2025-10-08T08:49:17-05:00 2024-12-31 203551532 SALTI & ASSOCIATES LLC 1310 L STREET NW WASHINGTON DC 20005 990 2024-01-01 813481633 SICK CELLS SICK 6302346286 2100 MANCHESTER BLDG B 1040 WHEATON IL 60187 ABRINA TAINTER DIRECTOR OF OPERATIONS 6302346286 2025-10-08 1 1 SALTI ASSOCIATES LLC P01482194 2027283312 2025-10-06 2024 2025-03-06 01:10:19Z ABRINA TAINTER 2100 MANCHESTER BLDG B 1040 WHEATON IL 60187 667849 0 X WWW.SICKCELLS.ORG X 2017 IL SICK CELLS' MISSION IS TO ELEVATE THE VOICES OF THE SCD COMMUNITY AND OUR STORIES OF RESILIENCE. 7 6 8 0 0 0 74968 43519 834649 617000 0 0 0 7330 909617 667849 0 0 0 0 521142 376996 0 0 27744 233735 393188 754877 770184 154740 -102335 618884 758662 2553 243067 616331 515595 X SICK CELLS IS A NATIONAL ADVOCACY NONPROFIT FOR SICKLE CELL DISEASE (SCD). ORIGINALLY A DOCUMENTARY PROJECT STARTED IN 2008, SICK CELLS GREW TO MUCH MORE AND WAS FOUNDED AS A 501C3 NONPROFIT IN 2017. SICK CELLS' MISSION IS TO ELEVATE THE VOICES OF THE SCD COMMUNITY AND OUR STORIES OF RESILIENCE. IN HIGHLIGHTING THE GRAVE DISPARITIES OUR COMMUNITY FACES, WE WILL INFLUENCE DECISION-MAKERS AND PROPEL CHANGE. 0 0 564909 624330 IN 2024, OUR ORGANIZATION CONDUCTED A WIDE RANGE OF EDUCATION AND OUTREACH ACTIVITIES AIMED AT INCREASING AWARENESS AND UNDERSTANDING OF SICKLE CELL DISEASE (SCD), WHILE ALSO WORKING TO IMPROVE ACCESS TO CARE FOR INDIVIDUALS LIVING WITH THE CONDITION. WE HOSTED TWO NATIONAL VIRTUAL EVENTS-THE 2024 SCD POLICY FORUM AND THE 2024 COVERAGE FOR SCD SUMMIT-WHICH ENGAGED OVER 380 PARTICIPANTS, INCLUDING PATIENTS, CAREGIVERS, RESEARCHERS, MEDICAID DIRECTORS, HEALTHCARE PROVIDERS, COMMERCIAL PAYERS, AND OTHER KEY STAKEHOLDERS.OUR PROGRAMS ADVANCED OUR MISSION TO IMPROVE QUALITY OF LIFE FOR PEOPLE WITH SCD THROUGH PUBLIC POLICY ADVOCACY, COMMUNITY EDUCATION, AND PUBLIC AWARENESS. HIGHLIGHTS INCLUDE:AMBASSADOR PROGRAM - THE SICK CELLS AMBASSADOR PROGRAM EQUIPS A DIVERSE NETWORK OF ADVOCATES WITH THE TOOLS AND OPPORTUNITIES TO REPRESENT AND ADVANCE THE SCD COMMUNITY'S INTERESTS. IN 2024, WE RECRUITED 60 NEW AMBASSADORS, GROWING THE PROGRAM TO OVER 300 INDIVIDUALS ACROSS 29 STATES AND WASHINGTON, DC. PROGRAM ACTIVITIES INCLUDED 10 MONTHLY ADVOCACY WORKSHOPS (PRIORITY TOPIC MEETINGS), AND REFERRALS TO FOUR FOCUS GROUPS, SIX RESEARCH PROJECTS/SURVEYS, AND 19 SPEAKING ENGAGEMENTS. ADDITIONALLY, AMBASSADORS WERE REFERRED TO OVER 100 CONFERENCES AND EVENTS, INCLUDING REPRESENTATION AT PAINWEEK IN LAS VEGAS. THE PROGRAM ALSO SERVES AS A RESOURCE HUB FOR OTHER SCD ORGANIZATIONS AND ADVOCATES.FACES OF SCD STORYTELLING PROGRAM - THIS KEYSTONE INITIATIVE CAPTURES THE STORIES OF PATIENTS AND CAREGIVERS AND SERVES AS AN EDUCATIONAL RESOURCE FOR THE SCD COMMUNITY AND BEYOND. SICK CELLS SEEKS TO TELL THE UNTOLD STORIES WITHIN THE COMMUNITY AS WELL AS EXPAND AWARENESS OF THE DIVERSITY OF THE SCD PATIENT POPULATION TO BETTER REPRESENT THE COMMUNITY AS A WHOLE. IN 2024, STORIES SHARED THROUGH OUR WEBSITE AND SOCIAL MEDIA GENERATED OVER 250,000 IMPRESSIONS AND 8,000 ENGAGEMENTS, EXPANDING UNDERSTANDING OF THE DIVERSITY AND LIVED EXPERIENCES WITHIN THE SCD COMMUNITY.SICKLE CELL MEDICAID EDUCATION INITIATIVE - FOLLOWING THE APPROVAL OF TWO CELL AND GENE THERAPIES (CGT) FOR SCD IN DECEMBER 2023, SICK CELLS LAUNCHED AN OUTREACH CAMPAIGN TO MEDICAID DEPARTMENTS IN ALL 50 STATES AND DC. THE INITIATIVE AIMED TO EDUCATE POLICYMAKERS ON CGT CARE MODELS AND PROMOTE EQUITABLE ACCESS FOR MEDICAID ENROLLEES. WE PROVIDED TAILORED INFORMATION TO MEDICAID DIRECTORS, INCLUDING DATA ON LOCAL SCD PREVALENCE, COMMUNITY-BASED ORGANIZATIONS, AND STATE FORMULARY POLICIES. SICK CELLS ALSO CONDUCTED THE 2024 MEDICAID LANDSCAPE AND ACCESS REVIEW AND PUBLISHED 4 ISSUE BRIEFS AND A FINAL REPORT FROM THE FINDINGS. THIS INFORMATION PROVIDES CRUCIAL INSIGHTS INTO THE CURRENT STATE OF SCD COVERAGE FOR MEDICAID BENEFICIARIES. 564909 1 1 0 0 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 13 0 1 8 0 0 0 0 0 0 0 0 0 0 0 X 7 6 0 0 0 0 0 0 0 1 1 0 0 1 1 0 0 0 0 1 1 0 IL X ABRINA TAINTER 6302346286 2100 MANCHESTER RD BLDG B1040 WHEATON IL 60817 ASHLEY VALENTINE BOARD CHAIR 40.00 X X 97094 0 6544 TERRI BOOKER BOARD VICE CHAIR 5.00 X 0 0 0 MAX MATITE BOARD MEMBER 1.00 X 0 0 0 DORINDA LAWRENCE-SIMS BOARD TREASURER 5.00 X X 0 0 0 DAN JABS BOARD MEMBER 2.00 X 0 0 0 ADRIENNE BELL-CORS SHAPIRO BOARD MEMBER 2.00 X 0 0 0 JAMES HOLLOWAY ESQ BOARD MEMBER 2.00 X 0 0 0 ABRINAR TAINTER EXCUTIVE DIRECTOR 40.00 X 70724 0 7291 167818 0 13835 0 0 0 0 0 43519 43519 SPONSORSHIPS 624100 566250 566250 RESEARCH 541700 50750 50750 617000 MISCELLANEOUS 900099 7330 7330 7330 667849 624330 0 0 X 167818 114116 43632 10070 130030 89136 32735 8159 2181 1488 559 134 50690 34591 12997 3102 26277 17932 6737 1608 17107 841 16191 75 258886 212570 46050 266 6435 6016 316 103 25382 17412 6309 1661 2000 2000 31706 23242 6684 1780 37288 33197 3305 786 2843 2568 275 1104 1104 GRANT EXPENSE 9800 9800 BANK FEES 510 510 AMORTIZATION 88 88 TAXES & LICENSES 39 39 770184 564909 177531 27744 618884 677912 19000 8000 10721 1104 0 9617 0 44133 618884 758662 2553 26769 175000 0 41298 2553 243067 X 616331 515595 616331 515595 618884 758662 X -102335 1500 99 X 0 1 X 0 0 X 24528 22734 60447 144594 48711 301014 24528 22734 60447 144594 48711 301014 156608 144406 301014 2741843 0.47970 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 9316 1071 8245 1405 33 1372 9617 SECURITY DEPOSITS 2924 RIGHT-OF-USE ASSETS 41209 44133 LEASE LIABILITY 41298 41298 X 760748 92899 92899 667849 0 667849 863083 92899 92899 770184 0 770184 PART X, LINE 2: GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES. FOR THE YEAR ENDED DECEMBER 31, 2024, SICK CELLS HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740 - 10 AND DETERMINED THAT NO MATERIAL UNCERTAIN TAX PROVISIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. THE FEDERAL FORM 990, RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX, IS SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE GENERALLY FOR THREE YEARS AFTER IT IS FILED. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S 990 WAS PREPARED BY AN OUTSIDE ACCOUNTANT. THE RETURN WAS REVIEWED BY THE MANAGEMENT AND PRESENTED TO THE BOARD BEFPRE SUBMITTING THE RETURN ELECTRONICALLY. FORM 990, PART VI, SECTION B, LINE 15 GOVERNING BOARD FOLLOWED DUE PROCESS AS TO TASK DESCRIPTIONS, AND QUALIFICATIONS IN DETERMINING COMPENSATION FOR OFFICERS AND KEY EMPLOYEES BEING PAID BY THE ORGANIZATION. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS AVAILABLE ITS GOVERNING DOCUMENTS TO THE PUBLIC UPON WRITTEN REQUESTS. FORM 990, PART IX, LINE 11G PAYROLL PROCESSING FEE: PROGRAM SERVICE EXPENSES 2,970. MANAGEMENT AND GENERAL EXPENSES 1,116. FUNDRAISING EXPENSES 266. TOTAL EXPENSES 4,352. CONSULTANTS: PROGRAM SERVICE EXPENSES 209,600. MANAGEMENT AND GENERAL EXPENSES 44,934. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 254,534. FORM 990, PART XI, LINE 9: OTHER AUDIT ADJUSTMENT 99.