2025-02-10T10:19:00-06:00 2024-06-30 203985546 JOHNSON O'CONNOR FERON & CARUCCI LLP 101 EDGEWATER DRIVE SUITE 210 WAKEFIELD MA 01880 990EZ 2023-07-01 043536123 KAWASAKI DISEASE FOUNDATION INC KAWA 6173601499 11 WALLEY STREET UNIT 401 BOSTON MA 02128 GREGORY CHIN TREASURER 9783565970 2025-01-22 1 0 JOSEPH GISO P00030126 7819143400 2025-01-22 2023 2025-03-06 01:10:19Z X X HTTPS://KDFOUNDATION.ORG/ X X 38352 X 18377 19975 38352 5877 1686 80216 87779 -49427 469576 0 420149 X 467632 418635 1944 1514 469576 420149 0 0 469576 420149 X THE KAWASAKI DISEASE FOUNDATION STRIVES TO BE AT THE FOREFRONT OF KAWASAKI DISEASE ISSUES BY UNITING THE PERSONAL INSIGHT OF FAMILIES WITH THE EXPERTISE OF MEDICAL PROFESSIONALS. KDF'S MISSION IS BASED ON THREE BASIC PRINCIPLES: RAISING AWARENESS AMONG THE MEDICAL COMMUNITY, CHILDCARE PROVIDERS, AND THE GENERAL PUBLIC IS CRITICAL TO EARLY DIAGNOSIS AND TREATMENT; FACILITATING SUPPORT AMONG FAMILIES IS ESSENTIAL TO HELPING FAMILIES COPE WITH THIS UNCOMMON ILLNESS AND THE POTENTIALLY DEVASTATING EFFECTS OF HEART DAMAGE; INCREASING FUNDING FOR RESEARCH IS NECESSARY TO ADVANCE DIAGNOSTIC GUIDELINES, ENHANCE THE EXISTING TREATMENT, IMPROVE SHORT-TERM AND LONG-TERM FOLLOW-UP CARE, AND FIND A CAUSE. THE KDF BRIDGES PROGRAM MATCHES FAMILIES CURRENTLY FACING KD WITH TRAINED SUPPORT VOLUNTEERS. THE VOLUNTEERS ARE GENERALLY PARENTS OF CHILDREN WHO HAVE KD, OR ADULT PATIENTS WHO HAVE RECOVERED FROM KD. THE VOLUNTEERS ARE SCREENED AND TRAINED BY EXPERIENCED SUPPORT PROFESSIONALS. THE ROLE OF THE SUPPORT VOLUNTEER IS TO PROVIDE PERSONAL INSIGHT THAT MAY HELP COPE WITH KAWASAKI DISEASE. BRIDGES EVOLVED AS A METHOD OF ACCOMPLISHING ONE OF OUR GOALS: PROVIDING SUPPORT TO FAMILIES DEALING WITH A KD DIAGNOSIS. 15000 3314 THE ANNUAL KAWASAKI DISEASE PATIENT AND PARENT SYMPOSIUM IS AN EDUCATIONAL CONFERENCE PLANNED BY KD MEDICAL EXPERTS FOR FAMILIES AND PATIENTS OF KAWASAKI DISEASE. THE EVENT AIMS TO ADDRESS ISSUES THAT ARE MOST RELEVANT TO NEWLY DIAGNOSED PATIENTS AND PAST PATIENTS OF KD. SOME OF THE LATEST RESEARCH IN KAWASAKI DISEASE IS DISCUSSED AS WELL AS MANAGEMENT OF THE MOST COMMON COMPLICATIONS, INCLUDING TREATMENT OPTIONS AND LONG TERM CARE FOR KAWASAKI DISEASE. SPEAKERS DISCUSS ISSUES RELATED TO CURRENT AND PAST RESEARCH STUDIES, PROVIDE UPDATES ON THE DEVELOPMENT OF A DIAGNOSTIC TEST, DISCUSS THE TRANSITION FROM PEDIATRIC TO ADULT CARE, AND ADDRESS PARENT AND PATIENT QUESTIONS DURING THE Q&A SESSION. 50000 1458 4772 X GREGORY CHIN TREASURER 2.00 0 0 0 VANESSA GUTIERREZ PRESIDENT 2.00 0 0 0 CATHERINE FRANK SECRETARY 2.00 0 0 0 KATE DAVILA VICE PRESIDENT 2.00 0 0 0 JULIA JAYATILAKA DIRECTOR 2.00 0 0 0 JENNIFER LAU DIRECTOR 2.00 0 0 0 MATT HAM DIRECTOR 2.00 0 0 0 JENNIFER GARNICA DIRECTOR 2.00 0 0 0 KARIN WICKER DIRECTOR 2.00 0 0 0 SEAN KING DIRECTOR 2.00 0 0 0 STEPHANIE KARZON DIRECTOR 2.00 0 0 0 SHANNON VIRGIN DIRECTOR 2.00 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 MA GREGORY CHIN 11 WALLEY STREET UNIT 401 BOSTON MA 02128 6173601499 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 100546 75118 47720 42036 18377 283797 100546 75118 47720 42036 18377 283797 10094 273703 31 37 30 39 19975 20112 303909 0.90060 0.96510 X FORM 990-EZ, PART I, LINE 4 - OTHER INVESTMENT INCOME DESCRIPTION: INTEREST. AMOUNT: 19,975. FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES DESCRIPTION: BANK FEES. AMOUNT: 3,533. DESCRIPTION: COMPUTER EXPENSE. AMOUNT: 6,228. DESCRIPTION: TRAVEL. AMOUNT: 3,683. DESCRIPTION: SPONSORSHIPS. AMOUNT: 50,000. DESCRIPTION: FUNDRAISING EXPENSE. AMOUNT: 1,342. DESCRIPTION: SCHOLARSHIPS. AMOUNT: 15,000. DESCRIPTION: DEPRECIATION. AMOUNT: 430. TOTAL TO FORM 990-EZ, LINE 16: 80,216. FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS DESCRIPTION: ACCOUNTS RECEIVABLE. BEG. OF YEAR AMOUNT: 224. END OF YEAR AMOUNT: 224. DESCRIPTION: OTHER DEPRECIABLE ASSETS. BEG. OF YEAR AMOUNT: 1,720. END OF YEAR AMOUNT: 1,290. THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.