2024-09-04T08:15:56-05:00 2023-12-31 260794367 UHY ADVISORS MID-ATLANTIC INC 8601 ROBERT FULTON DRIVE SUITE 210 COLUMBIA MD 21046 990 2023-01-01 521336903 APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC APLA 3012797202 401 N WASHINGTON ST 430 ROCKVILLE MD 20850 BRAD A WONG CEO 3012797202 2024-09-04 1 1 X KATSIARYNA VASILIEV P02167272 4107205220 2024-09-04 2023 2024-08-08 14:25:15Z X BRAD A WONG 401 N WASHINGTON ST 430 ROCKVILLE MD 20850 3960682 0 X WWW.AAMDS.ORG X 1983 MD TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE. 16 16 10 150 0 0 3184514 3336920 0 0 36311 122445 -11840 -42407 3208985 3416958 172073 169026 0 0 1022700 1079967 0 0 229790 1364423 1237233 2559196 2486226 649789 930732 5783336 7229650 352156 735525 5431180 6494125 TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE. 0 0 2025660 169026 PROVIDED PATIENT EDUCATION MATERIALS AND PROGRAMS REGARDING DIAGNOSIS, TREATMENT AND LIVING WITH BONE MARROW FAILURE DISEASES; PROVIDED PEER SUPPORT THROUGH A NETWORK OF VOLUNTEERS; BUILD AWARENESS AND KNOWLEDGE OF BONE MARROW FAILURE DISEASES AMONG HEALTH PROFESSIONALS AND THE PUBLIC; RAISED PUBLIC AND PRIVATE SUPPORT TO FUND RESEARCH TO IMPROVE PATIENT TREATMENT AND FIND A CURE FOR BONE MARROW FAILURE DISEASES. 2025660 1 1 0 0 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 30 0 1 10 1 0 0 0 0 0 0 0 0 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CA IL MD MI NJ NY PA VA X X LU HAN 3012797202 401 N WASHINGTON ST SUITE 430 ROCKVILLE MD 20850 DEBORAH COOK CHAIR 2.00 X X 0 0 0 JUDY PAULETTE VICE-CHAIR 1.00 X X 0 0 0 CHRIS MILLS SECRETARY 1.00 X X 0 0 0 REBECCA DOANE TREASURER 1.00 X X 0 0 0 MARLENA CONNOR DIRECTOR 1.00 X 0 0 0 BART S FISHER DIRECTOR 1.00 X 0 0 0 JAMES GAJEWSKI MD DIRECTOR 1.00 X 0 0 0 TRAVIS GEORGIEFF DIRECTOR 1.00 X 0 0 0 STEPHANIE HAMM DIRECTOR 1.00 X 0 0 0 MARY HOROWITZ MD DIRECTOR 1.00 X 0 0 0 ABE KADER DIRECTOR 1.00 X 0 0 0 MELANIE MARQUEZ DIRECTOR 1.00 X 0 0 0 PETER MILLER DIRECTOR 1.00 X 0 0 0 ERIE SAMPSON DIRECTOR 1.00 X 0 0 0 HETAL SONI DIRECTOR 1.00 X 0 0 0 SAIRA SUFI DIRECTOR 1.00 X 0 0 0 BRAD A WONG CEO 40.00 X 241144 0 20283 ALICE HOUK SENIOR DIRECTOR OF PATIENT AND HEALTH PROFESSIONAL 40.00 X 124387 0 16759 365531 0 37042 2 0 1 0 EAST-WEST TOWERS LLC 4350 EAST WEST HIGHWAY SUITE 500 BETHESDA MD 20814 RENTAL REAL ESTATE 186045 CALIBRE CPA GROUP PLLC 7501 WISCONSIN AVENUE SUITE 1200 WE BETHESDA MD 20814 PROFESSIONAL SERVICES 142380 2 338866 81314 2916740 11974 3336920 126602 126602 485410 489567 -4157 -4157 -4157 11750 338866 54157 -42407 -42407 3416958 0 0 80038 X 161374 161374 7652 7652 261428 204770 17352 39306 684467 536126 45436 102905 9395 7359 624 1412 60837 47652 4038 9147 63840 50004 4238 9598 14872 14872 602160 533103 44053 25004 99992 82127 9381 8484 94267 63681 22469 8117 189892 124567 47989 17336 172675 165673 4307 2695 32044 21020 8099 2925 20533 13469 5189 1875 BANK SERVICE FEES 10027 6577 2534 916 PROFESSIONAL DEVELOPMEN 771 506 195 70 2486226 2025660 230776 229790 2800593 259773 138032 2893129 686175 345615 18641 33078 54470 254116 170449 71514 83667 1420329 2538107 633615 1036248 5783336 7229650 69437 89525 282719 646000 352156 735525 X 4447451 5301759 983729 1192366 5431180 6494125 5783336 7229650 930732 132213 0 X X 0 1 X 1 0 X 2822261 4597596 3388728 3184514 3336920 17330019 2822261 4597596 3388728 3184514 3336920 17330019 6524357 10805662 47262 14363 51744 48543 126602 288514 17618533 0.61330 0.64890 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 254116 170449 83667 83667 SECURITY DEPOSITS 22927 CHARITABLE REMAINDER TRUST 398820 RIGHT-OF-USE ASSETS 614501 1036248 LEASE LIABILITIES 646000 646000 X 3604406 132213 15950 54157 202320 3402086 14872 14872 3416958 2541461 15950 54157 70107 2471354 14872 14872 2486226 PART X, LINE 2: FOR THE YEAR ENDED DECEMBER 31, 2023, THE FOUNDATION HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT EXPENSE FROM FUNDRAISING EVENTS REPORTED ON PART VIII LINE 8B 54,157. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRISING EXPENSES REPORTED ON PART VIII LINE 8B 54,157. X X X X 0 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC MARCH FOR MARROW 261330 249580 11750 146 7595 3082 823 18932 40TH ANNIVERSARY 71905 71905 358 5000 16943 1278 1 17381 17381 0 0 0 0 0 350616 338866 11750 504 12595 20025 823 20210 54157 -42407 1 NYU SCHOOL OF MEDICINE 550 1ST AVE NEW YORK NY 10016 135562309 501(C)(3) 30000 0 CHECK RESEARCH TRUSTEES OF UNIVERSITY OF PENNSYLVANIA 3900 WALNUT ST PHILADELPHIA PA 19104 231352685 501(C)(3) 30000 0 CHECK RESEARCH MEMORIAL SLOAN-KETTERING CANCER CENTER 1275 YORK AVENUE NEW YORK NY 10065 131924236 501(C)(3) 30000 0 CHECK RESEARCH ST JUDE CHILDREN'S RESEARCH HOSPITAL 501 ST JUDE PLACE MEMPHIS TN 38105 620646012 501(C)(3) 30000 0 CHECK RESEARCH 4 PNH GRANT 10 7652 CHECK PART I, LINE 2: AS WITH ALL OF OUR TWO-YEAR RESEARCH GRANTS, PROGRESS REPORTS ARE REQUIRED TO BE SUBMITTED AFTER THE FIRST YEAR AND A FINAL REPORT IS REQUIRED AT THE CONCLUSION OF THE SECOND YEAR. THESE REPORTS ARE REVIEWED AND APPROVED BY OUR MEDICAL ADVISORY BOARD. SECOND YEAR FUNDING IS CONTINGENT UPON SUBMISSION OF THE FIRST YEAR PROGRESS REPORT AND INDICATION OF FIRST YEAR PROGRESS IN MEETING THE OBJECTIVES OF THE STUDY. X X X X 0 0 0 0 0 0 0 0 0 BRAD A WONG CEO 241144 0 0 0 0 0 8833 0 11450 0 261427 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE FINANCE AND AUDIT COMMITTEES. A FINAL COPY OF THE FORM 990 WAS DISTRIBUTED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C BEFORE ANY CONTRACTS FOR THE PURCHASE OF GOODS OR SERVICES ARE AWARDED, MANAGEMENT AND STAFF REVIEW THEM FOR ANY POTENTIAL, PERCEIVED AND/OR REAL CONFLICTS OF INTEREST WITH RESPECT TO BOARD MEMBERS, KEY VOLUNTEERS OR STAFF. IN THE EVENT OF CONFLICT OF INTEREST, THE MATTER IS REFERRED TO THE EXECUTIVE COMMITTEE OF THE BOARD FOR DISCUSSION AND RESOLUTION. FORM 990, PART VI, SECTION B, LINE 15A THE CEO'S PERFORMANCE & COMPENSATION IS REVIEWED BY THE EXECUTIVE COMMITTEE USING COMPENSATION STUDIES PUBLISHED BY ASAE, BOARD SOURCE & OTHERS FOR COMPARATIVE DATA. THE CEO'S SALARY IS APPROVED BY THE EXECUTIVE COMMITTEE WHICH THEN INFORMS THE BOARD. THIS ENTIRE PROCESS IS DOCUMENTED. SALARIES OF ALL STAFF ARE REVIEWED ANNUALLY BY THE CEO USING COMPENSATION SURVEY DATA FOR COMPARABLE SIZE AND TYPE ORGANIZATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC IN PRINT AND/OR ELECTRONIC FORM UPON REQUEST, AT NO COST. FORM 990, PART IX, LINE 11G PROFESSIONAL AND CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 533,103. MANAGEMENT AND GENERAL EXPENSES 44,053. FUNDRAISING EXPENSES 25,004. TOTAL EXPENSES 602,160. FORM 990, PART XII, LINE 2C THE ORGANIZATION HAS NOT CHANGED EITHER ITS OVERSIGHT PROCESS OR SELECTION PROCESS DURING THE TAX YEAR REGARDING THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT.