2024-11-08T22:18:30-06:00 2023-12-31 912011386 JACOBSON JARVIS & CO PLLC 200 1ST AVE W SUITE 200 SEATTLE WA 98119 990 2023-01-01 916068857 THE BLEEDING DISORDER FOUNDATION OF WASHINGTON BLEE 2065331660 20126 BALLINGER WAY NE 165 SHORELINE WA 98155 ALLISON YENA VICE PRESIDENT 2065331660 2024-10-24 1 0 HOWARD DONKIN CPA P00147726 2066288990 2024-10-24 2023 2024-10-15 13:58:12Z STEPHANIE SIMPSON 20126 BALLINGER WAY NE 165 SHORELINE WA 98155 376812 0 X WWW.BDFWA.ORG X 1989 WA THE BLEEDING DISORDER FOUNDATION OF WASHINGTON MISSION: THE BDFW SERVES AND EDUCATES THE BLEEDING DISORDER COMMUNITY AND ADVOCATES FOR ACCESS TO CARE FOR THOSE WITH RARE DISEASES. 7 7 4 22 0 0 493281 373421 0 1353 42 2038 0 0 493323 376812 1000 0 0 0 296972 373972 0 0 49354 208667 196691 506639 570663 -13316 -193851 603485 413904 11311 15581 592174 398323 X THE BLEEDING DISORDER FOUNDATION OF WASHINGTON MISSION: THE BDFW SERVES AND EDUCATES THE BLEEDING DISORDER COMMUNITY AND ADVOCATES FOR ACCESS TO CARE FOR THOSE WITH RARE DISEASES. 0 0 225875 1353 EDUCATE THOSE LIVING WITH BLEEDING DISORDERS AND HOW TO MANAGE THEIR COMPLICATED HEALTHCARE CONDITION OF BLEEDING DISORDER. BLEEDING DISORDERS ARE LIFELONG CONDITIONS THAT REQUIRE EDUCATION AT EACH STAGE OF LIFE. WITH ADVANCEMENTS IN SCIENCE THE BDFW HAS HAD TO REVAMP AND UPDATE ALL OUR EDUCATE MATERIAL TO MEET THE NEEDS OF THE COMMUNITY. THIS IS CREATING EDUCATION FOR EACH SUBSET OF AGE AND GENDER WHILE MAKING SURE IT IS CULTURALLY AND SOCIOECONOMICALLY APPROPRIATE. DUE TO THE COST OF BLEEDING DISORDERS THIS EDUCATION ALSO INCLUDES HOW TO MANAGE OUR HEALTH CARE AND INSURANCE NAVIGATION. WITH MEDICATION FOR SEVERE HEMOPHILIA COSTING $1 MILLION PER YEAR THE NEED FOR UNDERSTANDING HEALTH INSURANCE IS CRITICAL TO ACCESSING LIFESAVING MEDICATION AND CARE. THIS PROGRAM DIRECTLY SERVES OVER 500 DIRECT IN PERSON EDUCATION ENCOUNTERS AND PROVIDES ONLINE EDUCATION TO BE ACCESSED BY OVER 70,000 LIVING WITH BLEEDING DISORDER IN WASHINGTON STATE. 147000 PATIENT ASSISTANCE HAS BEEN A GROWING AREA OF SUPPORT PROVIDED BY THE BDFW TO SERVE THOSE LIVING WITH BLEEDING DISORDERS DIRECTLY. THESE DIRECT SERVICES PROGRAMS WERE EXPANDED DURING COVID BUT HAVE BEEN MAINTAINED SINCE DUE TO THE NEED. THESE SERVICES PROVIDE MEDICAL ID BRACELETS TO OVER 250 CHILDREN PER YEAR, BACK-TO-SCHOOL SUPPLIES, WINTER CLOTHES, AND SHOES FOR SAFE PLAY TO REDUCE BLEEDING EPISODES. THESE SERVICES ALSO INCLUDE GAP FOOD SUPPORT, TRANSPORTATION TO MEDICAL VISITS PERTAINING TO THEIR BLEEDING DISORDER, LODGING FOR DOCTOR VISITS AND HOSPITAL STAYS, AND SUPPORTIVE DEVICES NOT COVERED BY INSURANCE. BLEEDING DISORDERS HAVE A LARGE PERCENTAGE OF PATIENTS ON MEDICAID AND MEDICARE DUE TO THE COST OF THE CARE CREATING DECADES OF INSTITUTIONAL POVERTY. DIRECT PATIENT ASSISTANCE IS CRITICAL FOR PATIENTS TO MANAGE THEIR CONDITION. 80959 ACCESS TO CARE ADVOCACY AND EMPOWERMENT SERVICES FOCUS ON NAVIGATION OF INSURANCE, EDUCATION ON INSURANCE, AND ACCESS TO COVERAGE OF BLEEDING DISORDER TREATMENT ON PUBLIC AND PRIVATE INSURANCE PLANS. HEMOPHILIA IS A BLEEDING DISORDER, THAT HAS SOME OF THE MOST EXPENSIVE TREATMENTS IN THE COUNTRY. THE BDFW ADVOCATES FOR ACCESS TO THESE TREATMENTS AND ALL TREATMENTS FOR RARE DISEASES THROUGH THIS PROGRAM. WE WORK WITH BLEEDING DISORDERS AND RARE DISEASE PATIENTS ON HOW TO ADVOCATE FOR THEMSELVES WITH ELECTED OFFICIALS, EMPLOYERS, SCHOOL, AND MEDICAL PROVIDERS. 453834 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 0 1 4 1 0 0 0 0 0 0 0 0 0 0 0 0 X 7 7 0 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 WA X STEPHANIE SIMPSON 2065331660 20126 BALLINGER WAY NE 165 SHORELINE WA 98155 KATIE DAWDY PRESIDENT 2.00 X X 0 0 0 ALLISON YENA PRESIDENT 2.00 X X 0 0 0 CHYNA LOCKHART VICE PRESIDENT 1.00 X X 0 0 0 CHRIS BUCHOLZ TREASURER 1.00 X X 0 0 0 ALLIE RITCHEY BOARD MEMBER 1.00 X 0 0 0 GAUTHAM MUDAMBI BOARD MEMBER 1.00 X 0 0 0 LAYNEE NEWKIRK BOARD MEMBER 1.00 X 0 0 0 JOSEPH LIBERMAN BOARD MEMBER 1.00 X 0 0 0 STEPHANIE SIMPSON EXECUTIVE DIRECTOR 40.00 X 130000 0 6000 130000 0 6000 1 0 0 0 0 373421 373421 SERVICES 900099 1353 1353 1353 2038 2038 376812 1353 0 2038 136767 95767 27413 13587 187696 135379 26295 26022 22612 15470 4397 2745 26897 21889 2504 2504 327 327 1269 1269 23265 23265 22830 22830 3198 2558 320 320 8974 7477 748 749 19294 15410 1942 1942 8410 6728 841 841 20295 20295 6437 5149 644 644 PATIENT SUPPORT SERVICE 44350 44350 PATIENT EDUCATION 36940 36940 1102 1102 570663 453834 67475 49354 420316 85881 34718 187002 134000 126570 4451 4451 10000 10000 603485 413904 11311 15581 11311 15581 X 539227 345376 52947 52947 592174 398323 603485 413904 -193851 0 X 0 0 0 X 520480 505422 441814 493281 373421 2334418 520480 505422 441814 493281 373421 2334418 853382 1481036 167 241 125 42 2038 2613 9000 47000 1000 57000 1073 1073 2395104 28065 0.61840 0.65600 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 23265 0 0 23265 0 PART II-B, LINE 1: THE FOUNDATION'S LOBBYIST WORKS WITH LEGISLATURE TO INFLUENCE POLICY THAT IMPACTS HEALTHCARE ACCESS FOR PATIENTS WITH RARE AND CHRONIC BLEEDING DISORDER DISEASE. FORM 990, PART VI, SECTION A, LINE 6 THE MEMBERS ELECT THE GOVERNING BOARD AND ARE GIVEN THE OPPORTUNITY TO APPROVE AND PROVIDE FEEDBACK ON MAJOR DECISIONS INCLUDING NEW MEMBERS, THE EXECUTIVE TEAM, AND THE ANNUAL REPORT. FORM 990, PART VI, SECTION A, LINE 7A MEMBERS AT LARGE VOTE TO APPROVE BOARD MEMBERS. FORM 990, PART VI, SECTION A, LINE 7B EACH MEMBER SHALL BE ENTITLED TO ONE VOTE UPON EACH ISSUE SUBMITTED TO THE MEMBERS BY THE BOARD. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD PRESIDENT REVIEWS THE FORM 990, FOLLOWED BY A REVIEW BY THE FULL BOARD. FORM 990, PART VI, SECTION B, LINE 12C ASKS AND PAYS ATTENTION TO SOCIAL MEDIA AND EMPLOYMENT. FORM 990, PART VI, SECTION B, LINE 15 EVALUATE THE MARKET OF SALARIES FOR EMPLOYEES IN WASHINGTON STATE WITH THE EXPEREINCE OF STAFF. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.