2025-06-03T14:14:49-04:00 2024-12-31 872875504 Coastal Tax Partners LLC 1130 Pinehurst Rd Suite B Dunedin FL 34698 990 2024-01-01 825186436 SALLA TREATMENT AND RESEARCH FOUNDATION INC % KENNETH KLEIN SALL 7273485184 145 TODD ROAD KATONAH NY 10536 KENNETH KLEIN TREASURER 7273485184 2025-04-25 true true LAURA FLETCHER EA P00769464 7277244030 2025-06-03 2024 2025-03-06 01:10:19Z X JESSICA KLEIN FOGLIO 145 TODD ROAD KATONAH NY 10536 233871 false X HTTPS://WWW.STAR-FOUNDATION.IO/ X 2018 NY TO SUPPORT AND ADVANCE SALLA DISEASE TREATMENTS, RESEARCH, EDUCATION, AWARENESS, AND FAMILY NETWORKS. 6 6 0 0 0 214720 233725 0 18 146 0 214738 233871 72505 111383 0 0 0 7246 53435 40160 125940 151543 88798 82328 176226 258554 0 176226 258554 X TO SUPPORT AND ADVANCE SALLA DISEASE TREATMENTS, RESEARCH, EDUCATION, AWARENESS, AND FAMILY NETWORKS. true false 113483 4B: ONGOING SCIENTIFIC SUPPORT: THE FOUNDATION CONTINUES TO SUPPORT COLLABORATIVE SCIENTIFIC RESEARCH VIA GRANTS TO ACCELERATE THE PROSPECTS OF EFFECTIVE MEDICAL TREATMENTS AND PROMOTE SCIENTIFIC DISCOVERY FOR SALLA DISEASE/FREE SIALIC ACID STORAGE DISORDERS. ALL SCIENTIFIC GRANT PROPOSALS ARE REVIEWED BY THE FOUNDATIONS INDEPENDENT SCIENTIFIC ADVISORY BOARD (SAB). THE SAB THEN PROVIDES INPUT TO STARS BOARD OF DIRECTORS. IN 2024, STAR PROVIDED FUNDS TO RESEARCHERS AT CHILDRENS HOSPITAL OF ORANGE COUNTY CALIFORNIA (USA)$10,000; LE CENTRE NATIONAL DE LA RECHERCHE SCIENTIFQUE, PARIS (FRANCE) $56,383; AND NATIONAL INSTITUTES OF HEALTH (USA) $45,000; AND SUPPORTED A PATIENT REGISTRY $2,100. 113483 true true false false false false false false false false false false false false false false false false false false false true false false true false false true false false false false false false false false false false false false false false false false false false false false true 0 0 true 0 false false false false false false false false X 6 6 true false true false false false false true true false false true true true true false true true true false X X KENNETH KLEIN 7273485184 1562 MAC CHARLES DUNEDIN FL 34698 X ADAM LEBLANC BOARD MEMEBER 2.00 0.00 X 0 0 0 KATHRINE ROA BOARD MEMBER 2.00 0.00 X 0 0 0 JESSICA KLEIN FOGLIO PRESIDENT 15.00 0.00 X X 0 0 0 MICHAEL FOGLIO VICE PRESIDENT 5.00 0.00 X X 0 0 0 DAVID HALPERN SECRETARY 2.00 0.00 X X 0 0 0 KENNETH KLEIN TREASURER 5.00 0.00 X X 0 0 0 0 0 0 0 false false false 233725 233725 146 146 233725 0 233871 146 0 0 55000 55000 56383 56383 20105 20105 525 525 2100 2100 221 100 121 1855 708 1147 7480 7480 803 803 1078 1078 WIRE FEE 15 15 FUNDRAISING EVENTS ENTERTAIN 4600 4600 FUNDRAISING EVENTS FOOD 482 482 FUNDRAISING EVENTS 896 896 151543 113483 30814 7246 6906 7652 169320 250902 176226 258554 0 0 X 176226 79686 178868 176226 258554 176226 258554 82328 0 X false false false X 120416 82392 66940 214720 233871 718339 120416 82392 66940 214720 233871 718339 0 0 0 0 0 0 718339 105 99 7 18 146 375 105 99 7 18 146 375 120521 82491 66947 214738 234017 718714 0.99950 0.99970 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED EUROPE INCLUDING ICELAND AND GREENLAND SCIENTIFIC RESEARCH 56383 1 1 false false false false false false Supplemental Information (Part V, Other) FUNDS TO LE CENTRE NATIONAL DE LA RECHERCHE SCIENTIFQUE FOR WORK CARRIED OUT IN LABORATORIES AT LUNIVERSITY PARIS CITE INSTITUT DES NEUROSCIENCES PARIS STAIN-PERES PER GRANT AGREEMENT WITH THE SALLA TREATMENT AND RESEARCH FOUNDATION. TRANSLATIONA 20172 20172 423 RARE COMMUNI 19675 19675 482 4600 1629 39847 39847 482 4600 2052 7134 32713 true NATIONAL INSTITUTE OF HEALTH 9000 ROCKVILLE PIKE BETHESDA MD 20892 521986675 GOVT ENTITY 45000 CASH RESEARCH CHILDRENS HOSPITAL OF ORANGE COUNTY 1201 W LA VETA AVE ORANGE CA 92868 956097416 HOSPITAL 10000 CASH RESEARCH Monitoring procedures (Part I, line 2) RECORDS ARE MAINTAINED BY STAR REGARDING GRANTS TO OTHER ORGANIZATIONS FOR SCIENTIFIC RESEARCH GRANTS. THE FOUNDATION HAS A VOLUNTEER, INDEPENDENT SCIENTIFIC COMMITTEE THAT REVIEWS GRANT PROPOSALS AND PROVIDES TECHNICAL INPUT TO STAR BOARD OF DIRECTORS ON SCIENTIFIC RIGOR AND MERIT. RECIPIENTS OF GRANTS/ASSISTANCE ARE REQUIRED TO SUBMIT A FINAL REPORT TO THE FOUNDATION AND TO PERIODIC AND ONGOING UPDATES TO FOUNDATION PRESIDENT AND TREASURER. Officer directors etc family relationship Part VI line 2 AT END OF 2024 THERE WERE 6 MEMBERS (JESSICA FOGLIO, MICHAEL FOGLIO, KENNETH KLEIN, DAVID HALPERIN, KATHRINE ROA AND ADAM LEBLANCTHE PRESIDENT AND VICE PRESIDENT (JESSICA AND MICHAEL FOGLIO) ARE HUSBAND AND WIFE, AND FORMED THIS 501C(3) BECAUSE THEY HAVE A SON DIAGNOSED WITH SALLA DISEASE. TREASURER KENNETH KLEIN IS RELATED TO MRS FOGLIO (HER UNCLE) AND VOLUNTEERS HIS TIME TO THE ORGANIZATION. Organizational document changes Part VI line 4 ORGANIZATIONS BYLAWS WERE AMENDED IN 2024 BY THE BOARD OF DIRECTORS TO ALLOW LIMITED COMPENSATION TO THE FOUNDATION PRESIDENT, RELATED TO NEW DUTIES REQUIRED TO CARRY OUT NEW STRATEGIC PLAN INITIATIVES. (COMPENSATION WILL START IN 2025) Form 990 governing body review Part VI line 11 TREASURER PROVIDES BOARD WITH A COPY OF 990 TO REVIEW BEFORE FILING Conflict of interest policy compliance Part VI line 12c WRITTEN POLICY IN ORIGINAL CHARTER DOCUMENTS THAT IS REGULARLY MONITORED AND ENFORCED BY OFFICERS CEO executive director top management comp Part VI line 15a INTERNAL REVIEW PROCEDURES ARE IN PLACE Other officer or key employee compensation Part VI line 15b IN 2024 ORGANIZATIONS BYLAWS WERE AMENDED BY THE BOARD OF DIRECTORS TO ALLOW LIMITED COMPENSATION TO THE FOUNDATION PRESIDENT, RELATED TO NEW DUTIES REQUIRED TO CARRY OUT NEW STRATEGIC PLAN INITIATIVES. (COMPENSATION WILL START IN 2025) Governing documents etc available to public Part VI line 19 ALL DOCUMENTS ARE MADE AVAILABLE TO PUBLIC UPON REQUEST AND THE TAX RETURNS ARE AVAIALBLE AS PUBLIC RECORD AFTER FILED ALL DOCUMENTS ARE MADE AVAILABLE TO PUBLIC UPON REQUEST. FORM 990S ARE POSTED ON STARS WEBSITE: HTTPS://WWW.STAR-FOUNDATION.IO/FINANCIALS Significant program services not listed on prior year return Part III line 2 IN 2024, A STAR FOR BEN FOUNDATION WAS ACCEPTED TO RECEIVE A GRANT OF $800,000.00 FROM CHAN ZUCKERBERG INITIATIVE DAF, AN ADVISED FUND OF SILICON VALLEY COMMUNITY FOUNDATION. (FIRST GRANT INSTALLMENT OF $100,000 IN 2024.)THIS GRANT IS TO SUPPORT THE WORK OF SALLA TREATMENT AND RESEARCH TO BUILD CAPACITY OF PATIENT-LED RARE DISEASE ORGANIZATIONS TO DEVELOP A PRIORITIZED RESEARCH AGENDA, CONVENE THEIR COMMUNITIES, AND ACCELERATE COLLABORATIVE RESEARCH IN AREAS OF SCIENTIFIC FOCUS (RARE AS ONE CYCLE 3 RFA).IN 2024, THE FOUNDATION LAUNCHED A LARGE-SCALE FUNDRAISING CAMPAIGN. DONATIONS WERE SOLICITED TO SUPPORT SCIENTIFIC PROPOSALS TO SUPPORT RESEARCH ON PROMISING THERAPIES FOR FREE SIALIC ACID STORAGE DISORDERS (FSASD). FUNDRAISING CAMPAIGN CONTINUED INTO 2025. General explanation attachment SCHEDULE I LINE 1- A LIST OF ELIGIBILITY AND AMOUNTS ARE COLLECTD AND KEPT TO USE FOR REPORTING PURPOSES