2024-11-14T11:51:58-06:00 2023-12-31 251371209 CASE SABATINI & COMPANY 470 STREETS RUN ROAD PITTSBURGH PA 15236 990 2023-01-01 202529619 THE HEMOPHILIA ALLIANCE GROUP PURCHASING ORGANIZATION HEMO 2152799236 2655 ULMERTON RD 263 CLEARWATER FL 33762 JOSEPH N PUGLIESE PRESIDENT 2152799236 2024-11-13 1 0 DEBRA S PITSCHMAN P00556023 4128814411 2023 2024-10-15 13:58:12Z THE HEMOPHILIA ALLIANCE JEFF BLAKE 2655 ULMERTON RD 263 CLEARWATER FL 33762 9774069 0 X WWW.HEMOALLIANCE.ORG X 2005 MD THE HEMOPHILIA ALLIANCE WORKS TO ENSURE MEMBER HEMOPHILIA TREATMENT CENTERS HAVE THE EXPERTISE, RESOURCES AND PUBLIC SUPPORT TO SUSTAIN THEIR INTEGRATED CLINICAL AND PHARMACY SERVICES FOR INDIVIDUALS WITH BLEEDING AND CLOTTING DISORDERS. 15 15 11 0 0 0 678263 600719 8069115 8606264 151636 544066 29037 23020 8928051 9774069 2272430 3122497 0 0 2240611 2674830 0 0 0 1747703 2426820 6260744 8224147 2667307 1549922 21636521 10815535 12381516 10608 9255005 10804927 THE HEMOPHILIA ALLIANCE PROVIDES MEMBER HEMOPHILIA TREATMENT CENTERS WITH RESOURCES AND SERVICES TO SUSTAIN THE COMPREHENSIVE CARE MODEL FOR INDIVIDUALS WITH BLEEDING AND CLOTTING DISORDERS. 0 0 7575315 3122497 8629284 TO FACILITATE PURCHASING TERMS AND FAVORABLE PRICING FOR MEMBERS TO OBTAIN BLOOD CLOTTING FACTOR AND OTHER PRODUCTS USED TO TREAT INDIVIDUALS WITH HEMOPHILIA OR RELATED BLEEDING DISORDERS. COUNSELING CENTERS ON COMPLYING WITH STATE & FEDERAL LAW AND GRANT REQUIREMENTS, AIDING IN THE PRODUCTION OF EDUCATIONAL PIECES, PROMOTING THE VALUE OF THE COMPREHENSIVE CARE MODEL TO POLICY MAKERS, PATIENTS AND THIRD-PARTY PAYERS. 7575315 1 1 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 19 0 1 11 1 0 0 0 0 0 0 0 0 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 0 1 1 1 0 X JEFF BLAKE 2152799236 2655 ULMERTON ROAD CLEARWAER FL 33762 COLLEEN DRUZGAL DIRECTOR 1.00 X 0 0 0 ERIC GRAY CPA CHAIR 2.00 X X 0 0 0 MICHAEL SILVEY MD DIRECTOR 1.00 X 0 0 0 REGINA BUTLER RN-BC DIRECTOR 1.00 X 0 0 0 STACY CROTEAU DIRECTOR 1.00 X 0 0 0 STEVEN M POWELL MBA TREASURER 2.00 X X 0 0 0 LOUISE M BACA MSN RN DIRECTOR 1.00 X 0 0 0 MIGUEL A ESCOBAR MD DIRECTOR 1.00 X 0 0 0 REBECCA KRUSE-JARRES MD DIRECTOR 1.00 X 0 0 0 JOHN MYERS RPH MBA DIRECTOR 1.00 X 0 0 0 JUSTIN NELSON-DEERING MHA CPHT DIRECTOR 1.00 X 0 0 0 SACHIKO SUZUKI DIRECTOR 1.00 X 0 0 0 LAURIE REGER DIRECTOR 1.00 X 0 0 0 LEIGH CARPENTER DIRECTOR 1.00 X 0 0 0 BECKY BURNS VICE CHAIR 2.00 X 0 0 0 JEFFREY BLAKE SVP MEMBER & COMMUNITY RELATIONS 40.00 X 271387 0 35204 JOSEPH N PUGLIESE PRESIDENT 40.00 X 680267 0 52500 DEAN M HINDENLANG PHD SECRETARY 2.00 X 0 0 0 ZACK DUFFY DIRECTOR, MEMBER & COMMUNI 40.00 X 0 0 0 SEAN SINGH SVP MARKETING & OPERATIONS 40.00 X 265861 0 27984 JEFFREY A AMOND DIRECTOR, MEMBER & COMMUNI 40.00 X 168469 0 10108 MARK A PLENCNER DIRECTOR, MEMBER & COMMUNI 40.00 X 182369 0 17245 1568353 0 143041 5 0 1 0 KARAN LEGAL GROUP 1150 CONNECTICUT AVE SUITE 803 WASHINGTON DC 20036 PROFESSIONAL SERVICES 252900 ARTEMIS POLICY GROUP 1150 CONNECTICUT AVE SUITE 803 WASHINGTON DC 20036 PROFESSIONAL SERVICES 203224 2 600719 600719 ADMIN FEES 561499 8581264 8581264 WEBINAR 561499 25000 25000 8606264 544066 544066 MISC INCOME 561499 23020 23020 23020 9774069 8629284 0 544066 3122497 3122497 2072413 1865172 207241 168012 159610 8402 179001 170051 8950 108137 102730 5407 147267 139904 7363 366485 329836 36649 2925 2925 36000 36000 487886 487886 33314 10290 23024 48118 11631 36487 377810 235141 142669 860405 860405 23645 23645 PRINTING & REPRODUCTION 60574 14280 46294 COMMUNICATION 48000 48000 DUES & SUBSCRIPTIONS 36632 1825 34807 TELECOMMUNICATIONS 15775 5257 10518 29251 10800 18451 8224147 7575315 648832 0 259860 54090 21376661 10761445 21636521 10815535 12381516 10608 12381516 10608 X 9255005 10804927 9255005 10804927 21636521 10815535 1549922 0 X 0 0 0 X 495276 473999 518982 678263 600719 2767239 5409549 6198850 7015160 8217771 8629284 35470614 5904825 6672849 7534142 8896034 9230003 38237853 0 0 0 38237853 45799 11377 1833 151636 544066 754711 45799 11377 1833 151636 544066 754711 5950624 6684226 7535975 9047670 9774069 38992564 0.98060 0.99300 0.01940 0.00700 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 1 36000 0 0 36000 0 PART II-B, LINE 1, LOBBYING ACTIVITIES: ENGAGED LEGISLATIVE CONSULTANTS TO COORDINATE AND CONDUCT MEETING WITH LEGISLATORS REGARDING HEALTHCARE MATTER, 340B LEGISLATION PROPOSED AND TOPICS PERTINENT TO THE ORGANIZATION'S MISSION. 0 MANUFACTURER REBATES PAYABLE 10608 10608 1 AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK 67 RED ROCK CIRCLE ROCHESTER NY 14626 205244339 501(C)(3) 700000 0 ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS. HEMOPHILIA COUNCIL OF CALIFORNIA 717 K STREET 501 SACRAMENTO CA 95814 680182998 501(C)(3) 15000 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. HEMOPHILIA FEDERATION OF AMERICA INC 999 NORTH CAPITAL ST NE NO 201 WASHINGTON DC 20002 721282316 501(C)(3) 50000 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. INDIANA HEMOPHILIA & THROMBOSIS CENTER INC 8326 NAAB RD INDIANAPOLIS IN 46260 352047838 501(C)(3) 400000 0 SUPPORT FOR PARTNERS PHYSICIAN ACADEMY TO EDUCATE EARLY CAREER PHYSICIANS NATIONAL HEMOPHILIA FOUNDATION 7 PENN PLAZA SUITE 1204 NEW YORK NY 10012 135641857 501(C)(3) 818427 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. THE COALITION FOR HEMOPHILIA B INC 757 3RD AVENUE 20TH FLOOR NEW YORK NY 10017 133686549 501(C)(3) 26500 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. THE HEMOPHILIA ALLIANCE FOUNDATION 20 VINE STREET 1447 LANSDALE PA 19446 800902096 501(C)(3) 675000 0 SUPPORT FOR GRANTS AND OR GIFTS TO ORGANIZATIONS THAT ASSIST INDIVIDUALS IN MANAGING THEIR CARE OF BLEEDING AND CLOTTING DISORDERS. WORLD FEDERATION OF HEMOPHILIA 911 CENTRAL AVENUE ALBANY NY 12206 161513923 501(C)(3) 145000 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. NATIONAL AIDS MEMORIAL INC PO BOX 2270 SAN FRANCISCO CA 94126 824329012 501(C)(3) 10000 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. VERSITI INC 638 N 18TH STREET MILWAUKEE WI 53233 454675354 501(C)(3) 250000 0 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. PART I, LINE 2: THE BOARD OF DIRECTORS APPROVES A TOTAL GRANT BUDGET AND THEN DISSEMINATES THE INDIVIDUAL AWARDS GIVEN TO THE ORGANIZATIONS LISTED IN PART II OF SCHEDULE I. X X X X X X 0 1 0 0 0 0 0 1 0 JOSEPH N PUGLIESE PRESIDENT 442442 0 237825 0 0 0 52500 0 0 0 732767 0 0 0 JEFFREY BLAKE SVP MEMBER & COMMUNITY RELATIONS 237698 0 33689 0 0 0 30000 0 5204 0 306591 0 0 0 SEAN SINGH SVP MARKETING & OPERATIONS 232628 0 33233 0 0 0 21269 0 6715 0 293845 0 0 0 MARK A PLENCNER DIRECTOR, MEMBER & COMMUNI 162106 0 20263 0 0 0 10942 0 6303 0 199614 0 0 0 JEFFREY A AMOND DIRECTOR, MEMBER & COMMUNI 147584 0 20885 0 0 0 10108 0 0 0 178577 0 0 0 ZACK DUFFY DIRECTOR, MEMBER & COMMUNI 0 0 0 0 0 0 0 0 0 0 0 0 PART I, LINE 4B THE EMPLOYEES LISTED IN SCHEDULE J, PART II ARE ELIGIBLE TO PARTICIPATE IN AN INCENTIVE COMPENSATION PLAN. THE SENIOR OFFICERS' PARTICIPATION IN THE PLAN WAS DEVELOPED IN CONJUNCTION WITH AN INDEPENDENT COMPENSATION CONSULTANT. IN ADDITION, THE INDEPENDENT COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS ADOPTED THE PLAN FRAMEWORK AND INCENTIVE TARGETS IN CONSIDERATION AND APPLIED THE PROVISIONS OF CODE SECTION 4958 AND THE CORRESPONDING TREASURY REGULATIONS TO ENSURE THAT ITS COMPENSATION DECISIONS REFLECT ARMS' LENGTH FAIR MARKET RETURNS. FORM 990, PART VI, SECTION A, LINE 8B MEETINGS ARE DOCUMENTED AT THE GOVERNING BODY LEVEL. THAT IS THE ONLY BODY WITH AUTHORITY TO ACT OF BEHALF OF THE ALLIANCE. FORM 990, PART VI, SECTION B, LINE 11B A PDF COPY IS PROVIDED ELECTRONICALLY VIA E-MAIL TO THE ORGANIZATION. THE PDF COPY IS REVIEWED BY THE FINANCE COMMITTEE FOR ANY MODIFICATIONS AND THEN DISTRIBUTED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND FEEDBACK PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C REGULAR REVIEW THROUGH MONTHLY BOARD MEETINGS AND PEER REVIEW. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION HAS ADOPTED AN EXECUTIVE COMPENSATION & INTERMEDIATE SANCTIONS POLICY THAT APPLIES TO ITS OFFICERS. THE PURPOSE OF THE POLICY IS TO ENSURE THAT ITS COMPENSATION ARRANGEMENTS WITH RELATED PARTIES ARE EVALUATED AND ENTERED INTO AT ARMS' LENGTH AND ANY COMPENSATION THAT IS PAID TO A RELATED PARTY IS REASONABLE AND REFLECTS FAIR MARKET VALUE. THE POLICY ENCOURAGES THE APPLICATION OF THE REBUTTABLE PRESUMPTION STANDARD OF CODE SECTION 4958 AND THE RELATED TREASURY REGULATIONS BY (A) EXCLUDING ANY INTERESTED PARTY FROM THE DECISION-MAKING PROCESS; (B) REQUIRING DISINTERESTED BOARD OR COMMITTEE MEMBERS TO OBTAIN AND RELY UPON COMPARABILITIY DATA WHEN SETTING THE PROPOSED COMPENSATION TERMS; (C) REQUIRING APPROVAL OF THE TRANSACTION IN ADVANCE BY DISINTERESTED DIRECTORS OR COMMITTEE MEMBERS; AND (D) REQUIRING CONTEMPORANEOUS DOCUMENTATION (I.E., MINUTES) REFLECTING THE DECISION AND THE PROCESS BY WHICH IT WAS MADE. THE ORGANIZATION RETAINED A COMPENSATION CONSULTANT TO CONDUCT A STUDY AND PROVIDE COMPARATIVE SALARY MARKET DATA FOR THE CONSIDERATION OF ITS EXECUTIVE COMMITTEE CONSISTING OF INDEPENDENT DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 INFORMATION PROVIDED TO PUBLIC UPON REQUEST. HEMOPHILIA ALLIANCE NETWORK SERVICES LLC 2655 ULMERTON ROAD 216 CLEARWATER FL 33762 320519019 PROVIDE RESOURCES AND SUPPORT TO MEMBER TREATMENT CENTERS FL