2025-02-24T16:04:00-05:00 2024-01-31 833033790 DG PERRY PLLC 6745 LONGSHORE STREET STE 240 DUBLIN OH 43017 990 2023-02-01 311235704 ALS UNITED OHIO INC ALSU 6142732572 1170 OLD HENDERSON ROAD SUITE 221 COLUMBUS OH 43220 MARK A STACH CHAIR 6142732572 2024-11-22 true JAMES E HUNTER CPA P00367326 6144311040 2025-02-24 2023 2025-03-06 01:10:19Z X X MARK A STACH 2372590 false X ALSOHIO.ORG X 1983 OH THE MISSION OF ALS UNITED OHIO IS TO PROVIDE COMPREHENSIVE SUPPORT AND ADVOCACY FOR PEOPLE WITH ALS AND THEIR FAMILIES, WHILE ADVANCING RESEARCH FOR NEW TREATMENTS AND AN END TO ALS. 8 8 14 111 0 1323197 2309689 0 208837 62901 0 1532034 2372590 199851 216334 0 870269 909552 0 229724 730598 895947 1800718 2021833 -268684 350757 4521385 4843843 224644 121842 4296741 4722001 X THE MISSION OF ALS UNITED OHIO IS TO PROVIDE COMPREHENSIVE SUPPORT AND ADVOCACY FOR PEOPLE WITH ALS AND THEIR FAMILIES, WHILE ADVANCING RESEARCH FOR NEW TREATMENTS AND AN END TO ALS. false false 1396532 216334 PATIENT SERVICES AND SUPPORT: ALS UNITED OHIO PROVIDES A WIDE RANGE OF SERVICES TO PEOPLE WHO HAVE BEEN DIAGNOSED WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) OR LOU GEHRIG'S DISEASE AND TO THEIR FAMILY MEMBERS. SERVICES INCLUDE CASE MANAGEMENT BY MEDICAL AND HEALTHCARE PROFESSIONALS WHO ASSIST PATIENTS, SPOUSES, AND CAREGIVERS IN KNOWING HOW TO PREPARE AND DEAL WITH VARIOUS ASPECTS (PHYSICAL, PSYCHO-SOCIAL, AND FINANCIAL) OF BEING DIAGNOSED WITH THIS DEVASTATING, TERMINAL ILLNESS. IN ADDITION, THE ORGANIZATION PROVIDES EQUIPMENT LOANS, MONTHLY SUPPORT GROUPS, STAFFING AND PARTNERING WITH ALS CLINICS (OHIOHEALTH IN COLUMBUS AND UNIVERSITY OF CINCINNATI), A PATIENT GRANT PROGRAM AND CHILDREN'S ALS RESOURCES. ALL OF THESE SERVICES ARE PROVIDED, FREE OF CHARGE. DURING THIS PERIOD, OVER 621 PEOPLE LIVING WITH ALS WERE SERVED; 954 INDIVIDUALS ATTENDED TEN MONTHLY SUPPORT GROUP MEETINGS; THERE WERE 725 BEREAVEMENT CONTACTS MADE; 113 CHILD AND TEEN BACKPACKS PROVIDED; 436 PATIENT VISITS TO 2 MULTIDISCIPLINARY ALS CLINICS, AND 1,113 PIECES OF EQUIPMENT LOANED AND PURCHASED FOR PATIENTS. DURING FISCAL YEAR 2024, THE ORGANIZATION WAS ABLE TO CONTINUE ITS PATIENT GRANT PROGRAM. TOTAL GRANTS PROVIDED EQUALED 216,334 AND GAVE MUCH NEEDED FINANCIAL SUPPORT TO 265 PEOPLE LIVING WITH ALS. GRANTS ARE AWARDED BASED UPON ELIGIBILITY APPLICATIONS THAT ARE REVIEWED AND APPROVED BY THE ORGANIZATION'S STAFF. 288775 PUBLIC AWARENESS: ALS UNITED OHIO PROVIDES IN-SERVICE TRAINING TO HEALTHCARE PROVIDERS SO THEY ARE BETTER PREPARED TO CARE FOR ALS PATIENTS. STAFF AND VOLUNTEERS SPEAK TO COMMUNITY ORGANIZATIONS, SCHOOL GROUPS, AND THE GENERAL PUBLIC ABOUT ALS AND THE NEED FOR LOCAL SERVICES, SUPPORT AND ABOUT THE NEED FOR RESEARCH TO FIND EFFECTIVE TREATMENTS AND A CURE FOR ALS. THE ORGANIZATION'S STAFF WORK WITH LOCAL RADIO STATIONS, NEWSPAPERS/PUBLICATIONS AND TELEVISION STATIONS TO ACQUIRE COVERAGE WHEN POSSIBLE TO EDUCATE THE GENERAL PUBLIC ABOUT ALS, OUR FREE SERVICES AND TO ENCOURAGE THE PUBLIC TO ATTEND OUR CHAPTER-SPONSORED EVENTS. THE ORGANIZATION PARTNERS WITH LOCAL ATHLETIC TEAMS - MAJOR LEAGUE AND MINOR LEAGUE BASEBALL) TO HOST LOU GEHRIG DAY EVENTS TO HONOR AN INDIVIDUAL WITH ALS, TO PROVIDE INFORMATION ABOUT THE DISEASE AND TO DIRECT OTHERS WITH ALS TO THE FREE SERVICES THE ORGANIZATION PROVIDES. 16446 ADVOCACY AND RESEARCH: ALS UNITED OHIO SUPPORTS SCIENTIFIC RESEARCH GRANTS TO FIND THE CAUSE, TREATMENTS AND CURE FOR ALS. IN ADDITION TO FINANCIAL SUPPORT, THE ALS UNITED OHIO ACTIVELY DEVELOPS RELATIONSHIPS WITH LOCAL ALS RESEARCHERS, INVITING THEM TO PRESENT THEIR NEW PROJECTS AND THEIR FINDINGS TO ALS UNITED OHIO SUPPORT GROUPS AND TO WRITE ARTICLES FOR POSTING IN THE ORGANIZATION'S NEWSLETTER. THE ORGANIZATION ALSO FACILITATES OPPORTUNITIES FOR LOCAL ALS RESEARCHERS TO EDUCATE PATIENTS ABOUT SPECIFIC RESEARCH PROJECTS AND DRUG TRIALS AND TO RECRUIT PATIENTS TO VOLUNTARILY PARTICIPATE IN THOSE EFFORTS. THE ORGANIZATION PARTNERS WITH ALS VOLUNTEERS TO EDUCATE MEMBERS OF THE THE OHIO CONGRESSIONAL DELEGATION ABOUT ALS AND THE NEED TO INCREASE AWARENESS AND RESOURCES TO PEOPLE AFFECTED BY THIS DISEASE. THE ORGANIZATION'S STAFF AND VOLUNTEERS MEET WITH VARIOUS STATE OF OHIO LEGISLATORS TO EDUCATE THEM ABOUT ALS, ABOUT THE FREE SERVICES WE PROVIDE IN THE COMMUNITY AND THE NEED FOR ADDITIONAL RESOURCES TO HELP SUPPORT PEOPLE IN OHIO WITH ALS. 1701753 true true false true false false false false false true true false false true true false true false false false false false false false false false false false true true false false false false false false false false true false false false false false false false false true 0 0 14 true false false false false false false false false false false false false false false X 8 8 false false false false false false false true true false false true true true true true true true false false OH X X MARLIN SEYMOUR 6142732572 1170 OLD HENDERSON RD STE 221 COLUMBUS OH 43220 MARLIN SEYMOUR PRESIDENT & 50.00 X 216349 0 0 LAUREN BARBER BOARD MEMBER 0.50 X 0 0 0 BEN DUCKWORTH BOARD MEMBER 0.50 X 0 0 0 JAY EIBEN BOARD MEMBER 0.50 X 0 0 0 PAUL CAREY JR BOARD MEMBER 0.50 X 0 0 0 RYAN MEADOWS VICE CHAIR 0.50 X X 0 0 0 WENDY PINGREE TREASURER 1.00 X X 0 0 0 JUDY SCHMITZ BOARD MEMBER 0.50 X 0 0 0 MARK A STACH CHAIR 2.00 X X 0 0 0 216349 1 false true false 500000 1809689 103542 2309689 62901 62901 2372590 62901 216334 216334 773883 604068 46852 122963 13509 13509 67064 59812 4029 3223 55096 41445 3841 9810 98176 98176 18925 18925 8750 8750 127226 114503 12723 49223 36918 6153 6152 2313 2082 231 32094 26317 1605 4172 113867 113169 698 RESEARCH 150000 150000 SPECIAL EVENT COSTS 92059 30094 9206 52759 OTHER EXPENSES 80613 80613 LOAN CLOSET 74491 74491 48210 12547 5018 30645 2021833 1701753 90356 229724 357 202 1029517 1502356 1052132 739377 322737 312755 3168774 3028530 4521385 4843843 12693 28837 211951 93005 224644 121842 X 4296741 4722001 4296741 4722001 4521385 4843843 350757 74503 X false true X true false X 1389848 1301499 1386593 1323197 2309689 7710826 1389848 1301499 1386593 1323197 2309689 7710826 7710826 124474 120125 104096 112780 34098 495573 8206399 0.93960 0.90880 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true false false false false true 8750 false false 8750 false SCHEDULE C, PART II-B, LINE 1 THE ORGANIZATION PARTICIPATED IN LOBBYING VARIOUS MEMBERS OF THE OHIO LEGISLATURE, ASKING FOR CONSIDERATION OF FUNDING TO BE USED FOR VARIOUS FORMS OF GOODS AND SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES. STAFF AND ASSOCIAITON VOLUNTEERS PARTICIPATED IN MEETINGS WITH LEGISLATORS, AND TESTIFIED BEFORE THE HOUSE FINANCE COMMITTEE IN MARCH 2023. 3043719 108601 213272 2939022 3420504 -172679 200000 3043719 3340250 259524 175000 4270 3420504 3267231 230616 150000 7597 3340250 3139887 384490 250000 7146 3267231 1.00000 true false 1052132 739377 312755 312755 FUND AT COLUMBUS FOUNDATION 2939022 RIGHT OF USE ASSET 89508 3028530 NONCURRENT RIGHT OF USE LIABILITY 51124 CURRENT RIGHT OF USE LIABILITY 38384 SIMPLE MATCH PAYABLE 3497 93005 2447093 74503 74503 2372590 2372590 2021833 2021833 2021833 SCHEDULE D, PAGE 2, PART V, LINE 4 THE ENDOWMENT CONSISTS OF ONE FUND ESTABLISHED FOR ALS UNITED OHIO CHARITABLE PURPOSES COMPOSED ENTIRELY OF BOARD-DESIGNATED ENDOWMENT FUNDS. ALS UNITED OHIO INTENDS TO USE THE ENDOWMENT'S PRINCIPAL AND EARNINGS TO FUND THE ORGANIZATION'S OPERATIONS AND ASSIST IN MEETING LONG-TERM GOALS. true EXPENSES NOT PD BY INSUR 216334 SCHEDULE I, PAGE 1, PART I, LINE 2 WRITTEN PROCEDURES AND APPLICATION FOR PATIENT GRANT PROGRAM APPROVED BY THE PRESIDENT & CEO AND CARE SERVICES DIRECTOR. CARE SERVICES COORDINATOR REVIEWS EACH APPLICATION AND RECEIPTS FOR APPROVAL OR DENIAL. GRANTS ARE PAID ONLY TO PATIENT, POWER OF ATTORNEY OF PATIENT OR LIVING SPOUSE OF PATIENT, IF PATIENT HAS PASSED AWAY IN THE SAME FISCAL YEAR IN WHICH THE APPLICATION WAS SUBMITTED. false false false false false false false false false MARLIN SEYMOUR PRESIDENT & CEO 123000 93349 216349 X MEDICAL EQUIPME 34 103542 FMV ON DATE RECEIVED false false false FORM 990, PAGE 1, ITEM B RETURN AMENDED TO CORRECT CERTAIN AMOUNTS PREVIOUSLY REPORTED. FORM 990, PAGE 2, PART III, LINE 4A PATIENT SERVICES AND SUPPORT: ALS UNITED OHIO PROVIDES A WIDE RANGE OF SERVICES TO PEOPLE WHO HAVE BEEN DIAGNOSED WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) OR LOU GEHRIG'S DISEASE AND TO THEIR FAMILY MEMBERS. SERVICES INCLUDE CASE MANAGEMENT BY MEDICAL AND HEALTHCARE PROFESSIONALS WHO ASSIST PATIENTS, SPOUSES, AND CAREGIVERS IN KNOWING HOW TO PREPARE AND DEAL WITH VARIOUS ASPECTS (PHYSICAL, PSYCHO-SOCIAL, AND FINANCIAL) OF BEING DIAGNOSED WITH THIS DEVASTATING, TERMINAL ILLNESS. IN ADDITION, THE ORGANIZATION PROVIDES EQUIPMENT LOANS, MONTHLY SUPPORT GROUPS, STAFFING AND PARTNERING WITH ALS CLINICS (OHIOHEALTH IN COLUMBUS AND UNIVERSITY OF CINCINNATI), A PATIENT GRANT PROGRAM AND CHILDREN'S ALS RESOURCES. ALL OF THESE SERVICES ARE PROVIDED, FREE OF CHARGE. DURING THIS PERIOD, OVER 621 PEOPLE LIVING WITH ALS WERE SERVED; 954 INDIVIDUALS ATTENDED TEN MONTHLY SUPPORT GROUP MEETINGS; THERE WERE 725 BEREAVEMENT CONTACTS MADE; 113 CHILD AND TEEN BACKPACKS PROVIDED; 436 PATIENT VISITS TO 2 MULTIDISCIPLINARY ALS CLINICS, AND 1,113 PIECES OF EQUIPMENT LOANED AND PURCHASED FOR PATIENTS. DURING FISCAL YEAR 2024, THE ORGANIZATION WAS ABLE TO CONTINUE ITS PATIENT GRANT PROGRAM. TOTAL GRANTS PROVIDED EQUALED 216,334 AND GAVE MUCH NEEDED FINANCIAL SUPPORT TO 265 PEOPLE LIVING WITH ALS. GRANTS ARE AWARDED BASED UPON ELIGIBILITY APPLICATIONS THAT ARE REVIEWED AND APPROVED BY THE ORGANIZATION'S STAFF. FORM 990, PAGE 2, PART III, LINE 4B PUBLIC AWARENESS: ALS UNITED OHIO PROVIDES IN-SERVICE TRAINING TO HEALTHCARE PROVIDERS SO THEY ARE BETTER PREPARED TO CARE FOR ALS PATIENTS. STAFF AND VOLUNTEERS SPEAK TO COMMUNITY ORGANIZATIONS, SCHOOL GROUPS, AND THE GENERAL PUBLIC ABOUT ALS AND THE NEED FOR LOCAL SERVICES, SUPPORT AND ABOUT THE NEED FOR RESEARCH TO FIND EFFECTIVE TREATMENTS AND A CURE FOR ALS. THE ORGANIZATION'S STAFF WORK WITH LOCAL RADIO STATIONS, NEWSPAPERS/PUBLICATIONS AND TELEVISION STATIONS TO ACQUIRE COVERAGE WHEN POSSIBLE TO EDUCATE THE GENERAL PUBLIC ABOUT ALS, OUR FREE SERVICES AND TO ENCOURAGE THE PUBLIC TO ATTEND OUR CHAPTER-SPONSORED EVENTS. THE ORGANIZATION PARTNERS WITH LOCAL ATHLETIC TEAMS - MAJOR LEAGUE AND MINOR LEAGUE BASEBALL) TO HOST LOU GEHRIG DAY EVENTS TO HONOR AN INDIVIDUAL WITH ALS, TO PROVIDE INFORMATION ABOUT THE DISEASE AND TO DIRECT OTHERS WITH ALS TO THE FREE SERVICES THE ORGANIZATION PROVIDES. FORM 990, PAGE 2, PART III, LINE 4C ADVOCACY AND RESEARCH: ALS UNITED OHIO SUPPORTS SCIENTIFIC RESEARCH GRANTS TO FIND THE CAUSE, TREATMENTS AND CURE FOR ALS. IN ADDITION TO FINANCIAL SUPPORT, THE ALS UNITED OHIO ACTIVELY DEVELOPS RELATIONSHIPS WITH LOCAL ALS RESEARCHERS, INVITING THEM TO PRESENT THEIR NEW PROJECTS AND THEIR FINDINGS TO ALS UNITED OHIO SUPPORT GROUPS AND TO WRITE ARTICLES FOR POSTING IN THE ORGANIZATION'S NEWSLETTER. THE ORGANIZATION ALSO FACILITATES OPPORTUNITIES FOR LOCAL ALS RESEARCHERS TO EDUCATE PATIENTS ABOUT SPECIFIC RESEARCH PROJECTS AND DRUG TRIALS AND TO RECRUIT PATIENTS TO VOLUNTARILY PARTICIPATE IN THOSE EFFORTS. THE ORGANIZATION PARTNERS WITH ALS VOLUNTEERS TO EDUCATE MEMBERS OF THE THE OHIO CONGRESSIONAL DELEGATION ABOUT ALS AND THE NEED TO INCREASE AWARENESS AND RESOURCES TO PEOPLE AFFECTED BY THIS DISEASE. THE ORGANIZATION'S STAFF AND VOLUNTEERS MEET WITH VARIOUS STATE OF OHIO LEGISLATORS TO EDUCATE THEM ABOUT ALS, ABOUT THE FREE SERVICES WE PROVIDE IN THE COMMUNITY AND THE NEED FOR ADDITIONAL RESOURCES TO HELP SUPPORT PEOPLE IN OHIO WITH ALS. FORM 990, PAGE 6, PART VI, LINE 11B THE FINANCE COMMITTEE MEETS AND REVIEWS A DRAFT OF THE 990 WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE DRAFT COPY OF THE 990 AND ITS SUPPORTING DOCUMENTS ARE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN THE FINAL COPY IS FILED WITH THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PAGE 6, PART VI, LINE 12C BOARD MEMBERS RECEIVE A WRITTEN COPY OF THE CONFLICT OF INTEREST POLICY ANNUALLY WHICH IS REVIEWED AND SIGNED BY THE BOARD MEMBERS AND RETAINED BY ALS UNITED OHIO. AT EACH BOARD MEETING, THE BOARD CHAIR CALLS FOR ALL BOARD MEMBERS TO INDICATE ANY CONFLICT OF INTEREST AND TO RECUSE THEMSELVES, IF INDICATED. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD HAS A FORMAL PROCESS FOR THE APPROVAL OF COMPENSATION FOR THE CEO/EXECUTIVE DIRECTOR AND OTHER KEY EMPLOYEES THAT CONFORMS TO THE IRS REBUTTABLE PRESUMPTION OF REASONABLENESS STANDARD. FORM 990, PAGE 6, PART VI, LINE 19 THE FORM 990, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE ALS UNITED OHIO OFFICE UPON WRITTEN REQUEST.