2024-11-15T11:45:46-06:00 2023-12-31 950858589 HUTCHINSON AND BLOODGOOD LLP 550 N BRAND BLVD 14TH FLOOR GLENDALE CA 91203 990 2023-01-01 452571898 THE BRAIN RECOVERY PROJECT DBA PEDIATRIC EPILESPY SURGERY ALLIANCE BRAI 8336753335 969 COLORADO BLVD 101 LOS ANGELES CA 90041 MATT FLESCH BOARD CHAIR 8336753335 2024-11-12 1 1 GEORGETTE M GREEN P00449497 8186375000 2023 2024-10-15 13:58:12Z MATT FLESCH 969 COLORADO BLVD 101 LOS ANGELES CA 90041 318615 0 X HTTPS://EPILEPSYSURGERYALLIANCE.ORG X 2011 CA WE ENHANCE THE LIVES OF CHILDREN WHO NEED NEUROSURGERY TO TREAT MEDICATION-RESISTANT EPILEPSY. 9 7 3 48 0 0 281182 266379 41501 0 0 0 -2062 34623 320621 301002 0 18174 0 0 106543 65318 0 0 16784 228449 132938 334992 216430 -14371 84572 138688 220879 6906 4525 131782 216354 X WE ENHANCE THE LIVES OF CHILDREN WHO NEED NEUROSURGERY TO TREAT MEDICATION-RESISTANT EPILEPSY BY EMPOWERING THEIR FAMILIES WITH RESEARCH, SUPPORT SERVICES, AND IMPACTFUL PROGRAMS ACROSS THE LIFESPAN. 0 0 75525 INFORMATION AND RESOURCES:THE ALLIANCE IS A TRUSTED SOURCE OF INFORMATION FOR PARENTS AND CAREGIVERS, SCHOOL TEAMS, AND ALIGNED PROFESSIONALS. THROUGH A VARIETY OF AWARENESS INITIATIVES, PARTNERSHIPS, PROGRAMS, A BIENNIAL FAMILY CONFERENCE, RESOURCES, AND TOOLS. 18969 RESEARCH:THE ALLIANCE INITIATES AND FUNDS RESEARCH TO BETTER UNDERSTAND - AND IMPROVE - OUTCOMES AFTER SURGERY. THIS INCLUDES OUR GLOBAL PEDIATRIC EPILEPSY SURGERY REGISTRY, THE ONLY PATIENT-POWERED (BY PARENT PROXY) STUDY TO UNDERSTAND THE MEDICAL AND DEVELOPMENTAL TRAJECTORY AFTER EPILEPSY SURGERY IN CHILDHOOD. 38850 ADVOCACY & COLLABORATION:WE MOVE OUR MISSION FORWARD BY COLLABORATING AND ADVOCATING WITH HIGH-IMPACT ORGANIZATIONS. WE DO THIS THROUGH OUR ACTIVE PARTICIPATION IN ALLIANCES WITH OTHER ORGANIZATIONS, INCLUDING: - PERKINS SCHOOL FOR THE BLIND- THE COUNCIL OF PARENT ATTORNEYS AND ADVOCATES- AMERICAN BRAIN COALITION; - THE RARE EPILEPSIES NETWORK; - EPILEPSY LEARNING HEALTHCARE SYSTEM OF THE EPILEPSY FOUNDATION OF AMERICA; - INFANTILE SPASMS ACTIONS NETWORK; - THE RARE AND CATASTROPHIC SEIZURES CONSORTIUM; AND, - THE EPILEPSY LEADERSHIP COUNCIL OF THE AMERICAN EPILEPSY SOCIETY. 18191 18174 FINANCIAL ASSISTANCE FOR DREAMS FOR DANNY TRAVEL SCHOLARSHIP AWARDS AND DREAMS FOR DANNY SURGICAL EVALUATION AID. 18191 18174 151535 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 1 3 1 0 0 0 0 0 0 0 0 0 0 X 9 7 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 0 1 0 0 CA X X X MONIKA A JONES 8336753335 969 COLORADO BLVD SUITE 101 LOS ANGELES CA 90041 MATT FLESCH BOARD CHAIR 3.00 X X 0 0 0 EMILY NICOLI RN BOARD TREASURER 1.00 X X 0 0 0 MARY VERNICK BOARD SECRETARY 1.00 X X 0 0 0 SANDI LAM MD DIRECTOR 1.00 X 0 0 0 TAYLOR ABEL MD DIRECTOR 1.00 X 0 0 0 ARIA FALLAH MD DIRECTOR 1.00 X 0 0 0 GARY MATHERN MD DIRECTOR EMERITUS 1.00 X 0 0 0 LUKE SHEPARD DIRECTOR EMERITUS 1.00 X 0 0 0 NICOLE MURRAY DIRECTOR 1.00 X 0 0 0 MONIKA JONES FOUNDER & EXECUTIVE DIRECTOR 35.00 X 7225 0 0 7225 0 0 0 0 0 0 0 10000 256379 266379 36964 10000 17613 19351 19351 EMPLOYEE RETENTION CRE 900099 15109 15109 OTHER INCOME 900099 163 163 15272 301002 0 0 34623 X 18174 18174 7225 5822 763 640 52977 42701 5586 4690 511 363 115 33 4605 3712 485 408 17662 17662 33412 22922 8183 2307 7362 6386 976 23289 12537 6591 4161 1487 1487 20650 17877 1947 826 13629 13486 143 4045 2427 809 809 PRINTING & COPYING 2256 1425 785 46 BANK & CREDIT CARD FEES 2196 287 193 1716 MEMBERSHIP DUES 1532 1350 182 POSTAGE & DELIVERY 893 764 127 2 4525 1302 3053 170 216430 151535 48111 16784 127469 190072 10000 1219 30807 138688 220879 6906 4525 6906 4525 X 67065 136346 64717 80008 131782 216354 138688 220879 84572 0 X 0 0 0 X 320751 241345 239432 281182 266379 1349089 320751 241345 239432 281182 266379 1349089 497362 851727 3595 1085 522 163 5365 1354454 0.62880 0.72040 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED GIVE FOR HOPE - CHICAGO FUN FEST 2500 2500 130 GIVE FOR HOPE - DC BOO BASH 28755 28755 9955 2303 3042 2 15709 10000 5709 1721 462 46964 10000 36964 11676 2433 3504 17613 19351 1 FINANCIAL ASSISTANCE - DREAMS FOR DANNY TRAVEL SCHOLARSHIP 16 15174 BOOK FINANCIAL ASSISTANCE - DREAMS FOR DANNY SURGICAL EVALUATION AID 3 3000 BOOK FORM 990, PART VI, SECTION B, LINE 11B LINE 11B EXPLANATION - THE FULL BOARD REVIEWS AND APPROVES THE FORM 990 PRIOR TO EFILING. FORM 990, PART VI, SECTION B, LINE 12C I.EACH DIRECTOR, PRINCIPAL OFFICER, AND MEMBER OF A COMMITTEE WITH GOVERNING BOARD DELEGATED POWERS SHALL ANNUALLY SIGN A CONFLICT OF INTEREST STATEMENT. AFTER DISCLOSURE OF A CONFLICT OF INTEREST AND ALL MATERIAL FACTS, AND AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, HE/SHE SHALL LEAVE THE GOVERNING BOARD OR COMMITTEE MEETING WHILE THE DETERMINATION OF A CONFLICT OF INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD OR COMMITTEE MEMBERS SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS. AFTER EXERCISING DUE DILIGENCE, THE GOVERNING BOARD OR COMMITTEE SHALL DETERMINE WHETHER THE CORPORATION CAN OBTAIN WITH REASONABLE EFFORTS A MORE ADVANTAGEOUS TRANSACTION OR ARRANGEMENT FROM A PERSON OR ENTITY THAT WOULD NOT GIVE RISE TO A CONFLICT OF INTEREST. IF THE GOVERNING BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE A MEMBER HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT SHALL INFORM THE MEMBER OF THE BASIS FOR SUCH BELIEF AND AFFORD THE MEMBER AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE MEMBER'S RESPONSE AND AFTER MAKING FURTHER INVESTIGATION AS WARRANTED BY THE CIRCUMSTANCES, THE GOVERNING BOARD OR COMMITTEE DETERMINES THE MEMBER HAS FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, IT SHALL TAKE APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION. FORM 990, PART VI, SECTION B, LINE 15A THE BOARD REVIEWS REASONABLE COMPENSATION FOR THE GEOGRAPHICAL AREA AND ORGANIZATION SIZE. FORM 990, PART VI, SECTION C, LINE 19 AVAILABLE ON WEBSITE AND UPON REQUEST. FORM 990, PART IX, LINE 11G CONTRACT/PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 19,837. MANAGEMENT AND GENERAL EXPENSES 8,183. FUNDRAISING EXPENSES 2,307. TOTAL EXPENSES 30,327. IRB FEES: PROGRAM SERVICE EXPENSES 3,085. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 3,085.