2025-03-05T10:45:00-05:00 2024-06-30 824388106 THE FORDE FIRM LLC 5150 BELFORT RD BLDG 300 JACKSONVILLE FL 32256 990 2023-07-01 237432288 SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC SPIN 9046996640 2970 MERCURY ROAD SOUTH JACKSONVILLE FL 32207 DEMERY WEBBER EXECUTIVE DIRECTOR 9046996640 2025-03-04 false MEGAN MCATEE P01853102 9047255832 2025-03-05 2023 2025-03-06 01:10:19Z DEMERY WEBBER 2970 MERCURY ROAD JACKSONVILLE FL 32207 208543 false X WWW.SBAJ.ORG X SPINA BIFIDA OF JACKSONVILLE, ESTABLISHED IN 1973, IS A 501(C)(3) NON- PROFIT ORGANIZATION DEDICATED TO SUPPORTING INDIVIDUALS AND FAMILIES AFFECTED BY SPINA BIFIDA. THEIR MISSION FOCUSES ON ADVOCACY, EDUCATION, AND PROVIDING ESSENTIAL SERVICES TO THE LOCAL COMMUNITY. 11 11 4 0 1153674 203423 0 875 5120 0 1154549 208543 0 0 141612 153781 39043 0 0 68759 100631 249414 254412 905135 -45869 1399657 1350143 3673 0 1395984 1350143 X SPINA BIFIDA OF JACKSONVILLE, ESTABLISHED IN 1973, IS A 501(C)(3) NON- PROFIT ORGANIZATION DEDICATED TO SUPPORTING INDIVIDUALS AND FAMILIES AFFECTED BY SPINA BIFIDA. THEIR MISSION FOCUSES ON ADVOCACY, EDUCATION, AND PROVIDING ESSENTIAL SERVICES TO THE LOCAL COMMUNITY. false false 254412 ADVOCACY AND EDUCATION: THE ORGANIZATION ACTIVELY RAISES AWARENESS ABOUT SPINA BIFIDA, A NEURAL TUBE DEFECT RESULTING FROM THE SPINE'S FAILURE TO CLOSE PROPERLY DURING EARLY PREGNANCY. WE PROVIDE INFORMATION AND SUPPORT TO FAMILIES, HELPING THEM NAVIGATE THE CHALLENGES ASSOCIATED WITH THE CONDITION. SUPPORT PROGRAMS: SPINA BIFIDA OF JACKSONVILLE OFFERS VARIOUS PROGRAMS, INCLUDING: -MEDICAL RESOURCES: PROVIDE INFORMATION AND SPECIALIZED MEDICAL RESOURCES. WE ALSO PROVIDE MEDICAL REIMBURSEMENTS FOR MEDICALLY NECESSARY ITEMS NOT COVERED BY INSURANCE. -MEDICAL SUPPLIES: ASSISTING FAMILIES IN OBTAINING NECESSARY MEDICAL EQUIPMENT. -MEDICAL EDUCATION OPPORTUNITIES: SPONSOR FAMILIES AT AN ANNUAL MEDICAL CONVENTION. -TRANSPORTATION RESOURCES: OFFERING SUPPORT FOR TRANSPORTATION NEEDS. -FAMILY SOCIALS AND GATHERINGS: EVENTS AND DINNERS FOR THE WHOLE FAMILY CATERED TO THEIR UNIQUE NEEDS. "LOVE WHAT DRIVES YOU" CAMPAIGN: THIS INITIATIVE COLLABORATES WITH THE AUTOMOTIVE COMMUNITY TO ENHANCE MOBILITY FOR FAMILIES AFFECTED BY SPINA BIFIDA. THE CAMPAIGN FOCUSES ON UPDATING VEHICLES WITH RAMPS AND ADAPTIVE EQUIPMENT, WHICH ARE THEN DONATED TO FAMILIES IN NEED. OUR GOAL IS TO "FUEL INDEPENDENCE IN THE SPINA BIFIDA COMMUNITY." "FOSTERING COMMUNITY PARTNERSHIPS TO RAISE FUNDS AND OPEN UP OPPORTUNITIES FOR OUR FAMILIES. THE AMELIA CONCOURS IS AN EXAMPLE. "ANNUAL JACKSONVILLE GRAND PRIX: SPINA BIFIDA OF JACKSONVILLE ORGANIZES THE JACKSONVILLE GRAND PRIX, A GO-KART RACING EVENT THAT HAS RAISES APPROXIMATELY 10,000 FOR THE ORGANIZATION. THIS EVENT NOT ONLY SERVES AS A FUNDRAISER BUT ALSO AS A UNIQUE COMMUNITY GATHERING TO SUPPORT THE CAUSE. "AVONLEA ANTIQUES AND ART BOOTH IS STOCKED WITH DONATED ITEMS. NOT ONLY IS IT GREAT EXPOSURE FOR US BUT IS ALSO GOOD ADVERTISING. THROUGH THESE INITIATIVES, SPINA BIFIDA OF JACKSONVILLE CONTINUES TO MAKE SIGNIFICANT STRIDES IN SUPPORTING INDIVIDUALS AND FAMILIES IMPACTED BY SPINA BIFIDA, FOSTERING A SENSE OF COMMUNITY, AND ENHANCING THE QUALITY OF LIFE FOR THOSE AFFECTED. 254412 true true false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false 0 0 false 4 true false false false false false false false false 11 11 false false false false false false false true true false false false false false false false false false SPINA BIFIDA ASSOCATION OF JAX 9046996640 2970 MERCURY ROAD SOUTH JACKSONVILLE FL 32207 DEMERY WEBBER EXECUTIVE DI 40.00 X 43417 0 0 WALTER T BOWDEN DIRECTOR X 0 0 0 SUZANNE CATTO DIRECTOR X 0 0 0 DR MICHEAL ERHARD CHAIRMAN X 0 0 0 ADAM HEWINS DIRECTOR X 0 0 0 MARGARITA OLSEN DIRECTOR X 0 0 0 MATT SECHRIST DIRECTOR X 0 0 0 STACEY SECHRIST DIRECTOR X 0 0 0 JOWANN WADE DIRECTOR X 0 0 0 ELIZABETH EMINISOR SECRETARY X 0 0 0 DIANE SCHROER TREASURER X 0 0 0 43417 false false false 203423 203423 5120 5120 208543 5120 43417 43417 84540 84540 15324 15324 10500 10500 734 734 6249 6249 1256 1256 708 708 3941 3941 6247 6247 SUPPORT GROUP EXPENSES 70998 70998 CC PROCESSING 4078 4078 TELEPHONE 3952 3952 PAYROLL PROCESSING FEES 1292 1292 1176 1176 254412 254412 0 0 1393415 3479 1311689 38916 3941 6242 34975 1399657 1350143 3673 3673 0 X 1395984 1350143 1395984 1350143 1399657 1350143 X -45869 28 X false false X 1153674 203423 1357097 875 875 1154549 203423 1357972 1357972 5120 5120 5120 5120 1154549 208543 1363092 0.99620 1.00000 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 38916 3941 34975 34975 FORM 990 - ORGANIZATION'S MISSION SPINA BIFIDA OF JACKSONVILLE, ESTABLISHED IN 1973, IS A 501(C)(3) NON- PROFIT ORGANIZATION DEDICATED TO SUPPORTING INDIVIDUALS AND FAMILIES AFFECTED BY SPINA BIFIDA. THEIR MISSION FOCUSES ON ADVOCACY, EDUCATION, AND PROVIDING ESSENTIAL SERVICES TO THE LOCAL COMMUNITY. FORM 990, PAGE 2, PART III, LINE 4A ADVOCACY AND EDUCATION: THE ORGANIZATION ACTIVELY RAISES AWARENESS ABOUT SPINA BIFIDA, A NEURAL TUBE DEFECT RESULTING FROM THE SPINE'S FAILURE TO CLOSE PROPERLY DURING EARLY PREGNANCY. WE PROVIDE INFORMATION AND SUPPORT TO FAMILIES, HELPING THEM NAVIGATE THE CHALLENGES ASSOCIATED WITH THE CONDITION. SUPPORT PROGRAMS: SPINA BIFIDA OF JACKSONVILLE OFFERS VARIOUS PROGRAMS, INCLUDING: -MEDICAL RESOURCES: PROVIDE INFORMATION AND SPECIALIZED MEDICAL RESOURCES. WE ALSO PROVIDE MEDICAL REIMBURSEMENTS FOR MEDICALLY NECESSARY ITEMS NOT COVERED BY INSURANCE. -MEDICAL SUPPLIES: ASSISTING FAMILIES IN OBTAINING NECESSARY MEDICAL EQUIPMENT. -MEDICAL EDUCATION OPPORTUNITIES: SPONSOR FAMILIES AT AN ANNUAL MEDICAL CONVENTION. -TRANSPORTATION RESOURCES: OFFERING SUPPORT FOR TRANSPORTATION NEEDS. -FAMILY SOCIALS AND GATHERINGS: EVENTS AND DINNERS FOR THE WHOLE FAMILY CATERED TO THEIR UNIQUE NEEDS. "LOVE WHAT DRIVES YOU" CAMPAIGN: THIS INITIATIVE COLLABORATES WITH THE AUTOMOTIVE COMMUNITY TO ENHANCE MOBILITY FOR FAMILIES AFFECTED BY SPINA BIFIDA. THE CAMPAIGN FOCUSES ON UPDATING VEHICLES WITH RAMPS AND ADAPTIVE EQUIPMENT, WHICH ARE THEN DONATED TO FAMILIES IN NEED. OUR GOAL IS TO "FUEL INDEPENDENCE IN THE SPINA BIFIDA COMMUNITY." "FOSTERING COMMUNITY PARTNERSHIPS TO RAISE FUNDS AND OPEN UP OPPORTUNITIES FOR OUR FAMILIES. THE AMELIA CONCOURS IS AN EXAMPLE. "ANNUAL JACKSONVILLE GRAND PRIX: SPINA BIFIDA OF JACKSONVILLE ORGANIZES THE JACKSONVILLE GRAND PRIX, A GO-KART RACING EVENT THAT HAS RAISES APPROXIMATELY 10,000 FOR THE ORGANIZATION. THIS EVENT NOT ONLY SERVES AS A FUNDRAISER BUT ALSO AS A UNIQUE COMMUNITY GATHERING TO SUPPORT THE CAUSE. "AVONLEA ANTIQUES AND ART BOOTH IS STOCKED WITH DONATED ITEMS. NOT ONLY IS IT GREAT EXPOSURE FOR US BUT IS ALSO GOOD ADVERTISING. THROUGH THESE INITIATIVES, SPINA BIFIDA OF JACKSONVILLE CONTINUES TO MAKE SIGNIFICANT STRIDES IN SUPPORTING INDIVIDUALS AND FAMILIES IMPACTED BY SPINA BIFIDA, FOSTERING A SENSE OF COMMUNITY, AND ENHANCING THE QUALITY OF LIFE FOR THOSE AFFECTED. FORM 990, PAGE 6, PART VI, LINE 11B NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PAGE 6, PART VI, LINE 19 NO DOCUMENTS AVAILABLE TO THE PUBLIC FORM 990, PART XI, LINE 9 PRIOR PERIOD CORRECTION 28