2024-11-14T21:46:48-06:00 2023-12-31 990 2023-01-01 881920584 RORY BELLE FOUNDATION % RACHEL HEILMANN RORY 7204328087 8275 E 11TH AVE 200621 DENVER CO 80220 RACHEL HEILMANN PRESIDENT 7204328087 2024-11-14 false 2023 2024-10-15 13:58:12Z RACHEL HEILMANN 1543 IVANHOE STREET DENVER CO 80207 256743 false X www.therorybellefoundation.org X 2022 CO TO BRING ONE MORE DAY OF JOY TO KIDS AND FAMILIES BATTLING NARS1 DISEASE 6 6 0 25 0 60128 193766 0 3499 17485 60128 214750 0 0 0 0 4146 2160 5234 2160 5234 57968 209516 57968 267644 160 57968 267484 TO BRING ONE MORE DAY OF JOEY TO KIDS AND FAMILIES BATTLING NARS1 false false NARS1 GENETIC RESEARCH ACCOMPLISHMENTS: CONTINUED FUNDRAISING TO SUPPORT FUTURE GRANT PROGRAMS. ESTABLISHED A NETWORK OF SCIENTIFIC RESOURCES AND BEGAN COLLABORATION ON SEVERAL KEY INITIATIVES. FACILITATED PATIENT REGISTERY THROUGH OUTREACH TO NARS1 POPULATION. ESTABLISHED BIOREPOSITORY. NARS 1 DRUG REPURPOSING ACCOMPLISHMENTS: COLLABORATED WITH ACADEMIC INSTITUTION THAT COMPLETED INITIAL SCREENING ANALYSIS OF AVAILABLE COMPOUNDS. HELD FUNDRAISING EVENT TO SUPPORT FUTURE DRUG REPURPOSING STUDIES. 397 NARS1 RARE DISEASE AWARNESS ACCOMPLISHMENTS: BOARD MEMBERS ATTENDED SEVERAL CONFERENCES. RECEIVED GRANT TO FUND TRANSLATION SERVICES TO BETTER CONNECT WITH NON-ENGLISH SPEAKING PATIENT POPULATION. BEGAN SELLING FOUNDATION BRANDED MERCHANDISE. 397 true true false false false false false false false false false false false false false false false false false true true false false false true false false false false true false false false false false false false false false false false false false false false false false true 0 0 false 0 false false false false false false false false false false X 6 6 true false false false false false false true true false false true true true true false false false false false CO X X CHRISTOFFER B DECLERCQ 7634438595 6344 YUMA LN N MAPLE GROVE MN 55311 X RACHEL HEILMANN PRESIDENT 25.00 X 0 0 0 TERI DECLERCQ VICE PRESIDENT 10.00 X 0 0 0 CHRISTOFFER B DECLERCQ TREASURER 3.000 X 0 0 0 CATHERINE RIGGS DIR OF RESEARCH 5.000 X 0 0 0 SUSAN HOLSCLAW SECRETARY X 0 0 0 JUDY KJELSTAD DIR OF DEVELOPMENT X 0 0 0 ROSS MCCARTHY DIR OF PATIENT ENGAGE 3.000 X 0 0 0 LAUREN ANDERSON SECRETARY 3.000 X 0 0 0 true false false 58540 135226 21660 193766 3499 3499 54885 58040 38205 16680 16680 4593 3788 805 805 214750 20984 X 70 70 574 574 92 92 2813 314 2499 397 397 1288 215 1073 5234 397 691 4146 39251 16000 250607 18717 1000 25 12 57968 267644 160 0 160 X 57968 267484 57968 267484 57968 267644 209516 X false false false X X 60128 191895 252023 61348 61348 3499 3499 60128 256742 316870 15136 16511 31647 1000 22220 23220 16136 38731 54867 262003 60128 256742 316870 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false Europe 0 1 BOARD MEMBER, FUNDRAISING 1 1 false false false false false false GALA 109655 54770 54885 21660 1415 12740 1895 495 109655 54770 54885 21660 1415 12740 1895 495 38205 16680 false false false false false false false false false RACHEL HEILMANN PRESIDENT TERI DECLERCQ VICE PRESIDENT CHRISTOFFER B DECLERCQ TREASURER CATHERINE RIGGS DIR OF RESEARCH SUSAN HOLSCLAW SECRETARY JUDY KJELSTAD DIR OF DEVELOPMENT ROSS MCCARTHY DIR OF PATIENT ENGAGE LAUREN ANDERSON SECRETARY Part VI Line 2 TERI DECLERCQ AND CHRIS DECLERCQ ARE SPOUSES Part VI Line 2 TERI DECLERCQ IS JUDY KJELSTAD'S DAUGHTER Part VI Line 11b BOARD MEMBERS WERE FURNISHED A DRAFT COPY FOR REVIEW Part VI Line 11b PRIOR TO FILING FOR REVIEW AND COMMENT. Part VI Line 12c BOARD MEMBERS REVIEW THE COI POLICY ANNUALLY. POTENTIAL CONFLICTS Part VI Line 12c ARE DISCUSSED AND MONITORED DURING MONTHLY BOARD MEETINGS. Part VI Line 19 NO DOCUMENTS AVAILABLE TO THE PUBLIC Part IX Line 11g DONATION PROCESSING FEES Total expenses - $574.00 Program service expenses - $0.00 Mgmt and general expenses - $0.00 Fundraising expenses - $574.00 Part IX Line 24e FUNDRAISING EXPENSES Total expenses - $694.00 Program service expenses - $0.00 Mgmt and general expenses - $0.00 Fundraising expenses - $694.00 Part IX Line 24e VOLUNTEER APPRECIATION Total expenses - $379.00 Program service expenses - $0.00 Mgmt and general expenses - $0.00 Fundraising expenses - $379.00 Part IX Line 24e MEMBERSHIP DUES Total expenses - $199.00 Program service expenses - $0.00 Mgmt and general expenses - $199.00 Fundraising expenses - $0.00 Part IX Line 24e MISCELLANEOUS EXPENSE Total expenses - $16.00 Program service expenses - $0.00 Mgmt and general expenses - $16.00 Fundraising expenses - $0.00