2024-11-15T11:45:31-06:00 2023-12-31 521073331 DEMBO JONES PC 6116 EXECUTIVE BLVD SUITE 500 NORTH BETHESDA MD 20852 990 2023-01-01 770229244 THE SCLERODERMA FOUNDATION OF CALIFORNIA SCLE 4242276475 8929 S SEPULVEDA BLVD 401 LOS ANGELES CA 90045 LAURA FUHRMAN ACTING PRESIDENT 4242276475 2024-11-15 1 1 JOSHUA G DZYAK CPA P01398949 3017705100 2023 2024-10-15 13:58:12Z LAURA FUHRMAN 8929 S SEPULVEDA BLVD 401 LOS ANGELES CA 90045 352650 0 X HTTPS://WWW.MYSCLERODERMA.ORG X 1989 CA TO EMPOWER THE SCLERODERMA COMMUNITY TO LIVE BETTER LIVES. 16 16 2 68 0 0 283435 340488 0 0 0 0 -6390 -65712 277045 274776 0 29500 0 0 212067 205921 0 0 41219 74913 101480 286980 336901 -9935 -62125 365330 298863 14546 10204 350784 288659 X EMPOWERING THE SCLERODERMA COMMUNITY TO LIVE BETTER LIVES THROUGH PROGRAMS COMMITTED TO SUPPORT, EDUCATION, AND RESEARCH.PILLARS OF OUR MISSION: SUPPORT: INSPIRING OUR COMMUNITY THROUGH PATIENT SUPPORT SERVICES AND RESOURCES FOR PATIENTS INCLUDING 26 VOLUNTEER DRIVEN LOCAL COMMUNITY & PEER LED SUPPORT GROUPS, STAFF DRIVEN ONE-ON-ONE PROFESSIONAL GUIDANCE THAT ALLOWS THEM TO THRIVE. EDUCATION: FOR MEDICAL PROFESSIONALS TO HELP THEM UNDERSTAND AND PROPERLY DIAGNOSIS SCLERODERMA EARLY, AND FOR PATIENTS TO HELP THEM AND COPE AND THRIVE WHILE LIVING WITH SCLERODERMA. RESEARCH: FUNDING RESEARCH PROJECTS THAT WILL LEAD THE WAY TO FINDING A CURE FOR SCLERODERMA. 0 0 120261 SUPPORT: PROVIDE PATIENT SUPPORT AND EDUCATION TO OVER 1000 PATIENTS AFFECTED BY SCLERODERMA IN CALIFORNIA WE WORK TO BUILD OVERALL AWARENESS OF THE DISEASE. THE FOUNDATION NOW HAS 26 COMMUNITY SUPPORT GROUPS. MOST GROUPS MEET BI-MONTHLY AND HAVE AN AVERAGE ATTENDANCE OF 25-20 PEOPLE. IN 2023 MANY OF OUR SUPPORT GROUPS TRANSITIONED BACK TO IN-PERSON MEETINGS AND WE WERE ABLE TO GROW TO REACH APPROXIMATELY 2000+ PATIENTS/CAREGIVERS AND FAMILY MEMBERS. WE WILL CONTINUE TO PROVIDE ONLINE MEETINGS AS WELL AS IN-PERSON MEETINGS. SUPPORT GROUPS PROVIDE A FORUM TO SHARE FEELINGS, CONCERNS, INFORMATION, AS WELL AS A PLACE TO OFFER PEER SUPPORT AND ENCOURAGEMENT. SOLICITATIONS OR RESEARCH PROJECTS ARE NOT CONDUCTED AT SUPPORT GROUP MEETINGS. SUPPORT GROUPS OFTEN FEATURE SPEAKERS SPECIALIZING IN SCLERODERMA OR RELATED TOPICS. ALL SUPPORT GROUPS ARE FREE OF CHARGE AND OPEN TO EVERYONE, INCLUDING PATIENTS, CAREGIVERS, FAMILY AND FRIENDS. 120260 29500 EDUCATION:IN 2023 THE SCLERODERMA FOUNDATION HOSTED AN ONLINE EDUCATION EVENT FOR PATIENTS, FAMILY MEMBERS AND CAREGIVERS WITH THE TOTAL NUMBER WHO BENEFITTED APPROXIMATELY 500.FOR MEDICAL PROFESSIONALS TO HELP THEM UNDERSTAND AND PROPERLY DIAGNOSIS SCLERODERMA EARLY, AND FOR PATIENTS TO HELP THEM AND COPE AND THRIVE WHILE LIVING WITH SCLERODERMA. RESEARCH:WE CONTINUE TO SEEK RESEARCH PROJECTS TO FUND TO FIND A CURE TO END SCLERODERMA. 240521 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 2 1 0 0 0 0 0 0 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X ANDREW EMMETT 4242276475 8929 S SEPULVEDA BLVD S 412 LOS ANGELES CA 90045 DR DAN FURST ACTING PRESIDENT 2.00 X X 0 0 0 DAVID PARKER SECRETARY 2.00 X X 0 0 0 LAURA FUHRMAN VICE PRESIDENT 2.00 X X 0 0 0 MARIA SALINAS TREASURER 2.00 X X 0 0 0 PEGGY HICKMAN PAST PRESIDENT 2.00 X X 0 0 0 CHRIS PETTIT VICE PRESIDENT 2.00 X X 0 0 0 ALINA AGENA DIRECTOR 1.00 X 0 0 0 JOEL CHERMAN DIRECTOR 1.00 X 0 0 0 CHRIS CORMAN DIRECTOR 1.00 X 0 0 0 STEPHEN ELROD DIRECTOR 1.00 X 0 0 0 SHARON FRIEDMAN DIRECTOR 1.00 X 0 0 0 SHERVIN GHANOONGOOI DIRECTOR 1.00 X 0 0 0 KRISTY KUBOTA DIRECTOR 1.00 X 0 0 0 SUSAN NYANZI DIRECTOR 1.00 X 0 0 0 MARTHA SOTO DIRECTOR 1.00 X 0 0 0 LES WOOD DIRECTOR 1.00 X 0 0 0 ANDREW EMMETT EXECUTIVE DIRECTOR 45.00 X 114019 0 7472 114019 0 7472 1 0 0 0 0 264280 76208 340488 12162 264280 77874 -65712 -65712 274776 0 0 -65712 29500 29500 121491 93665 17785 10041 65449 50458 9582 5409 4042 1936 2106 14939 5482 6579 2878 3393 3393 19423 5305 13378 740 27617 16386 3346 7885 31895 25392 6503 12761 11384 648 729 3413 3413 2978 1013 450 1515 336901 240521 55161 41219 347531 295597 8500 0 6750 500 2549 2766 365330 298863 7816 3474 6730 6730 14546 10204 X 350784 288659 350784 288659 365330 298863 -62125 0 X 0 0 0 X 440795 319091 422662 283435 340488 1806471 440795 319091 422662 283435 340488 1806471 220694 1585777 1806471 0.87780 0.90820 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 FUNDS RESTRICTED TO RESEARCH 6730 6730 VERTICAL CURE 45407 45407 5232 2177 GALA 218916 206754 12162 43219 25869 1 12119 12119 1210 167 276442 264280 12162 49661 28213 77874 -65712 0 FRIENDS OF WORLD SCLERODERMA FOUNDATION 49 ELMWOOD ROAD BOX 559 SWAMPSCOTT MA 01907 811305611 501C3 29500 0 FOR CONTINUING MEDICAL EDUCATION 1 FORM 990, PART VI, SECTION B, LINE 11B FORM 990 WILL BE DISTRIBUTED AND DISCUSSED WITH THE FINANCE COMMITTEE AND THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C EVERY YEAR BOARD MEMBERS SIGN A STATEMENT DISCLOSING WHETHER ANY CONFLICTS OF INTEREST EXIST. FORM 990, PART VI, SECTION B, LINE 15 COMMITTEE OF THE BOARD OF DIRECTORS REVIEWS COMPARATIVE SALARY DATA AND THE PERFORMANCE OF THE EMPLOYEE OF THE ORGANIZATION. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS AVAILABLE FOR PUBLIC INSPECTION UPON REQUEST.