2024-11-14T14:50:40-06:00 2023-12-31 Baker Tilly Advisory Group LP THREE LAGOON DR STE 400 REDWOOD CITY CA 94065 990 2023-01-01 473975911 LYME DISEASE BIOBANK FOUNDATION % LIZ HORN LYME 5038634494 5457 SW SHATTUCK RD PORTLAND OR 97221 liz horn president 5038634494 2024-11-15 true true Debra K McCall P00998198 6503654646 2024-11-15 2023 2024-10-15 13:58:12Z liz horn 5457 SW SHATTUCK RD PORTLAND OR 97221 829117 false X www.lymebiobank.org X 2015 DE TO ADVANCE KNOWLEDGE AND FACILITATE RESEARCH OF THE PATHOGENESIS, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. 3 1 0 0 0 0 955198 813619 59701 15498 0 0 0 0 1014899 829117 0 0 0 0 183983 164135 0 0 0 772590 565087 956573 729222 58326 99895 87022 77403 172605 63091 -85583 14312 X TO ADVANCE KNOWLEDGE AND FACILITATE RESEARCH OF THE PATHOGENESIS, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. false false 714865 15498 The Lyme Disease Biobank, sponsored by Bay Area Lyme Foundation, collects and characterize vital blood, urine and tissue samples for researchers. By collecting blood and urine from untreated patients with early-stage Lyme disease and patients with chronic disease as well as tissue samples from late-stage Lyme patients, this important program will help dramatically improve research efforts to accelerate medical breakthroughs in the understanding, diagnosis and treatment of Lyme disease and other tick-borne infections. The Lyme Disease Biobank is a collection of human biological samples that facilitates research of Lyme disease and other tick-borne infections. Currently, there are 97 research projects relying on Biobank samples. These projects are helping to pave the way for new diagnostics and therapeutics, as well as making strides to improve our understanding of Lyme and other tick-borne diseases and co-infections. The Lyme Disease Biobank is working with collection sites throughout the country. Through the end of 2023, more than 19,500 samples were shipped to researchers. We collected samples from 74 participants in 2023 bringing our total to 1,258 participants. Our persistent Lyme cohort now includes 150 participants. Additionally, Lyme Disease Biobank collaborates with the National Disease Research Interchange (NDRI) for the collection of surgical and post-mortem tissue samples, and partners with MyLymeData.org, a project of LymeDisease.org, to pair samples with clinical information that can further enhance research. In 2023, tissue was collected from 5 donors: 3 post-mortem donors and 2 surgeries. Since 2019, tissue has been collected from 15 post-mortem donors and 13 surgical donors. 714865 true true false false false false false false false false false false false false false true false true false false false false false false false false false false false true false false false false false false false false false false false false false true false false false true 2 0 true 0 false false false false false false false false false false false false X 3 1 false false false false false false false true true false false true true true true true true false false false OR X LIZ HORN 5038634494 5457 SW SHATTUCK ROAD PORTLAND OR 97221 LINDA GIAMPA Director 3.0 37.0 X 0 249150 9897 WENDY ADAMS DIRECTOR, TREASURER 13.4 9.32 X X 0 192000 0 LIZ HORN PRESIDENT 17.4 0.0 X 166728 0 0 BONNIE CRATER DIRECTOR, SECRETARY 0.08 2.26 X X 0 0 0 166728 441150 9897 1 false true false LIZ HORN CONSULTING LLC 5457 SW SHATTUCK RD PORTLAND OR 97221 CONSULTING 166728 1 813495 124 813619 BIOREPOSITORY SAMPLE FEE 541700 15498 15498 15498 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 829117 15498 0 0 0 0 0 0 164135 164135 0 0 0 0 0 0 1723 1723 0 0 0 0 0 3400 3400 0 0 0 0 2331 2331 0 0 0 0 0 10624 10624 RESEARCH EXPENSES 540599 540599 PARTICIPANT STIPEND 4400 4400 OTHER OPERATING EXPENSES 2010 2010 729222 714865 14357 0 59072 63785 0 0 0 0 27950 13618 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 87022 77403 172605 63091 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 172605 63091 X -85583 14312 0 0 -85583 14312 87022 77403 99895 X false true X true false X X X 1 BAY AREA LYME FOUNDATION 453715012 7 true 714865 0 1 714865 true false false false false false false false false false false false false false false true false RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 X SCH D PART X, LINE 2 U.S. GAAP REQUIRES THE ORGANIZATION TO EVALUATE TAX POSITIONS TAKEN AND RECOGNIZE A TAX LIABILITY IF THE ORGANIZATION HAS TAKEN AN UNCERTAIN TAX POSITION THAT MORE LIKELY THAN NOT BE SUSTAINED UPON EXAMINATION. THE ORGANIZATION HAS REVIEWED ITS TAX POSITIONS FOR ALL OPEN TAX YEARS AND BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR THE TAX POSITIONS TAKEN. THEREFORE, NO ADDITIONAL LIABILITY IS REQUIRED TO BE RECORDED. X X false false false false false false false false false LINDA GIAMPA Director 0 211150 38000 0 0 9897 0 259047 0 WENDY ADAMS DIRECTOR, TREASURER 0 192000 0 0 0 0 0 192000 0 LIZ HORN PRESIDENT 166728 166728 FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THIS FORM 990 IS PROVIDED TO ALL DIRECTORS OF THE ORGANIZATION PRIOR TO FILING. THE AUDIT CHAIR AND/OR TREASURER, WHO HAVE BEEN CHARGED WITH THE RESPONSIBILITY OF REVIEWING AND APPROVING THE FORM 990 ON BEHALF OF THE DIRECTORS, REVIEW AND APPROVE THE FORM 990 PRIOR TO IT BEING FILED. IN ADDITION, THE AUDIT CHAIR AND/OR TREASURER OF THE ORGANIZATION REVIEWS THE COMPLETED FORM 990 AND FOLLOWS UP WITH THE TAX RETURN PREPARATION FIRM TO ANSWER ANY QUESTIONS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY. THE WRITTEN CONFLICT OF INTEREST POLICY IS UPDATED AND PROVIDED TO THE OFFICERS AND DIRECTORS ON AN ANNUAL BASIS. ANY CONFLICTS ON INTEREST IDENTIFIED ARE REVIEWED AND APPROPRIATE ACTIONS ARE TAKEN TO ENSURE COMPLIANCE WITH APPLICABLE LAWS AND REGULATIONS. APPROPRIATE ACTIONS ARE TAKEN TO ENSURE COMPLIANCE WITH APPLICABLE LAWS AND REGULATIONS. FORM 990, PART VI, SECTION B, LINE 15A TO DETERMINE THE COMPENSATION FOR THE PRESIDENT, BOARD AND ADVISORS SOUGHT OUT COMPARABLE INDUSTRY DATA AND DISCUSSED IT. THE PRESIDENT'S COMPENSATION WAS APPROVED BY THE BOARD AND THE APPROVAL WAS DOCUMENTED IN MEETING MINUTES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S AUDITED FINANCIAL STATEMENTS, GOVERNING DOCUMENTS AND FORM 990 ARE MADE AVAILABLE UPON REQUEST. FORM 990, PART VII, SECTION A, LINE 4 LIZ HORN'S REPORTABLE COMPENSATION REPRESENTS AMOUNTS PAID TO HER BUSINESS, LIZ HORN CONSULTING LLC. BAY AREA LYME FOUNDATION 884 PORTOLA RD PORTOLA VALLEY CA 94028 453715012 SEE PART VII CA 501(C)(3) 170(B)(1) NA false BAY AREA LYME MAJOR GIFT FUND 884 PORTOLA RD PORTOLA VALLEY CA 94028 463312992 SEE PART VII CA 501(C)(3) 11A TYPE I SEE PT VII false false false true false false false false false false false false false true false false false false false false na PART II LINE 1B BAY AREA LYME FOUNDATION IS A RELATED TAX EXEMPT ORGANIZATION OF THE ENTITY THAT IS PRIMARILY IN LYME DISEASE RESEARCH; PROMOTING OUTREACH AND AWARENESS. IT IS A 501(C)(3) ORGANIZATION WITH 170(B)(1)(A) PUBLIC CHARITY STATUS. PART II LINE 2B BAY AREA LYME MAJOR GIFT FUND'S PRIMARY PURPOSE IS TO SUPPORT THE CHARITABLE ACTIVITIES OF CERTAIN SUPPORTED ORGANIZATIONS WHOSE PURPOSES OR ACTIVITIES INCLUDE THE PREVENTION, CARE, TREATMENT, AND INCREASED PUBLIC AWARENESS OF LYME DISEASE OR OTHER TICK-BORNE DISEASES. SUCH PUBLICLY SUPPORTED ORGANIZATIONS SHALL INCLUDE, BUT NOT BE LIMITED TO, BAY AREA LYME FOUNDATION, A CALIFORNIA NON-PROFIT PUBLIC BENEFIT CORPORATION PART II LINE 2F BAY AREA LYME FOUNDATION