2024-09-25T09:31:19-05:00 2023-12-31 210658561 BOWMAN & COMPANY LLP 601 WHITE HORSE ROAD VOORHEES NJ 080432493 990 2023-01-01 222827069 HISTIOCYTOSIS ASSOCIATION INC HIST 8565896606 332 NORTH BROADWAY PITMAN NJ 08071 DEANNA FOURNIER EXECUTIVE DIRECTOR 8565896606 2024-09-25 1 1 GLEN J WALTON P01081348 8564356200 2024-09-25 2023 2024-08-08 14:25:15Z DEANNA FOURNIER 332 N BROADWAY PITMAN NJ 08071 3193384 0 X WWW.HISTIO.ORG X 1986 NJ HISTIOCYTOSIS ASSOCIATION, INC. IS DEDICATED TO RAISING AWARENESS ABOUT HISTIOCYTIC DISORDERS, PROVIDING EDUCATION AND EMOTIONAL SUPPORT, AND FUNDING RESEARCH LEADING TO BETTER TREATMENTS AND A CURE. 9 9 8 125 0 0 972775 1145992 0 50580 14518 34033 426 429 987719 1231034 210558 234600 0 0 433577 510343 0 0 89913 407512 434051 1051647 1178994 -63928 52040 2126177 2438347 141675 328625 1984502 2109722 HISTIOCYTOSIS ASSOCIATION, INC. IS DEDICATED TO RAISING AWARENESS ABOUT HISTIOCYTIC DISORDERS, PROVIDING EDUCATION AND EMOTIONAL SUPPORT, AND FUNDING RESEARCH LEADING TO BETTER TREATMENTS AND A CURE. 0 0 463803 234600 53047 EDUCATION AND OUTREACH: THE HISTIOCYTOSIS ASSOCIATION PROVIDES EDUCATIONAL INFORMATION AND OPPORTUNITIES TO PATIENTS AND THEIR FAMILIES AS WELL AS TO THE MEDICAL COMMUNITY THROUGH OUR ONLINE PRESENCE AT WWW.HISTIO.ORG, EDUCATIONAL VIDEOS, PRINTED MATERIALS AND ECOMMUNICATIONS. WE PROVIDE EMOTIONAL SUPPORT WITH OUR CIRCLE OF FRIENDS PROGRAM, SOCIAL MEDIA ACTIVITY, TELEPHONE-BASED HELPLINE AND HISTIO WARRIORS DIRECTORY WHICH CONNECTS PATIENTS AND FAMILIES IN A PRIVATE AND SECURE SETTING. THROUGH OUR PHYSICIAN DIRECTORY, PATIENTS AND DOCTORS ALIKE CAN FIND EXPERIENCED PHYSICIANS IN THEIR AREA. WE ADVOCATE FOR PATIENTS WITH HISTIOCYTIC DISORDERS THROUGHOUT THE YEAR, PARTICULARLY DURING SEPTEMBER HISTIOCYTOSIS AWARENESS MONTH, TO RAISE FUNDS AND AWARENESS ABOUT THESE RARE DISORDERS. 568049 RESEARCH INITIATIVES: WE FUND THE VERY BEST BASIC SCIENCE RESEARCH BEING CONDUCTED WORLDWIDE AS IDENTIFIED THROUGH A COMPETITIVE EVALUATION PROCESS; THE RESULTS OF THIS FUNDING CONTINUE TO PAVE THE PATH TO A CURE. WE FUND CLINICAL STUDIES THAT RESULT IN IDENTIFYING THE BEST POSSIBLE TREATMENTS FOR HISTIOCYTIC DISORDERS; THIS PROVIDES IMMEDIATE AID TO PATIENTS BATTLING THESE DISEASES. AND WE DIRECTLY FACILITATE RESEARCH BY MANAGING THE HISTIOCYTE SOCIETY, THE ONLY PROFESSIONAL MEDICAL ORGANIZATION SPECIFICALLY DEDICATED TO THE RESEARCH AND TREATMENT OF HISTIOCYTIC DISORDERS; THIS UNIQUE RELATIONSHIP PROVIDES US WITH UNPARALLELED ACCESS TO THE LATEST ADVANCEMENTS AND INFORMATION IN THE SCIENTIFIC COMMUNITY, FROM WHICH ALL PATIENTS CAN BENEFIT. 1031852 1 1 0 0 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 1 8 1 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 NJ X X X THE ORGANIZATION 8565896606 332 N BROADWAY PITMAN NJ 08071 X BRADLEY COMP BOARD MEMBER 1.00 X 0 0 0 ELI DIAMOND MD BOARD MEMBER 1.00 X 0 0 0 JAMES HASSAN ESQ BOARD MEMBER 1.00 X 0 0 0 STEPHAN LADISCH MD BOARD MEMBER 1.00 X 0 0 0 CHAD RUBIN BOARD MEMBER 1.00 X 0 0 0 CHRISTINE SHIPLEY BOARD MEMBER 1.00 X 0 0 0 TRACY BROWN CHAIRWOMAN 1.00 X 0 0 0 ROBERT LIST TREASURER 1.00 X 0 0 0 KIMO STINE MD SECRETARY 1.00 X 0 0 0 DEANNA FOURNIER EXECUTIVE DIRECTOR 40.00 X 92977 0 12767 92977 0 12767 0 0 1 0 0 805669 98000 242323 1145992 SUPPORT SERVICES 900099 50580 50580 50580 31995 31995 1964388 1962350 2038 2038 2038 0 805669 0 0 MISCELLANEOUS 900099 429 429 429 1231034 53047 0 31995 226000 226000 8600 8600 459564 413606 27575 18383 12964 12186 389 389 37815 34033 2269 1513 4488 4488 33473 22079 8058 3336 9189 6892 2297 56079 44863 11216 15048 11286 752 3010 102277 93947 4596 3734 EVENT SUPPORT 132246 85295 6613 40338 DUES AND SUBSCRIPTIONS 13424 10739 671 2014 PAYROLL EXPENSE 9201 8281 552 368 MAINTENANCE AND REPAIRS 9089 8998 91 0 49537 45047 1175 3315 1178994 1031852 57229 89913 166169 1184882 1269140 524473 18157 24882 13529 10670 559521 269179 298847 290342 360335 403098 2126177 2438347 141525 278625 150 50000 141675 328625 X 1778805 1926843 205697 182879 1984502 2109722 2126177 2438347 52040 73180 0 X X 0 1 X 1 0 X 1259803 751966 1338576 972775 1145993 5469113 50580 50580 1259803 751966 1338576 972775 1196573 5519693 0 0 0 5519693 29856 11739 32160 14518 29544 117817 29856 11739 32160 14518 29544 117817 15470 476 45769 426 429 62570 1305129 764181 1416505 987719 1226546 5700080 0.96840 0.96710 0.02070 0.01900 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 151500 151500 151500 151500 151500 151500 151500 151500 151500 151500 0 0 136418 136418 326987 173063 153924 96116 96116 0 290342 X 1299726 73180 73180 1226546 4488 4488 1231034 1174506 0 1174506 4488 4488 1178994 PART X, LINE 2: HISTIOCYTOSIS ASSOCIATION, INC. IS A NOT-FOR-PROFIT ASSOCIATION EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3). ACCORDINGLY THE ASSOCIATION DOES NOT RECORD A PROVISION FOR INCOME TAXES ON RELATED INCOME. THE ORGANIZATION REGULARLY REVIEWS AND EVALUATES ITS TAX POSITIONS TAKEN IN PREVIOUSLY FILED INFORMATION RETURNS AND AS REFLECTED IN ITS FINANCIAL STATEMENTS, WITH REGARD TO ISSUES AFFECTING ITS TAX EXEMPT STATUS, UNRELATED BUSINESS INCOME, AND RELATED MATTERS. THE ORGANIZATION BELIEVES THAT IN THE EVENT OF AN EXAMINATION BY TAXING AUTHORITIES, THE ORGANIZATION'S POSITION WOULD PREVAIL BASED UPON THE TECHNICAL MERITS OF SUCH POSITIONS. THEREFORE, THE ORGANIZATION HAS CONCLUDED THAT NO TAX BENEFITS OR LIABILITIES ARE REQUIRED TO BE RECOGNIZED IN ACCORDANCE WITH THE NEW REQUIREMENTS. NY DINNER 458210 458210 0 0 0 0 0 YEAR END GIVING 128533 128533 0 0 0 20 218926 218926 0 805669 805669 0 UNIVERSITY OF CALIFORNIA SAN DIEGO 2880 TORREY PINES SCENIC DRIVE LA JOLLA CA 92037 51000 0 MEDICAL RESEARCH UNIVERSITY OF ALABAMA BIRMINGHAM 1720 2ND AVENUE SOUTH AB 1170 BIRMINGHAM AL 352940111 636005396 50000 0 MEDICAL RESEARCH CINNCINATI CHILDREN'S HOSPITAL 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 10000 0 MEDICAL RESEARCH CCRI ST ANNA KINDERKREBSFORSCHUNG 15000 0 MEDICAL RESEARCH SCHNEIDER CHILDREN'S MEDICAL CENTER SCHNEIDERS CHILDRENS MEDICAL CENTER 14 KAPLAN ST PETACH TIKVA IS 4920235 50000 0 MEDICAL RESEARCH THE OHIO STATE UNIVERSITY PO BOX 772398 DETROIT MI 482772398 50000 0 MEDICAL RESEARCH SCHOLARSHIP 12 8600 0 0 0 0 0 0 0 0 0 DEANNA FOURNIER EXECUTIVE DIRECTOR 92977 0 0 0 0 0 0 0 12767 0 105744 0 2789 0 FORM 990, PART VI, SECTION B, LINE 11B THE BOARD OF TRUSTEES ARE GIVEN A COPY OF THE 990 PRIOR TO FILING FORM 990, PART VI, SECTION B, LINE 12C THE ASSOCIATION REQUIRES THEIR TRUSTEES TO DISCLOSE ANY KNOWN FINANCIAL INTEREST THAT THE INDIVIDUAL, OR A MEMBER OF THE INDIVIDUAL'S FAMILY, HAS IN ANY BUSINESS ENTITY THAT TRANSACTS BUSINESS WITH THE ASSOCIATION. THIS DISCLOSURE IS REQUESTED AT THE ANNUAL BOARD OF TRUSTEES MEETING, USUALLY HELD IN MAY OR JUNE. FORM 990, PART VI, SECTION B, LINE 15 APPROVED AND REVIEWED BY BOARD OF TRUSTEES FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE AVAILABLE ON THE ASSOCIATION'S WEBSITE FORM 990, PART XII LINE 2C THE PROCESS HAS NOT CHANGED FROM YEAR TO YEAR