2025-02-06T14:15:21-05:00 2024-12-31 Mullins PC 7625 Wisconsin Ave Bethesda MD 20814 990EZ 2024-01-01 843343395 Global DARE Foundation % Kristie DeMarco GLOB 2075900299 765 Roosevelt Trail STE 865 Windham ME 04062 KRISTIE DEMARCO President 2075900299 2025-01-24 true true JOHN MULLINS P01429307 2027706371 2025-02-06 2024 2025-03-06 01:10:19Z X X www.defeatadultrefsumeverywhere.org X X 171005 X 171005 171005 35000 1623 33174 69797 101208 175114 276322 175114 276322 0 0 0 0 175114 276322 0 0 175114 276322 See Schedule O See Schedule O 35000 46129 46129 Kristie DeMarco President 20.00 0 0 0 Susan Kuranoff Vice President 10.00 0 0 0 Marissa Rossouw Secretary 2.00 0 0 0 Heidi Page Treasurer 2.00 0 0 0 Mark Liquorish Director 2.00 0 0 0 Darrell Gunter Director 2.00 0 0 0 Donald Samulack Director 2.00 0 0 0 Kerstin Reichert Director 2.00 0 0 0 false false false false false false false false false ME The Organization 765 Roosevelt Trail 865 Windham ME 04062 2075900299 false false false false false false false false false false false NONE NONE true X 43785 104106 67917 58759 171005 445572 43785 104106 67917 58759 171005 445572 6942 7532 10836 18171 21640 65121 6942 7532 10836 18171 21640 65121 380451 43785 104106 67917 58759 171005 445572 0.85380 0.83590 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED List of grants and similar amounts paid Part I line 10 Activity Grants Grantee Kennedy Krieger Institute Street 716 North Broadway City, State, Zip Baltimore, MD 21205Amount 35,000 Description of other expenses Part I line 16 Description AmountWebsite 468Conferences/Meetings 200Marketing/Communications Specialist 20,897Bank Fees 88Dues & Subscriptions 150PO Box Expense 222Raising Awareness Program 11,129Taxes/Licenses 20 General explanation attachment Primary Exempt Purpose:Global DARE Foundations mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease by supporting research, education initiatives, awareness campaigns, and advocacy. Program Service Accomplisments:Research Program - $35,000The Global DARE Foundation funded critical research initiatives to advance therapies for Refsum Disease. We provided $15,000 for the second phase of a pilot mouse model study grant at Kennedy Krieger Institute, which aims to further the understanding of disease mechanisms and improve therapeutic options. Additionally, we funded $20,000 for the final two installments of a research fellowship at Kennedy Krieger. This fellowship has been pivotal in conducting food testing and mouse model studies, directly contributing to the advancement of scientific knowledge about Refsum Disease. 2. Expanding Global Awareness Program - $11,128To promote earlier diagnosis of Refsum Disease, Global DARE Foundation participated in two high-impact conferences: the Association for Research in Vision and Ophthalmology (ARVO) conference and the Foundation Fighting Blindness (FFB) conference. At these events, we hosted awareness booths to educate researchers, clinicians, and the broader scientific community about the symptoms, diagnosis, and management of Refsum Disease. These efforts are critical to increasing recognition and understanding of this rare condition within the medical and research communities.