -12352 -12352 2012 1817 195 195 1048763 0 0 98456 X 798905 798905 22800 22800 115000 74750 11500 28750 9588 9588 11605 11605 159432 133089 9096 17247 726 525 201 10648 721 9727 200 2009 2009 9314 9314 2725 2725 Classy Fees 19334 19334 Bank Fees 1020 1020 1163106 1042113 44854 76139 249975 372984 2881405 2243741 194143 46012 534439 204232 13300 150000 3531624 3358607 185612 128832 185612 128832 X 3346012 3229775 3346012 3229775 3531624 3358607 -114343 -1894 0 X false false false X 361591 1126280 1741351 1269206 950307 5448735 361591 1126280 1741351 1269206 950307 5448735 0 0 0 0 0 0 5448735 624 4713 51267 110613 167217 624 4713 51267 110613 167217 361591 1126904 1746064 1320473 1060920 5615952 0.97020 0.98780 0.03000 0.01000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Europe including Iceland and Greenland Program services Medical Research 22800 22800 22800 Europe including Iceland and Greenland Medical Research 22800 1 false false false false false false EoY Campaign 200449 200449 3835 LoveLiv 59096 59096 2145 3 55256 55256 6372 314801 314801 12352 12352 -12352 true Brigham & Womens Hospital PO Box 3887 Finance Research Boston MA 022413887 042312909 501c3 237267 Research University of Washington Box 354966 Seattle WA 98195 916001537 501c3 109748 Research UC Riverside 900 University Avenue Bldg 1111 Riverside CA 92521 956006142 501c3 30000 Research Nationwide Childrens Hospital 700 Childrens Dr Columbus OH 43205 316056230 501c3 174037 Research Boston Childrens Hospital 300 Longwood Ave Boston MA 02115 042774441 501c3 110000 Research 5 Officer directors etc family relationship Part VI line 2 The Organization has three pairs of spouses on The Board. Form 990 governing body review Part VI line 11 The tax return is reviewed by the finance committee prior to filing. Conflict of interest policy compliance Part VI line 12c Board members are reminded of the importance of disclosing any potential related parties at the beginning of each board meeting. CEO executive director top management comp Part VI line 15a Compensation is reviewed by independent Board members, including the President, using comparative data from a rare disease nonprofit consultant and considering organization size and annual revenue. Approved compensation is reflected in the annual budget and formalized in the executed employment agreement, providing contemporaneous substantiation. Governing documents etc available to public Part VI line 19 Governing documents and policies are avaialble at The Organizations address upon request. List of other fees for services expenses Part IX line 11g Consulting: $144,596 Contract Labor: $9,785 Fundraising Expenses: $5,051